« J’ai besoin de dormir maintenant » : une étude qualitative sur le sommeil et les mères de personnes autistes
Titre original en anglais : “I Need Sleep Now”: A Qualitative Study of Sleep and Mothers of Autistic Individuals
Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.
À propos de la mention auteur·ice autisteKnutson, L. M. & Badahdah, A. (2026). “I Need Sleep Now”: A Qualitative Study of Sleep and Mothers of Autistic Individuals. Family Relations, Article fare.70401. https://doi.org/10.1111/fare.70401
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Résumé
RÉSUMÉ Objectif Cette étude qualitative a examiné les expériences de mères de personnes autistes et la manière dont les habitudes de sommeil de la personne autiste influençaient le sommeil et les activités quotidiennes de la mère. Contexte Des recherches antérieures ont montré que les problèmes de sommeil sont fréquents dans la population autiste. Lorsque les enfants ont des problèmes de sommeil, le sommeil des parents est souvent interrompu, ce qui affecte de multiples domaines du fonctionnement. Méthode Nous avons réalisé une analyse thématique réflexive de données d’entretiens recueillies auprès de 11 mères de personnes autistes présentant des problèmes de sommeil aux États-Unis. Résultats Quatre thèmes ont été identifiés : ce n’est jamais prévisible, vous êtes toujours en alerte, je ne peux plus dormir comme ça, et le sommeil est l’ingrédient secret. Ces thèmes montrent collectivement la nature interconnectée des perturbations du sommeil vécues par les enfants autistes et du sommeil des mères. Conclusion Guidés par la théorie des systèmes familiaux, les problèmes de sommeil chez les personnes autistes affectent la quantité et la qualité du sommeil, ainsi que la santé mentale, de leurs mères. La privation chronique de sommeil qui en résulte entraîne des difficultés à participer aux activités quotidiennes et aux relations sociales. Implications Nos résultats révèlent que lorsque les enfants autistes connaissent des problèmes de sommeil, l’unité familiale est affectée. Les prestataires de services doivent être conscients des effets étendus que la privation de sommeil peut avoir sur l’engagement familial et l’apprentissage.
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