Prédicteurs chez l’enfant et l’aidant de la participation de l’aidant principal dans les familles d’enfants Autistes d’âge scolaire

Titre original en anglais : Child and caregiver predictors of primary caregiver participation in families of school‐aged Autistic children

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Davy, G., Barbaro, J., Unwin, K., Clark, M. L. E., Jellett, R., Date, P., Muniandy, M., & Dissanayake, C. (2024). Child and caregiver predictors of primary caregiver participation in families of school‐aged Autistic children. Autism Research, 17(7), 1475-1486. https://doi.org/10.1002/aur.3166

Date de publication: 23/05/2024 Ajout dans AutiHub: 07/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
1 / 8 (12,5 %)
  1. Gemma Davy
  2. Josephine Barbaro *
  3. Katy Unwin
  4. Megan L. E. Clark
  1. Rachel Jellett
  2. Perrin Date
  3. Melanie Muniandy
  4. Cheryl Dissanayake

Résumé

Résumé La participation à des activités significatives (p. ex., loisirs, activités spirituelles, conditionnement physique) affecte considérablement la qualité de vie (QdV) des aidants, mais les déterminants de la participation chez les aidants d’enfants Autistes restent largement inconnus. La présente étude a examiné les corrélats chez l’enfant et l’aidant de la participation de l’aidant principal à des activités significatives. Cent six aidants principaux d’enfants Autistes (7-12 ans) ont été recrutés à partir de trois cohortes distinctes d’enfants Autistes dans cette étude transversale. Les aidants principaux ont rempli des questionnaires en ligne mesurant les écarts occupationnels (c.-à-d., les activités souhaitées auxquelles les aidants ne participent pas), la QdV, le stress parental, les résultats familiaux perçus et le soutien social. En plus de réaliser des évaluations directes de la cognition et du langage des enfants, les aidants principaux ont également fourni des informations sur le comportement adaptatif, les compétences socio-émotionnelles et la participation de leur enfant. Les aidants signalant moins d’écarts occupationnels (c.-à-d., ≤2 activités souhaitées) étaient plus susceptibles d’avoir des enfants Autistes sans affections concomitantes, plus âgés et présentant de meilleurs comportements adaptatifs, de meilleures compétences socio-émotionnelles ainsi qu’une participation plus fréquente à la maison et à l’école, comparativement aux aidants signalant de nombreux écarts (c.-à-d., ≥3 activités souhaitées). Les aidants présentant moins d’écarts occupationnels ont également signalé une meilleure QdV, un meilleur stress parental, un meilleur soutien social, une meilleure inclusivité communautaire perçue et de meilleurs résultats familiaux. L’analyse de régression logistique a identifié l’âge de l’enfant, le comportement adaptatif de l’enfant, les compétences socio-émotionnelles, la participation à la maison, ainsi que les résultats familiaux perçus et la QdV des aidants comme d’importants prédicteurs de leurs écarts occupationnels. Les résultats démontrent que la participation des aidants à des activités souhaitées était associée à une capacité fonctionnelle et une indépendance accrues de l’enfant, ainsi qu’à leur capacité perçue à répondre aux besoins de leur enfant. Soutenir le sentiment d’efficacité des parents pour répondre aux besoins de leurs enfants et développer leurs compétences et leurs connaissances permettra d’améliorer les résultats tant pour les aidants que pour les enfants.

Abstract Engaging in meaningful activities (e.g., leisure, spiritual, fitness) significantly affects caregivers' quality of life (QoL), yet the determinants of participation in caregivers of Autistic children remain largely unknown. The current study examined child and caregiver correlates of primary caregiver participation in meaningful activities. One hundred and six primary caregivers of Autistic children (7–12 years) were recruited from three unique cohorts of Autistic children in this cross‐sectional study. Primary caregivers completed online questionnaires measuring occupational gaps (i.e., desired activities caregivers are not participating in), QoL, parenting stress, perceived family outcomes, and social support. In addition to undertaking direct assessments of children's cognition and language, primary caregivers also reported on their child's adaptive behavior, social–emotional skills, and participation. Caregivers reporting fewer occupational gaps (i.e., ≤2 desired activities) were more likely to have Autistic children with no co‐occurring conditions, who were older, and with better adaptive behaviors, social–emotional skills, and more frequent home and school participation, compared to caregivers reporting many gaps (i.e., ≥3 desired activities). Caregivers with fewer occupational gaps also reported improved QoL, parenting stress, social support, perceived community inclusiveness, and family outcomes. Logistic regression analysis identified child age, child adaptive behavior, social–emotional skills, home participation, and the caregivers' perceived family outcomes and QoL as important predictors of their occupational gaps. The findings demonstrate that caregiver participation in desired activities was associated with increased functional ability and independence of the child, as well as their perceived capacity to meet their child's needs. Supporting parents' sense of efficacy in meeting their children's needs and building their skills and knowledge will serve to improve both caregiver and child outcomes.

