‘Though the earth gives way’: An autoethnographic account of autistic grief

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Ceney, E. (2023). ‘Though the earth gives way’: An autoethnographic account of autistic grief. Theology in Scotland, 30(1), 38-46. https://doi.org/10.15664/tis.v30i1.2577

Publication date: 18 May 2023 Added to AutiHub: 26 Oct 2026 Type: Article Article language: English

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Abstract

Through an autoethnographic account of my mother’s death, I reveal how grief and the desolation it brings the autistic person is vastly different to neurotypical models of grief (such as the Kübler-Ross model) determining when, where and how I was permitted to feel my emotions. Grief takes those with autism spectrum disorder (ASD) a greater amount of time to work through, often resulting in periods of meltdown and shutdown (heightened anger and fear) as well as an unawareness of the emotion they are feeling. However, I will also show how parental death can also be transformative, providing a powerful reason to persevere.

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