Autistic Women’s Experience of Motherhood: A Qualitative Analysis of Reddit

Thom-Jones, S., Melgaard, I., & Gordon, C. S. (2024). Autistic Women’s Experience of Motherhood: A Qualitative Analysis of Reddit. Journal of Autism and Developmental Disorders, 55(7), 2539-2549. https://doi.org/10.1007/s10803-024-06312-7

Publication date: 26 Apr 2024 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)

Abstract

Autistic mothers remain under-represented in parental and autism research despite the associated physical and psychosocial challenges that accompany the transition to motherhood. Extant literature suggests autistic mothers experience sensory difficulties, communication challenges, stigma, and comorbidities as difficulties, but these studies have focused on autistic women in the perinatal period. The aim of this study was to examine reflections on motherhood from a Reddit community for autistic parents. Identified themes were Autistic Mothering is Different, Autistic Mothers Need Autistic Mothers, Autistic Mothers Experience Stigma, and Learnings from Lockdown. Findings extend existing research by offering insight into the ways autism impacts mothers beyond the perinatal period and have important implications for the future design and delivery of support services for autistic mothers.

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Confirmed Reliability level: High Title heuristic

Bibliography cited by this reference

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
58
Total cited references integrated for this publication.
Cited references with an identified autistic author
6 / 58 (10.3%)
Cited author occurrences identified as autistic
12 / 188 (6.4%)
Among occurrences linked to AutiHub author records: 12 / 50 (24.0%). Distinct cited authors identified as autistic: 10 / 178 (5.6%).
Cited author occurrences linked to AutiHub author records
50 / 188 (26.6%)
Distinct linked cited authors: 46 / 178 (25.8%)
Linked cited-author occurrences not identified as autistic
38 / 50 (76.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 38 / 188 (20.2%). Distinct linked cited authors not identified as autistic: 36 / 46 (78.3%).
  1. Maggi Savin‐Baden , Claire Howell Major (2012). Qualitative Research: The essential guide to theory and practice .
    Type: Book OpenAlex: https://openalex.org/W646675392
    Crossref OpenAlex
  2. American Psychiatric Association (2022). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association Publishing.
    Crossref OpenAlex OpenCitations
  3. Shery Mead , David Hilton , Laurie Curtis (2001). Peer support: A theoretical perspective. Psychiatric Rehabilitation Journal, 25(2), 134-141. American Psychological Association (APA).
    Type: Article DOI: 10.1037/h0095032 OpenAlex: https://openalex.org/W2081553764
    Crossref OpenAlex OpenCitations
  4. Alycia Halladay , Somer Bishop , John N Constantino , Amy M Daniels , Katheen Koenig , Kate Palmer et al. (2015). Sex and gender differences in autism spectrum disorder: summarizing evidence gaps and identifying emerging areas of priority . Molecular Autism, 6(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. Tawfiq Ammari , Sarita Schoenebeck , Daniel Romero (2019). Self-declared Throwaway Accounts on Reddit . Proceedings of the ACM on Human-Computer Interaction, 3(CSCW), 1-30. Association for Computing Machinery (ACM).
    Type: Article DOI: 10.1145/3359237 OpenAlex: https://openalex.org/W2984485371
    Crossref OpenAlex OpenCitations
  6. Andre Mason , Kyungho Jang , Kirsten Morley , Damian Scarf , Sunny C. Collings , Benjamin C. Riordan (2021). A Content Analysis of Reddit Users' Perspectives on Reasons for Not Following Through with a Suicide Attempt . Cyberpsychology, Behavior, and Social Networking, 24(10), 642-647. SAGE Publications.
    Crossref OpenAlex OpenCitations