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 01:04.

Références citées
75
Avec un DOI
61
Sans DOI, à partir du texte brut de la bibliographie
11
4 / 75 (5,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
2 / 75 (2,7 %)
Références avec noms d’auteurices détectés
73 / 75 (97,3 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
2
Sans identifiant stable
10
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
229
À partir du DOI ou de métadonnées externes
229
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
46 / 229 (20,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 183 / 229 (79,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
4 / 229 (1,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 4 / 46 (8,7 %). Personnes distinctes identifiées comme autistes : 1 / 203 (0,5 %).
  1. Jerome Thayer (2002). Stepwise regression as an exploratory data analysis procedure . Stepwise regression as an exploratory data analysis procedure.
    Type: Article OpenAlex: https://openalex.org/W63720942
    Crossref OpenAlex
  2. Abidin R. (2012). Parenting stress index fourth edition (PSI‐4) . Parenting stress index fourth edition (PSI‐4).
    Type: Autre
    Crossref
  3. Sabrin Rizk , Kris Pizur-Barnekow , Amy R. Darragh (2011). Leisure and Social Participation and Health-Related Quality of Life in Caregivers of Children with Autism . OTJR: Occupational Therapy Journal of Research, 31(4), 164-171. SAGE Publications.
    Type: Article DOI: 10.3928/15394492-20110415-01 OpenAlex: https://openalex.org/W2046507466
    Crossref OpenAlex OpenCitations
  4. Barbara G. Tabachnick , Linda S. Fidell (1983). Using multivariate statistics .
    Type: Livre OpenAlex: https://openalex.org/W1484864026
    OpenAlex
  5. Andrew D. Althouse (2016). Adjust for Multiple Comparisons? It’s Not That Simple . The Annals of Thoracic Surgery, 101(5), 1644-1645. Elsevier BV.
    Type: Article DOI: 10.1016/j.athoracsur.2015.11.024 OpenAlex: https://openalex.org/W2338184685
    Crossref OpenAlex OpenCitations
  6. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Type: Livre DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917
    Crossref OpenAlex OpenCitations
  7. Katherine Gotham , Alison R Marvin , Julie Taylor , Zachary Warren , Connie M Anderson , Paul A Law et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data . Autism, 19(7), 794-804. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315583818 OpenAlex: https://openalex.org/W1927816754
    Crossref OpenAlex OpenCitations
  8. Jessica Bradshaw , Scott Gillespie , Courtney McCracken , Bryan H. King , James T. McCracken , Cynthia R. Johnson et al. (2021). Predictors of Caregiver Strain for Parents of Children with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 51(9), 3039-3049. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04625-x OpenAlex: https://openalex.org/W3095499696
    Crossref OpenAlex OpenCitations
  9. Catherine L. Backman (2004). Occupational Balance: Exploring the Relationships among Daily Occupations and Their Influence on Well-Being . Canadian Journal of Occupational Therapy, 71(4), 202-209. SAGE Publications.
