Autistic Shame: Reflections on an Underrecognized Determinant of Autistic Mental Health
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerDoherty, M. (2026). Autistic Shame: Reflections on an Underrecognized Determinant of Autistic Mental Health. Autism in Adulthood. https://doi.org/10.1177/25739581261479601
This publication is integrated into AutiHub through:
Authors
Abstract
Shame is a deeply painful emotion that is underexplored in autism research and autistic community spaces. While we commonly discuss stigma, we rarely examine how it is embodied and experienced as shame. This perspective piece argues that shame is a critical, yet largely unrecognized, determinant of autistic mental health outcomes, operating as a hidden link between societal stigma and the elevated rates of depression, anxiety, self-harm, and suicidality among autistic adults. Drawing on research with autistic psychiatrists and personal experience as an autistic clinician–researcher, I trace how shame became visible as the overarching theme in my doctoral research – so pervasive it was initially invisible. The recognition of autistic shame has proven challenging to disseminate, with resistance to these findings illustrating the very dynamics being studied: when research exposes uncomfortable truths about shame, defensive responses often follow patterns described in Nathanson’s Compass of Shame. Autistic shame is the internalized sense of defectiveness tied specifically to one’s autistic identity and traits. It is externally imposed through lifelong exposure to neuronormative expectations where difference is misinterpreted as deficit. It manifests in multiple contexts: Reciprocally shaming social interactions, health care settings where autistic patients are dismissed and disbelieved, and community conflicts where heterogeneity is weaponized to silence advocacy. For autistic people, alexithymia can make shame difficult to recognize, though clues such as the desire to withdraw and experiences of rage may signal its presence. Addressing autistic shame requires explicit therapeutic attention, self-compassion practices adapted for autistic cognition, and neurodiversity-affirmative approaches that reframe difference rather than deficit. Understanding shame offers tangible pathways toward improved mental health and authentic autistic flourishing.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 12 Sep 2026 17:55.
- With a DOI
- 55
- Without a DOI, from raw bibliography text
- 16
- References with detected author names
- 64 / 71 (90.1%)
- Without detected author names
- 7
- Without a structured title
- 7
- Without a stable identifier
- 16
- References with raw author names still to review
- 7
- References with external metadata lookup issues
- 1
- From DOI or external metadata
- 204
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
- 7
-
F. Davidoff (2002). Shame: the elephant in the room . BMJ, 324(7338), 623-624. BMJ.Crossref OpenAlex
-
Thomas J. Scheff (2003). Shame in Self and Society . Symbolic Interaction, 26(2), 239-262. Wiley.Crossref OpenAlex
-
Monique Botha *Autistic author. Learn more… , Bridget Dibb , David M. Frost (2022). "Autism is me": an investigation of how autistic individuals make sense of autism and stigma . Disability & Society, 37(3), 427-453. Informa UK Limited.
-
SUZANNE M. RETZINGER (1995). Identifying Shame and Anger in Discourse . American Behavioral Scientist, 38(8), 1104-1113. SAGE Publications.Crossref OpenAlex
-
Jacquiline den Houting *Autistic author. Learn more… , Monique Botha *Autistic author. Learn more… , Eilidh Cage , Desiree R. Jones , So Yoon Kim (2021). Shifting stigma about autistic young people . The Lancet Child & Adolescent Health, 5(12), 839-841. Elsevier BV.Crossref OpenAlex
-
CAROLYN ELLIS (1995). EMOTIONAL AND ETHICAL QUAGMIRES IN RETURNING TO THE FIELD . Journal of Contemporary Ethnography, 24(1), 68-98. SAGE Publications.Crossref OpenAlex
-
Luna Dolezal (2022). Shame anxiety, stigma and clinical encounters . Journal of Evaluation in Clinical Practice, 28(5), 854-860. Wiley.Crossref OpenAlex
-
Brené Brown (2006). Shame Resilience Theory: A Grounded Theory Study on Women and Shame . Families in Society: The Journal of Contemporary Social Services, 87(1), 43-52. SAGE Publications.Crossref OpenAlex
-
Ava N. Gurba *Autistic author. Learn more… , Morgan L. McNair , April Hargreaves , Nichole E. Scheerer , Catalina S. M. Ng , Matthew D Lerner (2024). Editorial: Break the stigma: autism. The future of research on autism stigma - towards multilevel, contextual & global understanding . Frontiers in Psychiatry, 15, 1504429-1504429. Frontiers Media SA.
