Perceptions des parents concernant leur participation à une intervention axée sur la communication, médiée par les parents, avec leur jeune enfant présentant un trouble du spectre de l’autisme

Titre original en anglais : Parent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder

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Leadbitter, K., Macdonald, W., Taylor, C., Buckle, K. L., & and the PACT Consortium* (2020). Parent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder. Autism, 24(8), 2129-2141. https://doi.org/10.1177/1362361320936394

Date de publication: 15/07/2020 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Kathy Leadbitter
  2. Wendy Macdonald
  3. Carol Taylor
  4. Karen Leneh Buckle *
  5. and the PACT Consortium*

Résumé

La thérapie de communication de l’autisme pédiatrique est une intervention médiée par les parents, assistée par vidéo et axée sur la communication, destinée aux jeunes enfants présentant un trouble du spectre de l’autisme. Il a été montré, dans un essai contrôlé randomisé mené au Royaume-Uni, qu’elle entraîne des améliorations de la communication parent-enfant et de la qualité de vie familiale, ainsi qu’une réduction durable de la sévérité des symptômes d’autisme chez l’enfant. Cette étude qualitative a examiné les perceptions des parents concernant leur participation à la thérapie de communication de l’autisme pédiatrique dans le contexte de l’essai contrôlé randomisé. Des entretiens semi-structurés ont été réalisés avec 18 parents dans les 12 mois suivant l’achèvement de la thérapie. L’analyse thématique fournit des éclairages sur les espoirs, les attentes et les processus d’apprentissage des parents lorsqu’ils travaillaient avec des thérapeutes de la thérapie de communication de l’autisme pédiatrique et réalisaient une pratique quotidienne à domicile. Les parents ont rapporté des changements positifs dans leur interaction et leur relation avec leur enfant, ainsi que des améliorations de la communication et de l’interaction de leur enfant. Certains ont également souligné des prises de conscience poignantes et des défis émotionnels associés à la participation à cette thérapie post-diagnostique. Des difficultés pratiques ont également été mises en avant. Les implications pour la pratique clinique des interventions médiées par les parents auprès de jeunes enfants présentant un trouble du spectre de l’autisme sont discutées. Résumé grand public La thérapie de communication de l’autisme pédiatrique est une intervention destinée aux jeunes enfants présentant un trouble du spectre de l’autisme qui se concentre sur la communication parent-enfant. Dans la thérapie de communication de l’autisme pédiatrique, le thérapeute et le parent regardent des vidéos du parent et de l’enfant jouant ensemble. Le thérapeute accompagne le parent afin qu’il observe attentivement la communication de l’enfant et interagisse avec son enfant de manière plus sensible et réactive. Les parents sont encouragés à utiliser les stratégies avec leur enfant à domicile. Il a été montré que la thérapie de communication de l’autisme pédiatrique entraîne des améliorations à long terme de la communication parent-enfant et de la qualité de vie familiale. Cette étude visait à explorer les perceptions des parents concernant leur participation à la thérapie de communication de l’autisme pédiatrique. Des entretiens ont été réalisés par un chercheur indépendant avec 18 parents. Les parents ont discuté des processus d’apprentissage qu’ils ont traversés en travaillant avec des thérapeutes de la thérapie de communication de l’autisme pédiatrique et en réalisant une pratique à domicile. Certains parents ont décrit des doutes initiaux concernant l’approche et des hésitations à être filmés et à analyser le matériel vidéo. Avec le temps, la plupart des parents en sont venus à réellement apprécier la thérapie et leur relation avec le thérapeute. Ils ont rapporté des changements positifs dans leur interaction et leur relation avec leur enfant, ainsi que des améliorations de la communication et de l’interaction de leur enfant. Certains ont également souligné des prises de conscience poignantes et des défis émotionnels associés à la participation à cette thérapie post-diagnostic. Des difficultés pratiques ont également été mises en avant, notamment l’investissement en temps, l’accessibilité des lieux de thérapie et les difficultés à occuper l’enfant pendant les discussions entre le thérapeute et le parent. Les implications pour la pratique clinique des interventions médiées par les parents sont discutées.

Paediatric Autism Communication Therapy is a parent-mediated, video-aided, communication-focussed intervention for young children with autism spectrum disorder. It has been shown in a UK randomised controlled trial to lead to improvements in parent–child communication and family quality of life, together with a sustained reduction in child autism symptom severity. This qualitative study examined parental perceptions of their participation in Paediatric Autism Communication Therapy within the context of the randomised controlled trial. Semi-structured interviews were carried out with 18 parents within 12 months of completion of the therapy. The thematic analysis provides insights into parents’ hopes, expectations, and learning processes when working with Paediatric Autism Communication Therapy therapists and carrying out daily practice in the home. Parents reported positive changes in their interaction and relationship with their child and improvements to their child’s communication and interaction. Some also highlighted poignant realisations and emotional challenges associated with taking part in this post-diagnostic therapy. Practical difficulties were also emphasised. Implications for the clinical practice of parent-mediated interventions with young children with autism spectrum disorder are discussed. Lay abstract Paediatric Autism Communication Therapy is an intervention for young children with autism spectrum disorder that focuses on parent–child communication. In Paediatric Autism Communication Therapy, the therapist and parent watch videos of the parent and child playing together. The therapist coaches the parent to carefully observe the child’s communication and to interact with their child in a more sensitive and responsive way. Parents are encouraged to use the strategies with their child at home. Paediatric Autism Communication Therapy has been shown to lead to long-term improvements in parent–child communication and family quality of life. This study aimed to explore parents’ perceptions of their participation in Paediatric Autism Communication Therapy. Interviews were carried out by an independent researcher with 18 parents. Parents discussed the learning processes they went through when working with Paediatric Autism Communication Therapy therapists and carrying out home practice. Some parents described initial doubts about the approach and hesitations about being videoed and analysing video material. In time, most parents came to really value the therapy and their relationship with the therapist. They reported positive changes in their interaction and relationship with their child and improvements to their child’s communication and interaction. Some also highlighted poignant realisations and emotional challenges associated with taking part in this post-diagnosis therapy. Practical difficulties were also emphasised, including the time commitment, accessibility of therapy venues and difficulties in occupying the child during therapist–parent discussion. Implications for the clinical practice of parent-mediated interventions are discussed.

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