Sociocultural context and autistics’ quality of life: A comparison between Québec and France

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Caron, V., Jeanneret, N., Giroux, M., Guerrero, L., Ouimet, M., d’Arc, B. F., Soulières, I., & Courcy, I. (2021). Sociocultural context and autistics’ quality of life: A comparison between Québec and France. Autism, 26(4), 900-913. https://doi.org/10.1177/13623613211035229

Journal or book title
Autism
Publisher
SAGE Publications
Volume
26
Issue
4
Pages
900-913
Publication date: 30 Jul 2021 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
8
Publication authors identified as autistic
2 / 8 (25.0%)
  1. Vicky Caron
  2. Nuria Jeanneret
  3. Mathieu Giroux *
  4. Lucila Guerrero *
  1. Mélanie Ouimet
  2. Baudouin Forgeot d’Arc
  3. Isabelle Soulières
  4. Isabelle Courcy

Abstract

Quality of life is important for the development and evaluation of interventions for autistic people. It is a multidimensional concept, anchored in a sociocultural context and based on a person’s subjective assessment of their life. The aim of this study is to examine whether the determinants of perceived quality of life vary by country (or culture) by comparing two groups of French-speaking autistic adults ( n = 430), one in France and the other in Québec (Canada). A cross-sectional survey was conducted to provide information on the quality of life (Autism Quality of Life Measure—ASQoL), diagnosis and health conditions, self-evaluation of autistic traits (Autism-Spectrum Quotient—AQ10), and sociodemographic characteristics of these two samples. The results of our comparison of French-speaking autistic adults in France and Québec suggest that sociocultural context has an impact on autistic people’s quality of life ( r 2 = 0.280). The Québec group reported a superior quality of life. The social experience of autism-related stigmatization emerges as a strong predictor of lower quality of life in both groups. However, the two groups differ with other predictors. This study demonstrates the importance of considering sociocultural context in measuring quality of life in autistic adults. It emphasizes the need for awareness programs and public campaigns aimed at identifying and countering stigmatization processes. Lay abstract What is already known about the topic? Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population. What does this article contribute? This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec—Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all. Implications for practice, research, and policy To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 11:54.

Cited references
67
With a DOI
53
Without a DOI, from raw bibliography text
14
11 / 67 (16.4%) cited references include at least one author identified as autistic.
References with data to complete
10 / 67 (14.9%)
References with detected author names
58 / 67 (86.6%)
Without detected author names
9
Without a structured title
10
Without a stable identifier
13
References with raw author names still to review
9
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
195
From DOI or external metadata
195
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
21
104 / 195 (53.3%) names are linked to an author already present in AutiHub. 91 / 195 (46.7%) names are not yet linked.
Names linked to a person identified as autistic
22 / 195 (11.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 22 / 104 (21.2%). Distinct people identified as autistic: 13 / 171 (7.6%).
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