-
Seth Aronson (2009). Am I My Brother's Keeper? Challenges for the Siblings of Autistic Children . Journal of Infant, Child, and Adolescent Psychotherapy, 8(1), 49-56. Informa UK Limited.Crossref OpenAlex
-
Alice Turnock , Kate Langley , Catherine R.G. Jones (2022). Understanding Stigma in Autism: A Narrative Review and Theoretical Model . Autism in Adulthood, 4(1), 76-91. SAGE Publications.Crossref OpenAlex
-
Mrigaya Sinha (2017). Shame and Psychotherapy: Theory, Method and Practice . In The Value of Shame (pp. 251-275). Springer International Publishing.Crossref OpenAlex
-
Emmie Fisher , K. MacLennan , Sinéad L. Mullally , Jacqui Rodgers (2025). Neuro-Normative Epistemic Injustice – Consequences for the UK Education Crisis and School Anxiety . Neurodiversity, 3. SAGE Publications.Crossref OpenAlex
-
Luna Dolezal , Barry Lyons (2017). Health-related shame: an affective determinant of health? Medical Humanities, 43(4), 257-263. BMJ.Crossref OpenAlex
-
Luna Dolezal (2022). The Horizons of Chronic Shame . Human Studies, 45(4), 739-759. Springer Science and Business Media LLC.Crossref OpenAlex
-
Janine Bestall , Najma Siddiqi , Suzanne Heywood-Everett , Charlotte Freeman , Paul Carder , Mick James et al. (2017). New models of care: a liaison psychiatry service for medically unexplained symptoms and frequent attenders in primary care . BJPsych Bulletin, 41(6), 340-344. Royal College of Psychiatrists.Crossref OpenAlex
-
Barry Lyons , Matthew Gibson , Luna Dolezal (2018). Stories of shame . The Lancet, 391(10130), 1568-1569. Elsevier BV.Crossref OpenAlex
-
Scheff TJ (2009). The Sociology of Norbert Elias . The Sociology of Norbert Elias, 229.Type: OtherCrossref
-
Emma Kinnaird , Catherine Stewart , Kate Tchanturia (2019). Investigating alexithymia in autism: A systematic review and meta-analysis . European Psychiatry, 55, 80-89. Cambridge University Press (CUP).Crossref OpenAlex
-
Nathanson D (1992). Shame and pride: affect, sex and the birth of the self . Shame and pride: affect, sex and the birth of the self, 305.Type: OtherCrossref
-
Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.Crossref OpenAlex
-
Nathanson D (2014). The widening scope of shame . The widening scope of shame, 107.Type: OtherCrossref
-
Aakriti Malik (2019). Working with Shame in Psychotherapy: An Eclectic Approach . In The Bright Side of Shame (pp. 381-394). Springer International Publishing.Crossref OpenAlex
-
Mary Doherty *Autistic author. Learn more… (2026). Diagnosing others, hiding self: Shame and non-disclosure among autistic psychiatrists—An interpretive phenomenological analysis . MedRxiv.Type: PreprintCrossref
-
Rose Richards (2019). Shame, silence and resistance: How my narratives of academia and kidney disease entwine . Feminism & Psychology, 29(2), 269-285. SAGE Publications.Crossref OpenAlex
-
Debbie Spain , Francesca Happé (2020). How to Optimise Cognitive Behaviour Therapy (CBT) for People with Autism Spectrum Disorders (ASD): A Delphi Study . Journal of Rational-Emotive & Cognitive-Behavior Therapy, 38(2), 184-208. Springer Science and Business Media LLC.Crossref OpenAlex
-
Jennifer Biddle (1997). Shame . Australian Feminist Studies, 12(26), 227-239. Informa UK Limited.Crossref OpenAlex
-
Rozanna Lilley , Mikala Sedgwick , Elizabeth Pellicano (2020). Inclusion, acceptance, shame and isolation: Attitudes to autism in Aboriginal and Torres Strait Islander communities in Australia . Autism, 24(7), 1860-1873. SAGE Publications.Crossref OpenAlex
