Prise en compte de l'intersectionnalite dans le contexte des services affirmant la neurodiversite pour les personnes autistes noires

Titre original en anglais : Consideration of Intersectionality in the Context of Neurodiversity-Affirming Services for Black Autistic People

Coles‐White, D., Abubakare, O., Alexander, S. H., & Fannin, D. K. (2025). Consideration of Intersectionality in the Context of Neurodiversity-Affirming Services for Black Autistic People. Perspectives of the ASHA Special Interest Groups, 10(3), 655-663. https://doi.org/10.1044/2024_persp-24-00172

Date de publication: 05/03/2025 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)

Résumé

Objectif : La pratique affirmant la neurodiversite est une approche plus inclusive et respectueuse du soutien aux personnes autistes. En valorisant la neurodiversite, les cliniciens peuvent proposer des interventions plus personnalisees, mais l'intersectionnalite doit etre prise en compte. Etant donne que le mouvement de la neurodiversite peut se caracteriser par l'accommodation de la personne neurodivergente individuelle, par opposition aux tentatives traditionnelles visant a contraindre les personnes neurodivergentes a se conformer aux normes et aux manieres neurotypiques, cela peut ne pas toujours concorder avec des cultures plus collectivistes. Ce point de vue, du point de vue d'un chercheur noir autiste en psychologie sociale, de deux orthophonistes noires qui sont aidantes de personnes autistes, et d'un chercheur noir en psychologie scolaire, est concu pour susciter une discussion sur les situations ou les soins affirmant la neurodiversite pourraient necessiter une adaptation culturelle. Conclusion : La prise en compte de l'intersectionnalite lors de la mise en oeuvre des services peut servir de repere sur la voie de soins qui affirment a la fois la neurodiversite et la culture.

Purpose: Neurodiversity-affirming practice is a more inclusive and respectful approach to support for autistic people. By valuing neurodiversity, clinicians can provide more personalized interventions, yet intersectionality needs to be considered. As the neurodiversity movement can be characterized by accommodation of the individual neurodivergent person, as opposed to traditional attempts to force neurodivergent people to adhere to neurotypical standards and ways, this may not always coincide with more collectivist cultures. This viewpoint, from the perspective of a Black autistic social psychology researcher, two Black speech-language pathologists who are caregivers of autistics, and a Black school psychology researcher, is designed to prompt discussion of times when neurodiversity-affirming care might need cultural adjustment. Conclusion: Consideration of intersectionality when implementing services can serve as a guidepost on the path toward care that is both neurodiversity and culturally affirming.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
63
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
4 / 63 (6,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
11 / 329 (3,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 11 / 54 (20,4 %). Auteurices cité·es distinct·es identifié·es comme autistes : 10 / 278 (3,6 %).
Occurrences citées rattachées à la base AutiHub
54 / 329 (16,4 %)
Auteurices cité·es distinct·es rattaché·es : 43 / 278 (15,5 %)
Occurrences rattachées, non identifiées comme autistes
43 / 54 (79,6 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 43 / 329 (13,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 33 / 43 (76,7 %).
  1. Paul Heilker (2012). Autism, Rhetoric, and Whiteness . Disability Studies Quarterly, 32(4). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  2. Oluwatobi Abubakare *Auteur·ice autiste. En savoir plus… (2022). An Unexpected Autistic . Autism in Adulthood, 4(4), 268-270. SAGE Publications.
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  3. Danai Kasambira Fannin , Ed-Dee Williams , Marcus Fuller , Jamie N. Pearson , Brian A. Boyd , Elizabeth R. Drame et al. (2024). Unpacking the prevalence: A warning against overstating the recently narrowed gap for Black autistic youth . Autism Research, 17(6), 1072-1082. Wiley.
