Supporting autistic refugees in the UK using the HOPE(S) model

Authors

Abstract

Refugees are likely to have experienced considerable trauma in their life, even more so if they are autistic. The ‘hostile environment’ created in the UK to reduce the number of refugees claiming asylum is likely to have exacerbated the difficulties experienced by refugees, including in terms of access to healthcare services. Refugees detained under the Mental Health Act 1983 may experience restrictive practices and therefore be exposed to additional trauma or re-traumatisation. This article focuses in particular on the harmful effects of solitary confinement on autistic refugees and discusses how healthcare professionals can use the HOPE(S) model to support this population.

1. Stuart Grassian (2006). Psychiatric Effects of Solitary Confinement . Open Scholarship Institutional Repository (Washington University in St. Louis), 22(1), 325-383.

   Type: Article OpenAlex: https://openalex.org/W1515124225

   OpenAlex
2. Zara Asif , Hanna Kienzler (2022). Structural barriers to refugee, asylum seeker and undocumented migrant healthcare access. Perceptions of Doctors of the World caseworkers in the UK . SSM - Mental Health, 2, 100088. Elsevier BV.

   Type: Article DOI: 10.1016/j.ssmmh.2022.100088 OpenAlex: https://openalex.org/W4221002250

   Crossref OpenAlex OpenCitations
3. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.

   Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072

   Crossref OpenAlex OpenCitations
4. (1984). Monitoring the Mental Health Act . Bulletin of the Royal College of Psychiatrists, 8(1), 8-8. Royal College of Psychiatrists.

   Type: Article DOI: 10.1192/pb.8.1.8-b OpenAlex: https://openalex.org/W1836101306

   OpenAlex
5. Susanna Baldwin , Debra Costley (2016). The experiences and needs of female adults with high-functioning autism spectrum disorder . Autism, 20(4), 483-495. SAGE Publications.

   Type: Article DOI: 10.1177/1362361315590805 OpenAlex: https://openalex.org/W2279904543

   Crossref OpenAlex OpenCitations
6. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2019). Understanding, attitudes and dehumanisation towards autistic people . Autism, 23(6), 1373-1383. SAGE Publications.

   Type: Article DOI: 10.1177/1362361318811290 OpenAlex: https://openalex.org/W2901663576

   Crossref OpenAlex OpenCitations
7. Tanja Michael , Sarah L. Halligan , David M. Clark , Anke Ehlers (2007). Rumination in posttraumatic stress disorder . Depression and Anxiety, 24(5), 307-317. Hindawi Limited.

   Type: Article DOI: 10.1002/da.20228 OpenAlex: https://openalex.org/W2005618880

   Crossref OpenAlex OpenCitations
8. Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.

   Type: Article DOI: 10.1177/2156869318804297 OpenAlex: https://openalex.org/W2896204132

   AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
9. Ofer Golan , Nirit Haruvi-Lamdan , Nathaniel Laor , Danny Horesh (2022). The comorbidity between autism spectrum disorder and post-traumatic stress disorder is mediated by brooding rumination . Autism, 26(2), 538-544. SAGE Publications.

   Type: Article DOI: 10.1177/13623613211035240 OpenAlex: https://openalex.org/W3184929652

   Crossref OpenAlex OpenCitations
10. Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.

    Type: Article DOI: 10.1177/1362361305051398 OpenAlex: https://openalex.org/W2028337741

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
11. (2015). Othering, an analysis . Transcience, 6(1), 69.

    Type: Other

    Crossref
12. Connor Kerns , Craig J. Newschaffer , Steven J. Berkowitz (2015). Traumatic Childhood Events and Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 45(11), 3475-3486. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-015-2392-y OpenAlex: https://openalex.org/W2081445626

    Crossref OpenAlex OpenCitations
13. Sharon Schwartz , Ilan H. Meyer (2010). Mental health disparities research: The impact of within and between group analyses on tests of social stress hypotheses . Social Science & Medicine, 70(8), 1111-1118. Elsevier BV.

