Becoming Who You Are

Catala, A. (2025). Becoming Who You Are. In The Dynamics of Epistemic Injustice (pp. 248-285). Oxford University PressNew York, NY. https://doi.org/10.1093/9780197776353.003.0007

Publication date: 12 Jan 2025 Added to AutiHub: 5 Jul 2026 Type: Book chapter Article language: English

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Abstract

Abstract Chapter 6, titled “Becoming Who You Are: Hermeneutical Breakthroughs, Transformative Experience, and Epistemic Empowerment,” addresses the process of epistemic empowerment by connecting the literature on epistemic injustice to the literature on transformative experience. In contrast to the predominant focus on the implications of transformative experience for rational choice and decision theory, this chapter focuses on some of the normative, justice-oriented aspects of transformative experience by turning to the philosophically neglected intersection of gender and neurodiversity. This chapter argues that accessing an autism diagnosis constitutes a hermeneutical breakthrough that is the source of a transformative experience for previously undiagnosed Autistic women, and that accessing a diagnosis is a matter of both epistemic and social justice. After some terminological clarifications, this chapter begins by showing how hermeneutical breakthroughs give rise to transformative experience and epistemic empowerment, and how hermeneutical breakthroughs can impact Autistic women’s social, economic, and mental well-being. It then shows how hermeneutical injustice can preempt hermeneutical breakthroughs, which involve hermeneutical representativeness and improved self-understanding. This chapter identifies a new type of epistemic injustice, which it terms existential hermeneutical injustice, which specifically affects a person’s sense of identity or who they take themselves to be, by preventing a person from knowing and becoming who they are. Finally, the chapter shows that moving toward hermeneutical justice, so that Autistic women may access a diagnosis and become who they are, requires attending to the gender biases that pervade both the social and the medical spheres.

