Families Living With Autism Spectrum Disorder

Cridland, E. K., Thom-Jones, S., Stoyles, G., Caputi, P., & Magee, C. (2015). Families Living With Autism Spectrum Disorder. Focus on Autism and Other Developmental Disabilities, 31(3), 196-207. https://doi.org/10.1177/1088357615583466

Publication date: 22 Apr 2015 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)

Abstract

There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed.

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
85
Total cited references integrated for this publication.
Cited references with an identified autistic author
3 / 85 (3.5%)
Cited author occurrences identified as autistic
3 / 173 (1.7%)
Among occurrences linked to AutiHub author records: 3 / 20 (15.0%). Distinct cited authors identified as autistic: 1 / 150 (0.7%).
Cited author occurrences linked to AutiHub author records
20 / 173 (11.6%)
Distinct linked cited authors: 10 / 150 (6.7%)
Linked cited-author occurrences not identified as autistic
17 / 20 (85.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 17 / 173 (9.8%). Distinct linked cited authors not identified as autistic: 9 / 10 (90.0%).
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