Being, Knowing, and Doing: Importing Theoretical Toolboxes for Autism Studies

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Bertilsdotter Rosqvist, H., Botha, M., Hens, K., O’Donoghue, S., Pearson, A., & Stenning, A. (2023). Being, Knowing, and Doing: Importing Theoretical Toolboxes for Autism Studies. Autism in Adulthood, 5(1), 15-23. https://doi.org/10.1089/aut.2022.0021

Publication date: 1 Mar 2023 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
6
Publication authors identified as autistic
5 / 6 (83.3%)
  1. Hanna Bertilsdotter Rosqvist *
  2. Monique Botha *
  3. Kristien Hens
  1. Sarinah O’Donoghue *
  2. Amy Pearson *
  3. Anna Stenning *

Abstract

The aim of this article was to think with and elaborate on theories developed outside of autism research and the autistic community, and through this support the production of new autistic-led theories: theories and concepts based on autistic people's own embodied experiences and the social worlds we inhabit. The article consists of three different sections all of part of the overall umbrella, Being, knowing, and doing: Importing theoretical toolboxes for autism studies. In each section, we import useful concepts from elsewhere and tailor them to autism studies. Throughout, we mingle our own autoethnographic accounts and shared discourse in relation to research accounts and theories. Illustrating being, we explore and discuss the possibilities of critical realism in autism studies. Illustrating knowing, we explore and discuss the possibilities of standpoint theory in autism studies. Finally, illustrating doing, we explore and discuss the possibilities of neurocosmopolitics including epistemic (in)justice in autism studies. Our proposal here is for an epistemic shift toward neurodiverse collaboration. We are inviting nonautistic people to work with, not on, us, aiming at to make autism research more ethical, breaking down bureaucratic structures, and questioning poor theory and shoddy methodology. Acknowledging intersecting axes of oppression in which an individual seeks to renegotiate and reimagine what it means to belong also means to understand what needs changing in society, as it is and how we might do things differently.

