Beyond the “service cliff”: experiences of an inclusive postschool transition program for autistic youth with intellectual disability

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Edwards, C., Cai, R. Y., Love, A. M., White, L. M., Harris, K., Brooker, K., Kendall, E., & Gibbs, V. (2025). Beyond the “service cliff”: experiences of an inclusive postschool transition program for autistic youth with intellectual disability. Advances in Autism, 11(4), 385-399. https://doi.org/10.1108/aia-06-2025-0053

Publication date: 16 Sep 2025 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
8
Publication authors identified as autistic
1 / 8 (12.5%)
  1. Chris Edwards *
  2. Ru Ying Cai
  3. Abigail M.A. Love
  4. Louise Maree White
  1. Kathy Harris
  2. Katie Brooker
  3. Elizabeth Kendall
  4. Vicki Gibbs

Abstract

Purpose Autistic youth with intellectual disability (ID) are underrepresented in transition research and services, particularly in programs that prioritize social inclusion, emotional wellbeing and autonomy. This study explores stakeholder experiences of Campus Life, an inclusive, postschool transition program designed specifically for autistic youth with ID. Design/methodology/approach This qualitative study drew on multiple stakeholder perspectives. Accessible, visually supported surveys were completed by four autistic participants. Survey data from participants were analyzed descriptively to capture their priorities at program entry. In-depth interviews were conducted with six parents, and eight staff participated in focus groups or individual interviews. Reflexive thematic analysis was used to generate key themes across parent and staff data. Findings Participant surveys revealed interest in friendship and enjoyable activities, with more varied interest in work or further learning. Thematic analysis of parent and staff data generated four themes: (1) a supportive and structured environment, (2) growing into independence, (3) finding confidence in connection and (4) uncertain future access to a valued opportunity. Stakeholders perceived Campus Life as promoting psychological safety, social growth and autonomy in ways not commonly achieved through traditional employment-focused models. Originality/value This is one of the few studies to foreground the experiences of autistic youth with ID within a postschool transition program. It highlights the importance of holistic, person-centered supports that extend beyond employment to address broader developmental and social goals. The findings support rethinking what successful transition can look like for this population.

