Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants

This publication is included in the Autistic Autism Scholarship Project. four authors of this publication are identified as autistic in the project.

About the autistic author marker

Grant, A., Williams, G., Williams, K., & Woods, R. (2023). Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants. In Social Policy Review 35 (pp. 239-257). Policy Press. https://doi.org/10.51952/9781447369219.ch012

Publication date: 30 Jun 2023 Added to AutiHub: 5 Jul 2026 Type: Book chapter Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
4
Publication authors identified as autistic
4 / 4 (100.0%)

Abstract

Around 2% of people are Autistic, but to date the impact of being Autistic on social policy receipt has not yet been considered. We, a group of Autistic academics, consider epistemic injustice, where Autistic input is excluded from the policy making process, to be a core part of Autistic disablement. We consider the impact of this using a modern iteration of Beveridge’s Five Giants: health (disease), education (ignorance), employment (idleness), poverty (want), and housing (squalor). Starting with lack of access to diagnosis and healthcare for co-occurring conditions, we identify policies that fail to account for known Autistic needs in each policy area. These failures have a cumulative impact throughout the life course; lack of accommodations within education leads to less likelihood of securing accessible employment, and greater reliance on government financial support and housing assistance. Furthermore, this impact will be increased for Autistic people who are multiply marginalised due to intersectionality. We propose changes to the policy-making process to ensure that it reflects Autistic needs and realities, allowing for the emancipation of Autistic people. We theorise that if this were to happen, the Autistic suicide rate, which is nine times that of non-Autistic people, would decline.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
29
With a DOI
29
Without a DOI, from raw bibliography text
0
7 / 29 (24.1%) cited references include at least one author identified as autistic.
References with data to complete
0 / 29 (0.0%)
References with detected author names
29 / 29 (100.0%)
Without detected author names
0
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
73
From DOI or external metadata
73
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
34 / 73 (46.6%) names are linked to an author already present in AutiHub. 39 / 73 (53.4%) names are not yet linked.
Names linked to a person identified as autistic
11 / 73 (15.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 11 / 34 (32.4%). Distinct people identified as autistic: 10 / 71 (14.1%).
  1. Mariafrancesca Sicilia , Enrico Guarini , Alessandro Sancino , Martino Andreani , Renato Ruffini (2016). Public services management and co-production in multi-level governance settings . International Review of Administrative Sciences, 82(1), 8-27. SAGE Publications.
    OpenAlex
  2. Manuel Madriaga , Dan Goodley (2010). Moving beyond the minimum: socially just pedagogies and Asperger’s syndrome in UK higher education . International Journal of Inclusive Education, 14(2), 115-131. Informa UK Limited.
    OpenAlex
  3. Jon Warren , Kayleigh Garthwaite , Clare Bambra (2014). After Atos Healthcare: is the Employment and Support Allowance fit for purpose and does the Work Capability Assessment have a future? Disability & Society, 29(8), 1319-1323. Informa UK Limited.
    OpenAlex
  4. Francesca Happé , Rebecca A. Charlton (2012). Aging in Autism Spectrum Disorders: A Mini-Review . Gerontology, 58(1), 70-78. S. Karger AG.
    OpenAlex
  5. A. G. B. , William Beveridge (1943). Social Insurance and Allied Services . International Affairs Review Supplement, 19(11), 581. Oxford University Press (OUP).
    Type: Article DOI: 10.2307/3026316 OpenAlex: https://openalex.org/W2100266079
    OpenAlex
  6. Ann M. Mulder , Andrew Cashin (2014). The Need to Support Students with Autism at University . Issues in Mental Health Nursing, 35(9), 664-671. Informa UK Limited.
    OpenAlex
  7. Fiona Robards , Melissa Kang , Tim Usherwood , Lena Sanci (2018). How Marginalized Young People Access, Engage With, and Navigate Health-Care Systems in the Digital Age: Systematic Review . Journal of Adolescent Health, 62(4), 365-381. Elsevier BV.
    OpenAlex
  8. DAVID S. MANDELL (2018). Dying before their time: Addressing premature mortality among autistic people . Autism, 22(3), 234-235. SAGE Publications.
    OpenAlex
  9. Laura William , Birgit Pauksztat , Susan Corby (2019). Justice obtained? How disabled claimants fare at Employment Tribunals . Industrial Relations Journal, 50(4), 314-330. Wiley.
    OpenAlex
  10. Kate Allsopp , Peter Kinderman (2021). The use of diagnoses in mental health service eligibility and exclusion criteria . Journal of Mental Health, 30(1), 97-103. Informa UK Limited.
    OpenAlex
  11. Nick Bailey (2020). Poverty and the re-growth of private renting in the UK, 1994-2018 . PLOS ONE, 15(2), e0228273. Public Library of Science (PLoS).
    OpenAlex
  12. Desiree R Jones , DAVID S. MANDELL (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    OpenAlex
  13. Joshua P. Byrne (2022). Perceiving the social unknown: How the hidden curriculum affects the learning of autistic students in higher education . Innovations in Education and Teaching International, 59(2), 142-149. Informa UK Limited.
    OpenAlex
  14. Marie Djela (2021). Change of autism narrative is required to improve employment of autistic people . Advances in Autism, 7(1), 86-100. Emerald.
    OpenAlex
  15. Rhoda von Below , Elliott Spaeth , Chiara Horlin (2024). Autism in Higher Education: dissonance between educators’ perceived knowledge and reported teaching behaviour . International Journal of Inclusive Education, 28(6), 940-957. Informa UK Limited.
    OpenAlex
  16. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2022). A systematic review of healthcare professionals’ knowledge, self-efficacy and attitudes towards working with autistic people . Review Journal of Autism and Developmental Disorders, 9(3), 386. Springer Science and Business Media LLC.
    OpenAlex
  17. Philippa L Howard , Felicity Sedgewick (2021). ‘Anything but the phone!’: Communication mode preferences in the autism community . Autism, 25(8), 2265-2278. SAGE Publications.
    OpenAlex
  18. Amy Clair (2022). The effect of local housing allowance reductions on overcrowding in the private rented sector in England . International Journal of Housing Policy, 22(1), 119-137. Informa UK Limited.
    OpenAlex
  19. Teodor Mladenov , Ciara Siobhan Brennan (2021). Social vulnerability and the impact of policy responses to COVID‐19 on disabled people . Sociology of Health & Illness, 43(9), 2049-2065. Wiley.
    OpenAlex
  20. Elisabeth Garratt , Jan Flaherty (2023). ‘There’s nothing I can do to stop it’: homelessness among autistic people in a British city . Disability & Society, 38(9), 1558-1584. Informa UK Limited.
    OpenAlex
  21. Cheryl A. Camillo (2018). Street-Level Bureaucracy . In Global Encyclopedia of Public Administration, Public Policy, and Governance (pp. 5780-5784). Springer International Publishing.
    OpenAlex
  22. Kristy A. Anderson , Jessica E. Rast , Anne M. Roux , Tamara Garfield , Paul Shattuck (2020). National Autism Indicators Report: Children on the autism spectrum and family financial hardship . A.J. Drexel Autism Institute.
    OpenAlex