A thematic analysis of the views of neurodivergent women with a personality disorder diagnosis on clinical pathways within mental health services

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Graham, R., Matthews, Z., Parker, J., Dyer, T., Cullinane, H., & Crole-Rees, C. (2025). A thematic analysis of the views of neurodivergent women with a personality disorder diagnosis on clinical pathways within mental health services. Discover Mental Health, 5(1), 200-200. https://doi.org/10.1007/s44192-025-00340-0

Journal or book title
Discover Mental Health
Publisher
Springer Science and Business Media LLC
Volume
5
Issue
1
Pages
200-200
Article number
200
Publication date: 29 Dec 2025 Added to AutiHub: 24 Sep 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)

Abstract

PURPOSE: Adults with a personality disorder diagnosis have a high prevalence of co-occurring autism and attention deficit hyperactivity disorder (ADHD). However, there is often no defined pathway within mental health services to meet the needs of this population, and a lack of evidence or consensus on the optimal approaches to identification, treatment and support for neurodivergent people with a personality disorder diagnosis. There has been little exploration of the views of this population on the care they receive in community mental health services. Therefore, the aim of this project was to understand the experiences and perspectives of neurodivergent people with a personality disorder diagnosis, to inform a clinical pathway which is effective, safe, sustainable and equitable. METHODS: Ten qualitative interviews were conducted with women with a diagnosis of, or had been referred for a diagnosis of, autism or ADHD, and a diagnosis of personality disorder. Interviews were analysed using reflexive thematic analysis. RESULTS: Five key themes emerged; staff factors (understanding and skills, attitudes and communication), pathways and processes (access to services and barriers to support), involving and enabling (through adaptations and empowerment), support and clinical interventions (experience of individual therapies and groups, and opportunities to evaluate support), and diagnosis and identification (the impact and accuracy of diagnosis). CONCLUSIONS: This study highlights gaps in current practice as well as personal preferences about identity and experiences of misdiagnosis. It identifies the components of an integrated clinical pathway, that include a person-centered, formulation-driven approach to assessment and reasonable adjustments; peer-led psychosocial support; adapted transdiagnostic psychological therapies; and embedded co-production. Clinical and research priorities are discussed.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
71
With a DOI
61
Without a DOI, from raw bibliography text
10
9 / 71 (12.7%) cited references include at least one author identified as autistic.
References with data to complete
13 / 71 (18.3%)
References with detected author names
62 / 71 (87.3%)
Without detected author names
9
Without a structured title
13
Without a stable identifier
10
References with raw author names still to review
9
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
315
From DOI or external metadata
315
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
9
104 / 315 (33.0%) names are linked to an author already present in AutiHub. 211 / 315 (67.0%) names are not yet linked.
Names linked to a person identified as autistic
24 / 315 (7.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 24 / 104 (23.1%). Distinct people identified as autistic: 21 / 300 (7.0%).
  1. Bridget McGrath , Maura Dowling (2012). Exploring Registered Psychiatric Nurses' Responses towards Service Users with a Diagnosis of Borderline Personality Disorder . Nursing Research and Practice, 2012, 1-10. Hindawi Limited.
    Crossref OpenAlex OpenCitations
  2. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex OpenCitations
  3. Mia Morgan , David Francis Hunt , Hayley Trueman , Charles Vincent , Daniel Maughan (2022). Improving personality disorder care across mental health services: a system-wide approach . BMJ Open Quality, 11(3), e001979. BMJ.
    Crossref OpenAlex OpenCitations
  4. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  5. World Health Organization. (2022). International classification of diseases 11th revision: Clinical descriptions and diagnostic requirements for mental, behavioural and neurodevelopmental disorders. (6A02 Autism Spectrum Disorder). World Health Organization.
    Type: Other
    Crossref
  6. Oliver Bonnington , Diana Rose (2014). Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder: A critical realist analysis . Social Science & Medicine, 123, 7-17. Elsevier BV.
