The Family-Check-Up® Autism Implementation Research (FAIR) Study: protocol for a study evaluating the effectiveness and implementation of a family-centered intervention within a Canadian autism service setting

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Bennett, T., Drmic, I., Gross, J., Jambon, M., Kimber, M., Zaidman‐Zait, A., Andrews, K., Frei, J., Duku, E., Georgiades, S., Gonzalez, A., Janus, M., Lipman, E., Pires, P., Prime, H., Roncadin, C., Salt, M., & Shine, R. (2024). The Family-Check-Up® Autism Implementation Research (FAIR) Study: protocol for a study evaluating the effectiveness and implementation of a family-centered intervention within a Canadian autism service setting. Frontiers in Public Health, 11, 1309154-1309154. https://doi.org/10.3389/fpubh.2023.1309154

Journal or book title
Frontiers in Public Health
Publisher
Frontiers Media SA
Volume
11
Pages
1309154-1309154
Article number
1309154
Publication date: 16 Jan 2024 Added to AutiHub: 29 Sep 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
18
Publication authors identified as autistic
1 / 18 (5.6%)
  1. Teresa Bennett
  2. Irene Drmic
  3. Julie Gross
  4. Marc Jambon
  5. Melissa Kimber
  6. Anat Zaidman‐Zait
  1. K. Andrews
  2. Julia Frei
  3. Eric Duku
  4. Stelios Georgiades
  5. Andrea Gonzalez
  6. Magdalena Janus
  1. E. Lipman
  2. Paulo Pires
  3. Heather Prime
  4. Caroline Roncadin
  5. Mackenzie Salt *
  6. Rebecca Shine

Abstract

Introduction Prevalence rates of emotional and behavior problems (EBP) in autistic children and youth are high (40–70%), and often cause severe and chronic impairment. Furthermore, autistic children are also more likely to experience family “social-ecological” adversity compared to neurotypically developing peers, including social isolation, child maltreatment, caregiver mental illness, and socioeconomic risk. These family stressors increase the risk of co-occurring EBP among autistic children and can often impede access to evidence-based care, thus amplifying long-term health inequities for autistic children and their caregivers. In the current autism services landscape, there are few scalable, evidence-based programs that adequately address these needs. The Family Check-Up (FCU®) is a brief, strength-based, and tailored family-centered intervention that supports positive parenting and explicitly assesses the social determinants of child and family mental health within an ecological framework. Studies have demonstrated long-term positive child and caregiver outcomes in other populations, but the FCU® has not been evaluated in families of autistic children and youth. Therefore, we aimed to evaluate FCU® implementation within an established, publicly funded Autism Program in Ontario, Canada, with delivery by autism therapists, to demonstrate sustainable effectiveness within real-world settings. Methods In this study, we outline the protocol for a hybrid implementation-effectiveness approach with two key components: (1) A parallel-arm randomized controlled trial of N = 80 autistic children/youth (ages 6–17 years) and high levels of EBP and their caregivers. Primary and secondary outcomes include child EBP, and caregiver well-being and parenting. (2) A mixed methods implementation study, to describe facilitators and barriers to implementation of the FCU® within an autism service setting. Discussion Scalable, ecologically focused family-centered interventions offer promise as key components of a public health framework aimed at reducing mental health inequities among autistic children, youth, and their caregivers. Results of this study will inform further program refinement and scale-up.

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:01.

Cited references
93
With a DOI
76
Without a DOI, from raw bibliography text
16
2 / 93 (2.2%) cited references include at least one author identified as autistic.
References with data to complete
5 / 93 (5.4%)
References with detected author names
91 / 93 (97.8%)
Without detected author names
2
Without a structured title
5
Without a stable identifier
12
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
454
From DOI or external metadata
454
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
111 / 454 (24.4%) names are linked to an author already present in AutiHub. 343 / 454 (75.6%) names are not yet linked.
Names linked to a person identified as autistic
2 / 454 (0.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 111 (1.8%). Distinct people identified as autistic: 2 / 315 (0.6%).
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