Reasons for alcohol use and non-use by underage U.S. autistic youth: A qualitative study
Rothman, E. F., Graham Holmes, L., Brooks, D., Krauss, S., & Caplan, R. (2022). Reasons for alcohol use and non-use by underage U.S. autistic youth: A qualitative study. Autism, 27(1), 213-225. https://doi.org/10.1177/13623613221091319
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Abstract
This study describes the views and experiences of autistic youth about alcohol, including reasons for use and nonuse. We conducted 40 semi-structured interviews with autistic youth aged 16–20 years old. Of these, 20 had consumed alcohol in the past year. We used an inductive content-based analysis approach. Youth were deliberate about their choices to use, or abstain from, alcohol. Some conducted their own background research on the effects of alcohol, while others took a very measured approach to drinking and paced their alcohol consumption during drinking episodes with care. Reasons not to drink included fear of developing alcohol addiction, not liking the taste of alcohol, concern about alcohol interacting with prescribed medications, as well as the desire to avoid hangover, disinhibition, or other negative effects. On the contrary, youth had some positive alcohol expectancies: non-autistic people are more accepting when drinking, alcohol helps autistic people cope with problems, irritability, boredom, and sensory processing challenges, and helps them fit in. Results reveal that alcohol use disorder in autistic adults could have its roots in underage experiences that provide temporary relief from social anxiety, feeling socially isolated, and challenges with sensory processing. The development of evidence-based youth alcohol prevention strategies for autistic youth may be an important next step. Lay abstract What is already known about the topic? Hazardous alcohol use is when a person’s drinking puts them at increased risk for negative events (e.g. health problems or car crashes). Some studies show that autistic people may be at greater risk for hazardous alcohol use than non-autistic people, while other studies have found that hazardous alcohol use is less common among autistic people than non-autistic people. We need to learn why autistic underage youth choose to drink alcohol or not. The goal of this study was to learn from US autistic youth about their attitudes and behavior related to alcohol. Forty autistic youth aged 16–20 years old were interviewed. What this article adds? Youth described several reasons why they choose to drink alcohol, including feeling like non-autistic people are more accepting when drinking, that it puts them in a less irritable or bored mood, helps them cope with problems, and helps them fit in. Reasons for not drinking alcohol include worries about becoming addicted, medication interactions, not liking the taste, fear of experiencing hangover and other health problems, and concern about acting foolish when drunk. Implications for practice, research, or policy Results reveal that hazardous alcohol use in autistic adults could have its roots in underage experiences that give autistic youth temporary relief from social anxiety, feeling lonely, and challenges with sensory processing. Right now, there are no evidence-based alcohol prevention programs in the United States for autistic people. One or more such programs may be needed. The results from this study could be used to adapt existing programs for non-autistic youth to the unique needs and risk factors of autistic youth.
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-
JP Smith (2012). Anxiety and alcohol use disorders: comorbidity and treatment considerations . Alcohol Research: Current Reviews, 34(4), 414. National Institute on Alcohol Abuse and Alcoholism.OpenAlex
-
Avanti Adhia , Megan Bair-Merritt , Sarabeth Broder‐Fingert , Rocio A. Nunez Pepen , Annieliesa C. Suarez-Rocha , Emily F. Rothman (2020). The Critical Lack of Data on Alcohol and Marijuana Use by Adolescents on the Autism Spectrum . Autism in Adulthood, 2(4), 282-288. SAGE Publications.Crossref OpenAlex OpenCitations
-
