Understanding healthcare professionals’ experiences supporting Autistic people in perinatal care: A qualitative study
Love, A. M., Edwards, C., Rideout, B., Hollenberg, L., Clapham, H., McKeown, G., Robinson, A., Cai, R. Y., Benzie, C., Rabba, A. S., & Gibbs, V. (2026). Understanding healthcare professionals’ experiences supporting Autistic people in perinatal care: A qualitative study. Midwifery, 160, 104868. https://doi.org/10.1016/j.midw.2026.104868
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Authors
Abstract
PROBLEM: Autistic individuals face disproportionately poor outcomes during the perinatal period. BACKGROUND: Lived experience accounts highlight that challenges in interactions with healthcare professionals can reduce birth satisfaction and contribute to traumatic experiences, revealing significant gaps in current perinatal care for this population; yet few studies have explored the experiences of healthcare workers providing this care in Australia. Understanding clinicians' perspectives is essential to inform targeted training, improve care practices, and promote better outcomes for Autistic people during pregnancy and early parenthood. AIM: This study explored, through qualitative analysis, the experiences of Australian perinatal healthcare clinicians providing care for Autistic individuals, during pregnancy and early parenthood. METHODS: Reflexive thematic analysis was conducted on interview and focus group data of 13 perinatal professionals from diverse roles within perinatal healthcare. FINDINGS: Three key themes were created, highlighting the need for targeted training and systemic changes, alongside evidence that professionals often relied on personal experience when formal training was lacking. DISCUSSION: These findings are consistent with international research on perinatal care for Autistic people, but this study is the first to directly examine the perspectives of Australian clinicians, providing unique insights into local practice and challenges that can be leveraged to make systemic change. CONCLUSION: Despite systemic and cultural barriers, Australian perinatal healthcare professionals demonstrate strong commitment to providing individualized, person-centred care for Autistic individuals during pregnancy and early parenthood.
Bibliography cited by this reference
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Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.
-
Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.Crossref OpenAlex
-
(2013). Diagnostic and statistical manual of mental disorders . Diagnostic and statistical manual of mental disorders.Type: OtherCrossref
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Amelia E.V. Baggs et al. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum . Autism, 19(7), 824-831. SAGE Publications.
-
Ligia Antezana , Angela Scarpa , Andrew Valdespino , Jordan Albright , John A. Richey (2017). Rural Trends in Diagnosis and Services for Autism Spectrum Disorder . Frontiers in Psychology, 8, 590. Frontiers Media SA.Crossref OpenAlex
-
Steven K. Kapp *Autistic author. Learn more… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
-
Samuel R. C. Arnold , Georgia Bruce , Janelle Weise , Caroline J Mills , Julian N Trollor , Kristy Coxon (2024). Barriers to healthcare for Australian autistic adults . Autism, 28(2), 301-315. SAGE Publications.Crossref OpenAlex
-
Meng-Chuan Lai , Simon Baron-Cohen (2015). Identifying the lost generation of adults with autism spectrum conditions . The Lancet Psychiatry, 2(11), 1013-1027. Elsevier BV.Crossref OpenAlex
-
(2022). Disability, Ageing and Carers, Australia: Summary of Findings .Type: OtherCrossref
-
Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Elesia Ashkenazy *Autistic author. Learn more… , Martha Gerrity , Amelia E.V. Baggs , Clarissa Kripke et al. (2017). Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities . Autism, 21(8), 972-984. SAGE Publications.
