Les orientations cliniques manquantes : une revue exploratoire des soins destinés aux personnes autistes transgenres et de genre divers

Titre original en anglais : The missing clinical guidance: a scoping review of care for autistic transgender and gender-diverse people

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Bo, L., van der Miesen, A. I., Klomp, S. E., Williams, Z. J., Szatmari, P., & Lai, M. C. (2024). The missing clinical guidance: a scoping review of care for autistic transgender and gender-diverse people. eClinicalMedicine, 76, 102849. https://doi.org/10.1016/j.eclinm.2024.102849

Date de publication: 27/09/2024 Ajout dans AutiHub: 07/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
2 / 6 (33,3 %)
  1. Lorna Bo
  2. Anna I.R. van der Miesen
  3. Sascha E. Klomp *
  1. Zachary J. Williams *
  2. Peter Szatmari
  3. Meng-Chuan Lai

Résumé

La cooccurrence de l'autisme et de la diversité de genre a été de plus en plus étudiée au cours de la dernière décennie. On estime qu'environ 11 % des personnes transgenres et de genre divers (TGD) reçoivent un diagnostic d'autisme. Cependant, les connaissances concernant des soins cliniques appropriés liés au genre pour les personnes TGD autistes sont insuffisantes. Nous avons réalisé une revue exploratoire des orientations cliniques actuelles relatives aux soins des personnes TGD afin d'identifier ce qui était dit au sujet de l'autisme. Les documents d'orientation clinique ont été recherchés dans PubMed, Web of Science, Google Scholar, Embase, Guidelines International Network et la base de données médicale TRIP, ainsi que par l'exploration des références et la recommandation d'experts. Les données probantes ont été synthétisées par synthèse narrative, cartographie des recommandations et analyse de la fréquence des références. Parmi les 31 documents d'orientation clinique identifiés, seuls onze mentionnaient spécifiquement l'intersection entre l'autisme et les personnes TGD. Les concepts clés parmi les recommandations disponibles comprenaient la promotion d'une approche multidisciplinaire ; la mise en évidence de l'intersectionnalité de l'autisme et des expériences de diversité de genre lors des évaluations ; et, surtout, la reconnaissance du fait que l'autisme, en soi, ne constitue pas un critère d'exclusion pour recevoir des soins liés au genre. Toutefois, des orientations cliniques détaillées et pratiques font défaut en raison d'une lacune dans les données probantes. Des recherches empiriques sur les expériences et les résultats en matière de soins des personnes TGD autistes, utilisant une approche développementale, couvrant l'ensemble de la vie et fondée sur les forces, sont nécessaires pour produire des orientations adaptées et éclairées par les données probantes. Financement : cette étude a été financée par un programme de chaire en science du sexe et du genre des Instituts de recherche en santé du Canada (GSB 171373), attribué à M-CL.

The co-occurrence of autism and gender diversity has been increasingly studied in the past decade. It is estimated that ∼11% of transgender and gender-diverse (TGD) individuals are diagnosed with autism. However, there is insufficient knowledge about appropriate gender-related clinical care for autistic TGD individuals. We performed a scoping review of current clinical guidance for the care of TGD individuals to identify what was said about autism. Clinical guidance documents were searched in PubMed, Web of Science, Google Scholar, Embase, Guidelines International Network, and TRIP medical database, as well as reference mining and expert recommendation. Evidence was synthesised by narrative synthesis, recommendation mapping, and reference frequency analysis. Out of the identified 31 clinical guidance documents, only eleven specifically mentioned the intersection between autism and TGD. Key concepts among the available recommendations included advocating for a multidisciplinary approach; emphasising the intersectionality of autism and gender-diverse experiences during assessments; and-importantly-recognising that autism, in itself, does not serve as an exclusion criterion for receiving gender-related care. However, detailed and practical clinical guidance is lacking due to a gap in evidence. Empirical research into the care experiences and outcomes of autistic TGD individuals using a developmental, lifespan, and strengths-based approach is needed to generate evidence-informed and tailored guidance. Funding: This study was funded through a Canadian Institutes of Health Research Sex and Gender Science Chair program (GSB 171373) awarded to M-CL.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 08:05.

Références citées
72
Avec un DOI
63
Sans DOI, à partir du texte brut de la bibliographie
9
9 / 72 (12,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 72 (9,7 %)
Références avec noms d’auteurices détectés
67 / 72 (93,1 %)
Sans nom d’auteurice détecté
5
Sans titre structuré
2
Sans identifiant stable
8
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
559
À partir du DOI ou de métadonnées externes
559
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
150 / 559 (26,8 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 409 / 559 (73,2 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
15 / 559 (2,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 15 / 150 (10,0 %). Personnes distinctes identifiées comme autistes : 11 / 470 (2,3 %).
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