    Type: Article DOI: 10.1177/000841740407100404 OpenAlex: https://openalex.org/W1971180698
    Crossref OpenAlex OpenCitations
  10. Helen M. Bourke-Taylor , Kahli S. Joyce , Prue Morgan , Dinah S. Reddihough , Loredana Tirlea (2021). Maternal and child factors associated with the health-promoting behaviours of mothers of children with a developmental disability . Research in Developmental Disabilities, 118, 104069. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2021.104069 OpenAlex: https://openalex.org/W3194484686
    Crossref OpenAlex OpenCitations
  11. Rebecca L. McStay , David Trembath , Cheryl Dissanayake (2014). Maternal stress and family quality of life in response to raising a child with autism: From preschool to adolescence . Research in Developmental Disabilities, 35(11), 3119-3130. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2014.07.043 OpenAlex: https://openalex.org/W1982981084
    Crossref OpenAlex OpenCitations
  12. Donald B. Bailey , Melissa Raspa , Murrey G. Olmsted , Scott P. Novak , Ann M. Sam , Betsy P. Humphreys et al. (2011). Development and Psychometric Validation of the Family Outcomes Survey-Revised . Journal of Early Intervention, 33(1), 6-23. SAGE Publications.
    Type: Article DOI: 10.1177/1053815111399441 OpenAlex: https://openalex.org/W2117122082
    Crossref OpenAlex OpenCitations
  13. Cameron R. Pepperdine , Adam W. McCrimmon (2018). Test Review: Vineland Adaptive Behavior Scales, Third Edition (Vineland-3) by Sparrow, S. S., Cicchetti, D. V., & Saulnier, C. A. Canadian Journal of School Psychology, 33(2), 157-163. SAGE Publications.
    Type: Article DOI: 10.1177/0829573517733845 OpenAlex: https://openalex.org/W2758378050
    Crossref OpenAlex OpenCitations
  14. Kenneth J. Rothman (1990). No Adjustments Are Needed for Multiple Comparisons . Epidemiology, 1(1), 43-46. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/00001648-199001000-00010 OpenAlex: https://openalex.org/W1984486655
    OpenAlex
  16. Helen Bourke-Taylor , Julie F. Pallant , Mary Law , Linsey Howie (2012). Predicting mental health among mothers of school-aged children with developmental disabilities: The relative contribution of child, maternal and environmental factors . Research in Developmental Disabilities, 33(6), 1732-1740. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2012.04.011 OpenAlex: https://openalex.org/W1996187191
    Crossref OpenAlex OpenCitations
  17. Helen Bourke‐Taylor , Linsey Howie , Mary Law (2010). Impact of caring for a school‐aged child with a disability: Understanding mothers’ perspectives . Australian Occupational Therapy Journal, 57(2), 127-136. Wiley.
    Type: Article DOI: 10.1111/j.1440-1630.2009.00817.x OpenAlex: https://openalex.org/W2045047790
    Crossref OpenAlex OpenCitations
  18. Alexander M. Rigney (2019). Test Review: Social Skills Improvement System Social-Emotional Learning Edition . Journal of Psychoeducational Assessment, 37(5), 669-673. SAGE Publications.
    Type: Article DOI: 10.1177/0734282918781194 OpenAlex: https://openalex.org/W2807005087
    Crossref OpenAlex OpenCitations
  19. Kenneth K. Poon , Nona Ooi , Rebecca Bull , Donald B. Bailey (2014). Psychometric validation of the Family Outcome Survey-Revised in Singapore . Research in Developmental Disabilities, 35(7), 1534-1543. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2014.03.047 OpenAlex: https://openalex.org/W1996706040
    Crossref OpenAlex OpenCitations
  20. Helen M Bourke-Taylor , Fiona Jane , Jennifer Peat (2019). Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability . Journal of Autism and Developmental Disorders, 49(3), 935-949. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-3789-1 OpenAlex: https://openalex.org/W2898901621
    Crossref OpenAlex OpenCitations
  21. Elise Marriott , James Stacey , Olivia Mary Hewitt , Nienke E. Verkuijl (2022). Parenting an Autistic Child: Experiences of Parents with Significant Autistic Traits . Journal of Autism and Developmental Disorders, 52(7), 3182-3193. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05182-7 OpenAlex: https://openalex.org/W3183669747
    Crossref OpenAlex OpenCitations
  22. Gunilla Eriksson , Kerstin Tham , Anders Kottorp (2013). A cross-diagnostic validation of an instrument measuring participation in everyday occupations: The Occupational Gaps Questionnaire (OGQ) . Scandinavian Journal of Occupational Therapy, 20(2), 152-160. Springer Science and Business Media LLC.