  7. Noortje Marres , Esther Weltevrede (2013). SCRAPING THE SOCIAL? Journal of Cultural Economy, 6(3), 313-335. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  8. Australian Government. (2010). National Standards for Mental Health Services 2010. Australian Government. https://www1.health.gov.au/internet/publications/publishing.nsf/Content/mental-pubs-n-servst10-toc~mental-pubs-n-servst10-st3
    Type: Other
    Crossref
  9. A. L. Pohl , S. K. Crockford , M. Blakemore , Carrie Allison , Simon Baron-Cohen (2020). A comparative study of autistic and non-autistic women’s experience of motherhood . Molecular Autism, 11(1), 3. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Colwyn Trevarthen (1996). Children with Autism: Diagnosis and Interventions to Meet Their Needs .
    Type: Book OpenAlex: https://openalex.org/W1530398843
    OpenAlex
  11. Jill Aylott (2010). Improving access to health and social care for people with autism . Nursing Standard, 24(27), 47-56. RCN Publishing Ltd..
    Crossref OpenAlex OpenCitations
  12. Sigmund Eldevik , Richard P. Hastings , J. Carl Hughes , Erik Jahr , Svein Eikeseth , Scott Cross (2009). Meta-Analysis of Early Intensive Behavioral Intervention for Children With Autism . Journal of Clinical Child & Adolescent Psychology, 38(3), 439-450. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Ruhl, Kathrin (2003). Qualitative research practice: a guide for social science students and researchers . Choice Reviews Online, 41(03), 41-1319-41-1319. American Library Association.
    OpenAlex
  14. Sarah Bargiela , Robyn Steward *Autistic author. Learn more… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  15. Catherine Pope , Nicholas Mays (2006). Qualitative Methods in Health Research . In Qualitative Research in Health Care (pp. 1-11). Wiley.
    OpenAlex
  16. Laura J. Biggs , Touran Shafiei , Della A. Forster , Rhonda Small , Helen L. McLachlan (2015). Exploring the views and experiences of callers to the PANDA Post and Antenatal Depression Association Australian National Perinatal Depression Helpline: a cross-sectional survey . BMC Pregnancy and Childbirth, 15(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  17. Samantha J. Teague , Adrian B. R. Shatte (2021). Peer support of fathers on Reddit: Quantifying the stressors, behaviors, and drivers. Psychology of Men & Masculinities, 22(4), 757-766. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  18. Nick Boettcher (2021). Studies of Depression and Anxiety Using Reddit as a Data Source: Scoping Review . JMIR Mental Health, 8(11), e29487. JMIR Publications Inc..
    Type: Article DOI: 10.2196/29487 OpenAlex: https://openalex.org/W3193859745
    Crossref OpenAlex OpenCitations
  19. Shaina J. Sowles , Monique McLeary , Allison Optican , Elizabeth Cahn , Melissa J. Krauss , Ellen E. Fitzsimmons-Craft et al. (2018). A content analysis of an online pro-eating disorder community on Reddit . Body Image, 24, 137-144. Elsevier BV.
    Crossref OpenAlex OpenCitations
  20. Andrée‐Anne S. Meilleur , Patricia Jelenic , Laurent Mottron (2015). Prevalence of Clinically and Empirically Defined Talents and Strengths in Autism . Journal of Autism and Developmental Disorders, 45(5), 1354-1367. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  21. Virginia Braun , Victoria Clarke (2014). What can “thematic analysis” offer health and wellbeing researchers? International Journal of Qualitative Studies on Health and Well-being, 9(1), 26152. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  22. Erik W. Carter , Jenny R. Gustafson , Melissa A. Sreckovic , Jessica R. Dykstra Steinbrenner , Nigel P. Pierce , Aimee Bord et al. (2017). Efficacy of Peer Support Interventions in General Education Classrooms for High School Students With Autism Spectrum Disorder . Remedial and Special Education, 38(4), 207-221. