"Show-and-tell": an evaluation of working in partnership with autistic adults as an early career researcher exploring suicide theory

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Pelton, M., Adams, J., Crawford, H., Bul, K., Robertson, A., Rodgers, J., & Cassidy, S. (2024). "Show-and-tell": an evaluation of working in partnership with autistic adults as an early career researcher exploring suicide theory [Preprint]. Center for Open Science. https://doi.org/10.31234/osf.io/4f3vt

Publication date: 24 Jan 2024 Added to AutiHub: 4 Jul 2026 Type: Preprint Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
7
Publication authors identified as autistic
1 / 7 (14.3%)
  1. Mirabel Pelton
  2. Jonathan Adams *
  3. Hayley Crawford
  4. Kim Bul
  1. Ashley Robertson
  2. Jacqui Rodgers
  3. Sarah Cassidy

Abstract

Research to improve our understanding of mental health and suicidal thoughts and behaviours typically excludes the voices of autistic people and there is an absence of transparent reporting and critical evaluation of participatory processes in autism research. We used the Public Involvement Impact Assessment Framework (PiiAF) and GRIPP2 reporting guidelines to describe and evaluate participatory activities (i.e., an advisory group, Twitter (X), a creative community-based project and volunteers’ database) undertaken within a programme of doctoral study to explore suicide theory with autistic people. Participation defined study focus, co-designed accessible methods and meaningful interpretation of results. For researcher and collaborators, benefits included personal connections and fulfilment, improved confidence and knowledge. Most impacts resulted from the advisory group, which benefitted from supervisor experience, established methods and monitoring feedback. Early career challenges included time, funding and trust-building. Future research could more clearly state a theoretical position and proposed outputs of participation at the start of the research. Researchers should continue to develop and share good practice in working in partnership with autistic people.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
55
With a DOI
50
Without a DOI, from raw bibliography text
0
21 / 55 (38.2%) cited references include at least one author identified as autistic.
References with data to complete
1 / 55 (1.8%)
References with detected author names
54 / 55 (98.2%)
Without detected author names
1
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
346
From DOI or external metadata
346
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
218 / 346 (63.0%) names are linked to an author already present in AutiHub. 128 / 346 (37.0%) names are not yet linked.
Names linked to a person identified as autistic
51 / 346 (14.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 51 / 218 (23.4%). Distinct people identified as autistic: 33 / 263 (12.5%).
  1. B. A. Nosek , G. Alter , G. C. Banks , D. Borsboom , S. D. Bowman , S. J. Breckler et al. (2015). Promoting an open research culture . Science, 348(6242), 1422-1425. American Association for the Advancement of Science (AAAS).
    Type: Article DOI: 10.1126/science.aab2374 OpenAlex: https://openalex.org/W1767470961
    OpenAlex
  3. Tim Cadman , Hanna Eklund , Deirdre Howley , Hannah Hayward , Hanna Clarke , James Findon et al. (2012). Caregiver Burden as People With Autism Spectrum Disorder and Attention-Deficit/Hyperactivity Disorder Transition into Adolescence and Adulthood in the United Kingdom . Journal of the American Academy of Child & Adolescent Psychiatry, 51(9), 879-888. Elsevier BV.
    Type: Article DOI: 10.1016/j.jaac.2012.06.017 OpenAlex: https://openalex.org/W2010533293
    OpenAlex
  4. Nathan D. Shippee , Juan Pablo Domecq Garces , Gabriela J. Prutsky Lopez , Zhen Wang , Tarig A. Elraiyah , Mohammed Nabhan et al. (2015). Patient and service user engagement in research: a systematic review and synthesized framework . Health Expectations, 18(5), 1151-1166. Wiley.
    Type: Article DOI: 10.1111/hex.12090 OpenAlex: https://openalex.org/W2028994146
    OpenAlex
  5. Jian-Jun Ou , Li-Juan Shi , Guang-Lei Xun , Chen Chen , Ren-Rong Wu , Xue-Rong Luo et al. (2015). Employment and financial burden of families with preschool children diagnosed with autism spectrum disorders in urban China: results from a descriptive study . BMC Psychiatry, 15(1), 3-3. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12888-015-0382-4 OpenAlex: https://openalex.org/W2095677812
    OpenAlex
  8. Richard Lakeman , Mary FitzGerald (2009). The Ethics of Suicide Research . Crisis, 30(1), 13-19. Hogrefe Publishing Group.