    Crossref OpenAlex OpenCitations
  7. World Health Organization. (2022). International classification of diseases 11th revision: Clinical descriptions and diagnostic requirements for mental, behavioural and neurodevelopmental disorders. (6D10 Personality disorder). World Health Organization.
    Type: Other
    Crossref
  8. Caitlin Louise Phillips , Rebecca Rylance-Graham , Gary Lamph (2024). Exploring the stigma associated with personality disorders: a narrative review . Mental Health Practice, 27(6), 20-26. RCNi.
    Crossref OpenAlex OpenCitations
  9. Eva Bühler , Christian Bachmann , Hannah Goyert , Monika Heinzel-Gutenbrunner , Inge Kamp-Becker (2011). Differential Diagnosis of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder by Means of Inhibitory Control and ‘Theory of Mind’ . Journal of Autism and Developmental Disorders, 41(12), 1718-1726. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Michaela A. Swales (2022). Personality disorder diagnoses in ICD-11: Transforming conceptualisations and practice . Clinical Psychology in Europe, 4(Special Issue), e9635-e9635. Leibniz Institute for Psychology (ZPID).
    Crossref OpenAlex OpenCitations
  11. Angela Kuehner , Andrea Ploder , Phil C. Langer (2016). Introduction to the Special Issue . Qualitative Inquiry, 22(9), 699-704. SAGE Publications.
    Crossref OpenAlex OpenCitations
  12. Morten Hesse , Paul Moran (2010). Screening for personality disorder with the Standardised Assessment of Personality: Abbreviated Scale (SAPAS): further evidence of concurrent validity . BMC Psychiatry, 10(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  13. Jay Watts (2023). Engendering misunderstanding: autism and borderline personality disorder . International Journal of Psychiatry in Clinical Practice, 27(3), 316-317. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  14. John A. Hughes , Wesley W. Sharrock (2016). The Philosophy of Social Research . Routledge.
    Crossref OpenAlex OpenCitations
  15. Pauline Klein , A. Kate Fairweather , Sharon Lawn (2022). Structural stigma and its impact on healthcare for borderline personality disorder: a scoping review . International Journal of Mental Health Systems, 16(1), 48. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  16. Juan Pablo Domecq , Gabriela Prutsky , Tarig Elraiyah , Zhen Wang , Mohammed Nabhan , Nathan Shippee et al. (2014). Patient engagement in research: a systematic review . BMC Health Services Research, 14(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  17. C. Porter , J. Palmier‐Claus , A. Branitsky , W. Mansell , H. Warwick , F. Varese (2020). Childhood adversity and borderline personality disorder: a meta‐analysis . Acta Psychiatrica Scandinavica, 141(1), 6-20. Wiley.
    Crossref OpenAlex OpenCitations
  18. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . Lancet Psychiatry, 6(10), 819. Elsevier BV.
    Crossref OpenAlex OpenCitations
  19. Peter Snowden , Eddie Kane (2003). Personality disorder: no longer a diagnosis of exclusion . Psychiatric Bulletin, 27(11), 401-403. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  20. Transformation Partners in Health and Care. (2022). Personality disorders: increasing awareness and raising hope. https://www.transformationpartners.nhs.uk/programmes/mental-health-transformation/support-for-adults/personality-disorders/
    Type: Other
    Crossref
  21. Annuska Zolyomi , Andrew Begel , Jennifer Frances Waldern , John Tang , Michael Barnett , Edward Cutrell et al. (2019). Managing Stress . Proceedings of the ACM on Human-Computer Interaction, 3(CSCW), 1-29. Association for Computing Machinery (ACM).
