Soutien par les pairs fourni par des personnes présentant des déficiences intellectuelles et développementales : une revue exploratoire rapide visant à élaborer une boîte à outils pour la recherche inclusive

Titre original en anglais : Peer Support Provided by People with Intellectual and Developmental Disabilities: A Rapid Scoping Review to Develop a Toolkit for Inclusive Research

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Pfeiffer, E., Hallock, T., Tomczuk, L. D., & Kramer, J. (2024). Peer Support Provided by People with Intellectual and Developmental Disabilities: A Rapid Scoping Review to Develop a Toolkit for Inclusive Research. Social Sciences, 13(1), 47. https://doi.org/10.3390/socsci13010047

Date de publication: 11/01/2024 Ajout dans AutiHub: 27/10/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Elizabeth Pfeiffer
  2. Taye Hallock
  3. Luke D. Tomczuk *
  4. Jessica Kramer

Résumé

Les équipes de recherche inclusive impliquent activement des personnes présentant des déficiences intellectuelles et développementales à toutes les étapes de l'élaboration, de la mise en oeuvre et de la diffusion de la recherche. Il existe peu de recherches portant spécifiquement sur l'utilisation du soutien par les pairs dans l'engagement dans la recherche ; toutefois, la recherche utilisant le soutien par les pairs peut fournir un cadre utile pour l'engagement au sein d'équipes de recherche inclusive. Une revue exploratoire rapide a été réalisée conformément aux lignes directrices de déclaration PRISMA-SCR. La revue exploratoire a identifié cinq rôles de soutien par les pairs (communication, partage d'expériences, aide aux pairs pour apprendre, développement des pairs et création d'un environnement accueillant) ainsi que deux types de soutien et d'aménagement pour les pairs soutenants (individuel et environnemental). Les résultats de la revue exploratoire rapide ont contribué à l'élaboration de sections clés d'une boîte à outils de soutien par les pairs afin d'aider les personnes présentant des déficiences intellectuelles et développementales à s'engager dans la recherche, dans le but de créer des équipes de recherche plus inclusives et une recherche directement éclairée par les besoins des personnes ayant une expérience vécue. La revue exploratoire et la boîte à outils ont été réalisées par une équipe inclusive.

Inclusive research teams actively engage people with intellectual and developmental disabilities at all stages of research development, implementation, and dissemination. There is a dearth of research that specifically addresses the use of peer support in research engagement, yet research using peer support may provide a useful framework for engagement in inclusive research teams. A rapid scoping review was completed following the reporting guidelines for PRISMA-SCR. The scoping review identified five peer support roles (communication, sharing experiences, helping peers to learn, peer development, and creating a welcoming environment) and two types of support and accommodation for peer supporters (individual and environmental). The findings of the rapid scoping review aided in developing key sections of a Peer Support Toolkit to help people with intellectual and developmental disabilities engage in research to create more inclusive research teams and research that is informed directly by the needs of people with lived experience. The scoping review and toolkit were completed by an inclusive team.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

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Références citées
67
Avec un DOI
54
Sans DOI, à partir du texte brut de la bibliographie
13
3 / 67 (4,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
11 / 67 (16,4 %)
Références avec noms d’auteurices détectés
59 / 67 (88,1 %)
Sans nom d’auteurice détecté
8
Sans titre structuré
11
Sans identifiant stable
12
Références avec noms bruts d’auteurices restant à vérifier
11
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
287
À partir du DOI ou de métadonnées externes
280
À partir du texte brut validé de la bibliographie
7
Noms bruts déjà validés
7
Noms bruts restant à vérifier
13
41 / 287 (14,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 246 / 287 (85,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
3 / 287 (1,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 3 / 41 (7,3 %). Personnes distinctes identifiées comme autistes : 3 / 262 (1,1 %).
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