Recommandations pour accroître la diversité des échantillons dans la recherche sur l’autisme : enseignements tirés des études multisensorielles
Titre original en anglais : Recommendations for Increasing Sample Diversity in Autism Research: Lessons from Multisensory Studies
Vassall, S. G., Shragge, I., Srinivasan, H. B., Quackenbush, W. J., & Wallace, M. T. (2025). Recommendations for Increasing Sample Diversity in Autism Research: Lessons from Multisensory Studies. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-07022-4
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Auteurs
Résumé
En 2024, la Chambre des représentants des États-Unis a adopté le projet de loi H.R.7213, l’Autism CARES Act, qui, s’il est adopté par le Sénat, réautorisera le financement de programmes nationaux existants de recherche sur l’autisme, en mettant l’accent sur l’inclusion de personnes autistes significativement affectées par le trouble. Cette évolution vers l’inclusion dans la recherche sur l’ensemble du spectre de l’autisme met clairement en évidence le manque de représentation par le passé. Dans le domaine de l’intégration multisensorielle, il est bien établi que la manière dont les personnes autistes intègrent les stimuli provenant de différentes modalités sensorielles est modifiée, et la relation entre le traitement sensoriel atypique (multi)sensoriel et les caractéristiques fondamentales de l’autisme est bien établie. Cependant, une grande partie de cette recherche utilise des échantillons de personnes autistes ayant des capacités cognitives, verbales et fonctionnelles élevées. L’objectif de cette revue est d’attirer l’attention sur les disparités dans les échantillons utilisés dans la recherche multisensorielle sur l’autisme. Nous avons mené une revue systématique de toutes les études examinant à ce jour la fonction multisensorielle dans l’autisme et fournissons des statistiques descriptives de base sur les études. Nous avons observé que la grande majorité de la recherche multisensorielle est axée sur de jeunes personnes autistes ayant de faibles besoins de soutien, avec très peu d’études portant sur les personnes autistes ayant des besoins de soutien élevés (HSN). De plus, nous avons constaté que l’étude de l’effet du sexe ou des comorbidités était insuffisante. Nous proposons des améliorations méthodologiques visant à combler les lacunes de la recherche afin de rendre la recherche multisensorielle sur l’autisme plus inclusive des personnes autistes HSN.
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