Concurrent and Longitudinal Predictors of School Non-attendance in Autistic Adolescents

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Adams, D., Gray, K. M., den Houting, J., Paynter, J., Melvin, G., & Simpson, K. (2025). Concurrent and Longitudinal Predictors of School Non-attendance in Autistic Adolescents. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-06976-9

Publication date: 14 Aug 2025 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)

Abstract

Recent research has shown that autistic children are reported to have lower school attendance than non-autistic students. School non-attendance can occur for multiple reasons, including attendance at medical/health appointments and school refusal/emotionally based school avoidance. Providing support to improve autistic children's school attendance requires an understanding of the factors that potentially lead to or influence specific types of school non-attendance. The aim of this study was to identify concurrent and longitudinal school, family, and child factors associated with school non-attendance in autistic children. Parents/caregivers who had previously participated in a 6 year longitudinal study in Australia were invited to complete a follow-up online survey about their child's school attendance. Seventy-seven parents of autistic children aged 11-14 years participated. Over 40% of children had persistent absence (> 10% days) from school. Based on multivariate negative binomial regression models, child anxiety was a significant predictor of days missed for multiple types of school non-attendance. Other factors, including child sensory processing differences, child behavioural and emotional challenges, parent stress, family income, and parent employment, were correlated with specific absence types. Child anxiety was the strongest and most consistent longitudinal predictor, with higher child anxiety significantly predicting more days of school non-attendance 3, 4, and 6 years later. Findings highlight the importance of considering school, child, and family factors specific to different types of school non-attendance to support autistic children. Identifying factors that lead to child anxiety and preventing/reducing child anxiety early is a potentially promising avenue to support attendance.

Related publications

These links indicate preprints, protocols, published versions, or related records identified in AutiHub.

Associated preprints

Confirmed Reliability level: High Manual

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:00.

