Soutenir une participation significative à la société des adultes ayant des déficiences développementales qui ont besoin de la CAA et l'utilisent : expériences vécues, principaux résultats de recherche et orientations futures

Titre original en anglais : Supporting meaningful participation in society by adults with developmental disabilities who need and use AAC: lived experiences, key research findings, and future directions

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McNaughton, D., Rackensperger, T., & McLemore, L. (2025). Supporting meaningful participation in society by adults with developmental disabilities who need and use AAC: lived experiences, key research findings, and future directions. Augmentative and Alternative Communication, 41(3), 250-263. https://doi.org/10.1080/07434618.2025.2504497

Date de publication: 04/06/2025 Ajout dans AutiHub: 22/10/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. David McNaughton
  2. Tracy Rackensperger
  3. Lance McLemore *

Résumé

Les possibilités élargies de participation significative à la société existent désormais pour les adultes ayant des déficiences développementales qui ont besoin de la CAA ou l'utilisent, mais des obstacles importants à une pleine participation communautaire subsistent encore. Dans cet article, nous examinons à la fois des récits personnels d'utilisateurs de la CAA et les recherches actuelles sur la CAA dans quatre domaines clés de la vie adulte : disposer d'un lieu de vie sûr, participer à des activités significatives, accéder aux services nécessaires et développer des amitiés et des relations significatives. Afin de soutenir plus efficacement la communication et la participation dans ces domaines clés, la recherche et le développement en CAA doivent : a) renforcer l'expression de l'identité personnelle ; b) soutenir l'utilisation intégrée de la communication multimodale ; et c) réduire les exigences liées à l'interaction communicative tout en soutenant le développement du langage et de la littératie. Les futures recherches et le futur développement en CAA doivent être guidés par des partenariats équitables entre les utilisateurs de la CAA, les chercheurs et les développeurs de technologies, et doivent être orientés par les priorités essentielles des personnes qui ont besoin de la CAA et l'utilisent.

Expanded opportunities for meaningful participation in society now exist for adults with developmental disabilities who need or use AAC, yet significant barriers to full community participation still remain. In this paper, we discuss both personal narratives by AAC users as well as current AAC research in four key domains of adult life: having a safe place to live, participating in meaningful activities, accessing needed services, and developing friendships and meaningful relationships. To support communication and participation in these key areas more effectively, AAC research and development must: (a) strengthen the expression of personal identity; (b) support integrated use of multimodal communication; and (c) reduce the demands of communicative interaction while supporting language and literacy development. Future AAC research and development must be guided by equitable partnerships between AAC users, researchers, and technology developers, and must be driven by the key priorities of people who need and use AAC.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

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Références citées
118
Avec un DOI
89
Sans DOI, à partir du texte brut de la bibliographie
29
3 / 118 (2,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 118 (11,0 %)
Références avec noms d’auteurices détectés
105 / 118 (89,0 %)
Sans nom d’auteurice détecté
13
Sans titre structuré
12
Sans identifiant stable
26
Références avec noms bruts d’auteurices restant à vérifier
11
Références avec problème de récupération des métadonnées externes
2
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Noms d’auteurices détectés dans la bibliographie citée
325
À partir du DOI ou de métadonnées externes
325
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
21
36 / 325 (11,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 289 / 325 (88,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
4 / 325 (1,2 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 4 / 36 (11,1 %). Personnes distinctes identifiées comme autistes : 2 / 253 (0,8 %).
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