Barriers to healthcare for people on the autism spectrum

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Dern, S. & Sappok, T. (2016). Barriers to healthcare for people on the autism spectrum. Advances in Autism, 2(1), 2-11. https://doi.org/10.1108/aia-10-2015-0020

Publication date: 4 Jan 2016 Added to AutiHub: 22 Sep 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

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Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Sebastian Dern *
  2. Tanja Sappok

Abstract

Purpose – Adults on the autism spectrum experience difficulties in receiving health care, and health care providers face difficulties in offering health care to adults on the autism spectrum. The purpose of this paper is first, to assess the various difficulties and second, to provide strategies to overcome them. Design/methodology/approach – In this qualitative research project, current barriers and facilitators to health care services were sampled from a collaboration of autistic self-advocates and autism professionals in Berlin, Germany. The findings were complemented by a review of practical guidelines and research about the service accessibility of patients on the autism spectrum. Findings – A comprehensive list of barriers to health care was compiled and structured according to various aspects, such as “making appointments”, “waiting area”, “communication”, and “examination”. Strategies considering the perceptual and communicative peculiarities of autism were found to improve access to health care for autistic adults. Practical implications – Providing access to the health care system may improve the diagnosis and treatment of mental and somatic illnesses, and thereby, the health status and quality of life for people on the autism spectrum. This recognition of the needs of adults on the autism spectrum may serve as a model for other areas in society, such as education and employment. Originality/value – Data acquisition in this project is of special value because it resulted from collaboration between an autistic self-advocacy organization and professionals working in the field of intellectual developmental disabilities considering the experiences of autistic adults in the entire range of intellectual functioning.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
68
With a DOI
46
Without a DOI, from raw bibliography text
17
6 / 68 (8.8%) cited references include at least one author identified as autistic.
References with data to complete
19 / 68 (27.9%)
References with detected author names
49 / 68 (72.1%)
Without detected author names
19
Without a structured title
17
Without a stable identifier
17
References with raw author names still to review
17
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
224
From DOI or external metadata
224
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
62
82 / 224 (36.6%) names are linked to an author already present in AutiHub. 142 / 224 (63.4%) names are not yet linked.
Names linked to a person identified as autistic
17 / 224 (7.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 17 / 82 (20.7%). Distinct people identified as autistic: 10 / 195 (5.1%).
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