Rapport sur l'implication des patients et du public (PPI) dans les publications de recherche : utilisation des listes de contrôle GRIPP2 avec des cochercheurs non professionnels

Titre original en anglais : Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers

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Jones, J., Cowe, M., Marks, S. A., McAllister, T., Mendoza, A., Ponniah, C., Wythe, H., & Mathie, E. (2021). Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers. Research Involvement and Engagement, 7(1), 52-52. https://doi.org/10.1186/s40900-021-00295-w

Date de publication: 22/07/2021 Ajout dans AutiHub: 18/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
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Auteur·ices de la publication identifié·es comme autistes
0 / 8 (0,0 %)
  1. Julia Jones
  2. Marion Cowe
  3. Sue Anne Marks
  4. Tony McAllister
  1. Alex Mendoza
  2. Carole Ponniah
  3. Helena Wythe
  4. Elspeth Mathie

Résumé

Résumé Contexte L'implication des patients et du public (PPI) dans la recherche en santé et en soins sociaux est considérée comme importante à l'échelle internationale, et les données indiquant que la PPI améliore la qualité, la pertinence et les résultats de la recherche sont de plus en plus nombreuses. Le nombre de publications de recherche décrivant la PPI dans le processus de recherche a augmenté, mais la fréquence et le niveau de détail du rapportage de la PPI varient considérablement. Cet article rend compte d'une étude collaborative visant à décrire l'étendue de la PPI dans les publications issues de recherches financées par la Collaboration for Leadership in Applied Health Research and Care (CLAHRC) dans l'Est de l'Angleterre (EoE), qui fait partie du National Institute of Health Research (NIHR) en Angleterre (2014-2019). Méthodes Étude descriptive de toutes les publications de recherche (du 1er janvier 2014 au 31 octobre 2017) financées par le NIHR CLAHRC EoE. Les membres du groupe Public Involvement in Research (PIRg), de l'Université de Hertfordshire, ont été activement impliqués, dont quatre cochercheurs du PIRg. Nous avons utilisé une liste de contrôle de rapportage de la PPI reconnue internationalement, appelée GRIPP2 (Guidance for Reporting Involvement of Patients and the Public, Version 2), pour guider le processus d'examen. Résultats Parmi les 148 articles de recherche identifiés, 16 (14 %) rapportaient un aspect de l'activité de PPI et ont été inclus dans l'examen. Dix des publications (63 %) reconnaissaient les contributions de personnes et/ou de groupes de PPI, et cinq avaient des coauteurs de PPI. La PPI rapportée dans les publications présentait des variations considérables, avec certaines « occasions manquées » de fournir des détails sur la PPI réalisée. Les perspectives des cochercheurs ont façonné le rapportage des résultats de cette étude. Les cochercheurs ont trouvé le GRIPP2-SF (forme courte) utile, mais le GRIPP2-LF (forme longue) a été considéré comme trop complexe et peu convivial. Conclusions Il s'agit de l'une des premières études à impliquer des cochercheurs non professionnels dans l'examen du rapportage de la PPI à l'aide des listes de contrôle de rapportage GRIPP2 (GRIPP2-SF et GRIPP2-LF). Nous formulons des recommandations pour une version révisée du GRIPP2-SF, avec des instructions plus claires et trois sections supplémentaires permettant d'indiquer si la PPI est rapportée dans le résumé ou les mots-clés, dans la section des remerciements, et s'il existe des coauteurs de PPI. Nous recommandons également la mise à disposition d'une formation et d'un soutien pour les évaluateurs par les pairs patients et publics.

Abstract Background Patient and public involvement (PPI) in health and social care research is considered important internationally, with increasing evidence that PPI improves the quality, relevance and outcomes of research. There has been a growth in research publications that describe PPI in the research process, but the frequency and detail of PPI reporting varies considerably. This paper reports on a collaborative study that aimed to describe the extent of PPI in publications from research funded by the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) in the East of England (EoE), part of the National Institute of Health Research (NIHR) in England (2014–2019). Methods A descriptive study of all research publications (1st January 2014 to 31st October 2017) funded by the NIHR CLAHRC EoE. Members of the Public Involvement in Research group (PIRg), at the University of Hertfordshire, were actively involved, with four PIRg co-researchers. We used an internationally recognised reporting checklist for PPI called the GRIPP2 (Guidance for Reporting Involvement of Patients and the Public, Version 2) to guide the reviewing process. Results Out of 148 research papers identified, 16 (14%) reported some aspect of PPI activity and were included for review. Ten of the publications (63%) acknowledged the contributions of PPI individuals and/or groups and five had PPI co-authors. There was considerable variation in the PPI reported in the publications, with some ‘missed opportunities’ to provide detail of PPI undertaken. The perspectives of the co-researchers shaped the reporting of the results from this study. The co-researchers found the GRIPP2-SF (short form) to be useful, but the GRIPP2-LF (long form) was considered over complicated and not user-friendly. Conclusions This is one of the first studies to involve lay co-researchers in the review of PPI reporting using the GRIPP2 reporting checklists (GRIPP2-SF and GRIPP2-LF). We make recommendations for a revised version of the GRIPP2-SF, with clearer instructions and three additional sections to record whether PPI is reported in the abstract or key words, in the acknowledgements section, and whether there are PPI co-authors. We also recommend the provision of training and support for patient and public peer reviewers.

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