Priorities for Research on Autism and Ageing: A Roundtable Discussion

This publication is included in the Autistic Autism Scholarship Project. eight authors of this publication are identified as autistic in the project.

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Stewart, M. E., Bertilsdotter Rosqvist, H., Day, D. A., Long, J., Grant, A., Hersh, M., Michael, C., Doherty, M., Ingard, C., & Lawson, W. (2026). Priorities for Research on Autism and Ageing: A Roundtable Discussion. Autism in Adulthood, 8(2), 149-158. https://doi.org/10.1177/25739581261440762

Publication date: 1 Apr 2026 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
10
Publication authors identified as autistic
8 / 10 (80.0%)
  1. Mary E. Stewart
  2. Hannah Bertilsdotter Rosqvist *
  3. Dr Anna Day *
  4. Joseph Long
  5. Aimee Grant *
  1. Marion Hersh *
  2. Cos Michael *
  3. Mary Doherty *
  4. Cecilia Ingard *
  5. Wenn Lawson *

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:59.

Cited references
37
With a DOI
29
Without a DOI, from raw bibliography text
8
13 / 37 (35.1%) cited references include at least one author identified as autistic.
References with data to complete
5 / 37 (13.5%)
References with detected author names
32 / 37 (86.5%)
Without detected author names
5
Without a structured title
5
Without a stable identifier
8
References with raw author names still to review
5
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
162
From DOI or external metadata
162
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
7
111 / 162 (68.5%) names are linked to an author already present in AutiHub. 51 / 162 (31.5%) names are not yet linked.
Names linked to a person identified as autistic
52 / 162 (32.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 52 / 111 (46.8%). Distinct people identified as autistic: 37 / 135 (27.4%).
  1. Colleen Kidney (2000). Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination . Portland State University Library.
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  4. Tracy Finch , J. Mackintosh , Alex Petrou , Helen McConachie , Ann Le Couteur , Deborah Garland et al. (2022). “We couldn’t think in the box if we tried. We can’t even find the damn box”: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults . PLOS ONE, 17(3), e0264932. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0264932 OpenAlex: https://openalex.org/W4221104382
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  5. Shannon L. Wagner , Mamdouh M. Shubair , Alex C. Michalos (2010). Surveying Older Adults’ Opinions on Housing: Recommendations for Policy . Social Indicators Research, 99(3), 405-412. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11205-010-9588-5 OpenAlex: https://openalex.org/W1997842416
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  7. Susan L. Neely-Barnes , Heather R. Hall , Ruth J. Roberts , J. Carolyn Graff (2011). Parenting a Child With an Autism Spectrum Disorder: Public Perceptions and Parental Conceptualizations . Journal of Family Social Work, 14(3), 208-225. Informa UK Limited.
    Type: Article DOI: 10.1080/10522158.2011.571539 OpenAlex: https://openalex.org/W2027066092
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  8. Claire Klein , Goldie A. McQuaid , Rebecca A. Charlton , Laura Klinger , Gregory L. Wallace (2023). Self‐reported cognitive decline among middle and older age autistic adults . Autism Research, 16(3), 605-616. Wiley.
    Type: Article DOI: 10.1002/aur.2877 OpenAlex: https://openalex.org/W4311307301
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  9. Maurice B. Mittelmark , Torill Bull (2013). The salutogenic model of health in health promotion research . Global Health Promotion, 20(2), 30-38. SAGE Publications.
    Type: Article DOI: 10.1177/1757975913486684 OpenAlex: https://openalex.org/W2040294559
    Crossref OpenAlex
  12. C. Torenvliet , A.P. Groenman , T.A. Radhoe , J.A. Agelink van Rentergem , W.J. Van der Putten , Hilde M. Geurts (2023). A longitudinal study on cognitive aging in autism . Psychiatry Research, 321, 115063. Elsevier BV.
    Type: Article DOI: 10.1016/j.psychres.2023.115063 OpenAlex: https://openalex.org/W4317357939
    Crossref OpenAlex
  14. Katherine E. Reuben , Jalayne J. Arias , Shannon Self-Brown , Erin Vinoski Thomas (2025). Inclusion of Individuals with Autism and Co-Occurring Intellectual Disability or Language Impairment as Research Participants . Journal of Autism and Developmental Disorders, 55(9), 3410-3415. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-025-06905-w OpenAlex: https://openalex.org/W4411036649
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  15. Elizabeta Mukaetova-Ladinska (2016). Adults with autism spectrum disorder (ASD): Service user perspective on ageing transition (s) . American Journal of Autism, 2(1), 1. Columbia International Publishing.
    Type: Article DOI: 10.7726/aja.2016.1001 OpenAlex: https://openalex.org/W2461784798
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  19. Cecilia Ingard * , Maria Sjölund , Sven Trygged (2024). Human Rights and the Ways Relatives Interpret Participation for People with Dementia in Nursing Homes . Journal of Human Rights and Social Work, 9(4), 595-605. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s41134-024-00322-2 OpenAlex: https://openalex.org/W4401976223
    Crossref OpenAlex
  20. Sungju Lim , Dumebi Nzegwu , Michelle L Wright (2022). The Impact of Psychosocial Stress from Life Trauma and Racial Discrimination on Epigenetic Aging—A Systematic Review . Biological Research For Nursing, 24(2), 202-215. SAGE Publications.
    Type: Article DOI: 10.1177/10998004211060561 OpenAlex: https://openalex.org/W4210487968
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  21. (n.d.). Ingard C. Omsorgstagaren i fokus?: Om delaktighet och självbestämmande på äldreboenden. Dissertation. Gävle University Press: Gävle Sweden; 2025.
    Type: Other
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  22. Alice Turnock , Kate Langley , Catherine RG Jones (2022). Understanding stigma in autism: a narrative review and theoretical model . Autism Adulthood, 4(1), 76. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0005 OpenAlex: https://openalex.org/W4214570045
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  25. Beata Gellert , Janusz Ostrowski , Jarosław Pinkas , Urszula Religioni (2025). Underdiagnosed and Misunderstood: Clinical Challenges and Educational Needs of Healthcare Professionals in Identifying Autism Spectrum Disorder in Women . Behavioral Sciences, 15(8), 1073. MDPI AG.
    Type: Article DOI: 10.3390/bs15081073 OpenAlex: https://openalex.org/W4413038181
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  26. Annabeth P. Groenman , Saskia van der Oord , Hilde M. Geurts (2024). Navigating adolescence: pubertal development in autism spectrum conditions and its relation to mental health . Archives of Women's Mental Health, 27(6), 913-921. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s00737-023-01414-0 OpenAlex: https://openalex.org/W4390908224
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  27. Riksförbundet Attention (2021). “Äntligen förstår jag varför hela livet varit kaos”: Röster om att åldras med NPF [Eng: “Finally, I understand why my whole life has been chaotic”: Voices on aging with neurodevelopmental disorders] . “Äntligen förstår jag varför hela livet varit kaos”: Röster om att åldras med NPF [Eng: “Finally, I understand why my whole life has been chaotic”: Voices on aging with neurodevelopmental disorders].
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  31. Christina N. Marsack-Topolewski , Kathryn Hughesdon , Preethy S. Samuel (2025). Differential Levels of Caregiver Burden Among Parents of Adults With Autism . Western Journal of Nursing Research, 47(8), 720-731. SAGE Publications.
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