Assessing the feasibility of a co-produced peer-group intervention for supporting wellbeing during the transition to adulthood among autistic 16–25-year-olds (ATAG): a randomised controlled feasibility trial
Cooper, K., VanDaalen, R. A., Burnley, A., Allain, L., Beresford, B., Crane, L., Islaam, L., Morales, M. V., Portway, L., Redmayne, B. J. M., Russell, A., & Mandy, W. (2026). Assessing the feasibility of a co-produced peer-group intervention for supporting wellbeing during the transition to adulthood among autistic 16–25-year-olds (ATAG): a randomised controlled feasibility trial. eClinicalMedicine, 94, 103859. https://doi.org/10.1016/j.eclinm.2026.103859
This publication is integrated into AutiHub through:
Authors
Abstract
Background: Autistic people, including those without intellectual disability, face challenges during the transition to adulthood, and experience poor adult outcomes. We conducted a feasibility trial of a novel co-produced peer group intervention to support the transition to adulthood in autistic people. Methods: Autistic 16- to 25-year-olds were recruited to this feasibility randomised controlled trial via autism charities and research databases in England and Wales. Participants needed sufficient literacy abilities to be able to access the intervention materials. Participants were randomly assigned (1:1), via an online randomisation service, stratified by age (16–17 and 18–25 years) to the peer group intervention or care as usual (CAU). Participants in both arms could access CAU, which was the routine care offered to autistic 16–25 year-olds in their region, and so varied by participant. The intervention comprised six hour-long online peer group psychoeducation sessions to improve autism knowledge, autism social identity, and self-advocacy skills. The main outcomes of this feasibility trial were as follows: recruitment and retention rates; the acceptability of randomisation and outcome measurement procedures; CAU accessed by participants; acceptability of the interventions; and clinical outcome measure variances. Clinical outcome measures were collected at baseline, and 8-, 16-, and 24-weeks after randomisation. The primary clinical outcome measure was wellbeing at 16-weeks, using the Warwick Edinburgh Wellbeing Scale [WEMWBS], and all randomised participants were included in the analyses. A co-produced qualitative study investigated trial experiences. The trial is registered with the International Standard Randomised Controlled Trial Number [ISRCTN] registry, ISRCTN10513626. Findings: Seventy participants were recruited between 1st November 2023 and 10th June 2024 (n = 35 per arm). At 16-weeks, the primary clinical outcome measure (wellbeing score) was completed by 74% (n = 26) of the intervention group and 91% (n = 32) of the CAU group. In terms of CAU, across both arms, participants were most likely to have used medications and primary and community care. Adverse events were comparable between arms (intervention group: 6, CAU group: 7). Qualitative feedback indicated that both study procedures and the intervention itself were acceptable. Interpretation: A full trial appears to be feasible. Limitations including retention in the intervention arm and limited sample representativeness would need to be addressed for a full trial.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.
-
Patricia Howlin , Philippa Moss (2012). Adults with Autism Spectrum Disorders . The Canadian Journal of Psychiatry, 57(5), 275-283. SAGE Publications.Crossref OpenAlex
-
Alasdair Churchard , Morag Ryder , Andrew Greenhill , Will Mandy (2019). The prevalence of autistic traits in a homeless population . Autism, 23(3), 665-676. SAGE Publications.Crossref OpenAlex
-
M. Herdman , C. Gudex , Anthony Lloyd , MF. Janssen , P. Kind , D. Parkin et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L) . Quality of Life Research, 20(10), 1727-1736. Springer Science and Business Media LLC.Crossref OpenAlex
-
Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.Crossref OpenAlex
-
Alissa Levy , Adrienne Perry (2011). Outcomes in adolescents and adults with autism: A review of the literature . Research in Autism Spectrum Disorders, 5(4), 1271-1282. Elsevier BV.Crossref OpenAlex
-
Ruth Tennant , Louise Hiller , Ruth Fishwick , Stephen Platt , Stephen Joseph , Scott Weich et al. (2007). The Warwick-Edinburgh Mental Well-being Scale (WEMWBS): development and UK validation . Health and Quality of Life Outcomes, 5(1), 63-63. Springer Science and Business Media LLC.Crossref OpenAlex
-
H. ‐C. Steinhausen , C. Mohr Jensen , M. B. Lauritsen (2016). A systematic review and meta‐analysis of the long‐term overall outcome of autism spectrum disorders in adolescence and adulthood . Acta Psychiatrica Scandinavica, 133(6), 445-452. Wiley.Crossref OpenAlex
-
Stacey E. Rand , Juliette N. Malley , Ann P. Netten , Julien E. Forder (2015). Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) . Quality of Life Research, 24(11), 2601-2614. Springer Science and Business Media LLC.Crossref OpenAlex
-
Laura Crane , Fern Adams , Georgia Harper , Jack Welch , Elizabeth Pellicano (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England . Autism, 23(2), 477-493. SAGE Publications.Crossref OpenAlex
