Questionnaires utilisés dans les évaluations d'interventions relatives aux traumatismes complexes et examen de leur utilité pour les adultes autistes présentant une déficience intellectuelle légère : une revue systématique

Titre original en anglais : Questionnaires used in complex trauma intervention evaluations and consideration of their utility for autistic adults with mild intellectual disability: A systematic review

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Wigham, S., McKinnon, I., Reid, K., Milton, D., Lingam, R., & Rodgers, J. (2021). Questionnaires used in complex trauma intervention evaluations and consideration of their utility for autistic adults with mild intellectual disability: A systematic review. Research in Developmental Disabilities, 117, 104039. https://doi.org/10.1016/j.ridd.2021.104039

Date de publication: 24/07/2021 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Sarah Wigham
  2. Iain McKinnon
  3. Keith Reid
  1. Damian Milton *
  2. Ravi Lingam
  3. Jacqui Rodgers

Résumé

INTRODUCTION : La recherche suggère que certains symptômes traumatiques, par exemple l'évitement, sont difficiles à reconnaître chez les personnes autistes présentant une déficience intellectuelle, tandis que les difficultés d'activation émotionnelle et interpersonnelles peuvent constituer des signaux utiles. Cette revue vise à (i) identifier les questionnaires utilisés dans les interventions relatives aux traumatismes complexes au sein de la population générale afin de mesurer les difficultés émotionnelles et interpersonnelles et (ii) évaluer leurs propriétés psychométriques afin d'éclairer la sélection d'une ou plusieurs mesure(s) potentielle(s) à utiliser et/ou à adapter pour les personnes autistes présentant une déficience intellectuelle légère et des troubles de santé mentale liés aux traumatismes. MÉTHODES : Étape 1 : nous avons recherché dans Medline, Cinahl, Embase et PsycInfo des études d'intervention relatives aux traumatismes complexes dans la population générale et en contexte clinique. Étape 2 : nous avons utilisé un filtre de recherche dans Embase afin d'identifier les évaluations psychométriques des questionnaires pertinents utilisés dans les études de l'étape 1 et les avons évaluées à l'aide de la liste de contrôle COnsensus based Standards for the selection of health based Measurement Instruments (COSMIN). RÉSULTATS : cinq études ont été identifiées à l'étape 1, utilisant trois mesures de la dysrégulation émotionnelle et des difficultés interpersonnelles. Trente-trois articles sur leurs propriétés psychométriques ont été identifiés à l'étape 2. Les données psychométriques les plus solides ont été trouvées pour l'Emotion Regulation Questionnaire (ERQ) et la Difficulties in Emotion Regulation Scale (DERS). CONCLUSIONS : L'évaluation de la validité de contenu et de l'acceptabilité de l'ERQ et de la DERS pour les personnes autistes présentant une déficience intellectuelle légère et des troubles de santé mentale liés aux traumatismes constitue une prochaine étape utile.

INTRODUCTION: Research suggests some trauma symptoms e.g. avoidance are difficult to recognise in autistic people with intellectual disability while arousal/emotional and interpersonal difficulties may be useful signals. This review aims to (i) identify questionnaires used in general population complex trauma interventions to measure emotional and interpersonal difficulty and (ii) evaluate their psychometric properties to inform selection of a potential measure/s for use and/or adaptation for autistic people with mild intellectual disability and trauma related mental health conditions. METHODS: Stage 1: we searched Medline, Cinahl, Embase and PsycInfo for general population and clinical complex trauma intervention studies. Stage 2: we used a search filter in Embase to identify psychometric evaluations of relevant questionnaires used in Stage 1 studies and assessed these with the COnsensus based Standards for the selection of health based Measurement Instruments (COSMIN) checklist. RESULTS: five studies were identified in Stage 1 utilising three measures of emotion dysregulation and interpersonal difficulties. Thirty-three articles on their psychometric properties were identified in Stage 2. Strongest psychometric evidence was found for the Emotion Regulation Questionnaire (ERQ) and Difficulties in Emotion Regulation Scale (DERS). CONCLUSIONS: Evaluating content validity/acceptability of the ERQ and DERS for autistic people with mild intellectual disability and trauma-related mental health conditions are useful next steps.

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Références citées
72
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 72 (4,2 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
3 / 302 (1,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 3 / 25 (12,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 2 / 277 (0,7 %).
Occurrences citées rattachées à la base AutiHub
25 / 302 (8,3 %)
Auteurices cité·es distinct·es rattaché·es : 22 / 277 (7,9 %)
Occurrences rattachées, non identifiées comme autistes
22 / 25 (88,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 22 / 302 (7,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 20 / 22 (90,9 %).
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