“Welcomed as I am, not as I am expected to be”: towards development of peer support for Autistic people with Eating Disorders
Sader, M., Llowarch, N., Gerlof, J., Emmerson, F., Maloney, E., Duffy, F., & Gillespie‐Smith, K. (2026). “Welcomed as I am, not as I am expected to be”: towards development of peer support for Autistic people with Eating Disorders. Eating Disorders, 1-19. https://doi.org/10.1080/10640266.2026.2691121
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Authors
Abstract
Autistic people with eating disorders (ED) report different experiences and needs for ED treatment with a need to expand what existing support looks like. This qualitative study seeks to investigate the perspectives of Autistic people to examine whether peer support may play a role in ED recovery. Twenty-five Autistic adults with experience of EDs completed a survey enquiring about peer support for their community. Survey answers were analysed using reflexive thematic analysis to generate emerging themes surrounding the perspectives and views towards bespoke peer support. Four identified themes encompass the importance and purpose of peer support for Autistic people with an ED: 1) Peer support to validate the unique considerations for Autistic people with an ED; 2) The importance of peer support to build a positive Autistic identity; 3) 'Welcomed as I am, not as I am expected to be": Autistic people's hopes for peer support; 4) Where peer support may harm rather than help. This study is the first to establish community-led views towards the importance and purpose underlying peer support for Autistic adults with an ED. Generated themes can serve as an evidence base for future autism-affirming peer support for ED recovery.
Bibliography cited by this reference
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These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
-
Carrie Allison , Bonnie Auyeung , Simon Baron-Cohen (2012). Toward Brief “Red Flags” for Autism Screening: The Short Autism Spectrum Quotient and the Short Quantitative Checklist in 1,000 Cases and 3,000 Controls . Journal of the American Academy of Child & Adolescent Psychiatry, 51(2), 202-212.e7. Elsevier BV.Crossref OpenAlex
-
Colleen Alford , Andrew Wallis , Phillipa Hay , Deborah Mitchison (2025). Understanding the child and adolescent eating disorder treatment experiences of autistic people and parents . Journal of Eating Disorders, 13(1), 128-128. Springer Science and Business Media LLC.Crossref OpenAlex
-
Cynthia M. Bulik , Kenneth S. Kendler (2000). “I Am What I (Don’t) Eat”: Establishing an Identity Independent of an Eating Disorder . American Journal of Psychiatry, 157(11), 1755-1760. American Psychiatric Association Publishing.Crossref OpenAlex
-
A. S. Zigmond , R. P. Snaith (1983). The Hospital Anxiety and Depression Scale . Acta Psychiatrica Scandinavica, 67(6), 361-370. Wiley.Crossref OpenAlex
-
González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.Crossref OpenAlex
-
Bruno Palazzo Nazar , Vanessa Peynenburg , Charlotte Rhind , Rebecca Hibbs , Ulrike Schmidt , Simon Gowers et al. (2018). An examination of the clinical outcomes of adolescents and young adults with broad autism spectrum traits and autism spectrum disorder and anorexia nervosa: A multi centre study . International Journal of Eating Disorders, 51(2), 174-179. Wiley.Crossref OpenAlex
-
Samuel R. C. Arnold , Julianne M. Higgins *Autistic author. Learn more… , Janelle Weise , Aishani Desai , Elizabeth Pellicano , Julian N Trollor (2023). Confirming the nature of autistic burnout . Autism, 27(7), 1906-1918. SAGE Publications.
