Bridge-building between communities: Imagining the future of biomedical autism research

This publication is included in the Autistic Autism Scholarship Project. three authors of this publication are identified as autistic in the project.

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Heraty, S., Lautarescu, A., Belton, D., Boyle, A., Cirrincione, P., Doherty, M., Douglas, S., Plas, J. R. D., Van den Bosch, K., Violland, P., Terčon, J., Ruigrok, A., Murphy, D., Bourgeron, T., Chatham, C., Loth, E., Oakley, B., McAlonan, G., Charman, T.,..., & Jones, E. (2023). Bridge-building between communities: Imagining the future of biomedical autism research. Cell, 186(18), 3747-3752. https://doi.org/10.1016/j.cell.2023.08.004

Publication date: 1 Aug 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
22
Publication authors identified as autistic
3 / 22 (13.6%)
  1. Siofra Heraty
  2. Alexandra Lautarescu
  3. David Belton
  4. Alison Boyle
  5. Pietro Cirrincione
  6. Mary Doherty *
  7. Sarah Douglas *
  8. Jan Roderik Derk Plas *
  1. Katrien Van den Bosch
  2. Pierre Violland
  3. Jerneja Terčon
  4. Amber Ruigrok
  5. Declan Murphy
  6. Thomas Bourgeron
  7. Christopher Chatham
  8. Eva Loth
  1. Bethany Oakley
  2. Grainne McAlonan
  3. Tony Charman
  4. NA Puts
  5. Louise Gallagher
  6. Emily Jones

Abstract

A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 02:38.

Cited references
14
With a DOI
13
Without a DOI, from raw bibliography text
1
9 / 14 (64.3%) cited references include at least one author identified as autistic.
References with data to complete
0 / 14 (0.0%)
References with detected author names
14 / 14 (100.0%)
Without detected author names
0
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
187
From DOI or external metadata
187
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
171 / 187 (91.4%) names are linked to an author already present in AutiHub. 16 / 187 (8.6%) names are not yet linked.
Names linked to a person identified as autistic
103 / 187 (55.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 103 / 171 (60.2%). Distinct people identified as autistic: 90 / 168 (53.6%).
  1. Carol Thomas (2004). Rescuing a social relational understanding of disability . Scandinavian Journal of Disability Research, 6(1), 22-36. Stockholm University Press.
    Type: Article DOI: 10.1080/15017410409512637 OpenAlex: https://openalex.org/W1975930172
    Crossref OpenAlex OpenCitations
  3. Micheal Sandbank , Kristen Bottema-Beutel , Shannon Crowley LaPoint , Margaret Cassidy , Kacie Dunham-Carr , Jacob I Feldman et al. (2020). Project AIM: Autism intervention meta-analysis for studies of young children. Psychol Bull, 146(1), 1. American Psychological Association (APA).
    Type: Article DOI: 10.1037/bul0000215 OpenAlex: https://openalex.org/W2990306783
    Crossref OpenAlex OpenCitations
  8. Alison Singer , Amy Lutz , Jill Escher , Alycia Halladay (2023). A full semantic toolbox is essential for autism research and practice to thrive . Autism Research, 16(3), 497-501. Wiley.
    Type: Article DOI: 10.1002/aur.2876 OpenAlex: https://openalex.org/W4311202441
    Crossref OpenAlex OpenCitations
  10. Steven K. Kapp * (2019). How social deficit models exacerbate the medical model: Autism as case in point . Autism Policy Practice, 2(1), 3.
    Type: Article OpenAlex: https://openalex.org/W2989969085
    Crossref OpenAlex
  12. Georgia Lockwood Estrin , Victoria Milner , Debbie Spain , Francesca Happé , Emma Colvert (2021). Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review . Review Journal of Autism and Developmental Disorders, 8(4), 454-470. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00225-8 OpenAlex: https://openalex.org/W3095823263
    Crossref OpenAlex OpenCitations
  14. Jill L. Silverman , Audrey Thurm , Sarah B. Ethridge , Makayla M. Soller , Stela P. Petkova , Ted Abel et al. (2022). Reconsidering animal models used to study autism spectrum disorder: Current state and optimizing future . Genes, Brain and Behavior, 21(5), e12803-e12803. Wiley.
    Type: Article DOI: 10.1111/gbb.12803 OpenAlex: https://openalex.org/W4221088095
    Crossref OpenAlex OpenCitations