Essai pilote du programme Forming Love around Autistic People to Prevent Suicide

Titre original en anglais : Pilot Test of the Forming Love around Autistic People to Prevent Suicide Program

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». six auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Kirby, A. V., Siddeek, Z., Duncan-Ishcomer, B., Kripke-Ludwig, R., Joyce, A., Rodriguez, K., Lee, W., Murthi, K., Feldman, K., Atisme, A., Darlington, A., Wexler, L., & Nicolaidis, C. (2026). Pilot Test of the Forming Love around Autistic People to Prevent Suicide Program. Autism in Adulthood. https://doi.org/10.1177/25739581261486816

Date de publication: 09/09/2026 Ajout dans AutiHub: 11/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Source OpenAlex

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Auteurs

Auteur·ices des publications
13
Auteur·ices de la publication identifié·es comme autistes
6 / 13 (46,2 %)
  1. Anne V. Kirby
  2. Zack Siddeek *
  3. Bobbi Duncan-Ishcomer *
  4. Rachel Kripke-Ludwig *
  5. Andee Joyce *
  1. Kayla Rodriguez *
  2. Whitney Lee *
  3. Kavitha Murthi
  4. Kristina Feldman
  5. Alissa Atisme
  1. Amber Darlington
  2. Lisa Wexler
  3. Christina Nicolaidis

Résumé

Des proportions notables de personnes autistes connaissent des pensees et des actions suicidaires (c'est-a-dire une suicidalite). Nombre des influences identifiees sur la suicidalite chez les personnes autistes necessitent de larges changements dans les attitudes, les services et les soutiens societaux. Pourtant, la plupart des efforts de prevention du suicide se concentrent sur des interventions cliniques visant a modifier les personnes autistes elles-memes. Nous avons utilise une approche de recherche participative communautaire pour elaborer un programme novateur destine aux organisations communautaires axees sur l'autisme (ou pertinentes pour l'autisme). Le programme s'appelle Forming Love around Autistic people to Prevent Suicide (FLAPS). FLAPS est une intervention virtuelle en quatre parties d'education et de renforcement des capacites, axee sur le soutien aux organisations afin qu'elles integrent de vastes efforts de prevention du suicide chez les personnes autistes dans leurs travaux en cours. Nous avons teste ce nouveau programme dans le cadre d'un essai pilote a un seul bras. Une equipe de coanimateurs autistes et non autistes a dispense l'integralite du programme FLAPS a trois reprises a des groupes d'organisations. Cinquante et un participants, issus d'un total de 11 organisations, se sont inscrits au programme. Notre principal critere de resultat etait le questionnaire adapte Steps Toward Prevention-Autism Community Suicide Prevention, administre avant le programme, apres le programme et lors du suivi a 3 mois. Nous avons observe des augmentations significatives, avec des tailles d'effet moderees a elevees, des connaissances, de la capacite et des actions. La majorite des participants ayant fourni des retours (74 %) ont convenu que FLAPS les avait encourages a penser de nouvelles manieres, qu'il en valait la peine et que leur organisation pouvait utiliser les informations. Lors du suivi a 3 mois, plus de 75 % des repondants ont declare qu'ils utilisaient parfois ou frequemment des concepts du programme. Des travaux futurs sont necessaires pour evaluer davantage les resultats du programme, notamment pour determiner tout impact mesurable sur les personnes autistes servies au sein des organisations participantes. Resume destine a la communaute Pourquoi ce programme a-t-il ete developpe ? Nous savons que le risque de suicide est eleve dans la communaute autiste. Mais il n'existe pas beaucoup de recherches sur la maniere de changer cela. Certaines etudes se concentrent sur la tentative d'aider les personnes autistes qui se sentent deja suicidaires a gerer leurs sentiments. Ces etudes sont importantes, mais elles ne considerent qu'une partie du probleme. Certaines des choses qui amenent les personnes autistes a se sentir suicidaires sont hors de leur controle. Nous voulions voir si nous pouvions essayer d'aider davantage de personnes autistes et peut-etre meme reduire le risque avant qu'elles ne se sentent suicidaires. Nous avons donc centre notre programme sur les organisations oeuvrant dans le domaine de l'autisme. Nous esperions que si les organisations en apprenaient davantage et integraient la prevention du suicide dans leur travail, nous pourrions contribuer a prevenir le suicide chez les personnes autistes. Que fait le programme ? Notre equipe est un partenariat entre des chercheurs universitaires et des membres de la communaute autiste. Ensemble, nous avons developpe un programme appele Forming Love around Autistic people to Prevent Suicide (FLAPS). FLAPS est un programme en ligne de quatre seances destine aux organisations communautaires. Nous avons travaille avec les equipes des organisations pour les aider a en apprendre davantage sur la prevention du suicide pour la communaute autiste. Nous nous sommes concentres sur des elements tels que la maniere dont la societe peut mieux traiter les personnes autistes et favoriser leur bien-etre. Nous avons egalement parle des types de services et de soutiens qui peuvent aider les personnes autistes. Nous abordons les moyens d'aider lorsqu'une personne autiste se sent deja suicidaire. Nous les aidons a reunir toutes ces informations afin de decider de ce que leur organisation peut faire. Comment les chercheurs ont-ils evalue le nouveau programme ? Nous avons mis en oeuvre le programme FLAPS trois fois dans cette etude pilote. A chaque fois, quelques organisations differentes ont participe. Au total, 51 personnes se sont inscrites au programme. Avant et apres le programme, nous avons interroge les participants sur leurs connaissances, leur capacite (aptitude) et leurs actions liees a la prevention du suicide pour la communaute autiste. Nous avons egalement demande aux participants leurs retours. Quels ont ete les resultats de l'etude pilote ? Entre avant et apres le programme, nous avons observe des augmentations significatives des connaissances, de la capacite et des actions en matiere de prevention du suicide. La plupart des participants ayant fourni des retours ont indique que FLAPS les avait aides a penser de nouvelles manieres et que les informations seraient utiles. Ils nous ont egalement indique des elements precis qu'ils avaient apprecies et nous ont donne des suggestions pour l'avenir. Quelles etaient les faiblesses de ce projet ? Il ne s'agissait que d'une etude pilote. Nous ne pouvons pas affirmer avec certitude que FLAPS a cause des changements. Nous ne savons pas si les organisations contribueront effectivement a la prevention du suicide chez les personnes autistes. Quelles sont les prochaines etapes ? Le programme FLAPS doit etre davantage teste afin de voir s'il fait reellement une difference pour les personnes que les organisations communautaires cherchent a aider. Nous pouvons mieux le faire grace a un vaste essai controle randomise. Comment ce travail aidera-t-il les adultes autistes maintenant ou a l'avenir ? Nous esperons que le programme FLAPS pourra aider les organisations a reduire la suicidalite et a ameliorer le bien-etre des personnes autistes dans leurs communautes. Davantage de recherches sont necessaires pour voir si le programme FLAPS peut y parvenir.