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Erin E. McCurdy , Christine L. Cole (2014). Use of a Peer Support Intervention for Promoting Academic Engagement of Students with Autism in General Education Settings . Journal of Autism and Developmental Disorders, 44(4), 883-893. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  24. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. Jeroen Dewinter , H. De Graaf , Sander Begeer (2017). Sexual Orientation, Gender Identity, and Romantic Relationships in Adolescents and Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 47(9), 2927-2934. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Tessa Taylor Rivet , Johnny L. Matson (2011). Review of gender differences in core symptomatology in autism spectrum disorders . Research in Autism Spectrum Disorders, 5(3), 957-976. Elsevier BV.
    Crossref OpenAlex OpenCitations
  27. Yu Chi , Huai-yu Chen (2023). Investigating Substance Use via Reddit: Systematic Scoping Review . Journal of Medical Internet Research, 25, e48905. JMIR Publications Inc..
    Type: Article DOI: 10.2196/48905 OpenAlex: https://openalex.org/W4386714152
    Crossref OpenAlex OpenCitations
  28. Jane Donovan (2020). Childbirth Experiences of Women With Autism Spectrum Disorder in an Acute Care Setting . Nursing for Women's Health, 24(3), 165-174. Elsevier BV.
    Crossref OpenAlex OpenCitations
  29. Reham A Hameed Shalaby , Vincent I O Agyapong (2020). Peer Support in Mental Health: Literature Review . JMIR Mental Health, 7(6), e15572. JMIR Publications Inc..
    Type: Article DOI: 10.2196/15572 OpenAlex: https://openalex.org/W3006370585
    Crossref OpenAlex OpenCitations
  30. Mariko Hosozawa , Noriko Cable , Ai Ikeda , Jia-Yi Dong , Satoyo Ikehara , Hiroyasu Iso (2021). Risk of postpartum depression and very early child mistreatment among mothers reporting higher autistic traits: Evidence from the Japan Environment and Children's Study . Journal of Affective Disorders, 280(Pt A), 11-16. Elsevier BV.
    Crossref OpenAlex OpenCitations
  31. Della A. Forster , Fiona E. McLardie-Hore , Helen L. McLachlan , Mary-Ann Davey , Heather A. Grimes , Cindy-Lee Dennis et al. (2019). Proactive Peer (Mother-to-Mother) Breastfeeding Support by Telephone (Ringing up About Breastfeeding Early [RUBY]): A Multicentre, Unblinded, Randomised Controlled Trial . EClinicalMedicine, 8, 20-28. Elsevier BV.
    Crossref OpenAlex OpenCitations
  32. Chris Plauché Johnson , Scott M. Myers , and the Council on Children With Disabilities (2007). Identification and Evaluation of Children With Autism Spectrum Disorders . Pediatrics, 120(5), 1183-1215. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  33. Marcia Gardner , Patricia D. Suplee , Joan Bloch , Karen Lecks (2016). Exploratory Study of Childbearing Experiences of Women with Asperger Syndrome . Nursing for Women's Health, 20(1), 28-37. Elsevier BV.
    Crossref OpenAlex OpenCitations
  34. Rita George , Mark A. Stokes (2018). Gender identity and sexual orientation in autism spectrum disorder . Autism, 22(8), 970-982. SAGE Publications.
    Crossref OpenAlex OpenCitations
  35. Christina G. McDonnell , Elizabeth A. DeLucia (2021). Pregnancy and Parenthood Among Autistic Adults: Implications for Advancing Maternal Health and Parental Well-Being . Autism in Adulthood, 3(1), 100-115. SAGE Publications.
    Crossref OpenAlex OpenCitations
  36. Eric Hollander , Charles Cartwright , Cheryl M. Wong , Concetta M. DeCaria , Gina DelGiudice-Asch , Monte S. Buchsbaum et al. (1998). A Dimensional Approach to the Autism Spectrum . CNS Spectrums, 3(3), 22-39. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  37. Jane Green *Autistic author. Learn more… (2004). Qualitative methods for health research . Qualitative methods for health research.
    Type: Other
    Crossref
