Should Autistics Take a Limited Role in Autism Research? - Comment on Poulsen et al. (2023)

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Yoon, w. h. (2023). Should Autistics Take a Limited Role in Autism Research? - Comment on Poulsen et al. (2023) [Preprint]. Center for Open Science. https://doi.org/10.31234/osf.io/wcvs7

Publication date: 7 Oct 2023 Added to AutiHub: 7 Jul 2026 Type: Preprint Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)
  1. wn-ho Yoon *

Abstract

Poulsen et al. (2023) introduced the INSAR Community Collaborator Request (ICCR) website, which tries to encourage autism researchers to give opportunities to stakeholders to participate in their projects. However, I think the site could promote objectification by limiting initiatives from autistic people and researchers. Autistic Participatory research should be started from autistics, and barriers should be lifted.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
26
With a DOI
25
Without a DOI, from raw bibliography text
0
9 / 26 (34.6%) cited references include at least one author identified as autistic.
References with data to complete
0 / 26 (0.0%)
References with detected author names
26 / 26 (100.0%)
Without detected author names
0
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
82
From DOI or external metadata
82
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
63 / 82 (76.8%) names are linked to an author already present in AutiHub. 19 / 82 (23.2%) names are not yet linked.
Names linked to a person identified as autistic
50 / 82 (61.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 50 / 63 (79.4%). Distinct people identified as autistic: 46 / 78 (59.0%).
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    Type: Article DOI: 10.1111/j.1099-0860.2009.00228.x OpenAlex: https://openalex.org/W1541204481
    OpenAlex
  2. Erin Stack , Katherine McDonald (2014). Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up? Journal of Policy and Practice in Intellectual Disabilities, 11(2), 83-91. Wiley.
    Type: Article DOI: 10.1111/jppi.12074 OpenAlex: https://openalex.org/W1558824088
    OpenAlex
  3. Yoon-Suk Hwang (2014). ‘Miss mum’: mind and affective experience of Korean learners identified with autism spectrum and cognitive difficulties . Disability & Society, 29(10), 1583-1600. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2014.958434 OpenAlex: https://openalex.org/W2028968011
    OpenAlex
  4. Elizabeth Fein (2015). Making Meaningful Worlds: Role-Playing Subcultures and the Autism Spectrum . Culture, Medicine, and Psychiatry, 39(2), 299-321. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11013-015-9443-x OpenAlex: https://openalex.org/W2033693934
    OpenAlex
  5. Catrin Misselhorn (2009). Empathy with Inanimate Objects and the Uncanny Valley . Minds and Machines, 19(3), 345-359. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11023-009-9158-2 OpenAlex: https://openalex.org/W2035128922
    OpenAlex
  6. Shinichiro Kumagaya (2015). Tojisha-Kenkyu of autism spectrum disorders . Advanced Robotics, 29(1), 25-34. Informa UK Limited.
    Type: Article DOI: 10.1080/01691864.2014.967723 OpenAlex: https://openalex.org/W2043070730
    OpenAlex
  7. Kohei Kato , Hiroshi Fujino , Takeshi Itoi , Syusuke Yoneda (2012). Communication Support for Small Groups of Children with High Function Autism Spectrum Disorder: Effectiveness of a Table-talk Role Playing Game (TRPG) . コミュニケーション障害学, 29(1), 9-17.
    Type: Article OpenAlex: https://openalex.org/W2792991990
    OpenAlex
  10. Connor Tom Keating (2021). Participatory Autism Research: How Consultation Benefits Everyone . Frontiers in Psychology, 12, 713982. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.713982 OpenAlex: https://openalex.org/W3193937630
    OpenAlex
  12. MARTHA C. NUSSBAUM (1995). Objectification . Philosophy & Public Affairs, 24(4), 249-291. Wiley.
    Type: Article DOI: 10.1111/j.1088-4963.1995.tb00032.x OpenAlex: https://openalex.org/W4246169745
    OpenAlex
  14. Alice Leyman (2022). Use of digital platforms by autistic children and young people for creative dress-up play (cosplay) to facilitate and support social interaction . Digital Geography and Society, 3, 100039. Elsevier BV.
    Type: Article DOI: 10.1016/j.diggeo.2022.100039 OpenAlex: https://openalex.org/W4283751105
    OpenAlex
  16. Alison Singer , Amy Lutz , Jill Escher , Alycia Halladay (2023). A full semantic toolbox is essential for autism research and practice to thrive . Autism Research, 16(3), 497-501. Wiley.
    Type: Article DOI: 10.1002/aur.2876 OpenAlex: https://openalex.org/W4311202441
    OpenAlex
  17. Maxence Gaillard (2022). Tōjisha Research and Narrative Medicine: Contribution of a Japanese Experiment in the Investigation of Patients’ Personal Experience . The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine, 47(6), 749-760. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/jmp/jhac025 OpenAlex: https://openalex.org/W4312180683
    OpenAlex
  19. Brady Huggett (2023). Autism research at the crossroads . Spectrum. Simons Foundation.
    Type: Article DOI: 10.53053/tcfy1384 OpenAlex: https://openalex.org/W4319838051
    OpenAlex
  20. Emmet Fraizer (2023). Neurodiversity conference aims to link research, lived experience . Spectrum. Simons Foundation.
    Type: Article DOI: 10.53053/oxlz5425 OpenAlex: https://openalex.org/W4321796683
    OpenAlex
  21. Emiliano Rodríguez Mega (2023). ‘I am not a broken version of normal’ — autistic people argue for a stronger voice in research . Nature, 617(7960), 238-241. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/d41586-023-01549-1 OpenAlex: https://openalex.org/W4376114516
    OpenAlex
  24. Elaine B. Clarke , Catherine Lord (2024). Social competence as a predictor of adult outcomes in autism spectrum disorder . Development and Psychopathology, 36(3), 1442-1457. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0954579423000664 OpenAlex: https://openalex.org/W4382502144
    OpenAlex