    Type: Article DOI: 10.1145/3359236 OpenAlex: https://openalex.org/W2970436446
    Crossref OpenAlex OpenCitations
  22. Glenys D. Parry , Mike Crawford , Conor Duggan (2016). Iatrogenic harm from psychological therapies – time to move on . British Journal of Psychiatry, 208(3), 210-212. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  23. Newham SCP. (2018). Meeting the Challenge Making a Difference. https://www.newhamscp.org.uk/wp-content/uploads/2016/11/Meeting-the-Challenge-Making-a-Difference.pdf
    Type: Other
    Crossref
  24. Camille Hours , Christophe Recasens , Jean-Marc Baleyte (2022). ASD and ADHD comorbidity: What are we talking about? Frontiers in Psychiatry, 13, 837424-837424. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  25. Lindsay Sheehan , Katherine Nieweglowski , Patrick Corrigan (2016). The Stigma of Personality Disorders . Current Psychiatry Reports, 18(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Camilla Rinaldi , Margherita Attanasio , Marco Valenti , Monica Mazza , Roberto Keller (2021). Autism spectrum disorder and personality disorders: Comorbidity and differential diagnosis . World Journal of Psychiatry, 11(12), 1366-1386. Baishideng Publishing Group Inc..
    Crossref OpenAlex OpenCitations
  27. Kirsti Malterud , Volkert Dirk Siersma , Ann Dorrit Guassora (2016). Sample Size in Qualitative Interview Studies . Qualitative Health Research, 26(13), 1753-1760. SAGE Publications.
    Crossref OpenAlex OpenCitations
  28. Clare S Allely , Emma Woodhouse , Raja Mukherjee (2023). Autism spectrum disorder and personality disorders: How do clinicians carry out a differential diagnosis? Autism, 27(6), 1847-1850. SAGE Publications.
    Crossref OpenAlex OpenCitations
  29. Laura Fusar-Poli , Natascia Brondino , Pierluigi Politi , Eugenio Aguglia (2022). Missed diagnoses and misdiagnoses of adults with autism spectrum disorder . European Archives of Psychiatry and Clinical Neuroscience, 272(2), 187-198. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  30. Robert B. Dudas , Chris Lovejoy , Sarah Cassidy , Carrie T. Allison , P. Smith , Simon Baron-Cohen (2017). The overlap between autistic spectrum conditions and borderline personality disorder . PLoS ONE, 12(9), e0184447. Public Library of Science (PLoS).
    Crossref OpenAlex
  31. Vasiliki Kentrou , Milou Oostervink , Anke Scheeren , Sander Begeer (2021). Stability of co-occurring psychiatric diagnoses in autistic men and women . Research in Autism Spectrum Disorders, 82(82), 101736. Elsevier BV.
    Crossref OpenAlex OpenCitations
  32. Anne Huntjens , L. M. C. Wies van den Bosch , Bram Sizoo , Ad Kerkhof , Marcus J. H. Huibers , Mark van der Gaag (2020). The effect of dialectical behaviour therapy in autism spectrum patients with suicidality and/ or self-destructive behaviour (DIASS): study protocol for a multicentre randomised controlled trial . BMC Psychiatry, 20(1), 127. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  33. Katerina M. Dudley , Mark R. Klinger , Allison Meyer , Patrick Powell , Laura Klinger (2019). Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation . Journal of Autism and Developmental Disorders, 49(2), 556-568. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  34. Liliana Dell’Osso , Ivan Mirko Cremone , Benedetta Nardi , Valeria Tognini , Lucrezia Castellani , Paola Perrone et al. (2023). Comorbidity and Overlaps between Autism Spectrum and Borderline Personality Disorder: State of the Art . Brain Sciences, 13(6), 862. MDPI AG.
    Crossref OpenAlex OpenCitations
  35. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.
    Crossref OpenAlex OpenCitations
  36. Stine Iversen , Arvid Nikolai Kildahl (2022). Case Report: Mechanisms in Misdiagnosis of Autism as Borderline Personality Disorder . Frontiers in Psychology, 13, 735205-735205. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  37. Jennifer Jackson , Jessica Sinyor , Hayley Trower (2024). Umbrella review of hospital passports: Their use and improvements . British Journal of Learning Disabilities, 52(4), 700-708. Wiley.
    Crossref OpenAlex OpenCitations
  38. Goldie A. McQuaid , John F. Strang , Allison Jack (2022). Borderline personality and late, missed, and mis-diagnosis in female autism: A review of the literature . Center for Open Science.