-
Brown B (2018). Dare to lead: brave work, tough conversations, whole hearts . Dare to lead: brave work, tough conversations, whole hearts.Type: OtherCrossref
-
(n.d.). 17. Doherty M. Autistic doctors: Leveraging insider perspectives to improve healthcare for autistic people. PhD Thesis. London South Bank University; 2025. https://researchportal.lsbu.ac.uk/en/publications/autistic-doctors-leveraging-insider-perspectives-to-improve-healt/Type: OtherCrossref
-
(n.d.). 18. Autistic Doctors International (ADI). Homepage. https://autisticdoctorsinternational.com [Last accessed: December7 2025].Type: OtherCrossref
-
Mary Doherty *Autistic author. Learn more… , Stuart Neilson , Jane O’Sullivan , Laura Carravallah *Autistic author. Learn more… , Mona Johnson *Autistic author. Learn more… , Walter Cullen et al. (2022). Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study . BMJ Open, 12(2), e056904. BMJ.
-
Kathy Oxtoby (2025). The consultant anaesthetist who established a support group for autistic doctors . BMJ, 389, r784. BMJ.Crossref OpenAlex
-
Sebastian C.K. Shaw *Autistic author. Learn more… , Laura Carravallah *Autistic author. Learn more… , Mona Johnson *Autistic author. Learn more… , Jane O’Sullivan , Nicholas Chown *Autistic author. Learn more… , Stuart Neilson et al. (2024). Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study . Autism, 28(7), 1746-1757. SAGE Publications.
-
Luna Dolezal , Matthew Gibson (2022). Beyond a trauma-informed approach and towards shame-sensitive practice . Humanities and Social Sciences Communications, 9(1), 214-214. Springer Science and Business Media LLC.Crossref OpenAlex
-
Mary Doherty *Autistic author. Learn more… , Sue McCowan *Autistic author. Learn more… , Sebastian C.K. Shaw *Autistic author. Learn more… (2023). Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings . British Journal of Hospital Medicine, 84(4), 1-9. IMR Press.
-
Sebastian C.K. Shaw *Autistic author. Learn more… , Mary Doherty *Autistic author. Learn more… , Sue McCowan *Autistic author. Learn more… , Jessica Eccles (2022). Towards a Neurodiversity-Affirmative Approach for an Over-Represented and Under-Recognised Population: Autistic Adults in Outpatient Psychiatry . Journal of Autism and Developmental Disorders, 52(9), 4200-4201. Springer Science and Business Media LLC.
-
Diana Duong , Lauren Vogel (2022). Untapped potential: embracing neurodiversity in medicine . Canadian Medical Association Journal, 194(27), E951-E952. CMA Impact Inc..Crossref OpenAlex
-
(n.d.). 24. Fryer JE. Dr H Anonymous. I am a homosexual. I am a psychiatrist. In: American Psychiatric Association (APA) 125th Annual Meeting; May 2nd 1972. APA: Dallas TX. https://217boxes.com/speech/Type: OtherCrossref
-
Mary Doherty *Autistic author. Learn more… , Sebastian C.K. Shaw *Autistic author. Learn more… , Eddie Chaplin , Simon Baron-Cohen (2026). Embracing neurodiversity in medicine: insights from the history of psychiatry . The Lancet, 408(10555), 596-597. Elsevier BV.Crossref OpenAlex
-
Alisa Opar (2019). In search of truce in the autism wars . Spectrum. Simons Foundation.Crossref OpenAlex
-
Mary Doherty *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… , Nicola Martin , Sebastian C.K. Shaw *Autistic author. Learn more… (2024). Autistic psychiatrists’ experiences of recognising themselves and others as autistic: a qualitative study . BJPsych Open, 10(6), e183-e183. Royal College of Psychiatrists.
