When coping is not inclusion: Practitioner assessment narratives and the sustainability of autistic participation in mainstream schools
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerWheeler, M. (2026). When coping is not inclusion: Practitioner assessment narratives and the sustainability of autistic participation in mainstream schools. Journal of Research in Special Educational Needs, 26(4), Article e70160. https://doi.org/10.1111/1471-3802.70160
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Authors
Abstract
Abstract Inclusive education is often evaluated through visible indicators such as classroom engagement, behaviour, attendance and academic participation. For autistic learners, however, visible functioning may not fully reflect the accessibility of the educational environment or the regulatory effort required to sustain participation. This paper examines a purposively selected set of cases in which autistic learners were described as coping or participating in mainstream education while assessment documentation also recorded evidence of strain, environmental dependence or difficulty sustaining participation across contexts and time. Drawing on qualitative analysis of nine anonymised practitioner assessment narratives integrating school and family perspectives, the study explores how participation was represented within real‐world assessment documentation. Reflexive thematic analysis identified recurring patterns in which participation depended on environmental structuring, behavioural adaptation, adult mediation and sustained self‐regulation. Home‐school divergence, post‐school exhaustion and increased difficulty during transitions suggested that participation was often environmentally contingent rather than inherently secure. The study develops a distinction between observable participation and sustainable participation, arguing that inclusive environments should be evaluated not only by whether autistic learners appear to cope, but by how participation is achieved, what it costs and whether it can be sustained over time.
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- 44
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- 48 / 49 (98.0%)
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- 1
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- 5
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-
Lindsay Prior (2003). Using Documents in Social Research . SAGE Publications Ltd.Crossref OpenAlex
-
Mel Ainscow (2020). Promoting inclusion and equity in education: lessons from international experiences . Nordic Journal of Studies in Educational Policy, 6(1), 7-16. Informa UK Limited.Crossref OpenAlex
-
Damian E. M. Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
-
Lovisa Alehagen , Sven Bölte , Melissa H. Black (2025). Application of the international classification of functioning, disability, and health in autism and attention-deficit hyperactivity disorder: A scoping review . Autism, 29(2), 310-328. SAGE Publications.Crossref OpenAlex
-
Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.Crossref OpenAlex
-
Jill Ashburner , Jenny Ziviani , Sylvia Rodger (2008). Sensory Processing and Classroom Emotional, Behavioral, and Educational Outcomes in Children With Autism Spectrum Disorder . American Journal of Occupational Therapy, 62(5), 564-573. SAGE Publications.Crossref OpenAlex
-
Glenn A. Bowen (2009). Document Analysis as a Qualitative Research Method . Qualitative Research Journal, 9(2), 27-40. Emerald.Crossref OpenAlex
-
Jill Ashburner , Jenny Ziviani , Sylvia Rodger (2010). Surviving in the mainstream: Capacity of children with autism spectrum disorders to perform academically and regulate their emotions and behavior at school . Research in Autism Spectrum Disorders, 4(1), 18-27. Elsevier BV.Crossref OpenAlex
-
Booth T. (2002). Index for inclusion: developing learning and participation in schools . Index for inclusion: developing learning and participation in schools.Type: OtherCrossref
-
Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.
-
Gregor Maxwell , Ines Alves , Mats Granlund (2012). Participation and environmental aspects in education and the ICF and the ICF-CY: Findings from a systematic literature review . Developmental Neurorehabilitation, 15(1), 63-78. Informa UK Limited.Crossref OpenAlex
-
Monique Botha *Autistic author. Learn more… , Robert Chapman *Autistic author. Learn more… , Morénike Giwa Onaiwu *Autistic author. Learn more… , Steven Kapp *Autistic author. Learn more… , Abs S. Ashley *Autistic author. Learn more… , Nick Walker *Autistic author. Learn more… (2024). The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory . Autism, 28(6), 1591-1594. SAGE Publications.