Notable proportions of autistic people experience suicidal thinking and actions (i.e., suicidality). Many of the identified influences on suicidality for autistic people necessitate broad changes in societal attitudes, services, and supports. Yet most suicide prevention efforts focus on clinical interventions targeting change for autistic individuals themselves. We used a community-based participatory research approach to develop a novel program for autism-focused (or autism-relevant) community organizations. The program is called Forming Love around Autistic people to Prevent Suicide (FLAPS). FLAPS is a four-part virtual education and capacity-building intervention focused on supporting organizations to incorporate broad autism suicide prevention efforts into their ongoing work. We pilot tested this new program in a single-arm trial. A team of autistic and non-autistic cofacilitators delivered the full FLAPS program three times to grouped organizations. Fifty-one participants, from a total of 11 organizations, enrolled in the program. Our primary outcome measure was the tailored Steps Toward Prevention—Autism Community Suicide Prevention questionnaire, administered at preprogram, postprogram, and at the 3-month follow-up. We observed significant increases, with moderate-to-high effect sizes, in knowledge and capacity and actions. The majority of participants who provided feedback (74%) agreed that FLAPS encouraged them to think in new ways, that it was worth their time, and that their organization can use the information. At the 3-month follow-up, over 75% of respondents reported that they sometimes or frequently used concepts from the program. Future work is needed to further evaluate program outcomes, including determining any measurable impact on autistic individuals served within participating organizations. Community Brief Why was this program developed? We know that suicide risk is high in the autistic community. But there is not a lot of research on how to change that. Some studies focus on trying to help autistic people who are already feeling suicidal to manage their feelings. Those studies are important, but they only look at one part of the problem. Some of the things leading autistic people to feel suicidal are outside of their control. We wanted to see if we could try to help more autistic people and maybe even reduce risk before they feel suicidal. So, we focused our program on autism organizations. We hoped that if organizations learn more and add suicide prevention into their work, we could make a difference in helping prevent suicide for autistic people. What does the program do? Our team is a partnership of academic researchers and autistic community members. Together, we developed a program called Forming Love around Autistic people to Prevent Suicide (FLAPS). FLAPS is a four-session online program for community organizations. We worked with organization teams to help them learn about suicide prevention for the autistic community. We focused on things such as how society can treat autistic people better and help their well-being. We also talked about what kinds of services and supports can help autistic people. We cover ways to help when an autistic person is already feeling suicidal. We help them bring all this information together to decide what their organization can do. How did the researchers evaluate the new program? We ran the FLAPS program three times in this pilot study. Each time, we had a few different organizations participate. In total, 51 people signed up for the program. Before and after the program, we asked participants about their knowledge, capacity (ability), and actions related to suicide prevention for the autistic community. We also asked participants for their feedback. What were the pilot study findings? From before to after the program, we saw significant increases in knowledge, capacity, and actions for suicide prevention. Most participants who gave feedback said that FLAPS helped them think in new ways and that the information will be useful. They also told us specific things that they liked and gave us suggestions for the future. What were the weaknesses of this project? This was only a pilot study. We cannot say for sure that FLAPS caused any changes. We do not know if the organizations will actually help with suicide prevention for autistic people. What are the next steps? The FLAPS program needs to be tested more to see if it really makes a difference to the people community organizations are trying to help. We can do that better with a large randomized controlled trial. How will this work help autistic adults now or in the future? We hope that the FLAPS program can help organizations reduce suicidality and improve well-being for autistic people in their communities. More research is needed to see if the FLAPS program can do that.

Bibliographie citée par cette référence

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Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 18:19.

Références citées
61
Avec un DOI
49
Sans DOI, à partir du texte brut de la bibliographie
12
10 / 61 (16,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
11 / 61 (18,0 %)
Références avec noms d’auteurices détectés
50 / 61 (82,0 %)
Sans nom d’auteurice détecté
11
Sans titre structuré
11
Sans identifiant stable
12
Références avec noms bruts d’auteurices restant à vérifier
11
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
291
À partir du DOI ou de métadonnées externes
291
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
14
132 / 291 (45,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 159 / 291 (54,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
32 / 291 (11,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 32 / 132 (24,2 %). Personnes distinctes identifiées comme autistes : 22 / 235 (9,4 %).
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