    Type: Article DOI: 10.3109/11038128.2012.749944 OpenAlex: https://openalex.org/W2004996842
    Crossref OpenAlex OpenCitations
  23. Petra Wagman , Carita Håkansson , Anita Björklund (2012). Occupational balance as used in occupational therapy: A concept analysis . Scandinavian Journal of Occupational Therapy, 19(4), 322-327. Springer Science and Business Media LLC.
    Type: Article DOI: 10.3109/11038128.2011.596219 OpenAlex: https://openalex.org/W2047120722
    Crossref OpenAlex OpenCitations
  24. Annemarie C. Tadema , Carla Vlaskamp (2010). The time and effort in taking care for children with profound intellectual and multiple disabilities: a study on care load and support . British Journal of Learning Disabilities, 38(1), 41-48. Wiley.
    Type: Article DOI: 10.1111/j.1468-3156.2009.00561.x OpenAlex: https://openalex.org/W2007959474
    Crossref OpenAlex OpenCitations
  25. Johnny L. Matson , Mary Shoemaker (2009). Intellectual disability and its relationship to autism spectrum disorders . Research in Developmental Disabilities, 30(6), 1107-1114. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2009.06.003 OpenAlex: https://openalex.org/W2015463602
    Crossref OpenAlex OpenCitations
  26. Helen M. Bourke-Taylor , Kahli S. Joyce , Loredana Tirlea (2022). Initial Development and Evaluation of the My Family’s Accessibility and Community Engagement (MyFACE) Tool for Families of Children With Disabilities . American Journal of Occupational Therapy, 76(4), 702-712. SAGE Publications.
    Type: Article DOI: 10.5014/ajot.2022.048009 OpenAlex: https://openalex.org/W4283715372
    Crossref OpenAlex OpenCitations
  27. Adam W. McCrimmon , Amanda D. Smith (2013). Review of the Wechsler Abbreviated Scale of Intelligence, Second Edition (WASI-II) . Journal of Psychoeducational Assessment, 31(3), 337-341. SAGE Publications.
    Type: Article DOI: 10.1177/0734282912467756 OpenAlex: https://openalex.org/W2317295479
    Crossref OpenAlex OpenCitations
  28. Brianna K. McGuire , Terry K. Crowe , Mary Law , Betsy VanLeit (2004). Mothers of Children with Disabilities: Occupational Concerns and Solutions . OTJR: Occupational Therapy Journal of Research, 24(2), 54-63. SAGE Publications.
    Type: Article DOI: 10.1177/153944920402400203 OpenAlex: https://openalex.org/W2033932997
    Crossref OpenAlex OpenCitations
  29. Valsamma Eapen , Rudi Črnčec , Amelia Walter , Kwok Ping Tay (2014). Conceptualisation and Development of a Quality of Life Measure for Parents of Children with Autism Spectrum Disorder . Autism Research and Treatment, 2014, 1-11. Wiley.
    Type: Article DOI: 10.1155/2014/160783 OpenAlex: https://openalex.org/W2036373468
    Crossref OpenAlex OpenCitations
  30. Emily J Callander , Daniel B Lindsay (2018). The impact of childhood autism spectrum disorder on parent’s labour force participation: Can parents be expected to be able to re-join the labour force? Autism, 22(5), 542-548. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316688331 OpenAlex: https://openalex.org/W2604598759
    Crossref OpenAlex OpenCitations
  31. G. Cetinbakis , G. Bastug , E.T. Ozel-Kizil (2020). Factors contributing to higher caregiving burden in Turkish mothers of children with autism spectrum disorders . International Journal of Developmental Disabilities, 66(1), 46-53. Informa UK Limited.
    Type: Article DOI: 10.1080/20473869.2018.1478630 OpenAlex: https://openalex.org/W2805733680
    Crossref OpenAlex OpenCitations
  32. Wanda Man Wai Chau , Penny Jayne Furness (2023). Happiness in Parents of Children with Autism Spectrum Disorder: A Qualitative Study . American Journal of Qualitative Research, 7(1), 168-190.
