Autism, Identity and Clinical Practice: Supporting Positive Identity Development in Neurodivergent Children and Young People

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Stark, E., Stacey, J., & Knight, M. T. (2025). Autism, Identity and Clinical Practice: Supporting Positive Identity Development in Neurodivergent Children and Young People. Neurodiversity, 3. https://doi.org/10.1177/27546330251370652

Publication date: 1 Aug 2025 Added to AutiHub: 16 Sep 2026 Type: Article Article language: English
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Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Eloise Stark *
  2. James Stacey
  3. Matthew TD Knight

Abstract

Purpose Developing a positive neurodivergent identity is increasingly recognised as crucial for individuals’ well-being. As part of service improvement, we completed a qualitative investigation of the experiences of clinicians in a Child and Adolescent Mental Health Service Neurodevelopmental Conditions team providing support for autistic children's developing positive neurodivergent identity. Methods Nine semi-structured interviews with clinicians were held to explore their experiences of supporting children and young people's positive identity development. Interpretative Phenomenological Analysis was used to explore and understand clinicians’ experiences. Results Four superordinate themes were identified: (1) A flexible neuroaffirmative concept of positive autistic identity; (2) Being honest and balanced: acknowledging challenges for young autistic people; (3) Developing an identity through relationships with others; and (4) Professional vulnerability in navigating neurodivergent identities: The importance of self-reflexivity. Conclusion In line with our theoretical understanding of identity development, the child's network and environment was seen as crucial for their developing identity. In line with research into assimilating an identity as part of a neurominority, a flexible but neuroaffirmative approach was seen as vital. Novel clinical experiences included the need for staff support and reflective spaces to consider their own relationship to neurodiversity. Lay Abstract Research shows that viewing yourself positively (your identity) helps neurodivergent people to have better well-being overall. We wanted to understand what the professionals working with children and teenagers in an NHS child and adolescent mental health service think about supporting young autistic people to think positively about their identity as neurodivergent people, so that we could learn about what is helpful and what is challenging. We interviewed nine people from different professions (such as doctors, psychologists and social workers) who worked in a team for autistic children and teenagers, asking the professionals about their experience of supporting the children and teenagers to develop positive beliefs about being autistic. We analysed the interviews using a method that helps us understand different people's experiences. We found four main themes in the interviews: (1) Understanding and explaining autism and neurodivergence in flexible, positive ways; (2) Understanding how challenging it can be to grow up as an autistic young person; (3) Understanding the different people in a child's life who influence how they see themselves; and (4) Professionals needing to have time and support to think about their own relationship to neurodiversity. Our findings fit with theories that explain how identity develops in childhood, with people around each child being important influences on how they see themselves. The findings fit with a need to hold positive views about autism and neurodivergence in society and in healthcare. We also found that staff may need more support and professional spaces to think about their own identity and relationship to neurodiversity.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 20 Sep 2026 01:01.