    Type: Article DOI: 10.1027/0227-5910.30.1.13 OpenAlex: https://openalex.org/W2118179678
    OpenAlex
  9. Penelope Hasking , Clare S. Rees , Graham Martin , Jessie Quigley (2015). What happens when you tell someone you self-injure? The effects of disclosing NSSI to adults and peers . BMC Public Health, 15(1), 1039-1039. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12889-015-2383-0 OpenAlex: https://openalex.org/W2153010187
    OpenAlex
  10. Damian Milton * , Michael Bracher (2013). Autistics speak but are they heard? Med Sociol online, 7(2), 61.
    Type: Article OpenAlex: https://openalex.org/W2337764906
    OpenAlex
  11. Marcus R. Munafò , Brian A. Nosek , Dorothy V. M. Bishop , Katherine S. Button , Christopher D. Chambers , Nathalie Percie du Sert et al. (2017). A manifesto for reproducible science . Nature Human Behaviour, 1(1), 0021. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41562-016-0021 OpenAlex: https://openalex.org/W2570760970
    OpenAlex
  13. Sarah Cassidy , Jacqui Rodgers (2017). Understanding and prevention of suicide in autism . The Lancet Psychiatry, 4(6), e11. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(17)30162-1 OpenAlex: https://openalex.org/W2617666343
    OpenAlex
  14. Sophie Staniszewska , Jo Brett , Iveta Simera , Kate Seers , Carole Mockford , Susan Goodlad et al. (2017). GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research . Research Involvement and Engagement, 3(1), 13-13. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s40900-017-0062-2 OpenAlex: https://openalex.org/W2739751169
    OpenAlex
  15. Amy Price , Loai Albarqouni , Jo Kirkpatrick , Mike Clarke , Su May Liew , Nia Roberts et al. (2018). Patient and public involvement in the design of clinical trials: An overview of systematic reviews . Journal of Evaluation in Clinical Practice, 24(1), 240-253. Wiley.
    Type: Article DOI: 10.1111/jep.12805 OpenAlex: https://openalex.org/W2766144316
    OpenAlex
  16. Sarah Cassidy , Louise Bradley , E. Bowen , Sarah Wigham , Jacqui Rodgers (2018). Measurement properties of tools used to assess suicidality in autistic and general population adults: A systematic review . Clinical Psychology Review, 62, 56-70. Elsevier BV.
    Type: Article DOI: 10.1016/j.cpr.2018.05.002 OpenAlex: https://openalex.org/W2800246475
    OpenAlex
  17. Michele Kok (2018). Guidance document: Evaluating public involvement in research . UWE Research Repository (UWE Bristol).
    Type: Article OpenAlex: https://openalex.org/W2803415475
    OpenAlex
  19. Sophie Staniszewska , Simon Denegri , Rachel Matthews , Virginia Minogue (2018). Reviewing progress in public involvement in NIHR research: developing and implementing a new vision for the future . BMJ Open, 8(7), e017124. BMJ.
    Type: Article DOI: 10.1136/bmjopen-2017-017124 OpenAlex: https://openalex.org/W2808839194
    OpenAlex
  20. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-018-0226-4 OpenAlex: https://openalex.org/W2887488849
    OpenAlex
  22. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2019). Understanding, attitudes and dehumanisation towards autistic people . Autism, 23(6), 1373-1383. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318811290 OpenAlex: https://openalex.org/W2901663576
    OpenAlex
  23. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318816053 OpenAlex: https://openalex.org/W2902777586
    OpenAlex
  25. Stephen P. Lewis , Penelope Hasking (2019). Putting the “Self” in Self-Injury Research: Inclusion of People With Lived Experience in the Research Process . Psychiatric Services, 70(11), 1058-1060. American Psychiatric Association Publishing.
    Type: Article DOI: 10.1176/appi.ps.201800488 OpenAlex: https://openalex.org/W2962822706
    OpenAlex
  26. Katherine Valencia , Cristian Rusu , Daniela Quiñones , Erick Jamet (2019). The Impact of Technology on People with Autism Spectrum Disorder: A Systematic Literature Review . Sensors, 19(20), 4485. MDPI AG.
    Type: Article DOI: 10.3390/s19204485 OpenAlex: https://openalex.org/W2980537173
    OpenAlex
  27. Emma Gowen , Rachel Taylor , Thomas Bleazard , Anat Greenstein , Peter Baimbridge * , Daniel Poole (2019). Guidelines for conducting research studies with the autism community . Autism Policy Pract., 2(1), 29.