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
37
Total cited references integrated for this publication.
Cited references with an identified autistic author
4 / 37 (10.8%)
Cited author occurrences identified as autistic
8 / 228 (3.5%)
Among occurrences linked to AutiHub author records: 8 / 74 (10.8%). Distinct cited authors identified as autistic: 7 / 197 (3.6%).
Cited author occurrences linked to AutiHub author records
74 / 228 (32.5%)
Distinct linked cited authors: 62 / 197 (31.5%)
Linked cited-author occurrences not identified as autistic
66 / 74 (89.2%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 66 / 228 (28.9%). Distinct linked cited authors not identified as autistic: 55 / 62 (88.7%).
  1. Ru Ying Cai , Amanda L. Richdale (2016). Educational Experiences and Needs of Higher Education Students with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 46(1), 31-41. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2535-1 OpenAlex: https://openalex.org/W1457101468
    Crossref OpenAlex
  2. Kristy A. Anderson , Collette Sosnowy , Alice A. Kuo , Paul Shattuck (2018). Transition of Individuals With Autism to Adulthood: A Review of Qualitative Studies . Pediatrics, 141(Supplement_4), S318-S327. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300i OpenAlex: https://openalex.org/W2796352845
    Crossref OpenAlex
  3. Jeffrey Jensen Arnett (2014). Emerging Adulthood . Oxford University PressNew York.
    Type: Book DOI: 10.1093/acprof:oso/9780199929382.001.0001 OpenAlex: https://openalex.org/W1757691524
    Crossref OpenAlex
  4. Nancy Cheak‐Zamora , Michelle Teti , Jennifer First (2015). ‘Transitions are Scary for our Kids, and They're Scary for us’: Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism . Journal of Applied Research in Intellectual Disabilities, 28(6), 548-560. Wiley.
    Type: Article DOI: 10.1111/jar.12150 OpenAlex: https://openalex.org/W1973951941
    Crossref OpenAlex
  5. Melissa H. Black , Rebecca Kuzminski , Jing Wang , Jessica Ang , Cheryl Lee , Siti Hafidzuddin et al. (2024). Experiences of Friendships for Individuals on the Autism Spectrum: A Scoping Review . Review Journal of Autism and Developmental Disorders, 11(1), 184-209. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-022-00332-8 OpenAlex: https://openalex.org/W4285092744
    Crossref OpenAlex
  6. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264
    Crossref OpenAlex
  7. Virginia Braun , Victoria Clarke , Nikki Hayfield , Gareth Terry (2019). Thematic Analysis . In Handbook of research methods in health social sciences (pp. 843-860). Springer Singapore.
    Type: Book chapter DOI: 10.1007/978-981-10-5251-4_103 OpenAlex: https://openalex.org/W4243636675
    Crossref OpenAlex
  8. K. Dunn , E. Rydzewska , C. MacIntyre , J. Rintoul , Sally‐Ann Cooper (2019). The prevalence and general health status of people with intellectual disabilities and autism co‐occurring together: a total population study . Journal of Intellectual Disability Research, 63(4), 277-285. Wiley.
    Type: Article DOI: 10.1111/jir.12573 OpenAlex: https://openalex.org/W2902838441
    Crossref OpenAlex
  9. Paul Wehman , Carol Schall , Jennifer McDonough , Adam Sima , Alissa Brooke , Whitney Ham et al. (2020). Competitive Employment for Transition-Aged Youth with Significant Impact from Autism: A Multi-site Randomized Clinical Trial . Journal of Autism and Developmental Disorders, 50(6), 1882-1897. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-03940-2 OpenAlex: https://openalex.org/W2920655089
    Crossref OpenAlex
  10. Ginny Russell , Will Mandy , Daisy Elliott , Rhianna White , Tom Pittwood , Tamsin Ford (2019). Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis . Molecular Autism, 10(1), 9. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-019-0260-x OpenAlex: https://openalex.org/W2927010782
    Crossref OpenAlex
  11. Deborah L. Christensen , Matthew J. Maenner , Deborah Bilder , John N. Constantino , Julie Daniels , Maureen S. Durkin et al. (2019). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 4 Years — Early Autism and Developmental Disabilities Monitoring Network, Seven Sites, United States, 2010, 2012, and 2014 . MMWR. Surveillance Summaries, 68(2), 1-19. Centers for Disease Control MMWR Office.
    Type: Article DOI: 10.15585/mmwr.ss6802a1 OpenAlex: https://openalex.org/W2938148958
    Crossref OpenAlex
  12. Jina Chun , Hung Jen Kuo , Sarah L. Curtiss , Gloria K. Lee , Heekyung Lee , Jorem Awadu (2023). The interplay of supports and barriers during the transition to adulthood for youth on the autism spectrum . Disability and Rehabilitation, 45(18), 2879-2889. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2022.2112097 OpenAlex: https://openalex.org/W4292714755
    Crossref OpenAlex
  13. Daniel J. Laxman , Julie Lounds Taylor , Leann S. DaWalt , Jan S. Greenberg , Marsha R. Mailick (2019). Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study . Autism Research, 12(6), 911-921. Wiley.
    Type: Article DOI: 10.1002/aur.2113 OpenAlex: https://openalex.org/W2943778318
    Crossref OpenAlex
  14. Jon Codd , Olivia Hewitt (2021). Having a son or daughter with an intellectual disability transition to adulthood: A parental perspective . British Journal of Learning Disabilities, 49(1), 39-51. Wiley.
    Type: Article DOI: 10.1111/bld.12327 OpenAlex: https://openalex.org/W3021184685
    Crossref OpenAlex
  15. Amy Jane Griffiths , Cristina M. Giannantonio , Amy E. Hurley Hanson , Donald N. Cardinal (2016). Autism in the Workplace: Assessing the Transition Needs of Young Adults with Autism Spectrum Disorder . J. of Business and Management, 22(1), 5-22. Inderscience Publishers.
    Type: Article DOI: 10.1504/jbm.2016.141233 OpenAlex: https://openalex.org/W2954322330
    Crossref OpenAlex
  16. Sarah L. Curtiss , Gloria K. Lee , Jina Chun , Heekyung Lee , Hung Jen Kuo , Danielle Ami-Narh (2021). Autistic Young Adults’, Parents’, and Practitioners’ Expectations of the Transition to Adulthood . Career Development and Transition for Exceptional Individuals, 44(3), 174-185. SAGE Publications.