    Crossref OpenAlex
  39. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  40. Natasha Malik-Soni , Andrew Shaker , Helen Luck , Anne E. Mullin , Ryan E. Wiley , M. E. Suzanne Lewis et al. (2022). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood . Pediatric Research, 91(5), 1028-1035. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  41. NHS England (2025). Autism Waiting Times Statistics. https://digital.nhs.uk/data-and-information/publications/statistical/autism-statistics
    Type: Other
    Crossref
  42. Robert B. Dudas , Chris Lovejoy , Sarah Cassidy , Carrie T. Allison , P. Smith , Simon Baron-Cohen (2017). The overlap between autistic spectrum conditions and borderline personality disorder . PLOS ONE, 12(9), e0184447. Public Library of Science (PLoS).
    OpenCitations
  43. Laura Crane (2019). Crane L, Adams F, Harper G, Welch J, Pellicano E. ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism. 2019;23(2):477–93. https://doi.org/10 . 1177/13623613187570. Autism, 23(2), 477.
    Type: Other DOI: 10.1177/13623613187570
    Crossref
  44. Rachel Sarr , Debbie Spain , Alice M. G. Quinton , Francesca Happé , Chris R. Brewin , Jonathan Radcliffe et al. (2025). Differential diagnosis of autism, attachment disorders, complex post‐traumatic stress disorder and emotionally unstable personality disorder: A Delphi study . British Journal of Psychology, 116(1), 1-33. Wiley.
    Crossref OpenAlex OpenCitations
  45. Chloe Finamore , Fiammetta Rocca , Jennie Parker *Autistic author. Learn more… , Julia Blazdell , Oliver Dale (2020). The impact of a co-produced personality disorder training on staff burnout, knowledge and attitudes . Mental Health Review Journal, 25(3), 269-280. Emerald.
    Crossref OpenAlex OpenCitations
  46. Damian Milton *Autistic author. Learn more… , Emine Gurbuz , Beatriz López (2022). The ‘double empathy problem’: Ten years on . Autism, 26(8), 1901-1903. SAGE Publications.
    Crossref OpenAlex OpenCitations
  47. Kathryn Skivington , Lynsay Matthews , Sharon Anne Simpson , Peter Craig , Janis Baird , Jane M Blazeby et al. (2021). A new framework for developing and evaluating complex interventions: update of medical research council guidance . BMJ, 374, 1. BMJ.
    Crossref OpenAlex
  48. Mary Doherty *Autistic author. Learn more… , Clair Haydon , Ian A Davidson (2021). Recognising autism in healthcare . British Journal of Hospital Medicine, 82(12), 1-7. IMR Press.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  49. (n.d.). NHS England. (2023, December, 6). Meeting the needs of autistic adults in mental health services. https://www.england.nhs.uk/long-read/meeting-the-needs-of-autistic-adults-in-mental-health-services/
    Type: Other
    Crossref
  50. Debbie Spain , Victoria Milner , David Mason *Autistic author. Learn more… , Hannah Iannelli , Chris Attoe , Ruwani Ampegama et al. (2023). Improving Cognitive Behaviour Therapy for Autistic Individuals: A Delphi Survey with Practitioners . Journal of Rational-Emotive & Cognitive-Behavior Therapy, 41(1), 45-63. Springer Science and Business Media LLC.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  51. Lukas Cheney , Robert B. Dudas , Jenna M. Traynor , Josephine A. Beatson , Sathya Rao , Lois W. Choi-Kain (2023). Co-Occurring Autism Spectrum and Borderline Personality Disorder: An Emerging Clinical Challenge Seeking Informed Interventions . Harvard Review of Psychiatry, 31(2), 83-91. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  52. Jacqui Rodgers , Sarah Cassidy , Mirabel Pelton , Jane Goodwin , Janelle Wagnild , Nawaraj Bhattarai et al. (2024). Feasibility and acceptability of autism adapted safety plans: an external pilot randomised controlled trial . eClinicalMedicine, 73, 102662. Elsevier BV.