    Type: Article DOI: 10.1016/j.socscimed.2009.11.032 OpenAlex: https://openalex.org/W2168088445

    Crossref OpenAlex OpenCitations
14. Christina Nicolaidis , Dora M. Raymaker *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern *Autistic author. Learn more… , Mel Baggs *Autistic author. Learn more… et al. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum . Autism, 19(7), 824-831. SAGE Publications.

    Type: Article DOI: 10.1177/1362361315576221 OpenAlex: https://openalex.org/W2095111403

    AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
15. Care Quality Commission (2022). Monitoring the Mental Health Act in 2021 to 2022 . Monitoring the Mental Health Act in 2021 to 2022.

    Type: Other

    Crossref
16. Freya Rumball , Francesca Happé , Nick Grey (2020). Experience of Trauma and PTSD Symptoms in Autistic Adults: Risk of PTSD Development Following DSM ‐5 and Non‐DSM ‐5 Traumatic Life Events . Autism Research, 13(12), 2122-2132. Wiley.

    Type: Article DOI: 10.1002/aur.2306 OpenAlex: https://openalex.org/W3016541693

    Crossref OpenAlex OpenCitations
17. Allison Shefcyk (2015). Count us in: Addressing gender disparities in autism research . Autism, 19(2), 131-132. SAGE Publications.

    Type: Article DOI: 10.1177/1362361314566585 OpenAlex: https://openalex.org/W2111029785

    Crossref OpenAlex OpenCitations
18. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-018-0226-4 OpenAlex: https://openalex.org/W2887488849

    Crossref OpenAlex OpenCitations
19. Noah Sasson , Daniel J. Faso , Jack Nugent , Sarah Lovell , Daniel P. Kennedy , Ruth B. Grossman (2017). Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments . Scientific Reports, 7(1), 40700. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1038/srep40700 OpenAlex: https://openalex.org/W2585989266

    Crossref OpenAlex OpenCitations
20. Natasja Jensen , Katrine Johansen , Marianne Kastrup , Allan Krasnik , Marie Norredam (2014). Patient Experienced Continuity of Care in the Psychiatric Healthcare System—A Study Including Immigrants, Refugees and Ethnic Danes . International Journal of Environmental Research and Public Health, 11(9), 9739-9759. MDPI AG.

    Type: Article DOI: 10.3390/ijerph110909739 OpenAlex: https://openalex.org/W2167027192

    Crossref OpenAlex OpenCitations
21. (2015). Micro-Trauma: A Psychoanalytic Understanding of Cumulative Psychic Injury . Micro-Trauma: A Psychoanalytic Understanding of Cumulative Psychic Injury.

    Type: Other

    Crossref
22. Catherine J. Crompton , Danielle Ropar , Claire VM Evans-Williams *Autistic author. Learn more… , Emma G. Flynn , Sue Fletcher-Watson (2020). Autistic peer-to-peer information transfer is highly effective . Autism, 24(7), 1704-1712. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320919286 OpenAlex: https://openalex.org/W3026879779

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
23. Debbie C Hocking (2021). To strive, to seek, to find, and not to yield: Narratives on the road to asylum . Transcultural Psychiatry, 58(2), 200-214. SAGE Publications.

    Type: Article DOI: 10.1177/1363461520901639 OpenAlex: https://openalex.org/W3006453331

    Crossref OpenAlex OpenCitations
24. Department for Education, Department of Health and Social Care (2021) The National Strategy for Autistic Children, Young People and Adults: 2021 to 2026. www.gov.uk/government/publications/national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026/the-national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026 (Last accessed: 12 August 2024.)

    Type: Other

    Crossref
25. Josefin Wångdahl , Per Lytsy , Lena Mårtensson , Ragnar Westerling (2015). Health literacy and refugees’ experiences of the health examination for asylum seekers – a Swedish cross-sectional study . BMC Public Health, 15(1), 1162. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s12889-015-2513-8 OpenAlex: https://openalex.org/W2172742172

    Crossref OpenAlex OpenCitations
26. Department of Health (2015) Mental Health Act 1983: Code of Practice. assets.publishing.service.gov.uk/media/5a80a774e5274a2e87dbb0f0/MHA_Code_of_Practice. PDF (Last accessed: 12 August 2024.)