Amy L. Stamates , Cathy Lau-Barraco , Ashley N. Linden-Carmichael (2016). Alcohol Expectancies Mediate the Relationship Between Age of First Intoxication and Drinking Outcomes in College Binge Drinkers . Substance Use & Misuse, 51(5), 598-607. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Karl E. Bauman , Susan T. Ennett , Vangie A. Foshee , Michael Pemberton , Tonya S. King , Gary G. Koch (2000). Influence of a Family-Directed Program on Adolescent Cigarette and Alcohol Cessation . Prevention Science, 1(4), 227-237. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Espen Ajo Arnevik , Sissel Berge Helverschou (2016). Autism Spectrum Disorder and Co-occurring Substance Use Disorder – A Systematic Review . Substance Abuse: Research and Treatment, 10, 69-75. SAGE Publications.Crossref OpenAlex OpenCitations
-
Madelaine Ressel , Brittni Thompson , Marie-Hélène Poulin , Claude L. Normand , Marissa H Fisher , Germain Couture et al. (2020). Systematic review of risk and protective factors associated with substance use and abuse in individuals with autism spectrum disorders . Autism, 24(4), 899-918. SAGE Publications.Crossref OpenAlex OpenCitations
-
Andrea L. Roberts , Karestan C. Koenen , Kristen Lyall , Elise Robinson , Marc G. Weisskopf (2015). Association of autistic traits in adulthood with childhood abuse, interpersonal victimization, and posttraumatic stress . Child Abuse & Neglect, 45, 135-142. Elsevier BV.Crossref OpenAlex OpenCitations
-
Jill Ashburner , Beth Saggers , Marilyn A. Campbell , Julie A. Dillon‐Wallace , Yoon‐Suk Hwang , Suzanne Carrington et al. (2019). How are students on the autism spectrum affected by bullying? Perspectives of students and parents . Journal of Research in Special Educational Needs, 19(1), 27-44. Wiley.Crossref OpenAlex OpenCitations
-
Sarah Cassidy , Paul Bradley , Janine Robinson , Carrie Allison , Meghan McHugh , Simon Baron-Cohen (2014). Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study . The Lancet Psychiatry, 1(2), 142-147. Elsevier BV.Crossref OpenAlex OpenCitations
-
Nahid Darvishi , Mehran Farhadi , Tahereh Haghtalab , Jalal Poorolajal (2015). Alcohol-Related Risk of Suicidal Ideation, Suicide Attempt, and Completed Suicide: A Meta-Analysis . PLOS ONE, 10(5), e0126870. Public Library of Science (PLoS).Crossref OpenAlex OpenCitations
-
Autistic Self-Advocacy Network. (2020). Identify-first language. https://autisticadvocacy.org/about-asan/identity-first-language/Type: OtherCrossref
-
Gilbert J. Botvin , Kenneth W. Griffin (2004). Life Skills Training: Empirical Findings and Future Directions . Journal of Primary Prevention, 25(2), 211-232. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Richard C. Mulligan , Angela M. Reiersen , Alexandre A. Todorov (2013). Attention-Deficit/Hyperactivity Disorder, Autistic Traits, and Substance Use Among Missouri Adolescents . Scandinavian Journal of Child and Adolescent Psychiatry and Psychology, 2(2), 86-92. Walter de Gruyter GmbH.Crossref OpenAlex OpenCitations
-
Emma K. Baker , Amanda L. Richdale , Agnes Hazi , Luke A. Prendergast (2019). Assessing a hyperarousal hypothesis of insomnia in adults with autism spectrum disorder . Autism Research, 12(6), 897-910. Wiley.Crossref OpenAlex OpenCitations
-
Margita Palmqvist , Gunnar Edman , Sven Bölte (2014). Screening for substance use disorders in neurodevelopmental disorders: a clinical routine? European Child & Adolescent Psychiatry, 23(5), 365-368. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Bradley H. Smith , Brooke S. G. Molina , William E. Pelham (2002). The Clinically Meaningful Link Between Alcohol Use and Attention Deficit Hyperactivity Disorder. Europe PMC (PubMed Central), 26(2), 122.Type: Article OpenAlex: https://openalex.org/W1531797004OpenAlex
-
Debra Kaysen , Tiara M. Dillworth , Tracy Simpson , Angela Waldrop , Mary E. Larimer , Patricia A. Resick (2007). Domestic violence and alcohol use: Trauma-related symptoms and motives for drinking . Addictive Behaviors, 32(6), 1272-1283. Elsevier BV.Crossref OpenAlex OpenCitations
-
Laurence Lalanne , Luisa Weiner , Benoit Trojak , Fabrice Berna , Gilles Bertschy (2015). Substance-use disorder in high-functioning autism: clinical and neurocognitive insights from two case reports . BMC Psychiatry, 15(1), 149. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ioana Popovici , Michael T. French (2013). Does Unemployment Lead to Greater Alcohol Consumption? Industrial Relations: A Journal of Economy and Society, 52(2), 444-466. Wiley.Crossref OpenAlex OpenCitations
-
MA Stephens (2012). Stress and the HPA axis: role of glucocorticoids in alcohol dependence . Alcohol Research: Current Reviews, 34(4), 468. National Institute on Alcohol Abuse and Alcoholism.OpenAlex
-
