Community-Driven Priorities in Intellectual and Developmental Disabilities Transition Services: An Environmental Scan

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Pfeiffer, E., Weiss, K. E., Tomczuk, L. D., & Slugg, L. (2025). Community-Driven Priorities in Intellectual and Developmental Disabilities Transition Services: An Environmental Scan. OTJR: Occupational Therapy Journal of Research, 46(3), 443-455. https://doi.org/10.1177/15394492251352398

Publication date: 31 Jul 2025 Added to AutiHub: 27 Oct 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)
  1. Elizabeth Pfeiffer
  2. K. Eva Weiss
  3. Luke D. Tomczuk *
  4. Laura Slugg

Abstract

The transition into adulthood can be an arduous time for young adults with intellectual and developmental disabilities (IDD) who face new responsibilities and significant shifts in services they receive. Peer support by someone with shared lived experience of disability can provide relevant and effective transition services. An inclusive team of researchers, which engaged people with lived experience in all research activities, conducted an environmental scan including a scoping review, focus groups (5 groups, n = 28 participants), and interviews (n = 19) to identify services and research priorities from the perspective of key community members (i.e., young adults with IDD, parents, peer supporters, researchers and service providers). Crosswalked data from the three sources demonstrated community-driven transition service priorities of independent living skills, person-centered approaches, and post-secondary experiences with peer support identified as a capacity builder. Priorities of key community members can be leveraged for existing transition and peer support interventions.

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Cited bibliography overview

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Cited references
56
With a DOI
41
Without a DOI, from raw bibliography text
14
1 / 56 (1.8%) cited references include at least one author identified as autistic.
References with data to complete
7 / 56 (12.5%)
References with detected author names
49 / 56 (87.5%)
Without detected author names
7
Without a structured title
7
Without a stable identifier
9
References with raw author names still to review
7
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
203
From DOI or external metadata
203
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
11
39 / 203 (19.2%) names are linked to an author already present in AutiHub. 164 / 203 (80.8%) names are not yet linked.
Names linked to a person identified as autistic
2 / 203 (1.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 39 (5.1%). Distinct people identified as autistic: 2 / 191 (1.0%).
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