    Type: Other

    Crossref
27. Department of Health and Social Care (2023) Baroness Hollins’ Final Report: My Heart Breaks – Solitary Confinement in Hospital Has No Therapeutic Benefit for People with a Learning Disability and Autistic People. www.gov.uk/government/publications/independent-care-education-and-treatment-reviews-final-report-2023/baroness-hollins-final-report-my-heart-breaks-solitary-confinement-in-hospital-has-no-therapeutic-benefit-for-people-with-a-learning-disability-an (Last accessed: 12 August 2024.)

    Type: Other

    Crossref
28. Frank van den Boogert , Bram Sizoo , Pascalle Spaan , Sharon Tolstra , Yvonne H. A. Bouman , Witte J. G. Hoogendijk et al. (2021). Sensory Processing and Aggressive Behavior in Adults with Autism Spectrum Disorder . Brain Sciences, 11(1), 95. MDPI AG.

    Type: Article DOI: 10.3390/brainsci11010095 OpenAlex: https://openalex.org/W3119867790

    Crossref OpenAlex OpenCitations
29. Chantelle Wood , Megan Freeth (2016). Students’ Stereotypes of Autism . Journal of Educational Issues, 2(2), 131. Macrothink Institute, Inc..

    Type: Article DOI: 10.5296/jei.v2i2.9975 OpenAlex: https://openalex.org/W2532162578

    Crossref OpenAlex OpenCitations
30. Nancy Doyle , Almuth McDowall , Uzma Waseem (2022). Intersectional Stigma for Autistic People at Work: A Compound Adverse Impact Effect on Labor Force Participation and Experiences of Belonging . Autism in Adulthood, 4(4), 340-356. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0082 OpenAlex: https://openalex.org/W4309329450

    Crossref OpenAlex OpenCitations
31. Danny Dunn *Autistic author. Learn more… , Jay D. de la Garza , Desiree R Jones , Noah Sasson (2023). Awkward but so what: Differences in social trait preferences between autistic and non-autistic adults . Neurodiversity, 1. SAGE Publications.

    Type: Article DOI: 10.1177/27546330231203833 OpenAlex: https://openalex.org/W4387066983

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex
32. Ramzi Shawahna , Basel Fahed , Dana Qadri , Lamees Sharawi , Mai Soroghli , Maen Dweik (2017). Awareness and Knowledge of Autism Spectrum Disorders Among Pharmacists: A Cross-Sectional Study in Palestinian Pharmacy Practice . Journal of Autism and Developmental Disorders, 47(6), 1618-1627. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3085-5 OpenAlex: https://openalex.org/W2594096623

    Crossref OpenAlex OpenCitations
33. Daisy Alicia Gibson , Holly Eick , Susanne Meddings , Ceri Woodrow (2023). Why am I still in hospital? Evaluation of delayed discharges from two learning disability assessment and treatment units in England . Tizard Learning Disability Review, 28(1/2), 46-53. Emerald.

    Type: Article DOI: 10.1108/tldr-07-2022-0015 OpenAlex: https://openalex.org/W4381513048

    Crossref OpenAlex OpenCitations
34. Craig Haney (2018). Restricting the Use of Solitary Confinement . Annual Review of Criminology, 1(1), 285-310. Annual Reviews.

    Type: Article DOI: 10.1146/annurev-criminol-032317-092326 OpenAlex: https://openalex.org/W2765508819

    Crossref OpenAlex OpenCitations
35. Yiqi Lin , Yating Gu , Yekai Xu , Shumeng Hou , Ruyi Ding , Shiguang Ni (2022). Autistic spectrum traits detection and early screening: A machine learning based eye movement study . Journal of Child and Adolescent Psychiatric Nursing, 35(1), 83-92. Wiley.

    Type: Article DOI: 10.1111/jcap.12346 OpenAlex: https://openalex.org/W3195076046

    Crossref OpenAlex OpenCitations
36. Elisabeth Mangrio , Katarina Sjögren Forss (2017). Refugees’ experiences of healthcare in the host country: a scoping review . BMC Health Services Research, 17(1), 814. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s12913-017-2731-0 OpenAlex: https://openalex.org/W2771752115

    Crossref OpenAlex OpenCitations
37. (2006). Psychiatric effects of solitary confinement . Washington University Journal of Law and Policy, 22, 325.

