Using Photovoice to Capture the Quality of Life of the Australian Autistic Community

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Kuzminski, R., Black, M. H., Bölte, S., Lawson, W., Falkmer, M., Philips, S., Girdler, S., & Milbourn, B. (2025). Using Photovoice to Capture the Quality of Life of the Australian Autistic Community. Autism in Adulthood, 8(4), 735-754. https://doi.org/10.1089/aut.2023.0178

Journal or book title
Autism in Adulthood
Publisher
SAGE Publications
Volume
8
Issue
4
Pages
735-754
Article number
aut.2023.0178
Publication date: 29 Jan 2025 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
8
Publication authors identified as autistic
1 / 8 (12.5%)
  1. Rebecca Kuzminski
  2. Melissa H. Black
  3. Sven Bölte
  4. Wenn Lawson *
  1. Marita Falkmer
  2. Simon Philips
  3. Sonya Girdler
  4. Ben Milbourn

Abstract

Background: Research suggests that autistic adults experience poorer quality of life (QoL) than their non-autistic peers. However, most research to date has examined QoL in autistic adults through a neurotypical lens. Qualitatively examining QoL factors from the perspectives of autistic individuals themselves is necessary to provide more accurate insights into the nature and measurement of QoL for autistic adults. Methods: We explored factors influencing QoL from the perspective of 15 autistic adults using a participatory photovoice methodology. Participants provided 289 photos capturing the factors influencing their QoL, discussing the meaning of these photos in focus groups and interviews. A steering group of four autistic adults worked in partnership with the research team through the project, co-producing the results. Results: A thematic analysis of photographs, focus groups, and interviews captured five themes: Activities, Environment, Emotions and Experiences, Individual Identity, and Needs. These themes intersected with one another, influencing other components of QoL. Within these themes and subthemes, autistic adults discussed factors such as passions, identity, and sensory experiences that impact their QoL. Conclusion: Using photovoice, autistic individuals captured factors influencing their QoL, illuminating the factors that could be included in QoL measurement tools to help measure autistic adults' QoL. Community Brief: These findings help us to understand the factors influencing autistic adults' QoL. Understanding these factors helps us to determine what factors should be represented and rated in measurement tools of QoL in autistic adults, enhancing the accuracy of these measurements.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:00.

Cited references
77
With a DOI
63
Without a DOI, from raw bibliography text
14
13 / 77 (16.9%) cited references include at least one author identified as autistic.
References with data to complete
4 / 77 (5.2%)
References with detected author names
73 / 77 (94.8%)
Without detected author names
4
Without a structured title
2
Without a stable identifier
10
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
247
From DOI or external metadata
247
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
3
114 / 247 (46.2%) names are linked to an author already present in AutiHub. 133 / 247 (53.8%) names are not yet linked.
Names linked to a person identified as autistic
21 / 247 (8.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 21 / 114 (18.4%). Distinct people identified as autistic: 15 / 215 (7.0%).
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