-
Colin Wayne Leach , Martijn van Zomeren , Sven Zebel , Michael L. W. Vliek , Sjoerd F. Pennekamp , Bertjan Doosje et al. (2008). Group-level self-definition and self-investment: A hierarchical (multicomponent) model of in-group identification. Journal of Personality and Social Psychology, 95(1), 144-165. American Psychological Association (APA).Crossref OpenAlex
-
M Dawn Teare , Munyaradzi Dimairo , Neil Shephard , Alex Hayman , Amy Whitehead , Stephen J Walters (2014). Sample size requirements to estimate key design parameters from external pilot randomised controlled trials: a simulation study . Trials, 15(1), 264. Springer Science and Business Media LLC.Crossref OpenAlex
-
Laura Crane , Richard Batty , Hanna Adeyinka , Lorna Goddard , Lucy A. Henry , Elisabeth L. Hill (2018). Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals . Journal of Autism and Developmental Disorders, 48(11), 3761-3772. Springer Science and Business Media LLC.Crossref OpenAlex
-
Maria Luisa Scattoni , Martina Micai , Antonio Ciaramella , Tommaso Salvitti , Francesca Fulceri , Laura Maria Fatta et al. (2021). Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study . Journal of Autism and Developmental Disorders, 51(11), 4129-4146. Springer Science and Business Media LLC.Crossref OpenAlex
-
Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.Crossref OpenAlex
-
Kristy A. Anderson , Collette Sosnowy , Alice A. Kuo , Paul Shattuck (2018). Transition of Individuals With Autism to Adulthood: A Review of Qualitative Studies . Pediatrics, 141(Supplement_4), S318-S327. American Academy of Pediatrics (AAP).Crossref OpenAlex
-
Collette Sosnowy , Chloe Silverman , Paul Shattuck (2018). Parents’ and young adults’ perspectives on transition outcomes for young adults with autism . Autism, 22(1), 29-39. SAGE Publications.Crossref OpenAlex
-
Jade Eloise Norris , Rebecca Harvey , Laura Hull (2025). Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis . Autism, 29(2), 284-309. SAGE Publications.Crossref OpenAlex
-
Diego González‐Rodríguez , Cintia Pereira Marqués , Jorge Carlos Lafuente (2025). Transition from upper secondary to university in students who identify as autistic: A systematic review . Journal of Research in Special Educational Needs, 25(1), 145-158. Wiley.Crossref OpenAlex
-
Monique Botha *Autistic author. Learn more… , Bridget Dibb , David M. Frost (2022). ‘It’s being a part of a grand tradition, a grand counter-culture which involves communities’: A qualitative investigation of autistic community connectedness . Autism, 26(8), 2151-2164. SAGE Publications.
-
Laura Hull , Will Mandy , Meng-Chuan Lai , Simon Baron-Cohen , Carrie Allison , Paula Smith et al. (2019). Development and Validation of the Camouflaging Autistic Traits Questionnaire (CAT-Q) . Journal of Autism and Developmental Disorders, 49(3), 819-833. Springer Science and Business Media LLC.Crossref OpenAlex
-
Davies (2024). The codesign and initial evaluation of a peer support program for autistic young adults . Autism Adulthood, 7, 650.Type: OtherCrossref
-
Monique Botha *Autistic author. Learn more… , Eilidh Cage (2022). Autism research is in crisis: A mixed method study of researcher’s constructions of autistic people and autism research. Front. Psychol., 13.Type: Other DOI: 10.3389/fpsyg.2022f.1050897 OpenAlex: https://openalex.org/W4309855376 Crossref: not found DataCite: not found
-
Kate Cooper , Annabel Burnley , Leon Allain , Bryony Beresford , Laura Crane , Maximiliano Vazquez Morales et al. (2024). Autism Transition to Adulthood Groups (ATAG): protocol for a feasibility RCT of a new peer-group intervention to promote successful transition to adulthood for autistic young people . BMJ Open, 14(11), e089802. BMJ.Crossref OpenAlex
-
Cameron A Maitland , Sinéad Rhodes , Anne O’Hare , Mary E. Stewart (2021). Social identities and mental well-being in autistic adults . Autism, 25(6), 1771-1783. SAGE Publications.Crossref OpenAlex
-
Dan Russell , Letitia A. Peplau , Carolyn E. Cutrona (1980). The revised UCLA Loneliness Scale: Concurrent and discriminant validity evidence. Journal of Personality and Social Psychology, 39(3), 472-480. American Psychological Association (APA).Crossref OpenAlex
-
Kate Cooper , Ailsa Russell , Jiedi Lei , Laura GE Smith (2023). The impact of a positive autism identity and autistic community solidarity on social anxiety and mental health in autistic young people . Autism, 27(3), 848-857. SAGE Publications.Crossref OpenAlex
-
Jade Davies , Kate Cooper , Estelle Killick , Evelyn Sam , Molly Healy , Grace Thompson *Autistic author. Learn more… et al. (2024). Autistic identity: A systematic review of quantitative research . Autism Research, 17(5), 874-897. Wiley.
-
Cohen (1985). Measuring the functional components of social support .Type: OtherCrossref
-
Beecham (1992). Costing psychiatric interventions .Type: OtherCrossref
-
Beresford (2020). Evaluating Specialist Autism Teams' Provision of Care and Support for Autistic Adults without Learning Disabilities: the SHAPE Mixed-Methods Study .Type: OtherCrossref