    Type: Article DOI: 10.1002/aur.3168 OpenAlex: https://openalex.org/W4399084463
    Crossref OpenAlex OpenCitations
  4. David S. Mandell , Lisa D. Wiggins , Laura Arnstein Carpenter , Julie Daniels , Carolyn DiGuiseppi , Maureen S. Durkin et al. (2009). Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders . American Journal of Public Health, 99(3), 493-498. American Public Health Association.
    Crossref OpenAlex OpenCitations
  5. Kristy A. Anderson , Anne M. Roux , Hillary Steinberg , Tamara Garfield , Jessica E. Rast , Paul Shattuck et al. (2022). The Intersection of National Autism Indicators Report: Autism, Health, Poverty and Racial Inequity . A.J. Drexel Autism Institute.
    Crossref OpenAlex OpenCitations
  6. David S. Mandell , JOHN LISTERUD , SUSAN E. LEVY , JENNIFER A. PINTO-MARTIN (2002). Race Differences in the Age at Diagnosis Among Medicaid-Eligible Children With Autism . Journal of the American Academy of Child & Adolescent Psychiatry, 41(12), 1447-1453. Elsevier BV.
    Crossref OpenAlex OpenCitations
  7. David S. Mandell , Maytali M. Novak , Cynthia D. Zubritsky (2005). Factors Associated With Age of Diagnosis Among Children With Autism Spectrum Disorders . Pediatrics, 116(6), 1480-1486. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  8. Rose LeFevre-Levy , Arturia Melson-Silimon , Rebecca Harmata , Anna L. Hulett , Nathan T. Carter (2023). Neurodiversity in the workplace: Considering neuroatypicality as a form of diversity . Industrial and Organizational Psychology, 16(1), 1-19. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  9. Inger Marie Lid (2014). Universal Design and disability: an interdisciplinary perspective . Disability and Rehabilitation, 36(16), 1344-1349. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  10. Randolph T. Brooks , Reginald Hopkins (2017). Cultural Mistrust and Health Care Utilization: The Effects of a Culturally Responsive Cognitive Intervention . Journal of Black Studies, 48(8), 816-834. SAGE Publications.
    Crossref OpenAlex OpenCitations
  11. Teresa Girolamo , Samantha Ghali , Inge‐Marie Eigsti (2023). A Community-Based Approach to Longitudinal Language Research With Racially and Ethnically Minoritized Autistic Young Adults: Lessons Learned and New Directions . American Journal of Speech-Language Pathology, 32(3), 977-988. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  12. Brown, Lydia X. Z. (2017). All the Weight of Our Dreams on Living Racialized Autism . All the weight of our dreams: On living racialized autism.
    Type: Article OpenAlex: https://openalex.org/W6989141783
    Crossref OpenAlex
  13. Geert Hofstede (2011). Dimensionalizing Cultures: The Hofstede Model in Context . Online Readings in Psychology and Culture, 2(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
    Crossref OpenAlex OpenCitations
  14. Megan Cherewick , Michael Matergia (2024). Neurodiversity in Practice: a Conceptual Model of Autistic Strengths and Potential Mechanisms of Change to Support Positive Mental Health and Wellbeing in Autistic Children and Adolescents . Advances in Neurodevelopmental Disorders, 8(3), 408-422. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Jennifer S. Singh (2023). Intersectional analysis of autism service inequities: Narratives of Black single female caregivers . SSM - Qualitative Research in Health, 3, 100234. Elsevier BV.
    Crossref OpenAlex OpenCitations
  16. Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510. American Medical Association (AMA).
    AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
  17. Lynn Clouder , Mehmet Karakus , Alessia Cinotti , María Virginia Ferreyra , Genoveva Amador Fierros , Patricia Rojo (2020). Neurodiversity in higher education: a narrative synthesis . Higher Education, 80(4), 757-778. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  18. Eunsoo Timothy Kim , Lauren Franz , Danai Kasambira Fannin , Jill Howard , Gary Maslow (2021). Educational classifications of autism spectrum disorder and intellectual disability among school‐aged children in North Carolina: Associations with race, rurality, and resource availability . Autism Research, 14(5), 1046-1060. Wiley.