    Type: Article OpenAlex: https://openalex.org/W2987130266
    OpenAlex
  29. Mirabel Pelton , Hayley Crawford , Ashley Robertson , Jacqui Rodgers , Simon Baron-Cohen , Sarah Cassidy (2020). Understanding Suicide Risk in Autistic Adults: Comparing the Interpersonal Theory of Suicide in Autistic and Non-autistic Samples . Journal of Autism and Developmental Disorders, 50(10), 3620-3637. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04393-8 OpenAlex: https://openalex.org/W3010260927
    OpenAlex
  30. Mirabel Pelton , Hayley Crawford , Ashley Robertson , Jacqui Rodgers , Simon Baron-Cohen , Sarah Cassidy (2020). A Measurement Invariance Analysis of the Interpersonal Needs Questionnaire and Acquired Capability for Suicide Scale in Autistic and Non-Autistic Adults . Autism adulthood, 2(3), 193. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.0055 OpenAlex: https://openalex.org/W3010926825
    OpenAlex
  31. Ellen Townsend , Emma Nielsen * , Rosie Allister , Sarah Cassidy (2020). Key ethical questions for research during the COVID-19 pandemic . The Lancet Psychiatry, 7(5), 381-383. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(20)30150-4 OpenAlex: https://openalex.org/W3020257121
    OpenAlex
  32. M. Ariel Cascio , Jonathan Weiss , Éric Racine (2021). Making Autism Research Inclusive by Attending to Intersectionality: a Review of the Research Ethics Literature . Review Journal of Autism and Developmental Disorders, 8(1), 22-36. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00204-z OpenAlex: https://openalex.org/W3025970378
    OpenAlex
  33. Thomas Niederkrotenthaler , David Gunnell , Ella Arensman , Jane Pirkis , Louis Appleby , Keith Hawton et al. (2020). Suicide Research, Prevention, and COVID-19 . Crisis, 41(5), 321-330. Hogrefe Publishing Group.
    Type: Article DOI: 10.1027/0227-5910/a000731 OpenAlex: https://openalex.org/W3045745807
    OpenAlex
  34. Sarah Cassidy , Ashley Robertson , Ellen Townsend , Rory C. O’Connor , Jacqui Rodgers (2020). Advancing Our Understanding of Self-harm, Suicidal Thoughts and Behaviours in Autism . Journal of Autism and Developmental Disorders, 50(10), 3445-3449. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04643-9 OpenAlex: https://openalex.org/W3046493927
    OpenAlex
  36. David Watling , Megan Preece , Jacinta Hawgood , Sharyn Bloomfield , Kairi Kõlves (2022). Developing an Intervention for Suicide Prevention: A Rapid Review of Lived Experience Involvement . Archives of Suicide Research, 26(2), 465-480. Informa UK Limited.
    Type: Article DOI: 10.1080/13811118.2020.1833799 OpenAlex: https://openalex.org/W3093175329
    OpenAlex
  37. Anna Sverdlik , Nathan C. Hall , Lynn McAlpine (2020). PhD Imposter Syndrome: Exploring Antecedents, Consequences, and Implications for Doctoral Well-Being . International Journal of Doctoral Studies, 15, 737-758. Informing Science Institute.
    Type: Article DOI: 10.28945/4670 OpenAlex: https://openalex.org/W3117816418
    OpenAlex
  41. Connor Tom Keating (2021). Participatory Autism Research: How Consultation Benefits Everyone . Frontiers in Psychology, 12, 713982. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.713982 OpenAlex: https://openalex.org/W3193937630
    OpenAlex
  42. Sarah Cassidy , Heather Cogger-Ward , Ashley Robertson , Jane Goodwin , Jacqui Rodgers (2021). Autism Community Priorities for Suicide Prevention: An International Society for Autism Research Policy Brief . ENLIGHTEN (Jurnal Bimbingan dan Konseling Islam).
    Type: Article OpenAlex: https://openalex.org/W3201736154
    OpenAlex
  48. (2022). Empirical Research at a Distance: New Methods for Developmental Science . Frontiers Media SA.
    Type: Book DOI: 10.3389/978-2-88976-382-5 OpenAlex: https://openalex.org/W4285145550
    OpenAlex
  49. Sandra Hodgetts (2023). Reflections on my experiences as a non-autistic autism researcher . Autism, 27(1), 259-261. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221121432 OpenAlex: https://openalex.org/W4294368537
    OpenAlex
  52. Anne Wettergren Karlsson , Astrid Janssens (2023). Patient and public involvement and engagement (PPIE) in healthcare education and thesis work: the first step towards PPIE knowledgeable healthcare professionals . BMJ Open, 13(1), e067588. BMJ.
    Type: Article DOI: 10.1136/bmjopen-2022-067588 OpenAlex: https://openalex.org/W4313557499
    OpenAlex
  55. Lakeman, R (15525245) , Fitzgerald, MA (15495140) (2009). The ethics of suicide research: The views of ethics committee members . Figshare.
    Type: Article OpenAlex: https://openalex.org/W7037777076
    OpenAlex