Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants

Grant, A., Williams, G., Williams, K., & Woods, R. (2023). Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants. In Social Policy Review 35 (pp. 239-257). Policy Press. https://doi.org/10.51952/9781447369219.ch012

Publication date: 30 Jun 2023 Added to AutiHub: 5 Jul 2026 Type: Book chapter Article language: English

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Authors

Publication authors
4
Publication authors identified as autistic
4 / 4 (100.0%)

Abstract

Around 2% of people are Autistic, but to date the impact of being Autistic on social policy receipt has not yet been considered. We, a group of Autistic academics, consider epistemic injustice, where Autistic input is excluded from the policy making process, to be a core part of Autistic disablement. We consider the impact of this using a modern iteration of Beveridge’s Five Giants: health (disease), education (ignorance), employment (idleness), poverty (want), and housing (squalor). Starting with lack of access to diagnosis and healthcare for co-occurring conditions, we identify policies that fail to account for known Autistic needs in each policy area. These failures have a cumulative impact throughout the life course; lack of accommodations within education leads to less likelihood of securing accessible employment, and greater reliance on government financial support and housing assistance. Furthermore, this impact will be increased for Autistic people who are multiply marginalised due to intersectionality. We propose changes to the policy-making process to ensure that it reflects Autistic needs and realities, allowing for the emancipation of Autistic people. We theorise that if this were to happen, the Autistic suicide rate, which is nine times that of non-Autistic people, would decline.

