Short Take: An Approach to Decision-making in Community-based Participatory Research to Foster Co-ownership and Trust

This publication is included in the Autistic Autism Scholarship Project. four authors of this publication are identified as autistic in the project.

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Benevides, T. W., Shore, S. M., Heinly, J. M., Delgado, D., Caplan, R., Hector, B. L., Holliday-Willey, L., Nebeker, L., Wittig, K., Roubinov, D., Maddox, B. B., & Jager-Hyman, S. (2025). Short Take: An Approach to Decision-making in Community-based Participatory Research to Foster Co-ownership and Trust. Field Methods, 38(1), 76-84. https://doi.org/10.1177/1525822x251339954

Publication date: 20 Nov 2025 Added to AutiHub: 15 Sep 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
12
Publication authors identified as autistic
4 / 12 (33.3%)
  1. Teal W. Benevides
  2. Stephen M. Shore *
  3. Julia M. Heinly
  4. Daylin Delgado
  1. Reid Caplan *
  2. Becca Lory Hector *
  3. Liane Holliday-Willey *
  4. Lindsey Nebeker
  1. Karl Wittig
  2. Danielle Roubinov
  3. Brenna B. Maddox
  4. Shari Jager-Hyman

Abstract

This Short Take describes the rationale for, and use of, a decision-making process in community-engaged comparative effectiveness research, co-led by community researchers and academic researchers. The contribution of this methodological guide is to (1) ensure that all partners have a voice in contributing to major study decisions; (2) distribute power equally; (3) avoid power differentials; (4) increase trust; and (5) promote shared governance in research.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 15 Sep 2026 16:31.

Cited references
15
With a DOI
10
Without a DOI, from raw bibliography text
5
1 / 15 (6.7%) cited references include at least one author identified as autistic.
References with data to complete
2 / 15 (13.3%)
References with detected author names
13 / 15 (86.7%)
Without detected author names
2
Without a structured title
2
Without a stable identifier
5
References with raw author names still to review
2
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
73
From DOI or external metadata
73
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
3
11 / 73 (15.1%) names are linked to an author already present in AutiHub. 62 / 73 (84.9%) names are not yet linked.
Names linked to a person identified as autistic
5 / 73 (6.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 5 / 11 (45.5%). Distinct people identified as autistic: 5 / 72 (6.9%).
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    Crossref OpenAlex OpenCitations
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    Crossref OpenAlex OpenCitations
  6. Nina Wallerstein , Michael Muhammad , Shannon Sanchez-Youngman , Patricia Rodriguez Espinosa , Magdalena Avila , Elizabeth A. Baker et al. (2019). Power Dynamics in Community-Based Participatory Research: A Multiple–Case Study Analysis of Partnering Contexts, Histories, and Practices . Health Education & Behavior, 46(1_suppl), 19S-32S. SAGE Publications.
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    Crossref OpenAlex OpenCitations
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  9. Barbara Stanley , Kelly L. Green , Marjan Ghahramanlou-Holloway , Lisa A. Brenner , Gregory K. Brown (2017). The construct and measurement of suicide-related coping . Psychiatry Research, 258, 189-193. Elsevier BV.
    Type: Article DOI: 10.1016/j.psychres.2017.08.008 OpenAlex: https://openalex.org/W2745068633
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  10. Samantha Yimeng Dong , Linda Nguyen , Andrea Cross , Amanda Doherty-Kirby , Jessica Geboers , Dayle McCauley et al. (2023). Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities . Research Involvement and Engagement, 9(1), 50-50. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s40900-023-00452-3 OpenAlex: https://openalex.org/W4383737862
    Crossref OpenAlex OpenCitations
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    Type: Other
    Crossref
  12. Michaéla C. Schippers , Diana C. Rus (2021). Majority Decision-Making Works Best Under Conditions of Leadership Ambiguity and Shared Task Representations . Frontiers in Psychology, 12. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.519295 OpenAlex: https://openalex.org/W3166721612
    Crossref OpenAlex OpenCitations
  13. Nelson L. L. (2014). Design and deliver: Planning and teaching using universal design for learning . Design and deliver: Planning and teaching using universal design for learning.
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    Crossref
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