  38. Patricia Howlin , Iliana Magiati (2017). Autism spectrum disorder . Current Opinion in Psychiatry, 30(2), 69-76. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  39. Cath Rogers , Laurence Lepherd , Rahul Ganguly , Sebastian Jacob-Rogers (2017). Perinatal issues for women with high functioning autism spectrum disorder . Women and Birth, 30(2), e89-e95. Elsevier BV.
    Crossref OpenAlex OpenCitations
  40. Heidi M. Levitt , Sue L. Motulsky , Fredrick J. Wertz , Susan L. Morrow , Joseph G. Ponterotto (2017). Recommendations for designing and reviewing qualitative research in psychology: Promoting methodological integrity. Qualitative Psychology, 4(1), 2-22. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  41. Matthew R. Jamnik , David J. Lane (2017). The Use of Reddit as an Inexpensive Source for High-Quality Data . Practical Assessment, Research & Evaluation, 22(1), 1. University of Massachusetts Amherst.
    Crossref OpenAlex OpenCitations
  42. Pamela D. Pilkington , Holly Rominov (2017). Fathers’ Worries During Pregnancy: A Qualitative Content Analysis of Reddit . The Journal of Perinatal Education, 26(4), 208-218. Springer Publishing Company.
    Crossref OpenAlex OpenCitations
  43. Rachel Loomes , Laura Hull , Will Mandy (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466-474. Elsevier BV.
    Crossref OpenAlex OpenCitations
  44. Rebecca J. Landa (2018). Efficacy of early interventions for infants and young children with, and at risk for, autism spectrum disorders . International Review of Psychiatry, 30(1), 25-39. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  45. Heléne EK Sundelin , Olof Stephansson , Christina M Hultman , Jonas F Ludvigsson (2018). Pregnancy outcomes in women with autism: a nationwide population-based cohort study . Clinical Epidemiology, Volume 10, 1817-1826. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  46. Michelle L Litchman , MJ Tran , Susan E Dearden , Jia-Wen Guo , Sara E Simonsen , Lauren Clark (2019). What Women With Disabilities Write in Personal Blogs About Pregnancy and Early Motherhood: Qualitative Analysis of Blogs . JMIR Pediatrics and Parenting, 2(1), e12355. JMIR Publications Inc..
    Type: Article DOI: 10.2196/12355 OpenAlex: https://openalex.org/W2913885895
    Crossref OpenAlex OpenCitations
  47. Chad A. Melton , Olufunto A. Olusanya , Nariman Ammar , Arash Shaban-Nejad (2021). Public sentiment analysis and topic modeling regarding COVID-19 vaccines on the Reddit social media platform: A call to action for strengthening vaccine confidence . Journal of Infection and Public Health, 14(10), 1505-1512. Elsevier BV.
    Crossref OpenAlex OpenCitations
  48. (n.d.). PurpleElla. (2017, September 14). AUTISTIC MOTHER. YouTube. https://www.youtube.com/watch?v=Dol2JO--tjw
    Type: Other
    Crossref
  49. QSR International Pty Ltd. (2020). NVivo (released in March 2020), https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
    Type: Other
    Crossref
  50. J Ritchie (2003). Qualitative research practice: A guide for social science students and researchers . Qualitative research practice: A guide for social science students and researchers, 77.
    Type: Other
    Crossref
  51. Ryan, A. (2006). Post-positivist approaches to research. In M. Antonesa (Ed.), Researching and writing your thesis: A guide for postgraduate students (pp. 12–26). MACE: Maynooth Adult and Community Education.
    Type: Other
    Crossref
  52. (2010). National standards for mental health services: 2010 . PsycEXTRA Dataset. American Psychological Association (APA).
    OpenAlex
  53. Trevarthen, C. (1998). Children with autism: Diagnosis and interventions to meet their needs. Jessica Kingsley Publishers.
    Type: Other
    Crossref
  54. (n.d.). YoSamdySam. (2019, August 3). Being an AUTISTIC mother: What’s it like? YouTube. https://www.youtube.com/watch?v=dKAF48NSsJI
    Type: Other
    Crossref