Mark Brosnan , Sally Adams (2020). The Expectancies and Motivations for Heavy Episodic Drinking of Alcohol in Autistic Adults . Autism in Adulthood, 2(4), 317-324. SAGE Publications.Crossref OpenAlex OpenCitations
-
Arlette F. Buchmann , Brigitte Schmid , Dorothea Blomeyer , Katja Becker , Jens Treutlein , Ulrich S. Zimmermann et al. (2009). Impact of age at first drink on vulnerability to alcohol-related problems: Testing the marker hypothesis in a prospective study of young adults . Journal of Psychiatric Research, 43(15), 1205-1212. Elsevier BV.Crossref OpenAlex OpenCitations
-
Sandra A. Brown , Vicki A. Creamer , Barbara A. Stetson (1987). Adolescent alcohol expectancies in relation to personal and parental drinking patterns. Journal of Abnormal Psychology, 96(2), 117-121. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Deena J. Chisolm , Jennifer A. Manganello , Kelly J. Kelleher , Michael P. Marshal (2014). Health literacy, alcohol expectancies, and alcohol use behaviors in teens . Patient Education and Counseling, 97(2), 291-296. Elsevier BV.Crossref OpenAlex OpenCitations
-
Bridget F. Grant , Deborah A. Dawson (1997). Age at onset of alcohol use and its association with DSM-IV alcohol abuse and dependence: results from the national longitudinal alcohol epidemiologic survey . Journal of Substance Abuse, 9, 103-110. Elsevier BV.Crossref OpenAlex OpenCitations
-
Agnieszka Butwicka , Niklas Långström , Henrik Larsson , Sebastian Lundström , Eva Serlachius , Catarina Almqvist et al. (2017). Increased Risk for Substance Use-Related Problems in Autism Spectrum Disorders: A Population-Based Cohort Study . Journal of Autism and Developmental Disorders, 47(1), 80-89. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Lori K. Holleran Steiker (2008). Making Drug and Alcohol Prevention Relevant . Family & Community Health, 31(Supplement 1), S52-S60. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex OpenCitations
-
Dennis M. Gorman (2014). Is Project Towards No Drug Abuse (Project TND) an Evidence-Based Drug and Violence Prevention Program? A Review and Reappraisal of the Evaluation Studies . The Journal of Primary Prevention, 35(4), 217-232. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Gabriel Caluzzi , Sarah MacLean , Michael Livingston , Amy Pennay (2021). “No one associates alcohol with being in good health”: Health and wellbeing as imperatives to manage alcohol use for young people . Sociology of Health & Illness, 43(2), 493-509. Wiley.Crossref OpenAlex OpenCitations
-
Jennifer E. Merrill , Jeffrey D. Wardell , Jennifer P. Read (2014). Drinking Motives in the Prospective Prediction of Unique Alcohol-Related Consequences in College Students . Journal of Studies on Alcohol and Drugs, 75(1), 93-102. Alcohol Research Documentation, Inc..Crossref OpenAlex OpenCitations
-
Lara Carminati (2018). Generalizability in Qualitative Research: A Tale of Two Traditions . Qualitative Health Research, 28(13), 2094-2101. SAGE Publications.Crossref OpenAlex OpenCitations
-
Luca Casartelli , Cristiano Chiamulera (2016). The motor way: Clinical implications of understanding and shaping actions with the motor system in autism and drug addiction . Cognitive, Affective, & Behavioral Neuroscience, 16(2), 191-206. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Lars Sjödin , Peter Larm , Patrik Karlsson , Michael Livingston , Jonas Raninen (2021). Drinking motives and their associations with alcohol use among adolescents in Sweden . Nordic Studies on Alcohol and Drugs, 38(3), 256-269. SAGE Publications.Crossref OpenAlex OpenCitations
-
Judi Randi , Tina Newman , Elena L. Grigorenko (2010). Teaching Children with Autism to Read for Meaning: Challenges and Possibilities . Journal of Autism and Developmental Disorders, 40(7), 890-902. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Centers for Disease Control and Prevention. (2019). Alcohol Related Disease Impact (ARDI) application. www.cdc.gov/ARDIType: OtherCrossref
-
Scott D. Tomchek , Winnie Dunn (2007). Sensory Processing in Children With and Without Autism: A Comparative Study Using the Short Sensory Profile . American Journal of Occupational Therapy, 61(2), 190-200. SAGE Publications.Crossref OpenAlex OpenCitations
-
Meng-Jinn Chen , Joel W. Grube , Patricia A. Madden (1994). Alcohol expectancies and adolescent drinking: Differential prediction of frequency, quantity, and intoxication . Addictive Behaviors, 19(5), 521-529. Elsevier BV.Crossref OpenAlex OpenCitations
-
