« Cela pourrait être une très bonne occasion de faire du monde un endroit plus favorable à l’autisme » : perspectives de professionnels sur les effets de la COVID-19 sur les personnes autistes

Titre original en anglais : “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Spain, D., Mason, D., Capp, S. J., Stoppelbein, L., W White, S., & Happé, F. (2021). “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals. Research in Autism Spectrum Disorders, 83, 101747. https://doi.org/10.1016/j.rasd.2021.101747

Date de publication: 07/03/2021 Ajout dans AutiHub: 18/09/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)

Résumé

CONTEXTE : La pandémie de COVID-19 (C-19) touche tout le monde. Les personnes autistes peuvent présenter un risque accru de rencontrer des difficultés pour faire face à l'impact de la C-19 (par exemple, en raison de changements inattendus dans les activités et routines habituelles, ainsi que du sentiment général d'incertitude). Cette étude préliminaire a recueilli les points de vue de professionnels de la santé et de l'accompagnement social, ainsi que de chercheurs, concernant : (1) les facteurs de vulnérabilité pour faire face à la pandémie ; (2) l'impact de la pandémie ; (3) la prestation de services pendant la pandémie ; et (4) les interventions visant à soutenir la réintégration pendant et après la pandémie. MÉTHODE : Nous avons mené une enquête en ligne, comprenant des réponses sur une échelle de Likert et des réponses en texte libre. Les données quantitatives ont été analysées de manière descriptive et les données qualitatives de manière thématique. RÉSULTATS : Trente-sept participants, travaillant dans des contextes cliniques, éducatifs et universitaires avec des personnes autistes, ont répondu à l'enquête. La C-19 a considérablement affecté la prestation de services, entraînant une perturbation majeure ou une perte de services. L'analyse thématique a indiqué six thèmes généraux : (1) les facteurs de vulnérabilité pour faire face à la C-19 et au confinement ; (2) l'impact positif et négatif du confinement (pour les personnes autistes, les familles et les professionnels) ; (3) la réponse de santé publique à la C-19 ; (4) la prestation de services pendant la pandémie ; (5) les inégalités ; et (6) les perspectives d'avenir. CONCLUSIONS : Les professionnels, toutes disciplines et tous contextes confondus, doivent désormais travailler ensemble avec les personnes autistes et leurs familles afin de comprendre l'impact de ces circonstances extraordinaires et de mettre au point des moyens permettant de soutenir chacun plus efficacement.

BACKGROUND: The COVID-19 (C-19) pandemic affects everyone. Autistic individuals may be at increased risk of experiencing difficulties coping with the impact of C-19 (e.g. due to unexpected changes to usual activities and routines, and the general sense of uncertainty). This preliminary study gathered the perspectives of health and social care professionals, and researchers, about: (1) vulnerability factors for coping with the pandemic; (2) the impact of the pandemic; (3) service provision during the pandemic; and (4) interventions to support reintegration during and post the pandemic. METHOD: We conducted an online survey, comprising Likert-scale and free text responses. Quantitative data were analysed descriptively, and qualitative data thematically. RESULTS: Thirty-seven participants, working in clinical, education and academic settings with autistic individuals, completed the survey. C-19 had substantially impacted service provision, causing major disruption or loss of services. Thematic analysis indicated six overarching themes: (1) vulnerability factors for coping with C-19 and lockdown; (2) positive and negative impact of lockdown (for autistic individuals, families and professionals); (3) public health response to C-19; (4) service provision during the pandemic; (5) inequalities; and (6) looking to the future. CONCLUSIONS: Professionals, across disciplines and settings, must now work together with autistic individuals and their families, to understand the impact of these extraordinary circumstances and develop ways everyone can be supported more effectively.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 01:01.

Références citées
59
Avec un DOI
54
Sans DOI, à partir du texte brut de la bibliographie
4
2 / 59 (3,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
0 / 59 (0,0 %)
Références avec noms d’auteurices détectés
59 / 59 (100,0 %)
Sans nom d’auteurice détecté
0
Sans titre structuré
0
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
306
À partir du DOI ou de métadonnées externes
306
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
50 / 306 (16,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 256 / 306 (83,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
4 / 306 (1,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 4 / 50 (8,0 %). Personnes distinctes identifiées comme autistes : 4 / 294 (1,4 %).
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