Cartographie des définitions de la coproduction et de la co-conception dans les soins de santé et les services sociaux : une revue exploratoire systématique fournissant des enseignements pour l’avenir

Titre original en anglais : Mapping definitions of co‐production and co‐design in health and social care: A systematic scoping review providing lessons for the future

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Masterson, D., Josefsson, K. A., Robert, G., Nylander, E., & Kjellström, S. (2022). Mapping definitions of co‐production and co‐design in health and social care: A systematic scoping review providing lessons for the future. Health Expectations, 25(3), 902-913. https://doi.org/10.1111/hex.13470

Date de publication: 23/03/2022 Ajout dans AutiHub: 18/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
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Auteur·ices de la publication identifié·es comme autistes
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  1. Daniel Masterson
  2. Kristina Areskoug Josefsson
  3. Glenn Robert
  4. Elisabeth Nylander
  5. Sofia Kjellström

Résumé

Résumé Objectifs Cette étude visait à examiner comment les concepts de coproduction et de co-conception ont été définis et appliqués dans le contexte des soins de santé et des services sociaux, et à identifier l’adoption temporelle de ces termes. Méthodes Une revue exploratoire systématique de CINAHL with Full Text, Cochrane Central Register of Controlled Trials, MEDLINE, PsycINFO, PubMed et Scopus a été menée afin d’identifier les études examinant la coproduction ou la co-conception dans les soins de santé et les services sociaux. Des données relatives à la date et aux définitions conceptuelles ont été extraites. Parmi les 2933 études recensées, 979 articles ont été inclus dans cette revue. Résultats Une carte de réseau des soixante définitions les plus courantes est présentée, ainsi que, grâce à l’examen des citations, huit groupes de définitions et une représentation visuelle de la manière dont ils sont interconnectés et se sont influencés mutuellement au fil du temps. Les résultats supplémentaires étaient les suivants : (i) une augmentation des recherches examinant la coproduction et la co-conception dans les contextes des soins de santé et des services sociaux ; (ii) une augmentation du nombre de nouvelles définitions au cours de la dernière décennie, bien qu’un peu plus d’un tiers des articles inclus ne fournissent aucune définition ou explication du concept choisi ; et (iii) une augmentation du nombre de publications utilisant les termes coproduction ou co-conception sans impliquer les citoyens, les patients ou les usagers des services. Conclusions La coproduction et la co-conception sont conceptualisées de nombreuses manières. Plutôt que de rechercher des définitions universelles de ces termes, les futures recherches appliquées devraient se concentrer sur l’explicitation des principes et valeurs sous-jacents qui doivent être traduits et examinés dans la pratique. Contribution des patients et du public La stratégie de recherche et les résultats pilotes ont été présentés lors d’un atelier en mai 2019 avec des contributeurs patients et publics ainsi que des chercheurs. Les discussions ont éclairé les étapes suivantes. Au cours de la phase d’analyse de la revue, des discussions informelles ont eu lieu une fois par mois avec un patient ayant une expérience de l’implication des patients et du public. Comme cette implication a eu lieu vers la fin de la revue, nous avons convenu ensemble qu’une inclusion en tant qu’auteur risquerait d’être symbolique. Des remerciements ont plutôt été privilégiés. La phase suivante consiste à travailler en tant que contributeurs égaux afin d’examiner les valeurs et principes de la coproduction rapportés dans les définitions les plus courantes.

Abstract Objectives This study aimed to explore how the concepts of co‐production and co‐design have been defined and applied in the context of health and social care and to identify the temporal adoption of the terms. Methods A systematic scoping review of CINAHL with Full Text, Cochrane Central Register of Controlled Trials, MEDLINE, PsycINFO, PubMed and Scopus was conducted to identify studies exploring co‐production or co‐design in health and social care. Data regarding date and conceptual definitions were extracted. From the 2933 studies retrieved, 979 articles were included in this review. Results A network map of the sixty most common definitions and—through exploration of citations—eight definition clusters and a visual representation of how they interconnect and have informed each other over time are presented. Additional findings were as follows: (i) an increase in research exploring co‐production and co‐design in health and social care contexts; (ii) an increase in the number of new definitions during the last decade, despite just over a third of included articles providing no definition or explanation for their chosen concept; and (iii) an increase in the number of publications using the terms co‐production or co‐design while not involving citizens/patients/service users. Conclusions Co‐production and co‐design are conceptualized in a wide range of ways. Rather than seeking universal definitions of these terms, future applied research should focus on articulating the underlying principles and values that need to be translated and explored in practice. Patient and Public Contribution The search strategy and pilot results were presented at a workshop in May 2019 with patient and public contributors and researchers. Discussion here informed our next steps. During the analysis phase of the review, informal discussions were held once a month with a patient who has experience in patient and public involvement. As this involvement was conducted towards the end of the review, we agreed together that inclusion as an author would risk being tokenistic. Instead, acknowledgements were preferred. The next phase involves working as equal contributors to explore the values and principles of co‐production reported within the most common definitions.

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