Being, Knowing, and Doing: Importing Theoretical Toolboxes for Autism Studies

This publication is included in the Autistic Autism Scholarship Project. five authors of this publication are identified as autistic in the project.

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Bertilsdotter Rosqvist, H., Botha, M., Hens, K., O’Donoghue, S., Pearson, A., & Stenning, A. (2023). Being, Knowing, and Doing: Importing Theoretical Toolboxes for Autism Studies. Autism in Adulthood, 5(1), 15-23. https://doi.org/10.1089/aut.2022.0021

Journal or book title
Autism in Adulthood
Publisher
SAGE Publications
Volume
5
Issue
1
Pages
15-23
Publication date: 1 Mar 2023 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
5 / 6 (83.3%)
  1. Hannah Bertilsdotter Rosqvist *
  2. Monique Botha *
  3. Kristien Hens
  1. Sarinah O’Donoghue *
  2. Amy Pearson *
  3. Anna Stenning *

Abstract

The aim of this article was to think with and elaborate on theories developed outside of autism research and the autistic community, and through this support the production of new autistic-led theories: theories and concepts based on autistic people's own embodied experiences and the social worlds we inhabit. The article consists of three different sections all of part of the overall umbrella, Being, knowing, and doing: Importing theoretical toolboxes for autism studies. In each section, we import useful concepts from elsewhere and tailor them to autism studies. Throughout, we mingle our own autoethnographic accounts and shared discourse in relation to research accounts and theories. Illustrating being, we explore and discuss the possibilities of critical realism in autism studies. Illustrating knowing, we explore and discuss the possibilities of standpoint theory in autism studies. Finally, illustrating doing, we explore and discuss the possibilities of neurocosmopolitics including epistemic (in)justice in autism studies. Our proposal here is for an epistemic shift toward neurodiverse collaboration. We are inviting nonautistic people to work with, not on, us, aiming at to make autism research more ethical, breaking down bureaucratic structures, and questioning poor theory and shoddy methodology. Acknowledging intersecting axes of oppression in which an individual seeks to renegotiate and reimagine what it means to belong also means to understand what needs changing in society, as it is and how we might do things differently.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 11:54.

Cited references
46
With a DOI
24
Without a DOI, from raw bibliography text
22
15 / 46 (32.6%) cited references include at least one author identified as autistic.
References with data to complete
17 / 46 (37.0%)
References with detected author names
33 / 46 (71.7%)
Without detected author names
13
Without a structured title
17
Without a stable identifier
22
References with raw author names still to review
13
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
52
From DOI or external metadata
52
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
16
26 / 52 (50.0%) names are linked to an author already present in AutiHub. 26 / 52 (50.0%) names are not yet linked.
Names linked to a person identified as autistic
19 / 52 (36.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 19 / 26 (73.1%). Distinct people identified as autistic: 16 / 48 (33.3%).
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