    Type: Article DOI: 10.1002/aur.2492 OpenAlex: https://openalex.org/W3134935379
    Crossref OpenAlex OpenCitations
  19. Michael J. Morrier , Peggy A. Gallagher (2012). Racial Disparities in Preschool Special Education Eligibility for Five Southern States . The Journal of Special Education, 46(3), 152-169. SAGE Publications.
    Crossref OpenAlex OpenCitations
  20. John N. Constantino , Anna M. Abbacchi , Celine A. Saulnier , Cheryl Klaiman , David S. Mandell , Yi Zhang et al. (2020). Timing of the Diagnosis of Autism in African American Children . Pediatrics, 146(3), e20193629. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  21. Sarah M. Furnier , Ronald Gangnon , Julie L. Daniels , Susan Ellis Weismer , Cy Nadler , Karen Pazol et al. (2024). Racial and ethnic disparities in the co‐occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning . Autism Research, 17(3), 650-667. Wiley.
    Type: Article DOI: 10.1002/aur.3107 OpenAlex: https://openalex.org/W4392238933
    Crossref OpenAlex OpenCitations
  22. Katharine E. Zuckerman , Kimber M. Mattox , Brianna K. Sinche , Gregory S. Blaschke , Christina Bethell (2014). Racial, Ethnic, and Language Disparities in Early Childhood Developmental/Behavioral Evaluations . Clinical Pediatrics, 53(7), 619-631. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Pablo Contreras Kallens , Morten H. Christiansen (2022). Models of Language and Multiword Expressions . Frontiers in Artificial Intelligence, 5, 781962-781962. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  24. Lillian Polanco-Roman , Ashley Danies , Deidre M. Anglin (2016). Racial discrimination as race-based trauma, coping strategies, and dissociative symptoms among emerging adults. Psychological Trauma: Theory, Research, Practice, and Policy, 8(5), 609-617. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  25. Crenshaw K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics . University of Chicago Legal Forum, 1989(1).
    Type: Autre
    Crossref
  26. Michelle Menezes , Jessica Pappagianopoulos , Robert Cross , Micah Mazurek (2024). Relations among Screen Time and Commonly Co-occurring Conditions in Autistic Youth . Journal of Developmental and Physical Disabilities, 36(3), 409-421. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  27. Adolfo G. Cuevas , Kerth O’Brien , Somnath Saha (2017). What is the key to culturally competent care: Reducing bias or cultural tailoring? Psychology & Health, 32(4), 493-507. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  28. Anja Stiller , Jan Weber , Finja Strube , Thomas Mößle (2019). Caregiver Reports of Screen Time Use of Children with Autism Spectrum Disorder: A Qualitative Study . Behavioral Sciences, 9(5), 56. MDPI AG.
    Crossref OpenAlex OpenCitations
  29. Amber Davis , Marjorie Solomon , Harolyn Belcher (2022). Examination of Race and Autism Intersectionality Among African American/Black Young Adults . Autism in Adulthood, 4(4), 306-314. SAGE Publications.
    Crossref OpenAlex OpenCitations
  30. Mariama Seray Kandeh , Mariama Korrca Kandeh , Nicola Martin , Joanna Krupa (2020). Autism in black, Asian and minority ethnic communities: a report on the first Autism Voice UK Symposium . Advances in Autism, 6(2), 165-175. Emerald.
    Crossref OpenAlex OpenCitations
  31. Wendy E. Shaia , Helen M. Nichols , Sarah Dababnah , Karen Campion , Nicole Garbarino (2020). Brief Report: Participation of Black and African-American Families in Autism Research . Journal of Autism and Developmental Disorders, 50(5), 1841-1846. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  32. Maire Claire Diemer , Emily D Gerstein , April Regester (2022). Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities . Autism, 26(8), 1931-1946. SAGE Publications.