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
29
Total cited references integrated for this publication.
Cited references with an identified autistic author
5 / 29 (17.2%)
Cited author occurrences identified as autistic
8 / 73 (11.0%)
Among occurrences linked to AutiHub author records: 8 / 30 (26.7%). Distinct cited authors identified as autistic: 7 / 71 (9.9%).
Cited author occurrences linked to AutiHub author records
30 / 73 (41.1%)
Distinct linked cited authors: 28 / 71 (39.4%)
Linked cited-author occurrences not identified as autistic
22 / 30 (73.3%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 22 / 73 (30.1%). Distinct linked cited authors not identified as autistic: 21 / 28 (75.0%).
  1. Mariafrancesca Sicilia , Enrico Guarini , Alessandro Sancino , Martino Andreani , Renato Ruffini (2016). Public services management and co-production in multi-level governance settings . International Review of Administrative Sciences, 82(1), 8-27. SAGE Publications.
    OpenAlex
  2. Manuel Madriaga , Dan Goodley (2010). Moving beyond the minimum: socially just pedagogies and Asperger’s syndrome in UK higher education . International Journal of Inclusive Education, 14(2), 115-131. Informa UK Limited.
    OpenAlex
  3. Jon Warren , Kayleigh Garthwaite , Clare Bambra (2014). After Atos Healthcare: is the Employment and Support Allowance fit for purpose and does the Work Capability Assessment have a future? Disability & Society, 29(8), 1319-1323. Informa UK Limited.
    OpenAlex
  4. Francesca Happé , Rebecca A. Charlton (2012). Aging in Autism Spectrum Disorders: A Mini-Review . Gerontology, 58(1), 70-78. S. Karger AG.
    OpenAlex
  5. A. G. B. , William Beveridge (1943). Social Insurance and Allied Services . International Affairs Review Supplement, 19(11), 581. Oxford University Press (OUP).
    Type: Article DOI: 10.2307/3026316 OpenAlex: https://openalex.org/W2100266079
    OpenAlex
  6. Ann M. Mulder , Andrew Cashin (2014). The Need to Support Students with Autism at University . Issues in Mental Health Nursing, 35(9), 664-671. Informa UK Limited.
    OpenAlex
  7. Fiona Robards , Melissa Kang , Tim Usherwood , Lena Sanci (2018). How Marginalized Young People Access, Engage With, and Navigate Health-Care Systems in the Digital Age: Systematic Review . Journal of Adolescent Health, 62(4), 365-381. Elsevier BV.
    OpenAlex
  8. David S. Mandell (2018). Dying before their time: Addressing premature mortality among autistic people . Autism, 22(3), 234-235. SAGE Publications.
    OpenAlex
  9. David Mason , Helen McConachie , Deborah Garland , Alex Petrou , Jacqui Rodgers , Jeremy R. Parr (2018). Predictors of quality of life for autistic adults . Autism Research, 11(8), 1138-1147. Wiley.
    Type: Article DOI: 10.1002/aur.1965 OpenAlex: https://openalex.org/W2800039438
    OpenAlex
  10. Laura William , Birgit Pauksztat , Susan Corby (2019). Justice obtained? How disabled claimants fare at Employment Tribunals . Industrial Relations Journal, 50(4), 314-330. Wiley.
    OpenAlex
  11. Kate Allsopp , Peter Kinderman (2021). The use of diagnoses in mental health service eligibility and exclusion criteria . Journal of Mental Health, 30(1), 97-103. Informa UK Limited.
    OpenAlex
  12. Nick Bailey (2020). Poverty and the re-growth of private renting in the UK, 1994-2018 . PLOS ONE, 15(2), e0228273. Public Library of Science (PLoS).
    OpenAlex
  13. Desiree R. Jones , David S. Mandell (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    OpenAlex
  14. Joshua P. Byrne (2022). Perceiving the social unknown: How the hidden curriculum affects the learning of autistic students in higher education . Innovations in Education and Teaching International, 59(2), 142-149. Informa UK Limited.
    OpenAlex
  15. Marie Djela (2021). Change of autism narrative is required to improve employment of autistic people . Advances in Autism, 7(1), 86-100. Emerald.
    OpenAlex
  16. Rhoda von Below , Elliott Spaeth , Chiara Horlin (2024). Autism in Higher Education: dissonance between educators’ perceived knowledge and reported teaching behaviour . International Journal of Inclusive Education, 28(6), 940-957. Informa UK Limited.
    OpenAlex
  17. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2022). A Systematic Review of Healthcare Professionals’ Knowledge, Self-Efficacy and Attitudes Towards Working with Autistic People . Review Journal of Autism and Developmental Disorders, 9(3), 386-399. Springer Science and Business Media LLC.
    OpenAlex
  18. Philippa L Howard , Felicity Sedgewick (2021). ‘Anything but the phone!’: Communication mode preferences in the autism community . Autism, 25(8), 2265-2278. SAGE Publications.
    OpenAlex
  19. Amy Clair (2022). The effect of local housing allowance reductions on overcrowding in the private rented sector in England . International Journal of Housing Policy, 22(1), 119-137. Informa UK Limited.
    OpenAlex
  20. Teodor Mladenov , Ciara Siobhan Brennan (2021). Social vulnerability and the impact of policy responses to COVID‐19 on disabled people . Sociology of Health & Illness, 43(9), 2049-2065. Wiley.
    OpenAlex
  21. Elisabeth Garratt , Jan Flaherty (2023). ‘There’s nothing I can do to stop it’: homelessness among autistic people in a British city . Disability & Society, 38(9), 1558-1584. Informa UK Limited.
    OpenAlex
  22. Cheryl A. Camillo (2018). Street-Level Bureaucracy . In Global Encyclopedia of Public Administration, Public Policy, and Governance (pp. 5780-5784). Springer International Publishing.
    OpenAlex
  23. Ru Ying Cai , Emma Gallagher , Kaaren Haas , Abigail M.A. Love , Vicki Gibbs (2023). Exploring the income, savings and debt levels of autistic adults living in Australia . Advances in Autism, 9(1), 53-64. Emerald.
    OpenAlex
  24. Kristy A. Anderson , Jessica E. Rast , Anne M. Roux , Tamara Garfield , Paul Shattuck (2020). National Autism Indicators Report: Children on the autism spectrum and family financial hardship . A.J. Drexel Autism Institute.
    OpenAlex