    Type: Article DOI: 10.1177/2165143420967662 OpenAlex: https://openalex.org/W3105633629
    Crossref OpenAlex
  17. Holly N Whittenburg , Carol M Schall , Paul Wehman , Jennifer McDonough , Thomas DuBois (2020). Helping High School-Aged Military Dependents With Autism Gain Employment Through Project SEARCH + ASD Supports . Military Medicine, 185(Supplement_1), 663-668. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/milmed/usz224 OpenAlex: https://openalex.org/W2972209721
    Crossref OpenAlex
  20. Kana Grace , Anna Remington , Brynmor Lloyd‐Evans , Jade Davies , Laura Crane (2022). Loneliness in autistic adults: A systematic review . Autism, 26(8), 2117-2135. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221077721 OpenAlex: https://openalex.org/W4220790656
    Crossref OpenAlex
  21. Matthew J. Maenner , Kelly A. Shaw , Jon Baio , EdS1 , Anita Washington , Mary Patrick et al. (2020). Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016 . MMWR. Surveillance Summaries, 69(4), 1-12. Centers for Disease Control MMWR Office.
    Type: Article DOI: 10.15585/mmwr.ss6904a1 OpenAlex: https://openalex.org/W3027179734
    Crossref OpenAlex
  22. Jasin Wong , Ellen S. Cohn , Wendy J. Coster , Gael I. Orsmond (2020). “Success Doesn’t Happen in a Traditional Way”: Experiences of school personnel who provide employment preparation for youth with autism spectrum disorder . Research in Autism Spectrum Disorders, 77, 101631. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2020.101631 OpenAlex: https://openalex.org/W3049747566
    Crossref OpenAlex
  23. Karen J. Ishler , David E. Biegel , Fei Wang , Tugba Olgac , Sarah Lytle , Stacy Miner et al. (2022). Service Use Among Transition-Age Youth with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 52(3), 1051-1065. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04999-6 OpenAlex: https://openalex.org/W3153315461
    Crossref OpenAlex
  24. Anna Melissa Romualdez , Katie Yirrell , Anna Remington (2020). Exploring Participants’ Views on a Supported Work Internship Program for Autistic and Learning Disabled Young People . International Journal of Disability Management, 15. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/idm.2020.4 OpenAlex: https://openalex.org/W3092548052
    Crossref OpenAlex
  25. Vahe Khachadourian , Behrang Mahjani , Sven Sandin , Alexander Kolevzon , Joseph D. Buxbaum , Abraham Reichenberg et al. (2023). Comorbidities in autism spectrum disorder and their etiologies . Translational Psychiatry, 13(1), 71. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41398-023-02374-w OpenAlex: https://openalex.org/W4322008792
    Crossref OpenAlex
  26. Heekyung Lee , Gloria K. Lee , Jina Chun , Hung-Jen Kuo , Sarah L. Curtiss , Christiana Okyere (2023). Perspectives of Autistic Emerging Adults, Parents, and Practitioners on the Transition to Adulthood . Journal of Child and Family Studies, 32(3), 938-950. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10826-022-02430-x OpenAlex: https://openalex.org/W4297850864
    Crossref OpenAlex
  27. Audrey Thurm , Alycia Halladay , David S. Mandell , Melissa Maye , Sarah Ethridge , Cristan Farmer (2022). Making Research Possible: Barriers and Solutions For Those With ASD and ID . Journal of Autism and Developmental Disorders, 52(10), 4646-4650. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05320-1 OpenAlex: https://openalex.org/W3208585137
    Crossref OpenAlex
  29. Yosheen Pillay , Charlotte Brownlow , Sonja March (2022). Transition approaches for autistic young adults: A case series study . PLOS ONE, 17(5), e0267942. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0267942 OpenAlex: https://openalex.org/W4229080735
    Crossref OpenAlex
  30. Viviann Nordin , Maud Palmgren , Anna Lindbladh , Sven Bölte , Ulf Jönsson (2024). School absenteeism in autistic children and adolescents: A scoping review . Autism, 28(7), 1622-1637. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231217409 OpenAlex: https://openalex.org/W4390444717
    Crossref OpenAlex
  31. Anne M. Roux , Jessica Rast , Kristy A. Anderson , Julianna A Rava , Paul Shuttuck (2015). Transition into Young Adulthood: National Autism Indicators Report . A.J. Drexel Autism Institute.
    Type: Report DOI: 10.17918/nairtransition2015 OpenAlex: https://openalex.org/W4313567965
    Crossref OpenAlex
  33. Connie Sung , Marisa H. Fisher , Christiana Okyere , Jiyoon Park , Heerak Choi (2023). Employment outcomes and support needs of Michigan Project SEARCH graduates with intellectual and developmental disabilities: A mixed-method study . Journal of Vocational Rehabilitation, 59(3), 233-249. SAGE Publications.
    Type: Article DOI: 10.3233/jvr-230042 OpenAlex: https://openalex.org/W4386769101
    Crossref OpenAlex
  34. Anne C. Sullivan , Asha K. Vas , Wendi L. Johnson (2026). Transition to Adulthood: Executive Functions and Independent Living Skills in Autistic Young Adults . Occupational Therapy In Health Care, 40(1), 154-175. Informa UK Limited.
    Type: Article DOI: 10.1080/07380577.2024.2441230 OpenAlex: https://openalex.org/W4405497351
    Crossref OpenAlex
  35. Samara M. Wolpe , Amanda R. Johnson , Sunny Kim (2025). Navigating the Transition to Adulthood: Insights from Caregivers of Autistic Individuals . Journal of Autism and Developmental Disorders, 55(1), 166-180. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-06196-z OpenAlex: https://openalex.org/W4390143405
    Crossref OpenAlex
  36. Louise Maree White , Dawn Adams , Kate Simpson , Stephanie A. Malone (2025). Transitioning on from Secondary School for Autistic Students: A Systematic Review . Autism in Adulthood, 7(4), 386-402. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2023.0193 OpenAlex: https://openalex.org/W4396678267
    Crossref OpenAlex
  37. Louise Maree White , Kate Simpson , Stephanie A. Malone , Dawn Adams (2024). Autistic Adults’ Reflections on What Supported Their Transitioning from Secondary School . Education Sciences, 14(6), 576. MDPI AG.
    Type: Article DOI: 10.3390/educsci14060576 OpenAlex: https://openalex.org/W4399055453
    Crossref OpenAlex