"Show-and-tell": an evaluation of working in partnership with autistic adults as an early career researcher exploring suicide theory
Pelton, M., Adams, J., Crawford, H., Bul, K., Robertson, A., Rodgers, J., & Cassidy, S. (2024). "Show-and-tell": an evaluation of working in partnership with autistic adults as an early career researcher exploring suicide theory [Preprint]. Center for Open Science. https://doi.org/10.31234/osf.io/4f3vt
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Authors
Abstract
Research to improve our understanding of mental health and suicidal thoughts and behaviours typically excludes the voices of autistic people and there is an absence of transparent reporting and critical evaluation of participatory processes in autism research. We used the Public Involvement Impact Assessment Framework (PiiAF) and GRIPP2 reporting guidelines to describe and evaluate participatory activities (i.e., an advisory group, Twitter (X), a creative community-based project and volunteers’ database) undertaken within a programme of doctoral study to explore suicide theory with autistic people. Participation defined study focus, co-designed accessible methods and meaningful interpretation of results. For researcher and collaborators, benefits included personal connections and fulfilment, improved confidence and knowledge. Most impacts resulted from the advisory group, which benefitted from supervisor experience, established methods and monitoring feedback. Early career challenges included time, funding and trust-building. Future research could more clearly state a theoretical position and proposed outputs of participation at the start of the research. Researchers should continue to develop and share good practice in working in partnership with autistic people.
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