Exploring the experiences of autistic pupils through creative research methods: Reflections on a participatory approach

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Lewis, K., Hamilton, L., & Vincent, J. (2023). Exploring the experiences of autistic pupils through creative research methods: Reflections on a participatory approach. Infant and Child Development, 33(3), Article e2467. https://doi.org/10.1002/icd.2467

Publication date: 16 Oct 2023 Added to AutiHub: 12 Oct 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)

Abstract

Abstract The use of creative qualitative research methods in psychology and other disciplines has increased over recent decades to address power imbalances within research and to centre the voices of participants. These considerations are particularly salient when conducting research with historically marginalized groups, including neurodivergent people. However, research foregrounding the first‐person perspectives of neurodivergent children is still limited. In this paper, we discuss the application of creative qualitative research methods when conducting research with neurodivergent children with a range of communication and wider skill profiles. The benefits and challenges of each method are considered, drawing on examples from the first phase of an ongoing longitudinal study. Additional considerations for working ethically and respectfully with neurodivergent children are discussed. Readers are encouraged to consider how best to adapt their research protocols when working with neurodivergent children, in order to minimize research hierarchies, build positive relationships, and produce rich and meaningful data.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 29 Oct 2026 01:01.

Cited references
91
With a DOI
74
Without a DOI, from raw bibliography text
16
13 / 91 (14.3%) cited references include at least one author identified as autistic.
References with data to complete
4 / 91 (4.4%)
References with detected author names
87 / 91 (95.6%)
Without detected author names
4
Without a structured title
4
Without a stable identifier
12
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
206
From DOI or external metadata
206
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
4
60 / 206 (29.1%) names are linked to an author already present in AutiHub. 146 / 206 (70.9%) names are not yet linked.
Names linked to a person identified as autistic
20 / 206 (9.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 20 / 60 (33.3%). Distinct people identified as autistic: 15 / 196 (7.7%).
  1. Karen O'Reilly (2009). Key Concepts in Ethnography . SAGE Publications Ltd.
    Crossref OpenAlex OpenCitations
  2. Catherine Angell , Jo Alexander , Jane A Hunt (2015). ‘Draw, write and tell’: A literature review and methodological development on the ‘draw and write’ research method . Journal of Early Childhood Research, 13(1), 17-28. SAGE Publications.
    Crossref OpenAlex OpenCitations
  3. Vicki Jackson-Hollis (2019). Qualitative research with primary school-aged children: ethical and practical considerations of evaluating a safeguarding programme in schools . Journal of Children's Services, 14(3), 194-204. Emerald.
    Crossref OpenAlex OpenCitations
  4. Dawn Mannay (2016). Visual, narrative and creative research methods: Application, reflection and ethics .
    Type: Book OpenAlex: https://openalex.org/W1495481943
    Crossref OpenAlex
  5. Bryony Beresford , Rosemary Tozer , Parvaneh Rabiee , Patricia Sloper (2004). Developing an approach to involving children with autistic spectrum disorders in a social care research project . British Journal of Learning Disabilities, 32(4), 180-185. Wiley.
    Crossref OpenAlex OpenCitations
  6. Perpetua Kirby (2020). ‘It’s never okay to say no to teachers’: Children’s research consent and dissent in conforming schools contexts . British Educational Research Journal, 46(4), 811-828. Wiley.
    Crossref OpenAlex OpenCitations
  7. Gillian Rose (2012). Visual methodologies: an introduction to researching with visual materials .
    Type: Article OpenAlex: https://openalex.org/W1547094963
    OpenAlex
  8. Francesca Bernardi (2020). Autonomy, spontaneity and creativity in research with children. A study of experience and participation, in central Italy and North West England . International Journal of Social Research Methodology, 23(1), 55-74. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  9. Cynthia Lewis , Anne Crampton , Cassandra Scharber (2021). The sociocultural role of imagination in critical digital literacy . Pedagogies: An International Journal, 16(2), 154-172. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  10. Anne Greig , Jayne Taylor , Tommy MacKay (2007). Doing Research with Children . SAGE Publications Ltd.