Cited references
57
With a DOI
44
Without a DOI, from raw bibliography text
10
1 / 57 (1.8%) cited references include at least one author identified as autistic.
References with data to complete
5 / 57 (8.8%)
References with detected author names
52 / 57 (91.2%)
Without detected author names
5
Without a structured title
5
Without a stable identifier
10
References with raw author names still to review
5
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
208
From DOI or external metadata
208
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
10
96 / 208 (46.2%) names are linked to an author already present in AutiHub. 112 / 208 (53.8%) names are not yet linked.
Names linked to a person identified as autistic
2 / 208 (1.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 96 (2.1%). Distinct people identified as autistic: 2 / 173 (1.2%).
  1. Stewart Einfeld , Bruce Tonge (2012). Developmental Behaviour Checklist (DBC) .
    Type: Article OpenAlex: https://openalex.org/W177573914
    OpenAlex
  2. R Abidin (1995). Parenting stress index short form . Parenting stress index short form.
    Type: Other
    Crossref
  3. Laura Gray , Vivian Hill , Elizabeth Pellicano (2023). “He’s shouting so loud but nobody’s hearing him”: A multi-informant study of autistic pupils’ experiences of school non-attendance and exclusion . Autism & Developmental Language Impairments, 8, 23969415231207816-23969415231207816. SAGE Publications.
    Crossref OpenAlex OpenCitations
  4. James W. Bodfish , Frank J. Symons , Dawn E. Parker , Mark H. Lewis (2000). Varieties of Repetitive Behavior in Autism: Comparisons to Mental Retardation . Journal of Autism and Developmental Disorders, 30(3), 237-243. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. Dawn Adams (2022). Child and Parental Mental Health as Correlates of School Non-Attendance and School Refusal in Children on the Autism Spectrum . Journal of Autism and Developmental Disorders, 52(8), 3353-3365. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  6. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.
    Crossref OpenAlex OpenCitations
  7. Emily M. Lund (2014). Social Communication Questionnaire . Encyclopedia of Special Education. Wiley.
    OpenAlex
  8. Kathryn Ambrose , Kate Simpson , Dawn Adams (2021). The relationship between social and academic outcomes and anxiety for children and adolescents on the autism spectrum: A systematic review . Clinical Psychology Review, 90, 102086. Elsevier BV.
    Crossref OpenAlex OpenCitations
  9. Chin-Chih Chen , Dennis P. Culhane , Stephen Metraux , Jung Min Park , Jessica C. Venable (2016). The Heterogeneity of Truancy among Urban Middle School Students: A Latent Class Growth Analysis . Journal of Child and Family Studies, 25(4), 1066-1075. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Jacqui Rodgers , Sarah Wigham , Helen McConachie , Mark Freeston , Emma Honey , Jeremy R. Parr (2016). Development of the anxiety scale for children with autism spectrum disorder (ASC‐ASD) . Autism Research, 9(11), 1205-1215. Wiley.
    Type: Article DOI: 10.1002/aur.1603 OpenAlex: https://openalex.org/W2279437985
    Crossref OpenAlex OpenCitations
  11. Maureen Van Cura (2010). The Relationship Between School-Based Health Centers, Rates of Early Dismissal From School, and Loss of Seat Time . Journal of School Health, 80(8), 371-377. Wiley.
    Crossref OpenAlex OpenCitations
  12. P.F. Lovibond , S.H. Lovibond (1995). The structure of negative emotional states: Comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories . Behaviour Research and Therapy, 33(3), 335-343. Elsevier BV.
    Crossref OpenAlex OpenCitations
  13. Dawn Adams , Libby MacDonald , Deb Keen (2019). Teacher responses to anxiety-related behaviours in students on the autism spectrum . Research in Developmental Disabilities, 86, 11-19. Elsevier BV.
    Crossref OpenAlex OpenCitations
  14. James E Foy , Kathy Hahn (2009). School-based health centers: A four year experience, with a focus on reducing student exclusion rates . Osteopathic Medicine and Primary Care, 3(1), 3. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Dawn Adams , Raechel McLucas , Hayley Mitchelson , Kate Simpson , Nicole Dargue (2022). Form, Function and Feedback on the School Refusal Assessment Scale-Revised in Children on the Autism Spectrum . Journal of Autism and Developmental Disorders, 52(5), 2156-2167. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  16. Dawn Adams , Kate Young , Deb Keen (2019). Anxiety in Children with Autism at School: a Systematic Review . Review Journal of Autism and Developmental Disorders, 6(3), 274. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  17. Clare Truman , Laura Crane , Patricia Howlin , Elizabeth Pellicano (2024). The educational experiences of autistic children with and without extreme demand avoidance behaviours . International Journal of Inclusive Education, 28(1), 57-77. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  18. L. W. Huson (2007). Performance of Some Correlation Coefficients When Applied to Zero-Clustered Data . Journal of Modern Applied Statistical Methods, 6(2), 530-536. Scilight Press Pty Ltd.
