Listening to the experts: person-centred approaches to supporting autistic people and people with an intellectual disability in the mental health system
Quinn, A., Wood, A., Lodge, K. M., & Hollins, S. (2023). Listening to the experts: person-centred approaches to supporting autistic people and people with an intellectual disability in the mental health system. BJPsych Advances, 29(5), 308-317. https://doi.org/10.1192/bja.2023.31
This publication is integrated into AutiHub through:
Authors
Abstract
SUMMARY Despite numerous UK government policies aimed at reducing the number of autistic people and people with an intellectual disability in mental health hospitals, little progress has been made, with many experiencing lengthy stays that offer little therapeutic benefit. Once admitted, people are at risk of restrictive interventions and significantly delayed discharge, resulting in trauma. This article draws on the cases of four people to illustrate the limitations of current mental health system approaches to the challenges experienced by autistic people and people with an intellectual disability. The importance of relational working and listening to people is explored, and we demonstrate how this can facilitate the provision of bespoke housing and care packages to enable a successful return to life in the community. Finally, we offer recommendations on the changes urgently needed to ensure that autistic people and people with an intellectual disability can live ordinary lives in their own homes, with timely and effective support from mental health services when needed, just like everyone else.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
-
Dave Mearns , Mick Cooper (2018). Working at Relational Depth in Counselling and Psychotherapy . SAGE Publications Ltd.OpenAlex
-
Eddie Chaplin , Jean O'Hara (2015). Advances in mental health and intellectual disabilities . Advances in Mental Health and Intellectual Disabilities, 9(1). Emerald.OpenAlex
-
Phil Fennell (1990). The Mental Health Act Code of Practice . The Modern Law Review, 53(4), 499-507. Wiley.OpenAlex
-
Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.AutiHub · Autistic Scholars OpenAlex
-
Liz Boardman , Jane Bernal , Sheila Hollins (2014). Communicating with people with intellectual disabilities: a guide for general psychiatrists . Advances in Psychiatric Treatment, 20(1), 27-36. Cambridge University Press (CUP).OpenAlex
-
Jane Hubert , Sheila Hollins (2007). Ethnographic Research in Closed Institutions: Ethical Issues . Research Ethics, 3(4), 122-126. SAGE Publications.OpenAlex
-
Katherine Owen , Jane Hubert , Sheila Hollins (2008). Moving home: the experiences of women with severe intellectual disabilities in transition from a locked ward . British Journal of Learning Disabilities, 36(4), 220-226. Wiley.OpenAlex
-
Steven K. Kapp *Autistic author. Learn more… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).AutiHub · Autistic Scholars OpenAlex
-
Jane Hubert , Sheila Hollins (2010). A Study of Post-Institutionalized Men With Severe Intellectual Disabilities and Challenging Behavior . Journal of Policy and Practice in Intellectual Disabilities, 7(3), 189-195. Wiley.OpenAlex
-
Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.OpenAlex
-
(2014). Solitary confinement: social death and its afterlives . Choice Reviews Online, 51(07), 51-3762-51-3762. American Library Association.OpenAlex
-
Sheila Hollins , Jo Egerton , Barry Carpenter (2016). Book clubs for people with intellectual disabilities: the evidence and impact on wellbeing and community participation of reading wordless books . Advances in Mental Health and Intellectual Disabilities, 10(5), 275-283. Emerald.OpenAlex
-
Sheila Hollins , Barry Carpenter , Elspeth Bradley , Jo Egerton (2017). Using wordless books to support clinical consultations . The Journal of Mental Health Training, Education and Practice, 12(4), 260-271. Emerald.OpenAlex
-
Margaret Crastnopol (2015). Micro-trauma: A Psychoanalytic Understanding of Cumulative Psychic Injury .Type: Book OpenAlex: https://openalex.org/W2798805247OpenAlex
-
Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.AutiHub · Autistic Scholars OpenAlex
-
Luther G. Kalb , Joan Beasley , Andrea Caoili , Ann Klein (2019). Improvement in Mental Health Outcomes and Caregiver Service Experiences Associated With the START Program . American Journal on Intellectual and Developmental Disabilities, 124(1), 25-34. Informa UK Limited.OpenAlex
-
Steven K. Kapp *Autistic author. Learn more… (2019). How social deficit models exacerbate the medical model: autism as case in point . Autism Policy & Practice, 2(1), 3.Type: Article OpenAlex: https://openalex.org/W2989969085OpenAlex
-
Simon M. Bury , Rachel Jellett , Jennifer R. Spoor , Darren Hedley (2023). “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 53(2), 677-687. Springer Science and Business Media LLC.OpenAlex
-
(2010). British Journal of Learning Disabilities . British Journal of Learning Disabilities. Wiley.OpenAlex
-
Monique Botha *Autistic author. Learn more… , Jacqueline Hanlon , Gemma Williams *Autistic author. Learn more… (2020). Does language matter? Identity-first versus person-first language use in autism research: A response to Vivanti . Center for Open Science.OpenAlex
-
(2023). The Journal of Mental Health Training, Education and Practice . The Journal of Mental Health Training Education and Practice. Emerald.OpenAlex