    Type: Other

    Crossref
38. John H. Ward , Elizabeth Weir , Carrie T. Allison , Simon Baron-Cohen (2023). Increased rates of chronic physical health conditions across all organ systems in autistic adolescents and adults . Molecular Autism, 14(1), 35. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-023-00565-2 OpenAlex: https://openalex.org/W4386892471

    Crossref OpenAlex OpenCitations
39. Angela Sweeney , Beth Filson , Angela Kennedy , Lucie Collinson , Steve Gillard (2018). A paradigm shift: relationships in trauma-informed mental health services . BJPsych Advances, 24(5), 319-333. Royal College of Psychiatrists.

    Type: Article DOI: 10.1192/bja.2018.29 OpenAlex: https://openalex.org/W2886031807

    Crossref OpenAlex OpenCitations
40. Matthew Grundy-Bowers , Max Read (2020). Developing cultural competence in caring for LGBTQI+ patients . Nursing Standard, 35(2), 29-34. RCNi.

    Type: Article DOI: 10.7748/ns.2019.e11390 OpenAlex: https://openalex.org/W2950080914

    Crossref OpenAlex
41. Amy Pearson *Autistic author. Learn more… , Kieran Rose *Autistic author. Learn more… (2021). A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice . Autism in Adulthood, 3(1), 52-60. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0043 OpenAlex: https://openalex.org/W3121580719

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
42. Katharina Reiter-Scheidl , Ilona Papousek , Helmut K. Lackner , Manuela Paechter , Elisabeth M. Weiss , Nilüfer Aydin (2018). Aggressive behavior after social exclusion is linked with the spontaneous initiation of more action-oriented coping immediately following the exclusion episode . Physiology & Behavior, 195, 142-150. Elsevier BV.

    Type: Article DOI: 10.1016/j.physbeh.2018.08.001 OpenAlex: https://openalex.org/W2886512000

    Crossref OpenAlex OpenCitations
43. (2013). Solitary Confinement: Social Death and Its Afterlives . Solitary Confinement: Social Death and Its Afterlives.

    Type: Other

    Crossref
44. (2019). Solitary Confinement: Effects, Practices, and Pathways Toward Reform . Solitary Confinement: Effects, Practices, and Pathways Toward Reform, 129.

    Type: Other

    Crossref
45. Craig Haney (2020). The Science of Solitary: Expanding the Harmfulness Narrative . Northwestern University Law Review, 115(1), 1, 211.

    Type: Article OpenAlex: https://openalex.org/W3082017594

    Crossref OpenAlex
46. Rae Morris , Andrea Greenblatt , Michael Saini (2019). Healthcare Providers’ Experiences with Autism: A Scoping Review . Journal of Autism and Developmental Disorders, 49(6), 2374-2388. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-019-03912-6 OpenAlex: https://openalex.org/W2911241604

    Crossref OpenAlex OpenCitations
47. Julia L. Sheffler , Ian Stanley , Natalie Sachs-Ericsson (2020). ACEs and mental health outcomes . In Adverse Childhood Experiences (pp. 47-69). Elsevier.

    Type: Book chapter DOI: 10.1016/b978-0-12-816065-7.00004-5 OpenAlex: https://openalex.org/W3002183102

    Crossref OpenAlex OpenCitations
48. Nirit Haruvi-Lamdan , Danny Horesh , Shani Zohar , Meital Kraus , Ofer Golan (2020). Autism Spectrum Disorder and Post-Traumatic Stress Disorder: An unexplored co-occurrence of conditions . Autism, 24(4), 884-898. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320912143 OpenAlex: https://openalex.org/W3015082203

    Crossref OpenAlex OpenCitations
49. Teresa Pollard , Natasha Howard (2021). Mental healthcare for asylum-seekers and refugees residing in the United Kingdom: a scoping review of policies, barriers, and enablers . International Journal of Mental Health Systems, 15(1), 60. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13033-021-00473-z OpenAlex: https://openalex.org/W3169552074

    Crossref OpenAlex OpenCitations
50. (2020). The Neurodiversity Reader: Exploring Concepts, Lived Experiences and Implications for Practice . The Neurodiversity Reader: Exploring Concepts, Lived Experiences and Implications for Practice, 78.

