Autistic Autism Scholarship Project

The Autistic Autism Scholarship Project is an international collaborative project that provides a public, freely accessible database of academic publications on autism authored or co-authored by at least one autistic person.

The project aims to make autistic people’s contributions to knowledge about autism more visible, accessible and researchable. It provides structured ways to explore authors and co-authors, publications, bibliographic metadata, cited references and collaboration networks.

Bibliographic records are imported from scholarly metadata services and then progressively checked, completed or corrected. Because author attribution in large bibliographic databases can be ambiguous, AutiHub uses additional safeguards such as ORCID identifiers, DOI metadata, Crossref and DataCite records, co-authorship patterns, Semantic Scholar author identifiers and manual review when needed.

The project also examines cited bibliographies when metadata are available, making it possible to reconstruct references, identify cited authors, and produce statistics about the visibility of autistic researchers in the references used by autism-related publications.

Autistic Autism Scholarship Project is supported by a community that helps correct, discuss and progressively improve the information it provides.

The project does not aim to assess or endorse the quality, validity, theoretical orientation or social implications of the works it includes.

From the word autism

Project co-maintainers

Displayed alphabetically by name.

Alyssa Hillary Zisk Co-maintainer United States AutiHub author page
Anick Bergeron Co-maintainer Canada https://autistes.zone/
Cédric Detienne Project initiator and co-maintainer Belgium
Panda Mery Co-maintainer South Korea https://gizmonaut.net/

Overview

Autistic people recorded as authors or co-authors

453

View autistic authors and co-authors

Scientific publications included in the project

2073

including 1575 peer-reviewed journal publications

View all publications

Dynamic cited bibliographies available

1636

View publications with bibliography

Publications by year

2000: 4 publications
2002: 1 publications
2003: 2 publications
2004: 2 publications
2005: 3 publications
2006: 8 publications
2007: 7 publications
2008: 6 publications
2009: 9 publications
2010: 10 publications
2011: 17 publications
2012: 22 publications
2013: 24 publications
2014: 23 publications
2015: 35 publications
2016: 32 publications
2017: 46 publications
2018: 55 publications
2019: 112 publications
2020: 132 publications
2021: 192 publications
2022: 179 publications
2023: 235 publications
2024: 293 publications
2025: 338 publications
2026: 286 publications

Recently added autistic authors and co-authors

Latest publications added

Emily Simonoff, Gillian Baird, Bryony Beresford, Tony Charman, Martin Knapp, Andrew Pickles, Carol Povey, Tom Purser*Autistic author. Learn more… , Paramala Santosh, Vicky Slonims, Stephen Scott (2025). Improving outcomes for people with autism spectrum disorders by reducing mental health problems: the IAMHealth research programme including one RCT. Programme Grants for Applied Research, 1-58.

Publication date: 1 May 2025 Added to AutiHub: 9 Sep 2026 Type: Article Language: English

Kristen Bottema-Beutel, Ruoxi Guo, Caroline Braun*Autistic author. Learn more… , Kacie Dunham-Carr, Jennifer E. Markfeld, Grace Pulliam, S. Madison Clark, Bahar Keçeli-Kaysılı, Jacob I. Feldman, Tiffany Woynaroski (2024). Considerations for Measuring Caregiver Talk in Interactions With Infants at Elevated and Population-Level Likelihood for Autism: Deriving Stable Estimates. Journal of Speech, Language, and Hearing Research, 68(1), 234-247.

Publication date: 16 Dec 2024 Added to AutiHub: 9 Sep 2026 Type: Article Language: English

Drina Agojci, Jennifer E. Markfeld, Kristen Bottema-Beutel, Ruoxi Guo, Caroline Braun*Autistic author. Learn more… , Shannon Crowley LaPoint, So Yoon Kim, Grace Pulliam, S. Madison Clark, Bahar Keçeli-Kaysılı, Jacob I. Feldman, Tiffany Woynaroski (2026). Links between Caregiver–Child Engagement and Later Language in Toddlers with Autistic and Non-Autistic Older Siblings. Center for Open Science.

Publication date: 12 Jun 2026 Added to AutiHub: 9 Sep 2026 Type: Preprint Language: English

Julie A. Donnelly, Jean-Paul Bovee*Autistic author. Learn more… , Sylvia Jane Donnelly, Lisa Kathleen Donnelly, Joad Roy Donnelly, Michael Fain Donnelly, Alice Stephens Walter, Molly Ray Callaghan (2000). A Family Account of Autism. Focus on Autism and Other Developmental Disabilities, 15(4), 196-201.

Publication date: 1 Nov 2000 Added to AutiHub: 9 Sep 2026 Type: Article Language: English

Caroline Jose, Patricia George-Zwicker, Louise Tardif, Aaron Bouma*Autistic author. Learn more… , Darlene Pugsley, Luke Pugsley, Mathieu Bélanger, Jeffrey Gaudet, Marc Robichaud (2020). “We are the stakeholders with the most at stake”: scientific and autism community co-researchers reflect on their collaborative experience in the CONNECT project. Research Involvement and Engagement, 6(1), 58-58.

Publication date: 27 Sep 2020 Added to AutiHub: 9 Sep 2026 Type: Article Language: English

Caroline Jose, Patricia George-Zwicker, Aaron Bouma*Autistic author. Learn more… , Louise Tardif, Darlene Pugsley, Mathieu Bélanger, Marc Robichaud, Jeffrey Gaudet (2021). The Associations Between Clinical, Social, Financial Factors and Unmet Needs of Autistic Adults: Results from an Observational Study. Autism in Adulthood, 3(3), 266-274.

Publication date: 1 Mar 2021 Added to AutiHub: 9 Sep 2026 Type: Article Language: English

Jonathan A. Weiss, Paula Tablon Modica, Caitlyn Gallant, Flora Roudbarani, Courtney Weaver, Aaron Bouma*Autistic author. Learn more… , Lianne Goldsmith, Jonathan Leef, Yona Lunsky (2025). Co-creating a Canadian autism mental health literacy resource: a qualitative analysis of advisory perspectives. Health Research Policy and Systems, 23(1), 140-140.

Publication date: 23 Oct 2025 Added to AutiHub: 9 Sep 2026 Type: Article Language: English

Suggested citation for the Autistic Autism Scholarship Project (APA 7th edition)

Open Zenodo record

Detienne, C., Zisk, A. H., Mery, P., & Bergeron, A. (2026). Autistic Autism Scholarship Project (AASP): A Public Bibliographic Resource on Autism-Related Scholarship by Autistic Authors. Zenodo. https://doi.org/10.5281/zenodo.22179522