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
46
Total cited references integrated for this publication.
Cited references with an identified autistic author
13 / 46 (28.3%)
Cited author occurrences identified as autistic
17 / 52 (32.7%)
Among occurrences linked to AutiHub author records: 17 / 23 (73.9%). Distinct cited authors identified as autistic: 14 / 49 (28.6%).
Cited author occurrences linked to AutiHub author records
23 / 52 (44.2%)
Distinct linked cited authors: 20 / 49 (40.8%)
Linked cited-author occurrences not identified as autistic
6 / 23 (26.1%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 6 / 52 (11.5%). Distinct linked cited authors not identified as autistic: 6 / 20 (30.0%).
  2. (n.d.). Murray F. Me and Monotropism: A unified theory of Autism. Psychologist. 2019:44–49. https://www.bps.org.uk/psychologist/me-and-monotropism-unified-theory-autism Accessed August6 2022.
    Type: Other
    Crossref
  3. Francesca Happé , Uta Frith (2020). Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research . Journal of Child Psychology and Psychiatry, 61(3), 218-232. Wiley.
    Type: Article DOI: 10.1111/jcpp.13176 OpenAlex: https://openalex.org/W3003423347
    Crossref OpenAlex
  4. Nick Walker * , Dora M Raymaker * (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.29014.njw OpenAlex: https://openalex.org/W3106097568
    Crossref OpenAlex
  5. Jim Sinclair * (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
    Type: Article DOI: 10.18061/dsq.v30i1.1075 OpenAlex: https://openalex.org/W1565875767
    AutiHub · Autistic Scholars Crossref
  7. Milton DEM. (n.d.). Milton DEM. On the ontological status of autism: The ‘double empathy problem.’ Disabil Soc. 2012;27(6):883–887. Disabil Soc.
    Type: Other
    Crossref
  8. Cos Michael (2021). Is Being Othered a Co-Occurring Condition of Autism? Autism in Adulthood, 3(2), 118-119. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0019 OpenAlex: https://openalex.org/W3153775139
    OpenAlex
  9. (n.d.). McDonnell A Milton D. Going with the flow: Reconsidering ‘repetitive behaviour’ through the concept of “flow states.” 2014. https://kar.kent.ac.uk/62647 Accessed June29 2022
    Type: Other
    Crossref
  11. Uta Frith (2021). When diagnosis hampers research . Autism Research, 14(10), 2235-2236. Wiley.
    Type: Article DOI: 10.1002/aur.2578 OpenAlex: https://openalex.org/W3179407619
    Crossref OpenAlex
  12. Pearson A (2020). Pearson A,, Rose K. A conceptual analysis of autistic masking: Understanding the narrative of stigma and the illusion of choice. Autism Adulthood. 2020. [Epub ahead of print]; doi: 10. 31219/osf.io/6rwa5. Autism Adulthood.
    Type: Other
    Crossref
  16. Bertilsdotter Rosqvist H (n.d.). Neurodiversity Studies. A New Critical Paradigm . Neurodiversity Studies. A New Critical Paradigm.
    Type: Other
    Crossref
  18. Becky Francis , Valerie Hey (2009). Talking back to power: snowballs in hell and the imperative of insisting on structural explanations . Gender and Education, 21(2), 225-232. Informa UK Limited.
    Type: Article DOI: 10.1080/09540250802680081 OpenAlex: https://openalex.org/W2136485746
    Crossref
  19. Roy Bhaskar (2013). A Realist Theory of Science . Routledge.
    Type: Book DOI: 10.4324/9780203090732 OpenAlex: https://openalex.org/W2101234667
    Crossref
  20. (n.d.). Collier A. Critical realism: an introduction to Roy Bhaskar's philosophy. 1994. https://philpapers.org/rec/COLCRA Accessed June29 2022.
    Type: Other
    Crossref
  21. Muzammil Quraishi , Lamia Irfan , Mallory Schneuwly Purdie , Matthew L. N. Wilkinson (2022). Doing ‘judgemental rationality’ in empirical research: the importance of depth-reflexivity when researching in prison . Journal of Critical Realism, 21(1), 25-45. Informa UK Limited.
    Type: Article DOI: 10.1080/14767430.2021.1992735 OpenAlex: https://openalex.org/W3212917106
    Crossref
  22. Monique Botha * (n.d.). Botha M. Critical realism, community psychology, and the curious case of autism: A philosophy and practice of science with social justice in mind. J Community Psychol. 2021. [Epub ahead of print]; doi: 10. 1002/jcop. 22764. J Community Psychol.
    Type: Other
    Crossref
  23. Alyssa Hillary Zisk * (2020). Neurodiversity and cross-cultural communication . In Neurodiversity Studies (pp. 91-107). Routledge.
    Type: Book chapter DOI: 10.4324/9780429322297-10 OpenAlex: https://openalex.org/W3033347251
    Crossref
  27. Chapman R (2022). Neurodiversity, epistemic injustice, and the good human life . J Soc Philos, 1.
    Type: Other
    Crossref
  28. Arendt H. (1992). Lecture's on Kant's Political Philosophy . Lecture's on Kant's Political Philosophy.
    Type: Other
    Crossref
  30. Friedrich Schleiermacher (1998). Friedrich Schleiermacher Hermeneutics and Criticism . Cambridge University Press.
    Type: Book DOI: 10.1017/cbo9780511814945 OpenAlex: https://openalex.org/W4246393370
    Crossref
  32. Mitzi Waltz (2020). The production of the ‘normal’ child . In Neurodiversity Studies (pp. 15-26). Routledge.
    Type: Book chapter DOI: 10.4324/9780429322297-3 OpenAlex: https://openalex.org/W3032985992
    Crossref
  34. Sarah Lonbay , Amy Pearson * , Emma Hamilton , Pat Higgins , Emma Foulkes , Michelle Glascott (2021). Trauma informed participatory research: Reflections on co-producing a research proposal . Gateways: International Journal of Community Research and Engagement, 14(1), 1. University of Technology, Sydney (UTS).
    Type: Article DOI: 10.5130/ijcre.v14i1.7728 OpenAlex: https://openalex.org/W3182814370
    Crossref
  35. Michael C (2021). Michael C. Is being othered a co-occurring condition of autism? Autism Adulthood. 2021. [Epub ahead of print]; doi: 10. 1089/aut. 2021. 0019. Autism Adulthood.
    Type: Other
    Crossref
  36. (n.d.). Botha M. Autistic agency: Acknowledging room for resistance and dissent in the face of trauma and normativity in autism research. In: Interdisciplinary Autism Research Festival. 2021.
    Type: Other
    Crossref
  37. (n.d.). Pearson A. Rehumanising the study of humans. In: Interdisciplinary Autism Research Festival. 2021.
    Type: Other
    Crossref
  38. Ralph James Savarese (2018). See It Feelingly . Duke University Press.
    Type: Book DOI: 10.1215/9781478002734 OpenAlex: https://openalex.org/W4251393551
    Crossref
  39. Stengers I (2005). Making Things Public . Making Things Public, 994.
    Type: Other
    Crossref
  40. Miranda Fricker (2007). Testimonial Injustice . In Epistemic Injustice (pp. 9-29). Oxford University PressOxford.
    Type: Book chapter DOI: 10.1093/acprof:oso/9780198237907.003.0002 OpenAlex: https://openalex.org/W4252729086
    Crossref
  41. (n.d.). Lucas SD. The primacy of narrative agency: A feminist theory of the self. PhD thesis 2016.
    Type: Other
    Crossref
  42. Ian Hacking (2010). Autism Fiction: A Mirror of an Internet Decade? University of Toronto Quarterly, 79(2), 632-655. University of Toronto Press Inc. (UTPress).
    Type: Article DOI: 10.3138/utq.79.2.632 OpenAlex: https://openalex.org/W4238488322
    Crossref
  43. Melanie Yergeau * , Bryce Huebner (2017). Minding Theory of Mind . Journal of Social Philosophy, 48(3), 273-296. Wiley.
    Type: Article DOI: 10.1111/josp.12191 OpenAlex: https://openalex.org/W2753615013
    Crossref
  44. Hazel R. Markus , Shinobu Kitayama (1991). Culture and the self: Implications for cognition, emotion, and motivation. Psychological Review, 98(2), 224-253. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0033-295x.98.2.224 OpenAlex: https://openalex.org/W2097780989
    Crossref
  45. (n.d.). Williams D. Nobody Nowhere: The Remarkable Autobiography of an Autistic Girl. 2009. https://books.google.co.uk/books?hl=en&lr=&id=MD4pDgAAQBAJ&oi=fnd&pg=PA2&dq=Williams+D.+Nobody+Nowhere.+New+York:+Doubleday%3B+1992.+&ots=e0UV8lWGwj&sig=HXGXG1dg_U4cYIvyry74f8yLuOo Accessed June29 2022.
    Type: Other
    Crossref
  46. Miedzianek D. (1986). My Autobiography . My Autobiography.
    Type: Other
    Crossref