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Cited references
62
Total cited references integrated for this publication.
Cited references with an identified autistic author
4 / 62 (6.5%)
Cited author occurrences identified as autistic
6 / 139 (4.3%)
Among occurrences linked to AutiHub author records: 6 / 56 (10.7%). Distinct cited authors identified as autistic: 6 / 126 (4.8%).
Cited author occurrences linked to AutiHub author records
56 / 139 (40.3%)
Distinct linked cited authors: 51 / 126 (40.5%)
Linked cited-author occurrences not identified as autistic
50 / 56 (89.3%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 50 / 139 (36.0%). Distinct linked cited authors not identified as autistic: 45 / 51 (88.2%).
  1. Rachel McKinnon (2015). Trans*formative Experiences . Res Philosophica, 92(2), 419-440. Philosophy Documentation Center.
    Crossref OpenAlex OpenCitations
  2. Amy Allen (1998). Rethinking Power . Hypatia, 13(1), 21-40. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  3. C Ellie Wilson , Clodagh M Murphy , Gráinne McAlonan , Dene M Robertson , Debbie Spain , Hannah Hayward et al. (2016). Does sex influence the diagnostic evaluation of autism spectrum disorder in adults? Autism, 20(7), 808-819. SAGE Publications.
    Crossref OpenAlex OpenCitations
  4. Elizabeth Barnes (2015). Social Identities and Transformative Experience . Res Philosophica, 92(2), 171-187. Philosophy Documentation Center.
    Crossref OpenAlex OpenCitations
  5. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex OpenCitations
  6. J. B. Barahona-Corrêa , Carlos N. Filipe (2016). A Concise History of Asperger Syndrome: The Short Reign of a Troublesome Diagnosis . Frontiers in Psychology, 6, 2024. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  7. Susan Wendell (1996). The Rejected Body: Feminist Philosophical Reflections on Disability .
    Type: Book OpenAlex: https://openalex.org/W1509377948
    Crossref OpenAlex
  8. Hans Asperger (1944). Die „Autistischen Psychopathen” im Kindesalter . Archiv für Psychiatrie und Nervenkrankheiten, 117(1), 76-136. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  9. Clodagh Murphy , C. Ellie Wilson , Dene M. Robertson , Christine Ecker , Eileen M. Daly , Neil Hammond et al. (2016). Autism spectrum disorder in adults: diagnosis, management, and health services development . Neuropsychiatric Disease and Treatment, Volume 12, 1669-1686. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  10. Kristie Dotson (2012). A Cautionary Tale: On Limiting Epistemic Oppression . Frontiers: A Journal of Women Studies, 33(1), 24. Project MUSE.
    Crossref OpenAlex
  11. Attwood (2006). Asperger’s and Girls: World-Renowned Experts Join Those with Asperger’s Syndrome to Resolve Issues That Girls and Women Face Every Day! Asperger’s and Girls: World-Renowned Experts Join Those with Asperger’s Syndrome to Resolve Issues That Girls and Women Face Every Day!.
    Type: Other
    Crossref
  12. Steven D. Stagg , Hannah Belcher (2019). Living with autism without knowing: receiving a diagnosis in later life . Health Psychology and Behavioral Medicine, 7(1), 348-361. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Shafali Spurling Jeste (2015). Neurodevelopmental Behavioral and Cognitive Disorders . Continuum, 21(3), 690-714. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex
  14. Kurt Jacobsen (2010). Diagnostic politics: the curious case of Kanner’s syndrome . History of Psychiatry, 21(4), 436-454. SAGE Publications.
    Crossref OpenAlex OpenCitations
  15. Sarah Bargiela , Robyn Steward *Autistic author. Learn more… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  16. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Crossref OpenAlex OpenCitations
  17. Lorna Wing (1981). Sex ratios in early childhood autism and related conditions . Psychiatry Research, 5(2), 129-137. Elsevier BV.
    Crossref OpenAlex OpenCitations
  18. Nicole L. Kreiser , Susan W. White (2014). ASD in Females: Are We Overstating the Gender Difference in Diagnosis? Clinical Child and Family Psychology Review, 17(1), 67-84. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  19. Bettelheim (1967). Empty Fortress: Infantile Autism and the Birth of the Self. Empty Fortress: Infantile Autism and the Birth of the Self..
    Type: Other
    Crossref
  20. Sylvie Goldman (2013). Opinion: Sex, gender and the diagnosis of autism—A biosocial view of the male preponderance . Research in Autism Spectrum Disorders, 7(6), 675-679. Elsevier BV.
    Crossref OpenAlex OpenCitations
  21. C. Punshon , P. Skirrow , Glynis Murphy (2009). The `not guilty verdict' . Autism, 13(3), 265-283. SAGE Publications.
    Crossref OpenAlex OpenCitations
  22. Bilokonsky (2021). “How to Talk about Autism Respectfully.” . Coda.
    Type: Other
    Crossref
  23. Meng-Chuan Lai , Michael Lombardo , Amber Ruigrok , Bhismadev Chakrabarti , Bonnie Auyeung , Péter Szatmári et al. (2017). Quantifying and exploring camouflaging in men and women with autism . Autism, 21(6), 690-702. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Naustin Deslauriers (1967). The Empty Fortress: Infantile Autism and the Birth of the Self. Archives of General Psychiatry, 17(4), 510. American Medical Association (AMA).
    OpenAlex
  25. Catala (2022). Toward Greater Neuroinclusion in Philosophy . Blog of the APA.
    Type: Other
    Crossref
  26. Catala (2023). “Understanding Neurodiversity, Unlearning Neuronormativity.” . Blog of the APA.
    Type: Other
    Crossref
  27. Lorna Wing (1981). Asperger's syndrome: a clinical account . Psychological Medicine, 11(1), 115-129. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  28. Catala (2023). The Bloomsbury guide to philosophy of disability . The Bloomsbury Guide to Philosophy of Disability, 246–67.
    Type: Other
    Crossref
