Peer Support Provided by People with Intellectual and Developmental Disabilities: A Rapid Scoping Review to Develop a Toolkit for Inclusive Research

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Pfeiffer, E., Hallock, T., Tomczuk, L. D., & Kramer, J. (2024). Peer Support Provided by People with Intellectual and Developmental Disabilities: A Rapid Scoping Review to Develop a Toolkit for Inclusive Research. Social Sciences, 13(1), 47. https://doi.org/10.3390/socsci13010047

Publication date: 11 Jan 2024 Added to AutiHub: 27 Oct 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)
  1. Elizabeth Pfeiffer
  2. Taye Hallock
  3. Luke D. Tomczuk *
  4. Jessica Kramer

Abstract

Inclusive research teams actively engage people with intellectual and developmental disabilities at all stages of research development, implementation, and dissemination. There is a dearth of research that specifically addresses the use of peer support in research engagement, yet research using peer support may provide a useful framework for engagement in inclusive research teams. A rapid scoping review was completed following the reporting guidelines for PRISMA-SCR. The scoping review identified five peer support roles (communication, sharing experiences, helping peers to learn, peer development, and creating a welcoming environment) and two types of support and accommodation for peer supporters (individual and environmental). The findings of the rapid scoping review aided in developing key sections of a Peer Support Toolkit to help people with intellectual and developmental disabilities engage in research to create more inclusive research teams and research that is informed directly by the needs of people with lived experience. The scoping review and toolkit were completed by an inclusive team.

Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 27 Oct 2026 06:41.

Cited references
67
With a DOI
54
Without a DOI, from raw bibliography text
13
3 / 67 (4.5%) cited references include at least one author identified as autistic.
References with data to complete
11 / 67 (16.4%)
References with detected author names
59 / 67 (88.1%)
Without detected author names
8
Without a structured title
11
Without a stable identifier
12
References with raw author names still to review
11
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
287
From DOI or external metadata
280
From validated raw bibliography text
7
Raw names already validated
7
Raw names still to review
13
41 / 287 (14.3%) names are linked to an author already present in AutiHub. 246 / 287 (85.7%) names are not yet linked.
Names linked to a person identified as autistic
3 / 287 (1.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 3 / 41 (7.3%). Distinct people identified as autistic: 3 / 262 (1.1%).
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