-
Katie O’Connor (2025). What It Means—or Can Mean—to Be an Autistic Psychiatrist . Psychiatric News, 60(1), 1. American Psychiatric Association Publishing.Crossref OpenAlex
-
Luna Dolezal (2022). The effects of shame and stigma on patient care . British Journal of Hospital Medicine, 83(11), 1-3. IMR Press.Crossref OpenAlex
-
(n.d.). 28. H-CARDD. Insights from autistic psychiatrists: Leveraging insider perspectives to improve mental healthcare. YouTube; 2025. https://www.youtube.com/watch?v=tbnPYIRZu58Type: OtherCrossref
-
S. Petty , Charlotte Donaldson , Whetton Jesse , Baxter Natasha (2023). Recommended adaptations to therapy services for autistic adults from specialist clinicians . Current Psychology, 42(33), 29581-29588. Springer Science and Business Media LLC.Crossref OpenAlex
-
(n.d.). 29. Autistic psychiatrists: Silenced by shame. In: American Psychiatric Association Annual Meeting. Los Angeles; 2025.Type: OtherCrossref
-
Monique Botha *Autistic author. Learn more… , Eilidh Cage (2022). “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research . Frontiers in Psychology, 13, 1050897. Frontiers Media SA.
-
Mary Doherty *Autistic author. Learn more… , Anna Rebowska , Bernadette Grosjean *Autistic author. Learn more… , Malcolm Kinnear , Catherine Dakin *Autistic author. Learn more… , Sam Porter et al. (2026). Two more elephants in the room: autistic psychiatrists and autistic shame . The British Journal of Psychiatry, 1-2. Royal College of Psychiatrists.
-
Brady Huggett (2023). Autism research at the crossroads . Spectrum. Simons Foundation.Crossref OpenAlex
-
Ellis C (1986). Fisher folk: two communities on Chesapeake Bay . Fisher folk: two communities on Chesapeake Bay.Type: OtherCrossref
-
Denisa Marcinechová , Lucia Záhorcová , Katarína Lohazerová (2024). Self-forgiveness, Guilt, Shame, and Parental Stress among Parents of Children with Autism Spectrum Disorder . Current Psychology, 43(3), 2277-2292. Springer Science and Business Media LLC.Crossref OpenAlex
-
Diana Weiting Tan (2023). Early-Career Autism Researchers Are Shifting Their Research Directions: Tragedy or Opportunity? Autism in Adulthood, 5(3), 218-224. SAGE Publications.Crossref OpenAlex
-
Voskamp A (2018). The Way of Abundance: A 60-Day Journey into a Deeply Meaningful Life . The Way of Abundance: A 60-Day Journey into a Deeply Meaningful Life.Type: OtherCrossref
-
Mary Doherty *Autistic author. Learn more… (2023). Weaponized heterogeneity only harms the most vulnerable autistic people . Spectrum. Simons Foundation.
-
Simon Riches , Neil Hammond , Marilla Bianco , Carolina Fialho , James Acland (2023). Adapting cognitive behaviour therapy for adults with autism: a lived experience-led consultation with specialist psychological therapists . The Cognitive Behaviour Therapist, 16. Cambridge University Press (CUP).Crossref OpenAlex
-
Sebastian C.K. Shaw *Autistic author. Learn more… , Alexander Fossi , Laura Carravallah *Autistic author. Learn more… , Kai Rabenstein , Wendy Ross , Mary Doherty *Autistic author. Learn more… (2023). The experiences of autistic doctors: a cross-sectional study . Frontiers in Psychiatry, 14, 1160994-1160994. Frontiers Media SA.