-
Michael R. Liebowitz (2013). Liebowitz Social Anxiety Scale . PsycTESTS Dataset. American Psychological Association (APA).Crossref OpenAlex
-
Charli Babb , Janina Brede , Catherine R G Jones , Mair Elliott , Cathy Zanker , Kate Tchanturia et al. (2021). ‘It’s not that they don’t want to access the support... it’s the impact of the autism’: The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals . Autism, 25(5), 1409-1421. SAGE Publications.Crossref OpenAlex
-
Kathrin Nickel , Simon Maier , Dominique Endres , Andreas Joos , Viktoria Maier , Ludger Tebartz van Elst et al. (2019). Systematic Review: Overlap Between Eating, Autism Spectrum, and Attention-Deficit/Hyperactivity Disorder . Frontiers in Psychiatry, 10, 708-708. Frontiers Media SA.Crossref OpenAlex
-
Siofra Bradley , Fhionna R. Moore , Fiona Duffy , Lili Clark , Tasha Suratwala , Pooky Knightsmith et al. (2024). Camouflaging, not sensory processing or autistic identity, predicts eating disorder symptoms in autistic adults . Autism, 28(11), 2858-2868. SAGE Publications.Crossref OpenAlex
-
Georgina Mullen , Clodagh Dowling , Jillian Doyle , Gary O'Reilly (2020). Experiences of compassion focused therapy in eating disorder recovery: A qualitative model . Counselling and Psychotherapy Research, 20(2), 248-262. Wiley.Crossref OpenAlex
-
Virginia Braun , Victoria Clarke (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328-352. Informa UK Limited.Crossref OpenAlex
-
Reham A Hameed Shalaby , Vincent I O Agyapong (2020). Peer Support in Mental Health: Literature Review . JMIR Mental Health, 7(6), e15572. JMIR Publications Inc..Crossref OpenAlex
-
T.A.M. McDonald (2020). Autism Identity and the “Lost Generation”: Structural Validation of the Autism Spectrum Identity Scale and Comparison of Diagnosed and Self-Diagnosed Adults on the Autism Spectrum . Autism in Adulthood, 2(1), 13-23. SAGE Publications.Crossref OpenAlex
-
Eilidh Cage , Zoe Troxell-Whitman (2020). Understanding the Relationships Between Autistic Identity, Disclosure, and Camouflaging . Autism in Adulthood, 2(4), 334-338. SAGE Publications.Crossref OpenAlex
-
Catherine J. Crompton , Sonny Hallett *Autistic author. Learn more… , Danielle Ropar , Emma G. Flynn , Sue Fletcher‐Watson (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family . Autism, 24(6), 1438-1448. SAGE Publications.
-
Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.Crossref OpenAlex
-
Emma Saure , Marja Laasonen , Tuulia Lepistö‐Paisley , Katri Mikkola , Monica Ålgars , Anu Raevuori (2020). Characteristics of autism spectrum disorders are associated with longer duration of anorexia nervosa: A systematic review and meta‐analysis . International Journal of Eating Disorders, 53(7), 1056-1079. Wiley.Crossref OpenAlex
-
Laura Crane , Caroline Hearst *Autistic author. Learn more… , Maria Ashworth , Jade Davies , Elisabeth L. Hill (2021). Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme . Journal of Autism and Developmental Disorders, 51(3), 892-905. Springer Science and Business Media LLC.
-
Catherine J. Crompton , Francesca Fotheringham , Katie Cebula , Charlotte Webber , Sarah Foley , Sue Fletcher‐Watson (2024). Neurodivergent-designed and neurodivergent-led peer support in school: A feasibility and acceptability study of the neurodivergent peer support toolkit (NEST) . Neurodiversity, 2. SAGE Publications.Crossref OpenAlex
-
Dora M Raymaker *Autistic author. Learn more… , Alan R. Teo , Nicole A. Steckler , Brandy Lentz , Mirah Scharer , Austin Delos Santos et al. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout . Autism in Adulthood, 2(2), 132-143. SAGE Publications.
-
Catherine J. Crompton , Sonny Hallett *Autistic author. Learn more… , Harriet Axbey *Autistic author. Learn more… , Christine McAuliffe , Katie Cebula (2023). ‘Someone like-minded in a big place’: Autistic young adults’ attitudes towards autistic peer support in mainstream education . Autism, 27(1), 76-91. SAGE Publications.
-
Jade Davies , Kate Cooper , Estelle Killick , Evelyn Sam , Molly Healy , Grace Thompson *Autistic author. Learn more… et al. (2024). Autistic identity: A systematic review of quantitative research . Autism Research, 17(5), 874-897. Wiley.
-
James Downs , Marissa Adams (2025). Re-imagining connection: the role of late autism diagnosis in eating disorder recovery and social support . Journal of Eating Disorders, 13(1), 120-120. Springer Science and Business Media LLC.Crossref OpenAlex
-
Fiona Duffy , Karri Gillespie‐Smith , Helen Sharpe , Kyle Buchan , Emy Nimbley , Ellen Maloney *Autistic author. Learn more… et al. (2025). Eating Disorder and Autism Collaborative project outline: promoting eating disorder research embedded in a neurodiversity-affirming culture . BJPsych Bulletin, 49(4), 272-277. Royal College of Psychiatrists.
