ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder

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Mazurek, M. O., Stobbe, G., Loftin, R., Malow, B. A., Agrawal, M. M., Tapia, M., Hess, A., Farmer, J., Cheak-Zamora, N., Kuhlthau, K., & Sohl, K. (2019). ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder. Autism, 24(3), 633-644. https://doi.org/10.1177/1362361319879616

Publication date: 3 Oct 2019 Added to AutiHub: 2 Oct 2026 Type: Article Article language: English
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Authors

Publication authors
11
Publication authors identified as autistic
1 / 11 (9.1%)
  1. Micah O Mazurek
  2. Gary Stobbe
  3. Rachel Loftin
  4. Beth A Malow
  1. Mavara M Agrawal
  2. Mark Tapia *
  3. Amy Hess
  4. Justin Farmer
  1. Nancy Cheak-Zamora
  2. Karen Kuhlthau
  3. Kristin Sohl

Abstract

Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers’ confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 13:58.

Cited references
58
With a DOI
54
Without a DOI, from raw bibliography text
4
4 / 58 (6.9%) cited references include at least one author identified as autistic.
References with data to complete
2 / 58 (3.4%)
References with detected author names
58 / 58 (100.0%)
Without detected author names
0
Without a structured title
2
Without a stable identifier
4
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
278
From DOI or external metadata
278
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
85 / 278 (30.6%) names are linked to an author already present in AutiHub. 193 / 278 (69.4%) names are not yet linked.
Names linked to a person identified as autistic
10 / 278 (3.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 10 / 85 (11.8%). Distinct people identified as autistic: 6 / 228 (2.6%).
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