-
Síofra Heraty , Alexandra Lautarescu , David Belton , Alison Boyle , Pietro Cirrincione , Mary Doherty *Autistic author. Learn more… et al. (2023). Bridge-building between communities: Imagining the future of biomedical autism research . Cell, 186(18), 3747-3752. Elsevier BV.
-
María-José Gámez-Fuentes , Catherine Rottenberg (2026). Towards a typology of gendered rage . Feminist Theory, 27(1), 3-15. SAGE Publications.Crossref OpenAlex
-
Rachel A. Rivera , Loisa Bennetto (2023). Applications of identity-based theories to understand the impact of stigma and camouflaging on mental health outcomes for autistic people . Frontiers in Psychiatry, 14, 1243657. Frontiers Media SA.Crossref OpenAlex
-
(n.d.). 39. Doherty M. Trading shame. 2025. https://shameandmedicine.org/trading-shame/Type: OtherCrossref
-
Marie Riebel , Agata Krasny-Pacini , Rumen Manolov , Odile Rohmer , Luisa Weiner (2024). Compassion focused therapy for self-stigma and shame in autism: a single case pre-experimental study . Frontiers in Psychiatry, 14, 1281428-1281428. Frontiers Media SA.Crossref OpenAlex
-
Damian F Santomauro , Darren Hedley , Ensu Sahin , Traolach Brugha , Mohsen Naghavi , Theo Vos et al. (2024). The global burden of suicide mortality among people on the autism spectrum: A systematic review, meta-analysis, and extension of estimates from the Global Burden of Disease Study 2021 . Psychiatry Research, 341, 116150. Elsevier BV.Crossref OpenAlex
-
Luna Dolezal , William Bynum (2024). Shame competence: addressing the effects of shame in health care . The Lancet, 404(10462), 1514-1515. Elsevier BV.Crossref OpenAlex
-
Jessica Paynter , Kristyn Sommer *Autistic author. Learn more… , Amanda Cook (2025). How can we make therapy better for autistic adults? Autistic adults’ ratings of helpfulness of adaptations to therapy . Autism, 29(6), 1540-1553. SAGE Publications.
-
(n.d.). 47. Doherty M. Adventures in co-production: A conversation on participatory autism research. Autism-Europe; 2025. https://www.youtube.com/watch?v=5Wb3QxqoLGMType: OtherCrossref
-
Marie Riebel , Raven Bureau *Autistic author. Learn more… , Odile Rohmer , Céline Clément , Luisa Weiner (2025). Self-compassion as an antidote to self-stigma and shame in autistic adults . Autism, 29(6), 1569-1584. SAGE Publications.
-
Daniela Di Marco , Phillippa Wood DClinPsy , Nicholas Troop CPsychol (2025). ‘They Say We're the Rigid Ones’: A Reflexive Thematic Analysis of Autistic Adults' Experiences of Psychological Therapies . Counselling and Psychotherapy Research, 25(1). Wiley.Crossref OpenAlex
-
Charlotte Engberg Conrad , Marlene Briciet Lauritsen , Emil Færk , Helle Jakobsen , Per Hove Thomsen , Carol George (2025). Representations of adult attachment and shame in parents of children on the autism spectrum . Frontiers in Psychology, 16, 1519090-1519090. Frontiers Media SA.Crossref OpenAlex
-
Brown B (2007). I Thought it Was Just Me (but it isn’t): Telling the Truth About Perfectionism, Inadequacy and Power . I Thought it Was Just Me (but it isn’t): Telling the Truth About Perfectionism, Inadequacy and Power.Type: OtherCrossref
-
Gates G (2019). Trauma, stigma, and autism: Developing resilience and loosening the grip of shame . Trauma, stigma, and autism: Developing resilience and loosening the grip of shame.Type: OtherCrossref