    Type: Article DOI: 10.29333/ajqr/12950 OpenAlex: https://openalex.org/W4321351762
    Crossref OpenAlex OpenCitations
  33. Antonia M. Nelson (2002). A Metasynthesis: Mothering Other-than-Normal Children . Qualitative Health Research, 12(4), 515-530. SAGE Publications.
    Type: Article DOI: 10.1177/104973202129120043 OpenAlex: https://openalex.org/W2158051942
    Crossref OpenAlex OpenCitations
  34. Megan L. E. Clark , Dawn Adams (2020). Listening to parents to understand their priorities for autism research . PLOS ONE, 15(8), e0237376. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0237376 OpenAlex: https://openalex.org/W3048464255
    Crossref OpenAlex OpenCitations
  35. Lisa M. Dieleman , Tinneke Moyson , Sarah S.W. De Pauw , Peter Prinzie , Bart Soenens (2018). Parents' Need-related Experiences and Behaviors When Raising a Child With Autism Spectrum Disorder . Journal of Pediatric Nursing, 42, e26-e37. Elsevier BV.
    Type: Article DOI: 10.1016/j.pedn.2018.06.005 OpenAlex: https://openalex.org/W2834240049
    Crossref OpenAlex OpenCitations
  36. Carita Håkansson , Synneve Dahlin‐Ivanoff , Ulla Sonn (2006). Achieving Balance In Everyday Life . Journal of Occupational Science, 13(1), 74-82. Informa UK Limited.
    Type: Article DOI: 10.1080/14427591.2006.9686572 OpenAlex: https://openalex.org/W2062072901
    Crossref OpenAlex OpenCitations
  37. Cohen (2013). Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences . Routledge.
    Type: Livre DOI: 10.4324/9780203774441 OpenAlex: https://openalex.org/W4239677523
    Crossref OpenAlex OpenCitations
  38. Heather R. Hall , J. Carolyn Graff (2011). The Relationships Among Adaptive Behaviors of Children with Autism, Family Support, Parenting Stress, and Coping . Issues in Comprehensive Pediatric Nursing, 34(1), 4-25. Informa UK Limited.
    Type: Article DOI: 10.3109/01460862.2011.555270 OpenAlex: https://openalex.org/W2157947126
    Crossref OpenAlex OpenCitations
  39. Kathleen M. Matuska , Charles H. Christiansen (2008). A proposed model of lifestyle balance . Journal of Occupational Science, 15(1), 9-19. Informa UK Limited.
    Type: Article DOI: 10.1080/14427591.2008.9686602 OpenAlex: https://openalex.org/W2065141349
    Crossref OpenAlex OpenCitations
  40. Marian C. Coret , Adam W. McCrimmon (2015). Test Review: Wiig, E. H., Semel, E., & Secord, W. A. (2013). Clinical Evaluation of Language Fundamentals–Fifth Edition (CELF-5) . Journal of Psychoeducational Assessment, 33(5), 495-500. SAGE Publications.
    Type: Article DOI: 10.1177/0734282914557616 OpenAlex: https://openalex.org/W2536170696
    Crossref OpenAlex OpenCitations
  41. Rebecca L. McStay , David Trembath , Cheryl Dissanayake (2014). Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model . Journal of Autism and Developmental Disorders, 44(12), 3101-3118. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-014-2178-7 OpenAlex: https://openalex.org/W2079026499
    Crossref OpenAlex OpenCitations
  42. Emily D’Arcy , Tayah Burnett , Emily Capstick , Catherine Elder , Olivia Slee , Sonya Girdler et al. (2024). The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children . Journal of Autism and Developmental Disorders, 54(5), 1857-1869. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-05910-1 OpenAlex: https://openalex.org/W4319656933
    Crossref OpenAlex OpenCitations
  44. Kimiko Ueda , Naohiro Yonemoto , Donald B. Bailey (2015). Psychometric validation of the Family Outcomes Survey-Revised in Japan . Research in Developmental Disabilities, 39, 55-66. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2015.01.003 OpenAlex: https://openalex.org/W4244993706
    Crossref OpenAlex OpenCitations
  45. Noah J. Sasson , Kristen SL Lam , Morgan Parlier , Julie L Daniels , Joseph Piven (2013). Autism and the broad autism phenotype: familial patterns and intergenerational transmission . Journal of Neurodevelopmental Disorders, 5(1), 1. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/1866-1955-5-11 OpenAlex: https://openalex.org/W2125592770
    Crossref OpenAlex OpenCitations
  47. Anneleise Safe , Annette Joosten , Matthew Molineux (2012). The experiences of mothers of children with autism: Managing multiple roles . Journal of Intellectual & Developmental Disability, 37(4), 294-302. Informa UK Limited.