    Crossref OpenAlex OpenCitations
  33. Lillian Thompson Brown , Danai Kasambira Fannin , Ann Lamptey , Thelma E. Uzonyi , Jamie N. Pearson (2026). Black Caregiver Perspectives During a Developmental Diagnostic Interview . Journal of Autism and Developmental Disorders, 56(3), 916-932. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  34. Anila M. D'Mello , Isabelle R. Frosch , Cindy E. Li , Annie L. Cardinaux , John D.E. Gabrieli (2022). Exclusion of females in autism research: Empirical evidence for a “leaky” recruitment‐to‐research pipeline . Autism Research, 15(10), 1929-1940. Wiley.
    Type: Article DOI: 10.1002/aur.2795 OpenAlex: https://openalex.org/W4292601991
    Crossref OpenAlex OpenCitations
  35. Maria Trent , Danielle G. Dooley , Jacqueline Dougé , SECTION ON ADOLESCENT HEALTH , COUNCIL ON COMMUNITY PEDIATRICS , COMMITTEE ON ADOLESCENCE et al. (2019). The Impact of Racism on Child and Adolescent Health . Pediatrics, 144(2). American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  36. Temple S. Lovelace , Mary P. Comis , JoVonne M. Tabb , Olajumoke E. Oshokoya (2022). Missing from the Narrative: A Seven-Decade Scoping Review of the Inclusion of Black Autistic Women and Girls in Autism Research . Behavior Analysis in Practice, 15(4), 1093-1105. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  37. Éric Fombonne , Katharine E. Zuckerman (2022). Clinical Profiles of Black and White Children Referred for Autism Diagnosis . Journal of Autism and Developmental Disorders, 52(3), 1120-1130. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  38. Caroline Gaddy , Hillary Crow (2023). A Primer on Neurodiversity-Affirming Speech and Language Services for Autistic Individuals . Perspectives of the ASHA Special Interest Groups, 8(6), 1220-1237. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  39. Justin D. Garwood , Kelly M. Carrero (2023). Lifting the Voices of Black Students Labeled With Emotional Disturbance: Calling All Special Education Researchers . Behavioral Disorders, 48(2), 121-133. SAGE Publications.
    Crossref OpenAlex OpenCitations
  40. Hofstede Insights. (n.d.). Country comparison tool. http://www.hofstede-insights.com/country-comparison/
    Type: Autre
    Crossref
  41. Andy V. Pham , Lesline C. Charles (2023). Racial Disparities in Autism Diagnosis, Assessment, and Intervention among Minoritized Youth: Sociocultural Issues, Factors, and Context . Current Psychiatry Reports, 25(5), 201-211. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  42. Matthew J. Maenner , Kelly A. Shaw , Amanda V. Bakian , Deborah A. Bilder , Maureen S. Durkin , Amy Esler et al. (2021). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018 . MMWR. Surveillance Summaries, 70(11), 1-16. Centers for Disease Control MMWR Office.
    OpenAlex
  43. Nathan V. Mallipeddi , Rachel A. VanDaalen (2022). Intersectionality Within Critical Autism Studies: A Narrative Review . Autism in Adulthood, 4(4), 281-289. SAGE Publications.
    Crossref OpenAlex OpenCitations
  44. (s. d.). Imhoff J. (2020 June 3). Health inequality actually is a “Black and White issue” research says. https://www.michiganmedicine.org/health-lab/health-inequality-actually-blackand-white-issue-research-says
    Type: Autre
    Crossref
  45. Emily Laubscher , Allison Barwise , Janice Light (2022). Effect of Video Augmentative and Alternative Communication Technology on Communication During Play With Peers for Children With Autism Spectrum Disorder . Language, Speech, and Hearing Services in Schools, 53(4), 1101-1116. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  46. Ndidi I. Unaka , Ariel Winn , Adiaha Spinks-Franklin , Patricia Poitevien , Franklin Trimm , Brenda J. Nuncio Lujano et al. (2022). An Entrustable Professional Activity Addressing Racism and Pediatric Health Inequities . Pediatrics, 149(2). American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  47. Sarah Martin‐Denham (2022). Marginalisation, autism and school exclusion: caregivers' perspectives . Support for Learning, 37(1), 108-143. Wiley.
