Recommandations pour accroître la diversité des échantillons dans la recherche sur l’autisme : enseignements tirés des études multisensorielles

Titre original en anglais : Recommendations for Increasing Sample Diversity in Autism Research: Lessons from Multisensory Studies

Vassall, S. G., Shragge, I., Srinivasan, H. B., Quackenbush, W. J., & Wallace, M. T. (2025). Recommendations for Increasing Sample Diversity in Autism Research: Lessons from Multisensory Studies. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-07022-4

Date de publication: 23/08/2025 Ajout dans AutiHub: 09/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)

Résumé

En 2024, la Chambre des représentants des États-Unis a adopté le projet de loi H.R.7213, l’Autism CARES Act, qui, s’il est adopté par le Sénat, réautorisera le financement de programmes nationaux existants de recherche sur l’autisme, en mettant l’accent sur l’inclusion de personnes autistes significativement affectées par le trouble. Cette évolution vers l’inclusion dans la recherche sur l’ensemble du spectre de l’autisme met clairement en évidence le manque de représentation par le passé. Dans le domaine de l’intégration multisensorielle, il est bien établi que la manière dont les personnes autistes intègrent les stimuli provenant de différentes modalités sensorielles est modifiée, et la relation entre le traitement sensoriel atypique (multi)sensoriel et les caractéristiques fondamentales de l’autisme est bien établie. Cependant, une grande partie de cette recherche utilise des échantillons de personnes autistes ayant des capacités cognitives, verbales et fonctionnelles élevées. L’objectif de cette revue est d’attirer l’attention sur les disparités dans les échantillons utilisés dans la recherche multisensorielle sur l’autisme. Nous avons mené une revue systématique de toutes les études examinant à ce jour la fonction multisensorielle dans l’autisme et fournissons des statistiques descriptives de base sur les études. Nous avons observé que la grande majorité de la recherche multisensorielle est axée sur de jeunes personnes autistes ayant de faibles besoins de soutien, avec très peu d’études portant sur les personnes autistes ayant des besoins de soutien élevés (HSN). De plus, nous avons constaté que l’étude de l’effet du sexe ou des comorbidités était insuffisante. Nous proposons des améliorations méthodologiques visant à combler les lacunes de la recherche afin de rendre la recherche multisensorielle sur l’autisme plus inclusive des personnes autistes HSN.

In 2024, the United States House of Representatives passed ruling H.R.7213, the Autism CARES Act, which, if passed by the Senate, will reauthorize funding to extant national autism research programs, with an emphasis on including autistic individuals significantly affected by the disorder. This shift toward research inclusion across the autism spectrum clearly highlights the lack of representation in the past. In the field of multisensory integration, it is well documented that there are changes to how autistic individuals integrate stimuli across different sensory modalities, and the relationship between atypical (multi)sensory processing and the core features of autism is well documented. However, much of this research utilizes samples of autistic individuals with high cognitive, verbal, and functional ability. The purpose of this review is to draw attention to disparities in the samples used in multisensory research in autism. We conducted a systematic review of all studies examining multisensory function in autism to date and provide basic descriptive statistics of the studies. We observed that the vast majority of multisensory research is focused on young, low support needs autistic individuals, with very little investigation in autistic individuals with high support needs (HSN). Additionally, we found investigation into the effect of sex or comorbidities to be lacking. We propose methodological improvements addressing gaps in the research in order to make multisensory research in autism more inclusive to HSN autistics.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
52
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
1 / 52 (1,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
1 / 289 (0,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 1 / 56 (1,8 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 273 (0,4 %).
Occurrences citées rattachées à la base AutiHub
56 / 289 (19,4 %)
Auteurices cité·es distinct·es rattaché·es : 48 / 273 (17,6 %)
Occurrences rattachées, non identifiées comme autistes
55 / 56 (98,2 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 55 / 289 (19,0 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 47 / 48 (97,9 %).
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