Wei Dang , Qian Zhang , Yong-Sheng Zhu , Xiao-Yun Lu (2014). The Evidence for the Contribution of the Autism Susceptibility Candidate 2 (AUTS2) Gene in Heroin Dependence Susceptibility . Journal of Molecular Neuroscience, 54(4), 811-819. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jade Eloise Norris , Laura Crane , Katie Maras (2020). Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews . Autism, 24(6), 1506-1520. SAGE Publications.Crossref OpenAlex OpenCitations
-
Meghan A. Crabtree , Linda R. Stanley , Randall C. Swaim (2020). The Role of Future Orientation and Self-determination on American Indian Adolescents’ Intentions to Use Alcohol and Marijuana . Prevention Science, 21(6), 761-771. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Elizabeth M Weir , Carrie Allison , Simon Baron-Cohen (2021). Understanding the substance use of autistic adolescents and adults: a mixed-methods approach . The Lancet Psychiatry, 8(8), 673-685. Elsevier BV.Crossref OpenAlex OpenCitations
-
Allison E. Curry , Kristina B. Metzger , Meghan E. Carey , Emma B. Sartin , Patty Huang , Benjamin E. Yerys (2021). Comparison of Motor Vehicle Crashes, Traffic Violations, and License Suspensions Between Autistic and Non-Autistic Adolescent and Young Adult Drivers . Journal of the American Academy of Child & Adolescent Psychiatry, 60(7), 913-923. Elsevier BV.Crossref OpenAlex OpenCitations
-
Barry T. Jones , Will Corbin , Kim Fromme (2001). A review of expectancy theory and alcohol consumption . Addiction, 96(1), 57-72. Wiley.Crossref OpenAlex OpenCitations
-
Kimberly B. Schauder , Lisa E. Mash , Lauren K. Bryant , Carissa J. Cascio (2015). Interoceptive ability and body awareness in autism spectrum disorder . Journal of Experimental Child Psychology, 131, 193-200. Elsevier BV.Crossref OpenAlex OpenCitations
-
Jennifer E. Merrill , Suzanne E. Thomas (2013). Interactions between adaptive coping and drinking to cope in predicting naturalistic drinking and drinking following a lab-based psychosocial stressor . Addictive Behaviors, 38(3), 1672-1678. Elsevier BV.Crossref OpenAlex OpenCitations
-
M. Ramos , L. Boada , C. Moreno , C. Llorente , J. Romo , Mara Parellada (2013). Attitude and risk of substance use in adolescents diagnosed with Asperger syndrome . Drug and Alcohol Dependence, 133(2), 535-540. Elsevier BV.Crossref OpenAlex OpenCitations
-
Alexandre Fachini , Poliana P Aliane , Edson Z Martinez , Erikson F Furtado (2012). Efficacy of brief alcohol screening intervention for college students (BASICS): a meta-analysis of randomized controlled trials . Substance Abuse Treatment, Prevention, and Policy, 7(1), 40-40. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Friedlander D. (2017). Autism & you: Learning in styles . Autism & you: Learning in styles.Type: OtherCrossref
-
Ashy C. Rengit , James W. McKowen , Julie O’Brien , Yamini J. Howe , Christopher J. McDougle (2016). Brief Report: Autism Spectrum Disorder and Substance Use Disorder: A Review and Case Study . Journal of Autism and Developmental Disorders, 46(7), 2514-2519. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Kristen Gillespie-Lynch , Nidal Daou , Rita Obeid , Siobhan Reardon , Spogmay Khan , Emily J. Goldknopf (2021). What Contributes to Stigma Towards Autistic University Students and Students with Other Diagnoses? Journal of Autism and Developmental Disorders, 51(2), 459-475. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jukka Törrönen , Filip Roumeliotis , Eva Samuelsson , Ludwig Kraus , Robin Room (2019). Why are young people drinking less than earlier? Identifying and specifying social mechanisms with a pragmatist approach . International Journal of Drug Policy, 64, 13-20. Elsevier BV.Crossref OpenAlex OpenCitations
-
Linda M Kronenberg , Karin Slager-Visscher , Peter JJ Goossens , Wim van den Brink , Theo van Achterberg (2014). Everyday life consequences of substance use in adult patients with a substance use disorder (SUD) and co-occurring attention deficit/hyperactivity disorder (ADHD) or autism spectrum disorder (ASD): a patient’s perspective . BMC Psychiatry, 14(1), 264-264. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jiedi Lei , Lauren Jones , Mark Brosnan (2021). Exploring an e-learning community’s response to the language and terminology use in autism from two massive open online courses on autism education and technology use . Autism, 25(5), 1349-1367. SAGE Publications.Crossref OpenAlex OpenCitations
-