Cited references
50
With a DOI
41
Without a DOI, from raw bibliography text
8
18 / 50 (36.0%) cited references include at least one author identified as autistic.
References with data to complete
3 / 50 (6.0%)
References with detected author names
47 / 50 (94.0%)
Without detected author names
3
Without a structured title
2
Without a stable identifier
8
References with raw author names still to review
2
References with external metadata lookup issues
2
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
173
From DOI or external metadata
173
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
2
122 / 173 (70.5%) names are linked to an author already present in AutiHub. 51 / 173 (29.5%) names are not yet linked.
Names linked to a person identified as autistic
33 / 173 (19.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 33 / 122 (27.0%). Distinct people identified as autistic: 20 / 139 (14.4%).
  1. Michael Larkin (2012). Qualitative research methods in mental health and psychotherapy: a guide for students and practitioners . Choice Reviews Online, 49(05), 49-2986-49-2986. American Library Association.
    Type: Article DOI: 10.5860/choice.49-2986 OpenAlex: https://openalex.org/W110605371
    Crossref OpenAlex
  2. Natalie Elizabeth Anderson , Julia Slark , Merryn Gott (2019). Unlocking intuition and expertise: using interpretative phenomenological analysis to explore clinical decision making . Journal of Research in Nursing, 24(1-2), 88-101. SAGE Publications.
    Type: Article DOI: 10.1177/1744987118809528 OpenAlex: https://openalex.org/W2921402055
    Crossref OpenAlex OpenCitations
  3. Ann Memmott * (2024). Something needs to change . In Improving mental health therapies for autistic children and young people (pp. 19-32). Routledge.
    Type: Book chapter DOI: 10.4324/9781003352327-4 OpenAlex: https://openalex.org/W4403065018
    Crossref OpenAlex OpenCitations
  4. William G. Austin , Stephen Worchel (1979). The Social psychology of intergroup relations .
    Type: Book OpenAlex: https://openalex.org/W386986494
    OpenAlex
  7. Jonathan Smith (2008). Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology . BIROn (Birkbeck, University of London), 1(1), 39-54.
    Type: Article DOI: 10.1191/1478088704qp004oa OpenAlex: https://openalex.org/W1480074367
    OpenAlex
  8. Sarah-Jayne Blakemore , Kathryn L. Mills (2014). Is Adolescence a Sensitive Period for Sociocultural Processing? Annual Review of Psychology, 65(1), 187-207. Annual Reviews.
    Type: Article DOI: 10.1146/annurev-psych-010213-115202 OpenAlex: https://openalex.org/W2103167256
    Crossref OpenAlex OpenCitations
  9. Steven K. Kapp * , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  10. James Briggs (2010). Interpretative Phenomenological Analysis: Theory, Method and Research . QMiP Bulletin, 1(10), 44-46. British Psychological Society.
    Type: Article DOI: 10.53841/bpsqmip.2010.1.10.44 OpenAlex: https://openalex.org/W1607118314
    OpenAlex
  13. GIANFRANCO CECCHIN (1987). Hypothesizing, Circularity, and Neutrality Revisited: An Invitation to Curiosity . Family Process, 26(4), 405-413. Wiley.
    Type: Article DOI: 10.1111/j.1545-5300.1987.00405.x OpenAlex: https://openalex.org/W1964855757
    Crossref OpenAlex OpenCitations
  15. Suparna Choudhury (2010). Culturing the adolescent brain: what can neuroscience learn from anthropology? Social Cognitive and Affective Neuroscience, 5(2-3), 159-167. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/scan/nsp030 OpenAlex: https://openalex.org/W2127958645
    Crossref OpenAlex OpenCitations
  19. John F. Strang , Lauren Kenworthy , Peter Daniolos , Laura Case , Meagan C. Wills , Alex Martin et al. (2012). Depression and anxiety symptoms in children and adolescents with autism spectrum disorders without intellectual disability . Research in Autism Spectrum Disorders, 6(1), 406-412. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2011.06.015 OpenAlex: https://openalex.org/W1991589853
    Crossref OpenAlex OpenCitations
  22. Ronald C. Kessler , Patricia Berglund , Olga Demler , Robert Jin , Kathleen R. Merikangas , Ellen E. Walters (2005). Lifetime Prevalence and Age-of-Onset Distributions of DSM-IV Disorders in the National Comorbidity Survey Replication . Archives of General Psychiatry, 62(6), 593. American Medical Association (AMA).
    Type: Article DOI: 10.1001/archpsyc.62.6.593 OpenAlex: https://openalex.org/W2118826874
    Crossref OpenAlex OpenCitations
  24. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of Autism Acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473-484. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3342-7 OpenAlex: https://openalex.org/W2766434912
    Crossref OpenAlex OpenCitations
  25. Kate Cooper , Laura G. E. Smith , A. Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649
    Crossref OpenAlex OpenCitations
  26. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071
    Crossref OpenAlex OpenCitations
  29. Raul Miranda‐Ojeda , Anuksha Wickramasinghe , Georgios Ntolkeras , Isabel Castanho , Walid Yassin (2025). The Neurodiversity Framework in Medicine: On the Spectrum . Developmental Neurobiology, 85(1), e22960-e22960. Wiley.
    Type: Article DOI: 10.1002/dneu.22960 OpenAlex: https://openalex.org/W4406897434
    Crossref OpenAlex OpenCitations