    Type: Other

    Crossref
51. Chloe Walsh , Paul O’Connor , Ellen Walsh , Sinéad Lydon (2023). A Systematic Review of Interventions to Improve Healthcare Experiences and Access in Autism . Review Journal of Autism and Developmental Disorders, 10(2), 185-202. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s40489-021-00279-2 OpenAlex: https://openalex.org/W3198416132

    Crossref OpenAlex OpenCitations
52. Joint Committee on Human Rights (2019) The Detention of Young People with Learning Disabilities and/or Autism. publications.parliament.uk/pa/jt201919/jtselect/jtrights/121/121.pdf (Last accessed: 12 August 2024.)

    Type: Other

    Crossref
53. Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.

    Type: Article DOI: 10.1111/bjdp.12350 OpenAlex: https://openalex.org/W3119501104

    Crossref OpenAlex OpenCitations
54. Elaine McGreevy , Alexis Quinn *Autistic author. Learn more… , Roslyn Law , Monique Botha *Autistic author. Learn more… , Mairi Evans , Kieran Rose *Autistic author. Learn more… et al. (2023). An experience sensitive approach to care with and for autistic children and young people in clinical services . Journal of Humanistic Psychology. Center for Open Science.

    Type: Preprint DOI: 10.31219/osf.io/r24wk OpenAlex: https://openalex.org/W4388302817

    Crossref OpenAlex
55. (2018). Working at Relational Depth in Counselling and Psychotherapy . Working at Relational Depth in Counselling and Psychotherapy.

    Type: Other

    Crossref
56. Rosie Scott , Emer Forde , Clare Wedderburn (2022). Refugee, Migrant and Asylum Seekers’ Experience of Accessing and Receiving Primary Healthcare in a UK City of Sanctuary . Journal of Immigrant and Minority Health, 24(1), 304-307. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10903-021-01227-2 OpenAlex: https://openalex.org/W3168541122

    Crossref OpenAlex
57. Mersey Care NHS Foundation Trust (2024) HOPE(S) Model. www.merseycare.nhs.uk/hopes-model (Last accessed: 12 August 2024.)

    Type: Other

    Crossref
58. Alexis Quinn *Autistic author. Learn more… , Alicia Wood , Keri-Michèle Lodge , Sheila Hollins (2023). Listening to the experts: person-centred approaches to supporting autistic people and people with an intellectual disability in the mental health system . BJPsych Advances, 29(5), 308-317. Royal College of Psychiatrists.

    Type: Article DOI: 10.1192/bja.2023.31 OpenAlex: https://openalex.org/W4386208554

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
59. Anna Christina Nowak , Yudit Namer , Claudia Hornberg (2022). Health Care for Refugees in Europe: A Scoping Review . International Journal of Environmental Research and Public Health, 19(3), 1278. MDPI AG.

    Type: Article DOI: 10.3390/ijerph19031278 OpenAlex: https://openalex.org/W4210442739

    Crossref OpenAlex OpenCitations
60. National Institute for Health and Care Excellence (2024) How is Hepatitis B Transmitted? cks.nice.org.uk/topics/hepatitis-b/background-information/transmission (Last accessed: 12 August 2024.)

    Type: Other

    Crossref
61. (2018). Unbroken: Learning to Live Beyond Diagnosis . Unbroken: Learning to Live Beyond Diagnosis.

    Type: Other

    Crossref
62. (2018). Passing as privileged . Ergo, 5, 1.

    Type: Other

    Crossref
63. (1977). Living in Prison: The Ecology of Survival . Living in Prison: The Ecology of Survival.

    Type: Other

    Crossref
64. World Health Organization (2022) Refugee and Migrant Health. www.who.int/news-room/fact-sheets/detail/refugee-and-migrant-health (Last accessed: 12 August 2024.)

    Type: Other

    Crossref