    Crossref OpenAlex OpenCitations
  11. Helen Kara *Autistic author. Learn more… (2015). Creative Research Methods in the Social Sciences . Policy Press.
    OpenCitations
  12. John Cromby (2012). Feeling the Way: Qualitative Clinical Research and the Affective Turn . Qualitative Research in Psychology, 9(1), 88-98. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Carolin Demuth , Günter Mey (2015). Qualitative Methodology in Developmental Psychology . In International Encyclopedia of the Social & Behavioral Sciences (pp. 668-675). Elsevier.
    Crossref OpenAlex OpenCitations
  14. Roseanna Bourke , Judith Loveridge (2014). Exploring informed consent and dissent through children's participation in educational research . International Journal of Research & Method in Education, 37(2), 151-165. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  15. Rachel Brooks , Anu Lainio , Predrag Lažetić (2020). Using creative methods to research across difference. An introduction to the special issue . International Journal of Social Research Methodology, 23(1), 1-6. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  16. Erica Burman (2016). Deconstructing developmental psychology . Routledge.
    Crossref OpenAlex
  17. Sara Camponovo , Nadja Monnet , Zoe Moody , Frédéric Darbellay (2023). Research with children from a transdisciplinary perspective: coproduction of knowledge by walking . Children's Geographies, 21(1), 163-176. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  18. Lesley-Anne Gallacher , Michael Gallagher (2008). Methodological Immaturity in Childhood Research? Childhood, 15(4), 499-516. SAGE Publications.
    Crossref OpenAlex OpenCitations
  19. Lynsey Calder , Vivian Hill , Elizabeth Pellicano (2013). ‘Sometimes I want to play by myself’: Understanding what friendship means to children with autism in mainstream primary schools . Autism, 17(3), 296-316. SAGE Publications.
    Crossref OpenAlex OpenCitations
  20. Lisa Stafford (2017). ‘What about my voice’: emancipating the voices of children with disabilities through participant-centred methods . Children's Geographies, 15(5), 600-613. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  21. David L. Rennie , Kimberly D. Watson , Althea M. Monteiro (2002). The rise of qualitative research in psychology. Canadian Psychology / Psychologie canadienne, 43(3), 179-189. American Psychological Association (APA).
    Type: Article DOI: 10.1037/h0086914 OpenAlex: https://openalex.org/W2016755657
    Crossref OpenAlex OpenCitations
  22. Craig Goodall (2018). ‘I felt closed in and like I couldn’t breathe’: A qualitative study exploring the mainstream educational experiences of autistic young people . Autism & Developmental Language Impairments, 3, 239694151880440. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Natalie Canning , Beryl Robinson (2021). Blurring boundaries: the invasion of home as a safe space for families and children with SEND during COVID-19 lockdown in England . European Journal of Special Needs Education, 36(1), 65-79. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  24. Keri Hoy , Sarah Parsons , Hanna Kovshoff (2018). Inclusive school practices supporting the primary to secondary transition for autistic children: pupil, teacher, and parental perspectives . Advances in Autism, 4(4), 184-196. Emerald.
    Crossref OpenAlex OpenCitations
  25. Donald A. Schön (1987). Educating the reflective practitioner: Toward a new design for teaching and learning in the professions . Educating the reflective practitioner: Toward a new design for teaching and learning in the professions.
    Type: Article OpenAlex: https://openalex.org/W2048431936
    Crossref OpenAlex
  26. Clare Carroll , Miriam Twomey (2021). Voices of Children with Neurodevelopmental Disorders in Qualitative Research: a Scoping Review . Journal of Developmental and Physical Disabilities, 33(5), 709-724. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  27. Robert Chapman *Autistic author. Learn more… (2021). Neurodiversity and the Social Ecology of Mental Functions . Perspectives on Psychological Science, 16(6), 1360-1372. SAGE Publications.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  28. Julia B. Stoner , Maureen E. Angell , Jennifer J. House , Stacey Jones Bock (2007). Transitions: Perspectives from Parents of Young Children with Autism Spectrum Disorder (ASD) . Journal of Developmental and Physical Disabilities, 19(1), 23-39. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  29. Juliet Scott-Barrett , Katie Cebula , Lani Florian (2019). Listening to young people with autism: learning from researcher experiences . International Journal of Research & Method in Education, 42(2), 163-184. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  30. Alison J. Cocks (2006). The Ethical Maze . Childhood, 13(2), 247-266. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Helen Lomax (2012). Contested voices? Methodological tensions in creative visual research with children . International Journal of Social Research Methodology, 15(2), 105-117. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  32. Collier J. (1986). Visual anthropology: Photography as a research method . Visual anthropology: Photography as a research method.
