Explorer les stratégies d’adaptation autistiques par la conception participative

Titre original en anglais : Exploring Autistic Coping through Participatory Design

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Barros Pena, B., Vines, J., Van Driel, M., & Koteyko, N. (2025). Exploring Autistic Coping through Participatory Design. Proceedings of the ACM on Human-Computer Interaction, 9(7), 1-31. https://doi.org/10.1145/3757593

Titre de la revue ou du livre
Proceedings of the ACM on Human-Computer Interaction
Éditeur
Association for Computing Machinery (ACM)
Volume
9
Numéro
7
Pages
1-31
Date de publication: 16/10/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Belén Barros Pena
  2. John Vines
  3. Martine Van Driel *
  4. Nelya Koteyko

Résumé

Les adultes autistes se trouvent intégrés dans des environnements numériques largement conçus par et pour des personnes neurotypiques. Ces environnements sont souvent inadaptés et difficiles pour les personnes neurodivergentes. Par conséquent, les personnes autistes sont exposées à des niveaux élevés de stress lorsqu’elles utilisent des technologies numériques et doivent investir des efforts extraordinaires pour y faire face. Dans cette étude de conception participative, nous avons collaboré avec 20 adultes autistes afin d’étudier comment ils gèrent le stress causé par l’utilisation des médias sociaux. Leurs manières de faire face et leur travail de conception mettent en évidence les aspects les plus problématiques de la conception des médias sociaux et suggèrent d’autres orientations pour ces plateformes numériques. Nous concluons que la conception participative fondée sur les stratégies d’adaptation autistiques offre une possibilité de neurodiversification de la conception technologique.

Autistic adults find themselves embedded within digital environments that are largely designed by and for neurotypical people. These environments are often unsuitable and challenging for the neurodivergent. As a result, autistic people are exposed to high levels of stress when using digital technologies, and must invest extraordinary effort in coping with it. In this participatory design study, we partnered with 20 autistic adults to investigate how they handle the stress caused by social media use. Their ways of coping and their design work point at the most problematic aspects of the design of social media, and suggest alternative directions for these digital platforms. We conclude that participatory design grounded on autistic coping provides an opportunity for the neuro-diversification of technology design.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 03/10/2026 01:00.

Références citées
71
Avec un DOI
63
Sans DOI, à partir du texte brut de la bibliographie
7
8 / 71 (11,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 71 (5,6 %)
Références avec noms d’auteurices détectés
68 / 71 (95,8 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
4
Sans identifiant stable
7
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
6
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
236
À partir du DOI ou de métadonnées externes
236
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
76 / 236 (32,2 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 160 / 236 (67,8 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
8 / 236 (3,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 8 / 76 (10,5 %). Personnes distinctes identifiées comme autistes : 5 / 201 (2,5 %).
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