Listening to the experts: person-centred approaches to supporting autistic people and people with an intellectual disability in the mental health system

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Quinn, A., Wood, A., Lodge, K. M., & Hollins, S. (2023). Listening to the experts: person-centred approaches to supporting autistic people and people with an intellectual disability in the mental health system. BJPsych Advances, 29(5), 308-317. https://doi.org/10.1192/bja.2023.31

Publication date: 29 Aug 2023 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)

Abstract

SUMMARY Despite numerous UK government policies aimed at reducing the number of autistic people and people with an intellectual disability in mental health hospitals, little progress has been made, with many experiencing lengthy stays that offer little therapeutic benefit. Once admitted, people are at risk of restrictive interventions and significantly delayed discharge, resulting in trauma. This article draws on the cases of four people to illustrate the limitations of current mental health system approaches to the challenges experienced by autistic people and people with an intellectual disability. The importance of relational working and listening to people is explored, and we demonstrate how this can facilitate the provision of bespoke housing and care packages to enable a successful return to life in the community. Finally, we offer recommendations on the changes urgently needed to ensure that autistic people and people with an intellectual disability can live ordinary lives in their own homes, with timely and effective support from mental health services when needed, just like everyone else.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 11:55.

Cited references
21
With a DOI
19
Without a DOI, from raw bibliography text
0
5 / 21 (23.8%) cited references include at least one author identified as autistic.
References with data to complete
3 / 21 (14.3%)
References with detected author names
18 / 21 (85.7%)
Without detected author names
3
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
50
From DOI or external metadata
50
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
29 / 50 (58.0%) names are linked to an author already present in AutiHub. 21 / 50 (42.0%) names are not yet linked.
Names linked to a person identified as autistic
8 / 50 (16.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 8 / 29 (27.6%). Distinct people identified as autistic: 6 / 39 (15.4%).
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    Type: Book OpenAlex: https://openalex.org/W2798805247
    OpenAlex
  13. Luther G. Kalb , Joan Beasley , Andrea Caoili , Ann Klein (2019). Improvement in Mental Health Outcomes and Caregiver Service Experiences Associated With the START Program . American Journal on Intellectual and Developmental Disabilities, 124(1), 25-34. Informa UK Limited.
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  14. Steven K. Kapp *Autistic author. Learn more… (2019). How social deficit models exacerbate the medical model: Autism as case in point . Autism Policy Practice, 2(1), 3.
    Type: Article OpenAlex: https://openalex.org/W2989969085
    OpenAlex
  15. Simon Bury , Rachel Jellett , Jennifer R. Spoor , Darren Hedley (2023). “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 53(2), 677-687. Springer Science and Business Media LLC.
    OpenAlex
  16. (2010). British Journal of Learning Disabilities . British Journal of Learning Disabilities. Wiley.
    OpenAlex
  17. Monique Botha *Autistic author. Learn more… , Jacqueline Hanlon , Gemma Williams *Autistic author. Learn more… (2020). Does language matter? Identity-first versus person-first language use in autism research: A response to vivanti . Journal of Autism and Developmental Disorders, 50, 691. Center for Open Science.
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