Sarah Griffiths , Carrie Allison , Rebecca Kenny , Rosemary Holt , Paula Smith , Simon Baron-Cohen (2019). The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults . Autism Research, 12(10), 1516-1528. Wiley.Crossref OpenAlex OpenCitations
-
Meng-Chuan Lai , Michael Lombardo , Simon Baron-Cohen (2014). Autism . The Lancet, 383(9920), 896-910. Elsevier BV.Crossref OpenAlex OpenCitations
-
Max G Griswold , Nancy Fullman , Caitlin Hawley , Nicholas Arian , Stephanie R M Zimsen , Hayley D Tymeson et al. (2018). Alcohol use and burden for 195 countries and territories, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016 . The Lancet, 392(10152), 1015-1035. Elsevier BV.Crossref OpenAlex OpenCitations
-
Michael L. Hecht , YoungJu Shin , Jonathan Pettigrew , Michelle Miller-Day , Janice L. Krieger (2018). Designed Cultural Adaptation and Delivery Quality in Rural Substance Use Prevention: an Effectiveness Trial for the Keepin’ it REAL Curriculum . Prevention Science, 19(8), 1008-1018. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Helandri Haasbroek , Neo Morojele (2022). A Systematic Literature Review on the Relationship Between Autism Spectrum Disorder and Substance Use Among Adults and Adolescents . Review Journal of Autism and Developmental Disorders, 9(1), 1-20. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Bram Sizoo , Wim van den Brink , Marielle Gorissen van Eenige , Rutger Jan van der Gaag (2009). Personality Characteristics of Adults With Autism Spectrum Disorders or Attention Deficit Hyperactivity Disorder With and Without Substance Use Disorders . Journal of Nervous & Mental Disease, 197(6), 450-454. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex OpenCitations
-
Sissel Berge Helverschou , Anette Ræder Brunvold , Espen Ajo Arnevik (2019). Treating Patients With Co-occurring Autism Spectrum Disorder and Substance Use Disorder: A Clinical Explorative Study . Substance Abuse: Research and Treatment, 13, 1178221819843291-1178221819843291. SAGE Publications.Crossref OpenAlex OpenCitations
-
Jing-Syuan Huang , Fu-Chi Yang , Wu-Chien Chien , Ta-Chuan Yeh , Chi-Hsiang Chung , Chia-Kuang Tsai et al. (2021). Risk of Substance Use Disorder and Its Associations With Comorbidities and Psychotropic Agents in Patients With Autism . JAMA Pediatrics, 175(2), e205371. American Medical Association (AMA).Crossref OpenAlex OpenCitations
-
Helena C. Kaltenegger , Sabrina Doering , Christopher Gillberg , Peter Wennberg , Sebastian Lundström (2021). Low prevalence of risk drinking in adolescents and young adults with autism spectrum problems . Addictive Behaviors, 113, 106671. Elsevier BV.Crossref OpenAlex OpenCitations
-
Cliodhna O’Connor , Helene Joffe (2020). Intercoder Reliability in Qualitative Research: Debates and Practical Guidelines . International Journal of Qualitative Methods, 19. SAGE Publications.Crossref OpenAlex OpenCitations
-
Alexandra Sturm , Connie Kasari (2019). Academic and psychosocial characteristics of incoming college freshmen with autism spectrum disorder: The role of comorbidity and gender . Autism Research, 12(6), 931-940. Wiley.Crossref OpenAlex OpenCitations
-
Miles M. B., Huberman A. M. (1994). Qualitative data analysis: An expanded sourcebook. SAGE. https://books.google.com/books?id=U4lU_-wJ5QECType: OtherCrossref
-
National Institute on Alcohol Abuse and Alcoholism. (2021). Underage drinking. https://www.niaaa.nih.gov/publications/brochures-and-fact-sheets/underage-drinkingType: OtherCrossref
-
Office of Disease Prevention and Health Promotion. (n.d.). Healthy People 2030. https://health.gov/healthypeople/objectives-and-data/browse-objectives/drug-and-alcohol-use/reduce-proportion-adolescents-who-drank-alcohol-past-month-su-04Type: OtherCrossref
-
QSR International Pty Ltd. (2020). NVivo. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/homeType: OtherCrossref
-
Smith B. H., Molina B. S. G., Pelham W. E. Jr (2002). The clinically meaningful link between alcohol use and attention deficit hyperactivity disorder. Alcohol Research & Health, 26(2), 122–129. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6683828/Type: OtherCrossref
-
Smith J. P., Randall C. L. (2012). Anxiety and alcohol use disorders: Comorbidity and treatment considerations. Alcohol Research: Current Reviews, 34(4), 414–431. https://pubmed.ncbi.nlm.nih.gov/23584108Type: OtherCrossref
-
Stephens M. A. (2012). bibr64-13623613221091319 Alcohol Research, 34(4), 468.Type: OtherCrossref