    Crossref OpenAlex OpenCitations
  48. Kasambira Fannin D. Minga J. Howard L. C. Artis J. Coles-White D. & Franz L. (2025). Contextual factors affecting autism identification of Black children in NC [Manuscript in preparation].
    Type: Autre
    Crossref
  49. Joseph L. Wright , Wendy S. Davis , Madeline M. Joseph , Angela M. Ellison , Nia J. Heard-Garris , Tiffani L. Johnson et al. (2022). Eliminating Race-Based Medicine . Pediatrics, 150(1). American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  50. Kimberle Crenshaw (2018). Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory, and Antiracist Politics . Dans Living with Contradictions (pp. 39-52). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9780429499142-5 OpenAlex: https://openalex.org/W4249292692
    OpenAlex
  51. Laura Tinner , Daniel Holman , Stephanie Ejegi-Memeh , Anthony A. Laverty (2023). Use of Intersectionality Theory in Interventional Health Research in High-Income Countries: A Scoping Review . International Journal of Environmental Research and Public Health, 20(14), 6370. MDPI AG.
    Crossref OpenAlex OpenCitations
  52. Bennett M. Liu , Kelley Paskov , Jack Kent , Maya McNealis , Soren Sutaria , Olivia Dods et al. (2023). Racial and Ethnic Disparities in Geographic Access to Autism Resources Across the US . JAMA Network Open, 6(1), e2251182. American Medical Association (AMA).
    Crossref OpenAlex OpenCitations
  53. Kayla M. Malone , Jamie N. Pearson , Kayla N. Palazzo , Lonnie D. Manns , Amelia Q. Rivera , DeVoshia L. Mason Martin (2022). The Scholarly Neglect of Black Autistic Adults in Autism Research . Autism in Adulthood, 4(4), 271-280. SAGE Publications.
    Crossref OpenAlex OpenCitations
  54. Matthew J. Maenner , Zachary Warren , Ashley Robinson Williams , Esther Amoakohene , Amanda V. Bakian , Deborah A. Bilder et al. (2023). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020 . MMWR. Surveillance Summaries, 72(2), 1-14. Centers for Disease Control MMWR Office.
    Crossref OpenAlex
  55. Dionisia Mavritsakis (2024). Augmentative and alternative communication in autism spectrum disorder: transitioning from letter board to iPad – a case study . Frontiers in Psychiatry, 15, 1345447-1345447. Frontiers Media SA.
    Crossref OpenAlex
  56. National Center for Learning Disabilities. (2022). IDEA full funding: Why should congress invest in special education? https://perma.cc/2XDN-3EHC
    Type: Autre
    Crossref
  57. ObeySumner C. (2018). Black autistics exist: An argument for intersectional disability justice . South Seattle Emerald.
    Type: Autre
    Crossref
  58. Kimberle Crenshaw (1998). Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory, and Antiracist Politics . Dans Feminism And Politics (pp. 314-343). Oxford University PressOxford.
    OpenAlex
  59. Harlee Onovbiona , Lauren Quetsch , Emily-Anne Del Rosario (2025). Exploring Factors of Diagnostic Timing Among Black Autistic Youth . Journal of Autism and Developmental Disorders, 55(4), 1438-1449. Springer Science and Business Media LLC.
    Crossref OpenAlex
  60. Singer J. (1999). Disability discourse . Disability Discourse, 56.
    Type: Autre
    Crossref