Mental health–related hospitalizations among adolescents and emerging adults with autism in the United States: A retrospective, cross-sectional analysis of national hospital discharge data

This publication is included in the Autistic Autism Scholarship Project. The publication reports that autistic people are authors or co-authors, without specifying their number or identifying them by name.

McMaughan, D. J., Imanpour, S., Mulcahy, A., Jones, J., & Criss, M. M. (2023). Mental health–related hospitalizations among adolescents and emerging adults with autism in the United States: A retrospective, cross-sectional analysis of national hospital discharge data. Autism, 27(6), 1702-1715. https://doi.org/10.1177/13623613221143592

Journal or book title
Autism
Publisher
SAGE Publications
Volume
27
Issue
6
Pages
1702-1715
Publication date: 4 Jan 2023 Added to AutiHub: 21 Sep 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
5
Autistic authors reported by the publication
Number not specified

Abstract

Autistic adolescents and emerging adults experience high rates of mental health conditions—a risk factor for hospitalization. Using nationally representative data from the 2016 HCUP KID, we estimated the prevalence and costs of mental health–related hospitalizations for autistic adolescents and emerging adults in the United States. Hospital discharges for ages 10–20 years (n = 1,346,849) were analyzed using survey-adjusted logistic regression and general linear modeling. Mental health–related hospitalizations among autistic young people (n = 14,368) were mostly for neurodevelopmental, disruptive, depressive, and bipolar disorders. Mental health–related hospitalizations were almost 11 times more likely (OR = 10.98, 95% CI = 10.00–12.00) for autistic youth compared youth with complex and chronic conditions, and two times (OR = 2.03, 95% CI = 1.88–2.19) more likely compared to population controls. Predicted mean service delivery costs of mental health–related hospitalizations for autistic adolescents and emerging adults were US$7,401.23 per stay, resulting in US$106 million in estimated total service delivery costs in 2016. Mental health–related hospitalizations can indicate poor quality care, be traumatic, and increase suicide risk. Community mental health care for autistic young people is needed. Lay abstract Autistic young people are more likely to have mental health conditions, like depression and bipolar disorder, than people without autism. These mental health issues sometimes lead to hospitalizations, which can be expensive and traumatic. Because of this, we wanted to understand mental health–related hospitalizations among autistic young people aged 10–20. We found that the main mental health reasons for the hospitalization of autistic young people were neurodevelopmental, disruptive, depressive, and bipolar disorders. These hospitalizations cost an average of US$7401.23 per stay, for a total of US$106 million in service delivery costs in 2016. Mental health–related hospitalizations were compared between young people with autism, young people with complex and chronic conditions, and young people with no chronic conditions. Autistic young people were almost 11 times more likely to be hospitalized for mental health reasons than young people with complex and chronic conditions, and two times more likely than young people with no complex and chronic conditions. We believe the United States needs better community-based mental health care for young people with autism.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 08:23.

Cited references
76
With a DOI
64
Without a DOI, from raw bibliography text
10
4 / 76 (5.3%) cited references include at least one author identified as autistic.
References with data to complete
8 / 76 (10.5%)
References with detected author names
68 / 76 (89.5%)
Without detected author names
8
Without a structured title
8
Without a stable identifier
10
References with raw author names still to review
8
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
373
From DOI or external metadata
373
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
13
83 / 373 (22.3%) names are linked to an author already present in AutiHub. 290 / 373 (77.7%) names are not yet linked.
Names linked to a person identified as autistic
14 / 373 (3.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 14 / 83 (16.9%). Distinct people identified as autistic: 13 / 337 (3.9%).
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