    Type: Article DOI: 10.3109/13668250.2012.736614 OpenAlex: https://openalex.org/W2128153506
    Crossref OpenAlex OpenCitations
  48. Leann E. Smith , Jinkuk Hong , Marsha Mailick Seltzer , Jan S. Greenberg , David M. Almeida , Somer Bishop (2010). Daily Experiences Among Mothers of Adolescents and Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 40(2), 167-178. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-009-0844-y OpenAlex: https://openalex.org/W2130673329
    Crossref OpenAlex OpenCitations
  49. Dunst C. J. (1984). Family support scale: Reliability and validity . Journal of Individual, Family and Community Wellness, 1(4), 45.
    Type: Autre
    Crossref
  50. Carol A. Potter (2016). ‘I accept my son for who he is – he has incredible character and personality’: fathers’ positive experiences of parenting children with autism . Disability & Society, 31(7), 948-965. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2016.1216393 OpenAlex: https://openalex.org/W2508670508
    Crossref OpenAlex OpenCitations
  51. Annette Joosten , Anneleise P. Safe (2014). Management strategies of mothers of school-age children with autism: Implications for practice . Australian Occupational Therapy Journal, 61(4), 249-258. Wiley.
    Type: Article DOI: 10.1111/1440-1630.12116 OpenAlex: https://openalex.org/W2148259428
    Crossref OpenAlex OpenCitations
  52. Letícia Rocha Dutra , Wendy J. Coster , Jorge A. B. Neves , Marina de Brito Brandão , Rosana Ferreira Sampaio , Marisa Cotta Mancini (2021). Determinants of Time to Care for Children and Adolescents With Disabilities . OTJR: Occupational Therapy Journal of Research, 41(1), 15-23. SAGE Publications.
    Type: Article DOI: 10.1177/1539449220944600 OpenAlex: https://openalex.org/W3046807392
    Crossref OpenAlex OpenCitations
  55. Eriksson G. (2020). Occupational Gaps Questionnaire (OGQ), version 2.0/2020 . Occupational Gaps Questionnaire (OGQ), version 2.0/2020.
    Type: Autre
    Crossref
  56. Vanessa Harris , Helen M. Bourke‐Taylor , Monica Leo (2022). Healthy Mothers Healthy Families, Health Promoting Activity Coaching for mothers of children with a disability: Exploring mothers' perspectives of programme feasibility . Australian Occupational Therapy Journal, 69(6), 662-675. Wiley.
    Type: Article DOI: 10.1111/1440-1630.12814 OpenAlex: https://openalex.org/W4281663946
    Crossref OpenAlex OpenCitations
  57. G Eriksson , A Kottorp , J Borg , K Tham (2009). Relationship between occupational gaps in everyday life, depressive mood and life satisfaction after acquired brain injury . Journal of Rehabilitation Medicine, 41(3), 187-194. MJS Publishing, Medical Journals Sweden AB.
    Type: Article DOI: 10.2340/16501977-0307 OpenAlex: https://openalex.org/W2168412550
    Crossref OpenAlex
  58. Kenneth W. Phelps , Jennifer L. Hodgson , Susan L. McCammon , Angela L. Lamson (2009). Caring for an individual with autism disorder: A qualitative analysis . Journal of Intellectual & Developmental Disability, 34(1), 27-35. Informa UK Limited.
    Type: Article DOI: 10.1080/13668250802690930 OpenAlex: https://openalex.org/W2161480462
    Crossref OpenAlex OpenCitations
  59. Damhnat McCann , Rosalind Bull , Tania Winzenberg (2012). The daily patterns of time use for parents of children with complex needs . Journal of Child Health Care, 16(1), 26-52. SAGE Publications.