-
Charlie Benzie , Michelle Newton , Della Forster , Helen McLachlan (2023). How are women with a disability identified in maternity services in Australia? A cross-sectional survey of maternity managers . Women and Birth, 36(1), e161-e168. Elsevier BV.Crossref OpenAlex
-
Monika Mitra , Lauren D. Smith , Suzanne C. Smeltzer , Linda M. Long-Bellil , Nechama Sammet Moring , Lisa I. Iezzoni (2017). Barriers to providing maternity care to women with physical disabilities: Perspectives from health care practitioners . Disability and Health Journal, 10(3), 445-450. Elsevier BV.Crossref OpenAlex
-
Charlie Benzie , Helen McLachlan , Della Forster , Michelle Newton (2023). Exploring disability prevalence among childbearing women attending a tertiary maternity service in Melbourne, Australia using an audit and cross-sectional survey . Midwifery, 122, 103697. Elsevier BV.Crossref OpenAlex
-
Rachel Loomes , Laura Hull , Will Mandy (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466-474. Elsevier BV.Crossref OpenAlex
-
Monique Botha *Autistic author. Learn more… , Kristen Gillespie-Lynch , Morénike Giwa Onaiwu *Autistic author. Learn more… , Desiree R. Jones , So Yoon Kim , Rita Obeid (2025). Neurodiversity‐Affirming Intersectional Approaches That Target Public Policy: Moving the Focus From Changing Individuals to Changing Systems of Power . Journal of Social Issues, 81(4). Wiley.
-
Laura Hull , Meng-Chuan Lai , Simon Baron-Cohen , Carrie Allison , Paula Smith , KV Petrides et al. (2020). Gender differences in self-reported camouflaging in autistic and non-autistic adults . Autism, 24(2), 352-363. SAGE Publications.Crossref OpenAlex
-
Kirsten Corden , Rebecca Brewer , Eilidh Cage (2022). A Systematic Review of Healthcare Professionals’ Knowledge, Self-Efficacy and Attitudes Towards Working with Autistic People . Review Journal of Autism and Developmental Disorders, 9(3), 386-399. Springer Science and Business Media LLC.Crossref
-
Alison Jayne Doherty , Helen Atherton , Paul Boland , Richard P. Hastings , Lucy Hives , Kerry Hood et al. (2020). Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review . BJGP Open, 4(3), bjgpopen20X101030. Royal College of General Practitioners.Crossref OpenAlex
-
Chloe Walsh , Sinéad Lydon , Emily O’Dowd , Paul O’Connor (2020). Barriers to Healthcare for Persons with Autism: A Systematic Review of the Literature and Development of A Taxonomy . Developmental Neurorehabilitation, 23(7), 413-430. Informa UK Limited.Crossref OpenAlex
-
Mary Doherty *Autistic author. Learn more… , Sue McCowan *Autistic author. Learn more… , Sebastian Charles Keith Shaw *Autistic author. Learn more… (2023). Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings . British Journal of Hospital Medicine, 84(4), 1-9. IMR Press.
-
Tamara May , Amanda Brignell , Katrina Williams (2020). Autism Spectrum Disorder Prevalence in Children Aged 12–13 Years From the Longitudinal Study of Australian Children . Autism Research, 13(5), 821-827. Wiley.Crossref OpenAlex
-
Jata K. Elliott *Autistic author. Learn more… , Kate Buchanan , Sara Bayes (2024). The neurodivergent perinatal experience — A systematic literature review on autism and attention deficit hyperactivity disorder . Women and Birth, 37(6), 101825. Elsevier BV.
-
Georgia Lockwood Estrin , Victoria Milner , Debbie Spain , Francesca Happé , Emma Colvert (2021). Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review . Review Journal of Autism and Developmental Disorders, 8(4), 454-470. Springer Science and Business Media LLC.Crossref OpenAlex
-
Charlotte Grahame , Andrew R. Thompson , Megan Freeth (2026). “A Wild and Inaccessible Place”: The Lived Experiences of Autistic Pregnancy and Birth . Autism in Adulthood, 8(3), 457-467. SAGE Publications.Crossref OpenAlex
-
Sarah Hampton , Joyce Man , Carrie Allison , Ezra Aydin , Simon Baron-Cohen , Rosemary Holt (2022). A qualitative exploration of autistic mothers’ experiences II: Childbirth and postnatal experiences . Autism, 26(5), 1165-1175. SAGE Publications.Crossref OpenAlex
-
Aimee Grant *Autistic author. Learn more… , Catrin Griffiths , Kathryn Williams *Autistic author. Learn more… , Amy Brown (2025). “I felt belittled and ridiculed for being in pain”: An online survey of Autistic people's experience of care for pregnancy loss (perinatal loss) in the United Kingdom✰ . Midwifery, 141, 104266. Elsevier BV.