    Crossref OpenAlex OpenCitations
  19. Jill M. Aldridge , Katrina McChesney (2021). Parents’ and caregivers’ perceptions of the school climate: development and validation of the Parent and Caregiver Survey (PaCS) . Learning Environments Research, 24(1), 23-41. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  20. Ellen Kathrine Munkhaugen , Tonje Torske , Elen Gjevik , Terje Nærland , Are Hugo Pripp , Trond H Diseth (2019). Individual characteristics of students with autism spectrum disorders and school refusal behavior . Autism, 23(2), 413-423. SAGE Publications.
    Crossref OpenAlex OpenCitations
  21. Regina Sala , Lorene Amet , Natasa Blagojevic-Stokic , Paul Shattock , Paul Whiteley (2020). Bridging the Gap Between Physical Health and Autism Spectrum Disorder . Neuropsychiatric Disease and Treatment, Volume 16, 1605-1618. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  22. Julian G. Elliott , Maurice Place (2019). Practitioner Review: School refusal: developments in conceptualisation and treatment since 2000 . Journal of Child Psychology and Psychiatry, 60(1), 4-15. Wiley.
    Crossref OpenAlex OpenCitations
  23. Australian curriculum, assessment and reporting authority. (2023). National report on schooling in Australia: Student attendance. https://www.acara.edu.au/reporting/national-report-on-schooling-in-australia/student-attendance
    Type: Other
    Crossref
  24. Işıl Tekin , Selami Aydın (2022). School refusal and anxiety among children and adolescents: A systematic scoping review . New Directions for Child and Adolescent Development, 2022(185-186), 43-65. Wiley.
    Crossref OpenAlex OpenCitations
  25. Jacqueline Roberts , Dawn Adams , H. Heussler , Deborah Keen , Jessica Paynter , David Trembath et al. (2018). Protocol for a prospective longitudinal study investigating the participation and educational trajectories of Australian students with autism . BMJ Open, 8(1), e017082. BMJ.
    Crossref OpenAlex OpenCitations
  26. Vasiliki Totsika , Richard P. Hastings , Yoko Dutton , Alison Worsley , Glenn Melvin , Kylie M. Gray et al. (2020). Types and correlates of school non-attendance in students with autism spectrum disorders . Autism, 24(7), 1639-1649. SAGE Publications.
    Crossref OpenAlex OpenCitations
  27. David Heyne , Malin Gren-Landell , Glenn Melvin , Carolyn Gentle-Genitty (2019). Differentiation Between School Attendance Problems: Why and How? Cognitive and Behavioral Practice, 26(1), 8-34. Elsevier BV.
    Crossref OpenAlex OpenCitations
  28. Kobie Boshoff , Holly Bowen‐Salter , Deanna Gibbs , Rebecca L. Phillips , Lisa Porter , Louise Wiles (2021). A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children . Health & Social Care in the Community, 29(6), 1668-1682. Wiley.
    Crossref OpenAlex OpenCitations
  29. Elizabeth Weir (2023). Autism, Physical Health Conditions, and a Need for Reform . JAMA Pediatrics, 177(3), 229. American Medical Association (AMA).
    Crossref OpenAlex OpenCitations
  30. Nicholas Bowden , Francesca Anns , Hien Vu , Joanne Dacombe , Colette Muir , Jin Russell et al. (2025). School Attendance Among Autistic Students in Aotearoa/New Zealand: A Population Cross‐Sectional Study Using the Integrated Data Infrastructure . Journal of Paediatrics and Child Health, 61(4), 609-616. Wiley.
    Crossref OpenAlex OpenCitations
  31. Glenn Melvin , David Heyne , Kylie M. Gray , Richard P. Hastings , Vasiliki Totsika , Bruce Tonge et al. (2019). The Kids and Teens at School (KiTeS) Framework: An Inclusive Bioecological Systems Approach to Understanding School Absenteeism and School Attendance Problems . Frontiers in Education, 4. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  32. Carrington, S., Mavropoulou, S., Saggers, B., and Nepal, S. (2024). Inclusive education in australia policy review. Autism CRC. https://www.autismcrc.com.au/knowledge-centre/reports/inclusive-education-australia-policy-review
    Type: Other
    Crossref
  33. Sarah Komisarow , Steven W. Hemelt (2024). School-Based Health Care and Absenteeism: Evidence from Telemedicine . Education Finance and Policy, 19(2), 252-282. MIT Press.
    Crossref OpenAlex OpenCitations
  34. Jeanne Gubbels , Claudia E. van der Put , Mark Assink (2019). Risk Factors for School Absenteeism and Dropout: A Meta-Analytic Review . Journal of Youth and Adolescence, 48(9), 1637-1667. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  35. JN Constantino (2012). Social responsiveness scale (SRS-2) . Social responsiveness scale (SRS-2).