-
William Mandy , Marianna Murin , Ozlem Baykaner , Sara Staunton , Josselyn Hellriegel , Seonaid Anderson et al. (2016). The transition from primary to secondary school in mainstream education for children with autism spectrum disorder . Autism, 20(1), 5-13. SAGE Publications.Crossref OpenAlex
-
Gillian King , Mary Lawm , Susanne King , Peter Rosenbaum , Marilyn K. Kertoy , Nancy L. Young (2003). A Conceptual Model of the Factors Affecting the Recreation and Leisure Participation of Children with Disabilities . Physical & Occupational Therapy In Pediatrics, 23(1), 63-90. Informa UK Limited.Crossref OpenAlex
-
Christine Imms , Brooke Adair , Deb Keen , Anna Ullenhag , Peter Rosenbaum , Mats Granlund (2016). ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities . Developmental Medicine & Child Neurology, 58(1), 29-38. Wiley.Crossref OpenAlex
-
Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.Crossref OpenAlex
-
Urie Bronfenbrenner (1979). The Ecology of Human Development . Harvard University Press.Crossref OpenAlex
-
Virginia Braun , Victoria Clarke (2021). Thematic Analysis . In Thematic analysis: a practical guide. SAGE Publications Ltd.Crossref OpenAlex
-
Christine Imms , Mats Granlund , Peter H Wilson , Bert Steenbergen , Peter Rosenbaum , Andrew M Gordon (2017). Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability . Developmental Medicine & Child Neurology, 59(1), 16-25. Wiley.Crossref OpenAlex
-
British Psychological Society (2021). BPS code of human research ethics . BPS code of human research ethics.Type: OtherCrossref
-
Meng-Chuan Lai , Michael Lombardo , Amber Ruigrok , Bhismadev Chakrabarti , Bonnie Auyeung , Peter Szatmari et al. (2017). Quantifying and exploring camouflaging in men and women with autism . Autism, 21(6), 690-702. SAGE Publications.Crossref OpenAlex
-
Lucy A Livingston , Francesca Happé (2017). Conceptualising compensation in neurodevelopmental disorders: Reflections from autism spectrum disorder . Neuroscience & Biobehavioral Reviews, 80, 729-742. Elsevier BV.Crossref OpenAlex
-
Evangelou M. (2008). What makes a successful transition from primary to secondary school? Effective pre‐school, primary and secondary education 3–14 project (EPPSE 3–14) . What makes a successful transition from primary to secondary school? Effective pre‐school, primary and secondary education 3–14 project (EPPSE 3–14).Type: OtherCrossref
-
Gregor R. Maxwell , Mats Granlund , Lilly Augustine (2018). Inclusion Through Participation: Understanding Participation in the International Classification of Functioning, Disability, and Health as a Methodological Research Tool for Investigating Inclusion . Frontiers in Education, 3. Frontiers Media SA.Crossref OpenAlex
-
Sarah L. Field , Marc O. Williams , Catherine R G Jones , John R. E. Fox (2024). A meta-ethnography of autistic people’s experiences of social camouflaging and its relationship with mental health . Autism, 28(6), 1328-1343. SAGE Publications.Crossref OpenAlex
-
Roger Slee (2018). Inclusive Education isn’t Dead, it Just Smells Funny . Routledge.Crossref OpenAlex
-
Chloe Fielding , Alice Streeter , Deborah M Riby , Mary Hanley (2025). Neurodivergent Pupils’ Experiences of School Distress and Attendance Difficulties . Neurodiversity, 3, 275463302513270. SAGE Publications.Crossref OpenAlex
-
Craig Goodall (2018). ‘I felt closed in and like I couldn’t breathe’: A qualitative study exploring the mainstream educational experiences of autistic young people . Autism & Developmental Language Impairments, 3, 239694151880440. SAGE Publications.Crossref OpenAlex
-
Emmie Fisher , Keren MacLennan , Sinéad L. Mullally , Jacqui Rodgers , Effy Tzemou (2025). ‘I Can’t Go to School, It Isn’t a Won’t’: Lived Experiences of Neurodivergent Children's School Anxiety Within the UK's Systemic Crisis . Neurodiversity, 3. SAGE Publications.Crossref OpenAlex
-
(n.d.). e_1_2_13_19_1Type: Other DOI: 10.1080/0305764x.2011.625076Crossref
-
Laura Hull , Meng-Chuan Lai , S. Baron-Cohen , C. Allison , P. Smith , K.V. Petrides et al. (2020). Gender differences in self-reported camouflaging in autistic and non-autistic adults . Autism, 24(2), 352-363. SAGE Publications.Crossref OpenAlex