  29. Meng-Chuan Lai , Simon Baron-Cohen (2015). Identifying the lost generation of adults with autism spectrum conditions . The Lancet Psychiatry, 2(11), 1013-1027. Elsevier BV.
    Crossref OpenAlex OpenCitations
  30. Catala (2021). Autism, Epistemic Injustice, and Epistemic Disablement: A Relational Account of Epistemic Agency . Synthese, 9013–39.
    Type: Other
    Crossref
  31. Robert Coles (1996). The Mind's Fate: A Psychiatrist Looks at His Profession - Thirty Years of Writings .
    Type: Book OpenAlex: https://openalex.org/W2940734050
    Crossref OpenAlex
  32. Fred R. Volkmar , James C. McPartland (2014). From Kanner to DSM-5: Autism as an Evolving Diagnostic Concept . Annual Review of Clinical Psychology, 10(1), 193-212. Annual Reviews.
    Crossref OpenAlex OpenCitations
  33. Herwig Czech (2018). Hans Asperger, National Socialism, and “race hygiene” in Nazi-era Vienna . Molecular Autism, 9(1), 29-29. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  34. Allison B. Ratto , Lauren Kenworthy , Benjamin E. Yerys , Julia Bascom *Autistic author. Learn more… , Andrea Trubanova Wieckowski , Susan W. White et al. (2018). What About the Girls? Sex-Based Differences in Autistic Traits and Adaptive Skills . Journal of Autism and Developmental Disorders, 48(5), 1698-1711. Springer Science and Business Media LLC.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  35. Irina Manouilenko , Susanne Bejerot (2015). Sukhareva—Prior to Asperger and Kanner . Nordic Journal of Psychiatry, 69(6), 1761-1764. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  36. Dachez (2020). Invisible Differences . Invisible Differences.
    Type: Other
    Crossref
  37. Bonnie Evans (2013). How autism became autism . History of the Human Sciences, 26(3), 3-31. SAGE Publications.
    Crossref OpenAlex OpenCitations
  38. Dachez (2016). La différence invisible . La différence invisible.
    Type: Other
    Crossref
  39. Katharine Jenkins (2017). Rape Myths and Domestic Abuse Myths as Hermeneutical Injustices . Journal of Applied Philosophy, 34(2), 191-205. Wiley.
    Crossref OpenAlex OpenCitations
  40. Michelle Dean , Robin Harwood , Connie Kasari (2017). The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder . Autism, 21(6), 678-689. SAGE Publications.
    Crossref OpenAlex OpenCitations
  41. Fran Fairbairn (2020). Injustice in the Spaces between Concepts . The Southern Journal of Philosophy, 58(1), 102-136. Wiley.
    Crossref OpenAlex OpenCitations
  42. Siobhan Tierney , Jan Burns , Elizabeth Kilbey (2016). Looking behind the mask: Social coping strategies of girls on the autistic spectrum . Research in Autism Spectrum Disorders, 23(Suppl. C), 73-83. Elsevier BV.
    Crossref OpenAlex OpenCitations
  43. Léo Kanner (1943). Autistic disturbances of affective contact . Nervous Child, 2(3), 217.
    Type: Article OpenAlex: https://openalex.org/W2255119171
    Crossref OpenAlex
  44. Garcia (2021). We’re not broken: Changing the autism conversation . We’re Not Broken: Changing the Autism Conversation.
    Type: Other
    Crossref
  45. George (2021). Hermeneutical Backlash: Trans Youth Panics As Epistemic Injustice . Feminist Philosophy Quarterly, 1–34.
    Type: Other
    Crossref
  46. L. A. Paul (2014). Transformative Experience . Oxford University Press.
    Crossref OpenAlex OpenCitations
  47. Gratton (2020). Supporting Transgender Autistic Youth and Adults: A Guide for Professionals and Families . Supporting Transgender Autistic Youth and Adults: A Guide for Professionals and Families.
    Type: Other
    Crossref
  48. Jennifer Murphy , Freya Prentice , Reubs Walsh , Caroline Catmur , Geoffrey Bird (2020). Autism and transgender identity: Implications for depression and anxiety . Research in Autism Spectrum Disorders, 69, 101466. Elsevier BV.
    Crossref OpenAlex OpenCitations
  49. Kristien Hens (2021). Towards an Ethics of Autism . Open Book Publishers.
    Crossref OpenAlex OpenCitations
  50. Dori Zener (2019). Journey to diagnosis for women with autism . Advances in Autism, 5(1), 2-13. Emerald.
    Crossref OpenAlex OpenCitations
  51. T.A.M. McDonald (2020). Autism Identity and the “Lost Generation”: Structural Validation of the Autism Spectrum Identity Scale and Comparison of Diagnosed and Self-Diagnosed Adults on the Autism Spectrum . Autism in Adulthood, 2(1), 13-23. SAGE Publications.
    Crossref OpenAlex OpenCitations
  52. Legault (2024). Breaking the Stigma around Autism: Moving Away from Neuronormativity Using Epistemic Justice and 4E Cognition . Synthese, 84.
    Type: Other
    Crossref
  53. Reiheld (2010). Patient complains of...: How medicalization mediates power and justice . International Journal of Feminist Approaches to Bioethics, 3(1), 72. University of Toronto Press Inc. (UTPress).
    Crossref OpenAlex
  54. (2016). Feminist Philosophy Quarterly . Feminist Philosophy Quarterly. University of Western Ontario, Western Libraries.
    Type: Other DOI: 10.5206/fpq OpenAlex: https://openalex.org/W4229826838
    OpenAlex
  55. Price (2022). Unmasking autism: Discovering the new faces of neurodiversity . Unmasking Autism: Discovering the New Faces of Neurodiversity.
    Type: Other
    Crossref
  56. Daniel Glenn (2022). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities . World Futures, 78(5), 339-341. Informa UK Limited.
    OpenAlex
  57. (2023). The Bloomsbury Guide to Philosophy of Disability . Bloomsbury Publishing Plc.
    OpenAlex
  58. Rutherford (2022). “Research, Services Lacking for Autistic Indigenous People, Say Researchers.” . Folio.
    Type: Other
    Crossref
  59. Sukhareva (1926). Die Schizoiden Psychopathien Im Kindesalter . Monatsschrift Für Psychiatrie Und Neurologie, 60, 235–61.
    Type: Other
    Crossref
  60. Amy S. Walker (2021). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities . Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities..
    Type: Other
    Crossref