A Neurodiversity-Oriented Approach to Address Autism Wandering as a “Problem Behavior” in Pediatrics

Hotez, E. & Giwa Onaiwu, M. (2023). A Neurodiversity-Oriented Approach to Address Autism Wandering as a “Problem Behavior” in Pediatrics. Cureus, 15(6), e40862-e40862. https://doi.org/10.7759/cureus.40862

Publication date: 23 Jun 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)

Abstract

Pediatricians are frequently tasked with addressing autism "problem behaviors," including wandering, defined as leaving the safety of a responsible person's care or a safe area (alternatively referred to as elopement). In the following commentary, we - as autism researchers and individuals with lived experience - discuss the prevalence and public health consequences of wandering. We conceptualize wandering in the context of "problem behaviors" for autistic individuals and describe the current state of the evidence on wandering prevention and intervention. We emphasize that pediatricians have a unique opportunity to optimize their efforts to address wandering - as well as related "problem behaviors" - utilizing a neurodiversity orientation. This will allow them to enact approaches that address the potential upstream mechanisms underlying wandering to make these efforts more effective and provide critical assistance to families. In this manuscript, we provide recommendations to pediatricians to more effectively address the mechanisms underlying and exacerbating these challenges to improve the health, well-being, and quality of life of autistic children and their families. In particular, we recommend that pediatricians focus efforts toward 1) addressing the link between chronic stress and "problem behaviors"; 2) engaging individuals, caregivers, and families as experts in their health and development; and 3) collaborating with the systems and sectors relevant to autistic individuals and their families.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
32
Total cited references integrated for this publication.
Cited references with an identified autistic author
4 / 32 (12.5%)
Cited author occurrences identified as autistic
9 / 134 (6.7%)
Among occurrences linked to AutiHub author records: 9 / 38 (23.7%). Distinct cited authors identified as autistic: 8 / 124 (6.5%).
Cited author occurrences linked to AutiHub author records
38 / 134 (28.4%)
Distinct linked cited authors: 36 / 124 (29.0%)
Linked cited-author occurrences not identified as autistic
29 / 38 (76.3%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 29 / 134 (21.6%). Distinct linked cited authors not identified as autistic: 28 / 36 (77.8%).
  1. Faye Francesca Bellanca , Helen Pote (2013). Children's attitudes towards ADHD, depression and learning disabilities . Journal of Research in Special Educational Needs, 13(4), 234-241. Wiley.
    Crossref OpenAlex OpenCitations
  2. Mortality & risk in ASD wandering/elopement 2011-2016. (2017). Accessed. 2023: https://www.iacc.hhs.gov/meetings/iacc-meetings/2017/full-committee-meeting/july26/slides_lori_mcilwain_072617.pdf .
    Type: Other
    Crossref
  3. Catherine E. Rice , Benjamin Zablotsky , Rosa M. Avila , Lisa J. Colpe , Laura A. Schieve , Beverly Pringle et al. (2016). Reported Wandering Behavior among Children with Autism Spectrum Disorder and/or Intellectual Disability . The Journal of Pediatrics, 174, 232-239.e2. Elsevier BV.
    Crossref OpenAlex OpenCitations
  4. Connie Anderson , J. Kiely Law , Amy Daniels , Catherine Rice , David S. Mandell , Louis Hagopian et al. (2012). Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders . Pediatrics, 130(5), 870-877. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  5. Silvia Pereira‐Smith , Andrea Boan , Laura A. Carpenter , Michelle Macias , Angela LaRosa (2019). Preventing elopement in children with autism spectrum disorder . Autism Research, 12(7), 1139-1146. Wiley.
    Type: Article DOI: 10.1002/aur.2114 OpenAlex: https://openalex.org/W2943823010
    Crossref OpenAlex OpenCitations
  6. Juliana Reyes-Martín , David Simó-Pinatella , Josep Font-Roura (2022). Assessment of Challenging Behavior Exhibited by People with Intellectual and Developmental Disabilities: A Systematic Review . International Journal of Environmental Research and Public Health, 19(14), 8701. MDPI AG.
    Crossref OpenAlex OpenCitations
  7. Bridget Kiely , Talia R. Migdal , Sujit Vettam , Andrew Adesman (2016). Prevalence and Correlates of Elopement in a Nationally Representative Sample of Children with Developmental Disabilities in the United States . PLOS ONE, 11(2), e0148337. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  8. American Academy of Pediatrics (2021). Wandering Off (Elopement )—Autism Toolkit . Pediatric Patient Education. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  9. Kelly McGuire , Lawrence K. Fung , Louis Hagopian , Roma A. Vasa , Rajneesh Mahajan , Pilar Bernal et al. (2016). Irritability and Problem Behavior in Autism Spectrum Disorder: A Practice Pathway for Pediatric Primary Care . Pediatrics, 137(Supplement_2), S136-S148. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  10. Protecting kids with autism from harm due to wandering [Internet]. (2020). Accessed. May 16 2023: https://www.contemporarypediatrics.com/view/protecting-kids-with-autism-from-harm-due-to-wandering .