-
Jess Kerr‐Gaffney , Hannah Hayward , Emily J.H. Jones , Daniel Halls , Declan Murphy , Kate Tchanturia (2021). Autism symptoms in anorexia nervosa: a comparative study with females with autism spectrum disorder . Molecular Autism, 12(1), 47-47. Springer Science and Business Media LLC.Crossref OpenAlex
-
Fiona Duffy , Imogen Peebles , Sarah J Taylor , Sophie Brassill , Beth Hughes , Helen Sharpe (2026). An evaluation of lived experience email peer support for young people with eating disorders . Eating Disorders, 34(2), 165-175. Informa UK Limited.Crossref OpenAlex
-
Søren Nielsen , Sandra Rydberg Dobrescu , Lisa Dinkler , Carina Gillberg , Christopher Gillberg , Maria Råstam et al. (2022). Effects of autism on 30-year outcome of anorexia nervosa . Journal of Eating Disorders, 10(1), 4-4. Springer Science and Business Media LLC.Crossref OpenAlex
-
Fairburn C. G. (2008). Eating disorder examination questionnaire . Cognitive Behavior Therapy and Eating Disorders, 309(313), 509.Type: OtherCrossref
-
Francesca Fotheringham , Katie Cebula , Sue Fletcher‐Watson , Sarah Foley , Catherine J. Crompton (2023). Co-designing a neurodivergent student-led peer support programme for neurodivergent young people in mainstream high schools . Neurodiversity, 1. SAGE Publications.Crossref OpenAlex
-
Ben Gray , Matthew Sisto (2024). Peer Support Work in Hospital: A First Person and Lived Experience Guide . Schizophrenia Bulletin Open, 5(1), sgad035-sgad035. Oxford University Press (OUP).Crossref OpenAlex
-
Tanya Halsall , Mardi Daley , Lisa Hawke , Joanna Henderson , Kimberly Matheson (2022). “You can kind of just feel the power behind what someone's saying”: a participatory-realist evaluation of peer support for young people coping with complex mental health and substance use challenges . BMC Health Services Research, 22(1), 1358-1358. Springer Science and Business Media LLC.Crossref OpenAlex
-
Emy Nimbley , Karri Gillespie‐Smith , Fiona Duffy , Ellen Maloney *Autistic author. Learn more… , Carrie Ballantyne , Helen Sharpe (2023). “It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents . Journal of Eating Disorders, 11(1), 89-89. Springer Science and Business Media LLC.
-
Andrea LaMarre , Jennifer Couturier , Gina Dimitropoulos , Shaleen Jones , Sonia Kumar , Nicole Obeid et al. (2024). Peer support for eating disorders in Canada: program user perspectives . Journal of Eating Disorders, 12(1), 133-133. Springer Science and Business Media LLC.Crossref OpenAlex
-
Rachel Loomes , Katy Chivers , Chloé Georgeaux‐Healy , Will Mandy , Tom Jewell (2025). Understanding the Autistic Experience of Restrictive Eating Disorders—A Systematic Review and Qualitative‐Synthesis . European Eating Disorders Review, 33(4), 800-814. Wiley.Crossref OpenAlex
-
Mead S. (2003). Defining peer support.Type: OtherCrossref
-
Emy Nimbley , Helen Sharpe , Ellen Maloney *Autistic author. Learn more… , Karri Gillespie‐Smith , Kate Tchanturia , Fiona Duffy (2025). A Mixed Method Systematic Review Into the Impact of ED Treatment in Autistic People and Those With High Autistic Traits . International Journal of Eating Disorders, 58(1), 117-138. Wiley.
-
Emy Nimbley , Kyle Buchan , Ellen Maloney *Autistic author. Learn more… , Sarah Kettley , Michelle Sader , Fiona Duffy et al. (2025). Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder . Journal of Clinical Psychology, 81(8), 677-693. Wiley.
-
Wood S. (2015). At the heart of health: Realising the value of people and communities . At the heart of health: Realising the value of people and communities.Type: OtherCrossref