-
Laura Gray , Vivian Hill , Elizabeth Pellicano (2023). “He’s shouting so loud but nobody’s hearing him”: A multi-informant study of autistic pupils’ experiences of school non-attendance and exclusion . Autism & Developmental Language Impairments, 8, 23969415231207816-23969415231207816. SAGE Publications.Crossref OpenAlex
-
Marek Grummt (2024). Sociocultural perspectives on neurodiversity—An analysis, interpretation and synthesis of the basic terms, discourses and theoretical positions . Sociology Compass, 18(8). Wiley.Crossref OpenAlex
-
Elizabeth K. Jones , Mary Hanley , Deborah M. Riby (2020). Distraction, distress and diversity: Exploring the impact of sensory processing differences on learning and school life for pupils with autism spectrum disorders . Research in Autism Spectrum Disorders, 72, 101515. Elsevier BV.Crossref OpenAlex
-
Jo Halsall , Chris Clarke , Laura Crane (2021). “Camouflaging” by adolescent autistic girls who attend both mainstream and specialist resource classes: Perspectives of girls, their mothers and their educators . Autism, 25(7), 2074-2086. SAGE Publications.Crossref OpenAlex
-
Dora Raymaker *Autistic author. Learn more… , Alan R. Teo , Nicole A. Steckler , Brandy Lentz , Mirah Scharer , Austin Delos Santos et al. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout . Autism in Adulthood, 2(2), 132-143. SAGE Publications.
-
Judith Hebron , Neil Humphrey (2014). Mental health difficulties among young people on the autistic spectrum in mainstream secondary schools: a comparative study . Journal of Research in Special Educational Needs, 14(1), 22-32. Wiley.Crossref
-
Julianne M. Higgins *Autistic author. Learn more… , Samuel R. C. Arnold , Janelle Weise , Elizabeth Pellicano , Julian Trollor (2021). Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout . Autism, 25(8), 2356-2369. SAGE Publications.
-
Stephanie J. Howe , Laura Hull , Felicity Sedgewick , Benjamin Hannon , Carly A. McMorris (2023). Understanding camouflaging and identity in autistic children and adolescents using photo-elicitation . Research in Autism Spectrum Disorders, 108, 102232. Elsevier BV.Crossref OpenAlex
-
Jane Mantzalas , Amanda Richdale , Achini Adikari , Jennifer Lowe *Autistic author. Learn more… , Cheryl Dissanayake (2022). What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms . Autism in Adulthood, 4(1), 52-65. SAGE Publications.
-
Laura Hull , K.V. Petrides , C. Allison , P. Smith , S. Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.Crossref
-
Punit Shah , Joni Holmes (2023). Neurodiversity: Towards an interdisciplinary approach . Neurodiversity, 1, 275463302311875. SAGE Publications.Crossref OpenAlex
-
Jane Mantzalas , Amanda Richdale , Xia Li , Cheryl Dissanayake (2024). Measuring and validating autistic burnout . Autism Research, 17(7), 1417-1449. Wiley.Crossref OpenAlex
-
Francisco J. Parada , Aitana Grasso‐Cladera , Alejandra Rossi , Patricia Soto‐Icaza , Maritza Arenas‐Pérez , María Constanza Errázuriz (2024). Applied human neuroscience: Fostering and designing inclusive environments with the 3E‐Cognition perspective . European Journal of Neuroscience, 60(3), 4148-4168. Wiley.Crossref OpenAlex
-
Lucy A Livingston , Punit Shah , Francesca Happé (2019). Compensatory strategies below the behavioural surface in autism: a qualitative study . The Lancet Psychiatry, 6(9), 766-777. Elsevier BV.Crossref
-
Philippa Wood *Autistic author. Learn more… (2025). Through our eyes: Understanding how autistic children co-author a sense of self and relate to the world. An interpretative, observational thematic analysis . Human Systems: Therapy, Culture and Attachments, 5(1), 20-45. SAGE Publications.
-
Brahm Norwich (2014). Changing policy and legislation and its effects on inclusive and special education: a perspective from E ngland . British Journal of Special Education, 41(4), 403-425. Wiley.Crossref
-
Shakespeare T. (2014). Disability rights and wrongs revisited . Disability rights and wrongs revisited.Type: OtherCrossref
-
UNESCO (1994). The Salamanca Statement and framework for action on special needs education . The Salamanca Statement and framework for action on special needs education.Type: OtherCrossref