-
Elizabeth M Weir , Carrie Allison , Simon Baron-Cohen (2022). Autistic adults have poorer quality healthcare and worse health based on self-report data . Molecular Autism, 13(1), 23-23. Springer Science and Business Media LLC.Crossref OpenAlex
-
Sarah Murphy , Rebecca L. Flower , Rachel Jellett (2023). Women seeking an autism diagnosis in Australia: A qualitative exploration of factors that help and hinder . Autism, 27(3), 808-821. SAGE Publications.Crossref OpenAlex
-
International Pty Ltd (2018). NVivo Qualitative Data Analysis software. Version 12 .Type: OtherCrossref
-
Sebastian Charles Keith Shaw *Autistic author. Learn more… , Laura Carravallah *Autistic author. Learn more… , Mona Johnson *Autistic author. Learn more… , Jane O’Sullivan , Nicholas Chown *Autistic author. Learn more… , Stuart Neilson et al. (2024). Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study . Autism, 28(7), 1746-1757. SAGE Publications.
-
Love (2025). Stories of competence, challenges, and coping: the experiences of Australian autistic people during pregnancy and early parenthood . Autism. Adulthood..Type: OtherCrossref
-
Laura Moore , Sarah Foley , Fionnuala Larkin (2025). Understanding the experiences of receiving and providing maternity care for autistic adults: A Multi-perspectival Interpretative Phenomenological Analysis study . Autism, 29(2), 435-446. SAGE Publications.Crossref OpenAlex
-
Maryse Pagnier , Mona Moualla (2026). The Autistic Parenting Journey: A Systematic Review of Qualitative Evidence and Thematic Meta-Synthesis . Autism in Adulthood, 8(4), 571-592. SAGE Publications.Crossref OpenAlex
-
Kelly A. Shaw , Susan Williams , Mary E. Patrick , Miguel Valencia-Prado , Maureen S. Durkin , Ellen M. Howerton et al. (2025). Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022 . MMWR. Surveillance Summaries, 74(2), 1-22. Centers for Disease Control MMWR Office.Crossref OpenAlex
-
Elizabeth O’Nions , Irene Petersen , Joshua E.J. Buckman , Rebecca A. Charlton , Claudia Cooper , Anne Corbett et al. (2023). Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data . The Lancet Regional Health - Europe, 29, 100626. Elsevier BV.Crossref
-
Megan R. Pohlmann , Patrick L. Hill (2025). Scoping review of neurodiversity in nursing workplaces . Research in Neurodiversity, 1, 100007. Elsevier BV.Crossref OpenAlex
-
Lucy Smith , Jennifer Kirton , Helen West , Leanne Jackson , Katie Herron , Mary Gemma Cherry (2026). The interpersonal experiences of autistic women and birthing people in the perinatal period: a systematic review using the autistic SPACE framework . Journal of Reproductive and Infant Psychology, 44(1), 4-26. Informa UK Limited.Type: Article DOI: 10.1080/02646838.2025.2526492Crossref
-
Jonathan Vincent , Lisa Harkry , Lorna Hamilton (2024). Creating a diversity climate in the workplace: A mixed methods study into knowledge of autism and attitudes toward hiring autistic people in the United Kingdom . Journal of Vocational Rehabilitation, 61(2), 1-12. SAGE Publications.Type: Article DOI: 10.3233/jvr-240039Crossref