Priorités guidées par la communauté dans les services de transition pour les déficiences intellectuelles et développementales : une analyse environnementale

Titre original en anglais : Community-Driven Priorities in Intellectual and Developmental Disabilities Transition Services: An Environmental Scan

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Pfeiffer, E., Weiss, K. E., Tomczuk, L. D., & Slugg, L. (2025). Community-Driven Priorities in Intellectual and Developmental Disabilities Transition Services: An Environmental Scan. OTJR: Occupational Therapy Journal of Research, 46(3), 443-455. https://doi.org/10.1177/15394492251352398

Date de publication: 31/07/2025 Ajout dans AutiHub: 27/10/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Elizabeth Pfeiffer
  2. K. Eva Weiss
  3. Luke D. Tomczuk *
  4. Laura Slugg

Résumé

La transition vers l'âge adulte peut être une période ardue pour les jeunes adultes présentant des déficiences intellectuelles et développementales (DID), qui font face à de nouvelles responsabilités et à des changements importants dans les services qu'ils reçoivent. Le soutien par les pairs assuré par une personne ayant une expérience vécue commune du handicap peut fournir des services de transition pertinents et efficaces. Une équipe inclusive de chercheurs, qui a fait participer des personnes ayant une expérience vécue à toutes les activités de recherche, a réalisé une analyse environnementale comprenant une revue de portée, des groupes de discussion (5 groupes, n = 28 participants) et des entretiens (n = 19) afin d'identifier les priorités en matière de services et de recherche du point de vue de membres clés de la communauté (c.-à-d., jeunes adultes avec DID, parents, pairs soutenants, chercheurs et prestataires de services). Les données mises en correspondance provenant des trois sources ont mis en évidence des priorités de services de transition guidées par la communauté : les compétences de vie autonome, les approches centrées sur la personne et les expériences postsecondaires, le soutien par les pairs étant identifié comme un facteur de renforcement des capacités. Les priorités des membres clés de la communauté peuvent être mises à profit pour les interventions existantes de transition et de soutien par les pairs.

The transition into adulthood can be an arduous time for young adults with intellectual and developmental disabilities (IDD) who face new responsibilities and significant shifts in services they receive. Peer support by someone with shared lived experience of disability can provide relevant and effective transition services. An inclusive team of researchers, which engaged people with lived experience in all research activities, conducted an environmental scan including a scoping review, focus groups (5 groups, n = 28 participants), and interviews (n = 19) to identify services and research priorities from the perspective of key community members (i.e., young adults with IDD, parents, peer supporters, researchers and service providers). Crosswalked data from the three sources demonstrated community-driven transition service priorities of independent living skills, person-centered approaches, and post-secondary experiences with peer support identified as a capacity builder. Priorities of key community members can be leveraged for existing transition and peer support interventions.

Bibliographie citée par cette référence

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Références citées
56
Avec un DOI
41
Sans DOI, à partir du texte brut de la bibliographie
14
1 / 56 (1,8 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 56 (12,5 %)
Références avec noms d’auteurices détectés
49 / 56 (87,5 %)
Sans nom d’auteurice détecté
7
Sans titre structuré
7
Sans identifiant stable
9
Références avec noms bruts d’auteurices restant à vérifier
7
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
203
À partir du DOI ou de métadonnées externes
203
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
11
39 / 203 (19,2 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 164 / 203 (80,8 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
2 / 203 (1,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 2 / 39 (5,1 %). Personnes distinctes identifiées comme autistes : 2 / 191 (1,0 %).
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