    Type: Other
    Crossref
  11. Roy Richard Grinker (2020). Autism, “Stigma,” Disability . Current Anthropology, 61(S21), S55-S67. University of Chicago Press.
    Type: Article DOI: 10.1086/705748 OpenAlex: https://openalex.org/W2981477278
    Crossref OpenAlex OpenCitations
  12. for the Autism and Developmental Disorders Inpatient Research Collaborative (ADDIRC) , Diane L. Williams , Carla A. Mazefsky , Carla A. Mazefsky (2018). Problem Behaviors in Autism Spectrum Disorder: Association with Verbal Ability and Adapting/Coping Skills . Journal of Autism and Developmental Disorders, 48(11), 3668-3677. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  13. Mindy Scheithauer , Nathan A. Call , Joanna Lomas Mevers , Courtney E. McCracken , Lawrence Scahill (2021). A Feasibility Randomized Clinical Trial of a Structured Function-Based Intervention for Elopement in Children with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 51(8), 2866-2875. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. Ami Tint , Anna M. Palucka , Elspeth Bradley , Jonathan A. Weiss , Yona Lunsky (2017). Correlates of Police Involvement Among Adolescents and Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 47(9), 2639-2647. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Jeffrey D. Shahidullah , Gazi Azad , Katherine R. Mezher , Maryellen Brunson McClain , Laura Lee McIntyre (2018). Linking the Medical and Educational Home to Support Children With Autism Spectrum Disorder: Practice Recommendations . Clinical Pediatrics, 57(13), 1496-1505. SAGE Publications.
    Crossref OpenAlex OpenCitations
  16. George K (2018). Embracing autism book .
    Type: Other
    Crossref
  17. Laura McLaughlin , Sarah A. Keim , Andrew Adesman (2018). Wandering by Children with Autism Spectrum Disorder: Key Clinical Factors and the Role of Schools and Pediatricians . Journal of Developmental & Behavioral Pediatrics, 39(7), 538-546. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  18. Singer AT (2009). IACC Activities to Address Wandering .
    Type: Other
    Crossref
  19. Erik J. Rodriquez , Edward N. Kim , Anne E. Sumner , Anna M. Nápoles , Eliseo J. Pérez-Stable (2019). Allostatic Load: Importance, Markers, and Score Determination in Minority and Disparity Populations . Journal of Urban Health, 96(S1), 3-11. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  20. Benoite Aubé , Alice Follenfant , Sébastien Goudeau , Cyrielle Derguy (2021). Public Stigma of Autism Spectrum Disorder at School: Implicit Attitudes Matter . Journal of Autism and Developmental Disorders, 51(5), 1584-1597. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  21. Jessica L. Peterson , Rachel K. Earl , Emily A. Fox , Ruqian Ma , Ghina Haidar , Micah Pepper et al. (2019). Trauma and Autism Spectrum Disorder: Review, Proposed Treatment Adaptations and Future Directions . Journal of Child & Adolescent Trauma, 12(4), 529-547. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  22. Jeffrey D. Shahidullah , Maryellen Brunson McClain , Gazi Azad , Katherine R. Mezher , Laura Lee McIntyre (2020). Coordinating Autism Care Across Schools and Medical Settings: Considerations for School Psychologists . Intervention in School and Clinic, 56(2), 107-114. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Laura. H. Clark , Jennifer. L. Hudson , Tahira Haider (2020). Anxiety Specific Mental Health Stigma and Help-Seeking in Adolescent Males . Journal of Child and Family Studies, 29(7), 1970-1981. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  24. Laura A. Pecora , Grace I. Hancock , Gary B. Mesibov , Mark A. Stokes (2019). Characterising the Sexuality and Sexual Experiences of Autistic Females . Journal of Autism and Developmental Disorders, 49(12), 4834-4846. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  25. Geovanna Rodriguez , Kim Drastal , Sigan L. Hartley (2021). Cross-lagged model of bullying victimization and mental health problems in children with autism in middle to older childhood . Autism, 25(1), 90-101. SAGE Publications.
    Crossref OpenAlex OpenCitations
  26. Kristen Gillespie-Lynch , Nidal Daou , Rita Obeid , Siobhan Reardon , Spogmay Khan , Emily J. Goldknopf (2021). What Contributes to Stigma Towards Autistic University Students and Students with Other Diagnoses? Journal of Autism and Developmental Disorders, 51(2), 459-475. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  27. Katherine E. Reuben , Christopher M. Stanzione , Jenny L. Singleton (2021). Interpersonal Trauma and Posttraumatic Stress in Autistic Adults . Autism in Adulthood, 3(3), 247-256. SAGE Publications.
    Crossref OpenAlex OpenCitations
  28. Laura H. Clark , Jennifer L. Hudson , Ronald M. Rapee , Katrina L. Grasby (2020). Investigating the impact of masculinity on the relationship between anxiety specific mental health literacy and mental health help-seeking in adolescent males . Journal of Anxiety Disorders, 76, 102292. Elsevier BV.
    OpenAlex