From Child-Focused to Family-Centered: Caregiver Perspectives on Success in Autism Treatment

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Befi, M., Bemmel, V., Cook, I., Ikola, J., Schlueter, C., & Pfingston, B. (2026). From Child-Focused to Family-Centered: Caregiver Perspectives on Success in Autism Treatment. The Family Journal, 34(2), 364-379. https://doi.org/10.1177/10664807261420133

Publication date: 16 Feb 2026 Added to AutiHub: 25 Sep 2026 Type: Article Article language: English
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Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)
  1. Michelle Befi
  2. Vincent Bemmel
  3. Ian Cook
  1. Jennifer Ikola
  2. Courtney Schlueter
  3. Ben Pfingston *

Abstract

Autism treatment in the United States often centers on child behavior change, with caregivers viewed as adjunct rather than central. In contrast, this qualitative study examines caregiver perspectives at treatment entry, exploring how they conceptualize success and perceive barriers. We analyzed intake responses from 81 caregivers of autistic children across three developmental stages (<6, 6–11, 12–17 years) using a structured thematic analysis. Four core themes emerged, organized into two overarching themes: Understanding and Supporting the Autistic Child (Layers of Self; Help Them Thrive) and Empowering the Family System (We’re in This Too; Healing the System). Caregivers articulated layered goals spanning emotional regulation, social identity, autonomy, caregiving capacity, family wellbeing, and systemic navigation. Their perspectives challenge traditional child-only models by highlighting the reciprocity between child outcomes and family functioning. Findings underscore the suitability of Marriage and Family Therapists (MFTs) to lead holistic, family-centered autism care, bridging child and family priorities, tailoring support to caregiver readiness, and navigating systemic barriers. By centering caregiver voices within a systemic framework, this study offers a pathway toward more relationally responsive and sustainable autism interventions.

Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 11:55.

Cited references
99
With a DOI
92
Without a DOI, from raw bibliography text
7
7 / 99 (7.1%) cited references include at least one author identified as autistic.
References with data to complete
4 / 99 (4.0%)
References with detected author names
96 / 99 (97.0%)
Without detected author names
3
Without a structured title
4
Without a stable identifier
7
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
456
From DOI or external metadata
456
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
3
141 / 456 (30.9%) names are linked to an author already present in AutiHub. 315 / 456 (69.1%) names are not yet linked.
Names linked to a person identified as autistic
11 / 456 (2.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 11 / 141 (7.8%). Distinct people identified as autistic: 9 / 433 (2.1%).
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