    Type: Other
    Crossref
  33. Lori G. Irwin , Joy Johnson (2005). Interviewing Young Children: Explicating Our Practices and Dilemmas . Qualitative Health Research, 15(6), 821-831. SAGE Publications.
    Crossref OpenAlex OpenCitations
  34. Erika A. Patall , Harris Cooper , Jorgianne Civey Robinson (2008). The effects of choice on intrinsic motivation and related outcomes: A meta-analysis of research findings. Psychological Bulletin, 134(2), 270-300. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  35. Convention on the rights of the child. (1989). Treaty no. 27531. United Nations Treaty Series 1577 pp. 3–178. https://treaties.un.org/doc/Treaties/1990/09/19900902%2003-14%20AM/Ch_IV_11p.pdf
    Type: Other
    Crossref
  36. Mary Kellett (2010). Small Shoes, Big Steps! Empowering Children as Active Researchers . American Journal of Community Psychology, 46(1-2), 195-203. Wiley.
    Crossref OpenAlex OpenCitations
  37. Debra Costley , Anne Emerson , Danielle Ropar , Elizabeth Sheppard (2021). The Anxiety Caused by Secondary Schools for Autistic Adolescents: In Their Own Words . Education Sciences, 11(11), 726. MDPI AG.
    Crossref OpenAlex OpenCitations
  38. Gail Teachman , Barbara E. Gibson (2013). Children and Youth With Disabilities . Qualitative Health Research, 23(2), 264-274. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Council of Europe. (2012). Recommendation CM/Rec(2012)2 of the Committee of Ministers to member states on the participation of children and young people under the age of 18. wcd.coe.int/ViewDoc.jsp?id=1927229&Site=CM.
    Type: Other
    Crossref
  40. Rose Wiles , Andrew Bengry-Howell , Graham Crow , Melanie Nind (2013). But is it Innovation?: The Development of Novel Methodological Approaches in Qualitative Research . Methodological Innovations Online, 8(1), 18-33. SAGE Publications.
    Crossref OpenAlex OpenCitations
  41. Viviene E. Cree , Helen Kay , Kay Tisdall (2002). Research with children: sharing the dilemmas . Child & Family Social Work, 7(1), 47-56. Wiley.
    Crossref OpenAlex OpenCitations
  42. Caitlin Malloy , Josephine Cuda , So Yoon Kim , Kristen Bottema-Beutel (2020). “They can even make waiting in line fun”: A quantitative content analysis of autistic children's friendship conceptualizations . Psychology in the Schools, 57(6), 973-989. Wiley.
    Crossref OpenAlex OpenCitations
  43. Vu Song Ha , Andrea Whittaker (2016). ‘Closer to my world’: Children with autism spectrum disorder tell their stories through photovoice . Global Public Health, 11(5-6), 546-563. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  44. Patricio Cuevas-Parra , E. Kay M. Tisdall (2019). Child-Led Research: Questioning Knowledge . Social Sciences, 8(2), 44. MDPI AG.
    Type: Article DOI: 10.3390/socsci8020044
    Crossref OpenCitations
  45. Joanne Danker , Iva Strnadová , Therese M. Cumming (2019). Picture my well-being: Listening to the voices of students with autism spectrum disorder . Research in Developmental Disabilities, 89, 130-140. Elsevier BV.
    Crossref OpenAlex OpenCitations
  46. Jonathan Vincent , Megan Potts , Daniel Fletcher , Simon Hodges , Jenny Howells , Alex Mitchell et al. (2017). ‘I think autism is like running on Windows while everyone else is a Mac’: using a participatory action research approach with students on the autistic spectrum to rearticulate autism and the lived experience of university . Educational Action Research, 25(2), 300-315. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  47. Regina Day Langhout , Elizabeth Thomas (2010). Imagining Participatory Action Research in Collaboration with Children: an Introduction . American Journal of Community Psychology, 46(1-2), 60-66. Wiley.