    Crossref OpenAlex OpenCitations
  53. Ole Jakob Storebø , Jutta M Stoffers-Winterling , Birgit A Völlm , Mickey T Kongerslev , Jessica T Mattivi , Mie S Jørgensen et al. (2020). Psychological therapies for people with borderline personality disorder . Cochrane Database of Systematic Reviews, 2020(11). Wiley.
    Crossref OpenAlex OpenCitations
  54. Barnhart, G. S. (2016). Clinician perspectives of adult high-functioning autism support Groups' use of neurodiversity concept. Walden University.
    Type: Other
    Crossref
  55. Daniel Gilmore , Anne Longo , Morgan Krantz , Deondray Radford , Brittany N. Hand (2022). Five Ways Providers Can Improve Mental Healthcare for Autistic Adults: A Review of Mental Healthcare Use, Barriers to Care, and Evidence-Based Recommendations . Current Psychiatry Reports, 24(10), 565-571. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  56. George Gillett , Laura Leeves , Amy Patel , Andreea Prisecaru , Debbie Spain , Francesca Happé (2023). The prevalence of autism spectrum disorder traits and diagnosis in adults and young people with personality disorders: A systematic review . Australian & New Zealand Journal of Psychiatry, 57(2), 181-196. SAGE Publications.
    Crossref OpenAlex OpenCitations
  57. G Rydén (2008). Rydén G, Rydén E, Hetta J. Borderline personality disorder and autism spectrum disorder in females: a cross-sectional study. Clin Neuropsychiatry. 2008;5(1):22–30. Clin Neuropsychiatry, 5(1), 22.
    Type: Other
    Crossref
  58. Jade Eloise Norris , Rebecca Harvey , Laura Hull (2025). Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis . Autism, 29(2), 284-309. SAGE Publications.
    Crossref OpenAlex OpenCitations
  59. Hege Myklebust , Hannah Gaffney , Sarah Parkinson (2025). Evaluating the impact of staff training on “personality disorder” on attitudes, knowledge and confidence over time . The Journal of Mental Health Training, Education and Practice, 20(2), 143-155. Emerald.
    Crossref OpenAlex OpenCitations
  60. Kathryn Skivington , Lynsay Matthews , Sharon Anne Simpson , Peter Craig , Janis Baird , Jane M Blazeby et al. (2021). A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance . BMJ, n2061. BMJ.
    OpenCitations
  61. Gayle L. Overton , Ferran Marsà-Sambola , Rachael Martin , Penny Cavenagh (2024). Understanding the Self-identification of Autism in Adults: a Scoping Review . Review Journal of Autism and Developmental Disorders, 11(4), 682-702. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  62. PL Howard (2021). Howard PL, Sedgewick F. ‘Anything but the phone!’: Communication mode preferences in the autism community. Autism. 2021;25(8):2265–78. https://doi.org/10 . 1177/1362361321101499. Autism, 25(8), 2265.
    Type: Other DOI: 10.1177/1362361321101499
    Crossref
  63. Rhea Lindell‐Innes , Alexander L. Phillips‐Hughes , Dianna Bartsch , Cherrie Galletly , Cathy Ludbrook (2023). Attitudes of psychiatry trainees towards patients with borderline personality disorder: Does the stigma begin during training? Personality and Mental Health, 17(4), 387-395. Wiley.
    Type: Article DOI: 10.1002/pmh.1587 OpenAlex: https://openalex.org/W4377193278
    Crossref OpenAlex OpenCitations
  64. Lumivero. (2023). Nvivo (Version 14. 23. 3) [computer software]. https://lumivero.com/
    Type: Other
    Crossref
  65. Royal College of Psychiatrists. (2020). Position Statements 2020. https://www.rcpsych.ac.uk/improving-care/campaigning-for-better-mental-health-policy/position-statements/position-statements-2020
    Type: Other
    Crossref
  66. Chloe S. Gordon (2020). Gordon C, Lewis M. Differentiating between borderline personality disorder and autism spectrum disorder. Ment Health Pract. 2020;23(3):22–6. https://doi.org/10 . 7748/mhp. 2020.e1456. Ment Health Pract, 23(3), 22.
    Type: Other DOI: 10.7748/mhp.2020.e1456
    Crossref