    Type: Article DOI: 10.1177/1367493511420186 OpenAlex: https://openalex.org/W2168708988
    Crossref OpenAlex OpenCitations
  60. The WHOQOL Group (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization . Social Science & Medicine, 41(10), 1403-1409. Elsevier BV.
    Type: Article DOI: 10.1016/0277-9536(95)00112-k OpenAlex: https://openalex.org/W2255756224
    Crossref OpenAlex OpenCitations
  61. Gresham F. M. (2017). Social skills improvement system social‐emotional . Social skills improvement system social‐emotional.
    Type: Autre
    Crossref
  62. Frederick T. L. Leong (2008). Diagnostic and Statistical Manual of Mental Disorders(DSM) . Encyclopedia of Counseling. SAGE Publications, Inc..
    Type: Autre DOI: 10.4135/9781412963978.n182 OpenAlex: https://openalex.org/W2336678555
    OpenAlex
  63. Angela Guarino , Fiorenzo Laghi , Grazie Serantoni , Paola Di Blasio , Elena Camisasca (2016). Parenting Stress Index – Fourth Edition (PSI-4) .
    Type: Article OpenAlex: https://openalex.org/W2596891360
    OpenAlex
  64. Cristina Araújo Martins (2019). Transition to parenthood: consequences on health and well-being. A qualitative study . Enfermería Clínica (English Edition), 29(4), 225-233. Elsevier BV.
    Type: Article DOI: 10.1016/j.enfcle.2018.04.007 OpenAlex: https://openalex.org/W4233679179
    Crossref OpenAlex OpenCitations
  65. (s. d.). 10.21256/zhaw-2055 10.2340/16501977-0307
    Type: Autre DOI: 10.21256/zhaw-2055 10.2340/16501977-0307
    OpenCitations
  66. Tomomi McAuliffe , Reinie Cordier , Sharmila Vaz , Yvonne Thomas , Torbjorn Falkmer (2017). Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households . Journal of Autism and Developmental Disorders, 47(10), 3189-3203. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3240-z OpenAlex: https://openalex.org/W2738603154
    Crossref OpenAlex OpenCitations
  67. A. L. Pohl , S. K. Crockford , M. Blakemore , Carrie Allison , Simon Baron-Cohen (2020). A comparative study of autistic and non-autistic women’s experience of motherhood . Molecular Autism, 11(1), 3. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-019-0304-2 OpenAlex: https://openalex.org/W3000239743
    Crossref OpenAlex OpenCitations
  68. Jane Meleady , Colette Clyne , Jessica Braham , Alan Carr (2020). Positive contributions among parents of children on the autism spectrum: A Systematic review . Research in Autism Spectrum Disorders, 78, 101635. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2020.101635 OpenAlex: https://openalex.org/W3048413756
    Crossref OpenAlex OpenCitations
  69. (s. d.). Epidemiology 1 No adjustments are needed for multiple comparisons
    Type: Autre
    Crossref
  70. Ruengvirayudh P. (2016). Comparing stepwise regression models to the best‐subsets models, or, the art of stepwise . General Linear Model Journal, 42(1), 1.
    Type: Autre
    Crossref
  71. Sparrow S. S. (2016). Vineland adaptive behaviour scales . Vineland adaptive behaviour scales.
    Type: Autre
    Crossref
  72. Tabachnick B. G. (2013). Using multivariate statistics . Using multivariate statistics.
    Type: Autre
    Crossref
  73. Cohen, Jacob 1923-1998 , Cohen, Patricia , West, Stephen G. , Aiken, Leona S. (2003). Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences .
    Type: Article OpenAlex: https://openalex.org/W7026658942
    OpenAlex
  74. Wechsler D. (2011). Wechsler abbreviated scale of intelligence‐second edition (WASI‐II) . Wechsler Abbreviated Scale of Intelligence, Second Edition (WASI-II).
    Type: Autre
    Crossref
  75. Wiig E. H. (2013). Clinical evaluation of language fundamentals‐fifth edition (CELF‐5) . Clinical evaluation of language fundamentals‐fifth edition (CELF‐5).
    Type: Autre
    Crossref