  30. Emma Pritchard-Rowe , Jenny Gibson (2024). Professionals’ perspectives on neurodiversity-affirmative autism diagnostic assessment . Neurodiversity, 2. SAGE Publications.
    Type: Article DOI: 10.1177/27546330241274674 OpenAlex: https://openalex.org/W4402883098
    Crossref OpenAlex OpenCitations
  31. Harter S. (1999). Construction of the Self: A Developmental Perspective . Construction of the Self: A Developmental Perspective.
    Type: Other
    Crossref
  32. Mariko Hosozawa , Amanda Sacker , Will Mandy , Emily Midouhas , Eirini Flouri , Noriko Cable (2020). Determinants of an autism spectrum disorder diagnosis in childhood and adolescence: Evidence from the UK Millennium Cohort Study . Autism, 24(6), 1557-1565. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320913671 OpenAlex: https://openalex.org/W3021296883
    Crossref OpenAlex OpenCitations
  33. Institute for Healthcare Improvement. (2020). Science of Improvement: Establishing measures. https://www.ihi.org/resources/how-to-improve/model-for-improvement-establishing-measures#:∼:text=Three%20Types%20of%20Measures %2C%20process%2C%20and%20balancing%20measures
    Type: Other
    Crossref
  34. Renske van der Cruijsen , Bianca E Boyer (2021). Explicit and implicit self-esteem in youth with autism spectrum disorders . Autism, 25(2), 349-360. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320961006 OpenAlex: https://openalex.org/W3093032662
    Crossref OpenAlex OpenCitations
  36. Georgia Pavlopoulou (2020). A Good Night’s Sleep: Learning About Sleep From Autistic Adolescents’ Personal Accounts . Frontiers in Psychology, 11(2020), 583868. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2020.583868 OpenAlex: https://openalex.org/W3115088354
    Crossref OpenAlex
  37. Michele Kilmer , Minju Hong , Emily Shah (2023). Relationship between caregiver adverse childhood events and age of autism spectrum diagnosis . Journal of Pediatric Nursing, 73, e266-e272. Elsevier BV.
    Type: Article DOI: 10.1016/j.pedn.2023.09.020 OpenAlex: https://openalex.org/W4387311483
    Crossref OpenAlex OpenCitations
  38. Rosemarie B. Wilson , Andrew R. Thompson , Georgina Rowse , Megan Freeth (2023). The experience of seeking, receiving, and reflecting upon a diagnosis of autism in the UK: A meta-synthesis of qualitative studies conducted with autistic individuals . Research in Autism Spectrum Disorders, 103, 102135. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2023.102135 OpenAlex: https://openalex.org/W4323923058
    Crossref OpenAlex OpenCitations
  39. (1999). The construction of the self: a developmental perspective . Choice Reviews Online, 37(02), 37-1226-37-1226. American Library Association.
    Type: Article DOI: 10.5860/choice.37-1226 OpenAlex: https://openalex.org/W4247080759
    OpenAlex
  41. Andy V. Pham , Lesline C. Charles (2023). Racial disparities in autism diagnosis, assessment, and intervention among minoritized youth: sociocultural issues, factors, and context . Current Psychiatry Reports, 25(5), 201. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-023-01417-9 OpenAlex: https://openalex.org/W4362506882
    Crossref OpenAlex OpenCitations
  42. Goldie A. McQuaid , Allison B. Ratto , Allison Jack , Alexis Khuu , Jessica V Smith , Sean C Duane et al. (2024). Gender, assigned sex at birth, and gender diversity: Windows into diagnostic timing disparities in autism . Autism, 28(11), 2806-2820. SAGE Publications.
    Type: Article DOI: 10.1177/13623613241243117 OpenAlex: https://openalex.org/W4394578709
    Crossref OpenAlex OpenCitations
  43. Samantha Brooks (2008). Qualitative Psychology: A Practical Guide to Research Methods . QMiP Bulletin, 1(6), 47-49. British Psychological Society.
    Type: Article DOI: 10.53841/bpsqmip.2008.1.6.47 OpenAlex: https://openalex.org/W4315817451
    OpenAlex
  44. Ministry of Housing Communities and Local Government. (2019). The English Indices of Deprivation 2019(Research Report No. 2019). https://www.gov.uk/government/statistics/english-indices-of-deprivation-2019
    Type: Other
    Crossref
  45. Office for National Statistics (2022). Population and household estimates . Population and household estimates.
    Type: Other
    Crossref
  46. Elaine McGreevy , Alexis Quinn * , Roslyn Law , Monique Botha * , Mairi Evans , Kieran Rose * et al. (2023). An experience sensitive approach to care with and for autistic children and young people in clinical services . Journal of Humanistic Psychology. Center for Open Science.
    Type: Preprint DOI: 10.31219/osf.io/r24wk OpenAlex: https://openalex.org/W4388302817
    OpenAlex
  47. Smith J. A. (2004). Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology . Qualitative Research In Psychology, 1(1), 39.
    Type: Other
    Crossref
  48. Smith J. A. (2009). Interpretative phenomenological analysis: Theory, method and research . Interpretative phenomenological analysis: Theory, method and research.
    Type: Other
    Crossref
  49. Tajfel H. (1979). The social psychology of intergroup relations . The social psychology of intergroup relations, 33.
    Type: Other
    Crossref
  50. Yardley L. (2007). Qualitative psychology: A practical guide to research methods . Qualitative psychology: A practical guide to research methods, 235.
    Type: Other
    Crossref