    Crossref OpenAlex OpenCitations
  48. Clercq H. (2006). New developments in autism: The future is today . New developments in autism: The future is today, 310.
    Type: Other
    Crossref
  49. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Crossref OpenAlex OpenCitations
  50. de Jager A. (2016). Forum Qualitative Sozialforschung Forum: Qualitative Social Research . Forum Qualitative Sozialforschung Forum: Qualitative Social Research.
    Type: Other
    Crossref
  51. Frank Pitt , Roselyn Dixon , Wilma Vialle (2021). The transition experiences of students with disabilities moving from primary to secondary schools in NSW, Australia . International Journal of Inclusive Education, 25(7), 779-794. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  52. Montserrat Fargas-Malet , Dominic McSherry , Emma Larkin , Clive Robinson (2010). research with children: methodological issues and innovative techniques . Journal of Early Childhood Research, 8(2), 175-192. SAGE Publications.
    Crossref OpenAlex OpenCitations
  53. Tara Martin , Roselyn Dixon , Irina Verenikina , Debra Costley (2021). Transitioning primary school students with Autism Spectrum Disorder from a special education setting to a mainstream classroom: successes and difficulties . International Journal of Inclusive Education, 25(5), 640-655. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  54. Linda Abbandonato De Flavis , Elizabeth Grosz (1995). Volatile Bodies: Toward a Corporeal Feminism . Rocky Mountain Review of Language and Literature, 49(1), 85. JSTOR.
    Type: Article DOI: 10.2307/1347941 OpenAlex: https://openalex.org/W2224649825
    OpenAlex
  55. Olivia Stevenson , C Adey (2010). Toy tours: Reflections on walking‐whilst‐talking with young children at home . Qualitative Research, 12, 8.
    Type: Article OpenAlex: https://openalex.org/W2306714269
    Crossref OpenAlex
  56. Jaimie Ellis (2017). Researching the Social Worlds of Autistic Children: An Exploration of How an Understanding of Autistic Children's Social Worlds is Best Achieved . Children & Society, 31(1), 23-36. Wiley.
    Crossref OpenAlex OpenCitations
  57. Tania Mateos-Blanco , Encarnación Sánchez‐Lissen , Inés Gil‐Jaurena , Clara Romero‐Pérez (2022). Child‐Led Participation: A Scoping Review of Empirical Studies . Social Inclusion, 10(2). Cogitatio.
    Crossref OpenAlex OpenCitations
  58. Ann C. Macaulay (2016). Participatory research: What is the history? Has the purpose changed? Family Practice, 34(3), cmw117. Oxford University Press (OUP).
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  59. Anne Masi , Marilena M. DeMayo , Nicholas Glozier , Adam J Guastella (2017). An Overview of Autism Spectrum Disorder, Heterogeneity and Treatment Options . Neuroscience Bulletin, 33(2), 183-193. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  60. Annelies Kusters , Maartje De Meulder , Dai O’Brien (2017). Innovations in deaf studies: The role of deaf scholars . Innovations in deaf studies: The role of deaf scholars.
    Type: Article OpenAlex: https://openalex.org/W2623016521
    Crossref OpenAlex
  61. Justine Marcotte , Marie Grandisson , Élise Milot , Sophie Dupéré (2022). The Walking Interview: A Promising Method for Promoting the Participation of Autistic People in Research Projects . International Journal of Qualitative Methods, 21. SAGE Publications.
    Crossref OpenAlex OpenCitations
  62. Grosz E. (1994). Volatile bodies: Toward a Corporeal Feminism . Volatile bodies: Toward a Corporeal Feminism, 86.
    Type: Other
    Crossref
  63. Karen Guldberg (2019). Good autism practice: Full report . Good autism practice: Full report.
    Type: Other
    Crossref
  64. Lorna Hamilton , Laura Beth Kelly , Sue Mesa (2023). “I’m able to function better when I know there's a beginning and an end time”: Autistic adolescents’ experiences of lockdowns during the COVID-19 pandemic . Autism & Developmental Language Impairments, 8. SAGE Publications.