    Type: Other
    Crossref
  36. Dominic Stringer , Rachel Kent , Jackie Briskman , Steve Lukito , Tony Charman , Gillian Baird et al. (2020). Trajectories of emotional and behavioral problems from childhood to early adult life . Autism, 24(4), 1011-1024. SAGE Publications.
    Crossref OpenAlex OpenCitations
  37. W Dunn (2014). Sensory Profile 2. User’s manual . Sensory Profile 2. User’s manual.
    Type: Other
    Crossref
  38. S Einfeld (2009). The developmental behaviour checklist (DBC) . The developmental behaviour checklist (DBC).
    Type: Other
    Crossref
  39. Christopher A. Kearney , Laelia Benoit , Carolina Gonzálvez , Gil Keppens (2022). School attendance and school absenteeism: A primer for the past, present, and theory of change for the future . Frontiers in Education, 7. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  40. Ann John , Yasmin Friedmann , Marcos DelPozo-Banos , Aura Frizzati , Tamsin Ford , Anita Thapar (2022). Association of school absence and exclusion with recorded neurodevelopmental disorders, mental disorders, or self-harm: a nationwide, retrospective, electronic cohort study of children and young people in Wales, UK . The Lancet Psychiatry, 9(1), 23-34. Elsevier BV.
    Crossref OpenAlex OpenCitations
  41. Glenn Melvin , M. Freeman , L. J. Ashford , Richard P. Hastings , David Heyne , Bruce Tonge et al. (2023). Types and correlates of school absenteeism among students with intellectual disability . Journal of Intellectual Disability Research, 67(4), 375-386. Wiley.
    Crossref OpenAlex OpenCitations
  42. Anne Snow (2013). Social Communication Questionnaire . In Encyclopedia of Autism Spectrum Disorders (pp. 2893-2895). Springer New York.
    OpenAlex
  43. Isabella Sasso , Teresa Sansour (2024). Risk and Influencing Factors for School Absenteeism among Students on the Autism Spectrum—A Systematic Review . Review Journal of Autism and Developmental Disorders. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  44. Jennifer Gillis Mattson , Summer Bottini , Kelly A. Buchanan , Mohammed Jarbou , Daehan Won (2022). Examination of School Absenteeism Among Preschool and Elementary School Autistic Students . Advances in Neurodevelopmental Disorders, 6(3), 331-339. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  45. Jonathan Lassen , Bodil Aggernæs , Malene Foldager , Jesper Pedersen , Bob Oranje , Troels W. Kjær et al. (2022). Psychopathological symptoms associated with psychosocial functioning in children and adolescents with autism spectrum disorders and their typically developing peers . Research in Autism Spectrum Disorders, 98, 102040. Elsevier BV.
    Crossref OpenAlex OpenCitations
  46. Long, R., & Roberts, N. (2024). School attendance in England. House of commons library. https://researchbriefings.files.parliament.uk/documents/CBP-9710/CBP-9710.pdf
    Type: Other
    Crossref
  47. Viviann Nordin , Maud Palmgren , Anna Lindbladh , Sven Bölte , Ulf Jönsson (2024). School absenteeism in autistic children and adolescents: A scoping review . Autism, 28(7), 1622-1637. SAGE Publications.
    Crossref OpenAlex OpenCitations
  48. National center for special education research. (n.d.). Welcome to NLTS2 (National Longitudinal Transition Study-2). http://www.nlts2.org/index.html
    Type: Other
    Crossref
  49. New South Wales Government (2024). 2023 Semester 1 student attendance fact sheet. https://education.nsw.gov.au/about-us/education-data-and-research/cese/publications/statistics/attendance-bulletin/student-attendance-factsheet-2023
    Type: Other
    Crossref
  50. Katherine Pickard , Brenna Maddox , Richard Boles , Judy Reaven (2024). A cluster randomized controlled trial comparing the effectiveness of two school-based interventions for autistic youth with anxiety . BMC Psychiatry, 24(1), 6. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  51. M Rutter (2003). Social communication questionnaire . Social communication questionnaire.
    Type: Other
    Crossref
  52. Kaley B. Adams , Rangasamy Ramasamy , Kyle D. Bennett , Lisa Finnegan , Kelly B. Kearney , Angelia Downey (2025). I CAN-B Money Savvy! Teaching Adults with Intellectual and Developmental Disabilities to Make Purchasing Decisions Online . Journal of Autism and Developmental Disorders. Springer Science and Business Media LLC.
    OpenAlex
  53. Long, Robert , Roberts, Nerys (2023). School attendance in England . Digital Education Resource Archive (University College London).
    Type: Other OpenAlex: https://openalex.org/W7015142917
    OpenAlex
  54. Suzanne Carrington , Sofia Mavropoulou , Saggers, Beth , Nepal, Smita (2024). Inclusive Education in Australia Policy Review . QUT ePrints (Queensland University of Technology).
    Type: Report OpenAlex: https://openalex.org/W7038530031
    OpenAlex