    Crossref OpenAlex OpenCitations
  65. Honeybourne V. (2018). The neurodiverse classroom . The neurodiverse classroom.
    Type: Other
    Crossref
  66. Katie Howard , Napoleon Katsos , Jenny Gibson (2019). The school experiences of bilingual children on the autism spectrum: An interpretative phenomenological analysis . Research in Developmental Disabilities, 87, 9-20. Elsevier BV.
    Crossref OpenAlex OpenCitations
  67. Mechthild Richter , Céline Clément , Eric Flavier (2022). Is transition an (adult) problem? – experiences of autistic students during the transition from primary to secondary school . Journal of Research in Special Educational Needs, 22(4), 368-379. Wiley.
    Crossref OpenAlex OpenCitations
  68. Laurence Baldwin (2007). New Developments in Autism: The future is today . Learning Disability Practice, 10(2), 28-28. RCN Publishing Ltd..
    OpenAlex
  69. Helen Kara *Autistic author. Learn more… (2015). Creative research methods in the social sciences . Bristol University Press.
    Crossref OpenAlex
  70. Kellett M. (2005). Children as active researchers: a new research paradigm for the 21st century? http://www.ncrm.ac.uk/00000112600/gui/?item=publications/methodsreview/MethodsReviewPaperNCRM-003.pdf
    Type: Other
    Crossref
  71. Jessica Zoe Zanuttini (2023). Capturing the perspectives of students with autism on their educational experiences: A systematic review . International Journal of Educational Research, 117, 102115. Elsevier BV.
    Crossref OpenAlex OpenCitations
  72. Carmen Liliana Medina , Mia Perry , Bridget Kiger Lee , Amanda Deliman (2021). Reading with drama: relations between texts, readers and experiences . Literacy, 55(2), 136-144. Wiley.
    Crossref OpenAlex OpenCitations
  73. Pernille Skovbo Rasmussen , Anne Katrine Pagsberg (2019). Customizing Methodological Approaches in Qualitative Research on Vulnerable Children with Autism Spectrum Disorders . Societies, 9(4), 75. MDPI AG.
    Crossref OpenAlex OpenCitations
  74. Christine O’Farrelly , Mimi Tatlow-Golden (2022). It’s up to you if you want to take part. Supporting young children’s informed choice about research participation with simple visual booklets . European Early Childhood Education Research Journal, 30(1), 63-80. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  75. Anežka Kuzmičová , Teresa Cremin (2022). Different fiction genres take children’s memories to different places . Cambridge Journal of Education, 52(1), 37-53. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  76. Lisa M. Vaughn , Farrah Jacquez (2020). Participatory Research Methods – Choice Points in the Research Process . Journal of Participatory Research Methods, 1(1), 13244. Specialty Publications.
    Crossref OpenAlex OpenCitations
  77. Heidi M. Levitt , Francisco I. Surace , Max B. Wu , Brad Chapin , Jacqueline G. Hargrove , Cara Herbitter et al. (2022). The meaning of scientific objectivity and subjectivity: From the perspective of methodologists. Psychological Methods, 27(4), 589-605. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  78. Mesa S. & Hamilton L. G. (2022). School transitions for autistic young people in mainstream settings: A research report. https://www.yorksj.ac.uk/media/content‐assets/research/institute‐for‐social‐justice/School‐transitions‐for‐autistic‐pupils‐report.pdf
    Type: Other
    Crossref
  79. Karl G. Heider , John Collier , Malcolm Collier (1988). Visual Anthropology: Photography as a Research Method . The Journal of American Folklore, 101(399), 74. University of Illinois Press.
    Type: Article DOI: 10.2307/540254 OpenAlex: https://openalex.org/W4300103864
    OpenAlex
  80. Rose G. (2022). Visual methodologies: An introduction to researching with visual materials . Visual methodologies: An introduction to researching with visual materials.
    Type: Other
    Crossref
  81. Wetton N. (1998). Image based research. A source book for qualitative researchers . Image based research. A source book for qualitative researchers.
    Type: Other
    Crossref